Yep - first one tomorrow, in at 10, out around 5 I think… and they don’t provide sarnies!!!
Live chat tonight!!
Td xx
good to talk tonight. Hope everything goes well tomorrow. I didnt know it takes so long. I am getting nervous for you.
dont forget I will be there with you chuck
Love and hugs
Bridie
Good luck for tomorrow Td, hope it all goes well, take a picnic LOL.
You can fill me in on it all before Wed.
I really must try and get onto the live chats.
Pam that is fantastic news, at least it’s 1 less thing to worry about.
Bring on the chemo hunny, or are you feeling apprehensive about it?
Hello everyone else. How are we all doing?
Lisa
xoxo
Hi Lisa and all
We are over the moon with the result of no infected nodes - but yes - I will still have to have the chemo - see the onc next week - am hoping the drugs she prescribes are not as aggressive as some can be - however, I got me mop chopped real short yesterday - so much easier to look after - in preparation for the chemo - I’m a lot less aprehensive about it than I would be if they had found some infected nodes - but still dreading it!
Pam
xxxxx
i see onc on wednesday. My mate is going to crop me in the evening if they say theres even a remote chance of hair loss. Just so its not too much of a shock. My hubbys not sleeping very well. Not that hes not sleeping just not good qulaity sleep. Says hes so worried about me, so thats now got me wprried about him
Cant win. just as I was starting to sleep without the tablets as well. Selfish cow or what.
Don’t worry too much Bridie - what will be will be…
I’ve not got my hair cut for 2 reasons - one is that I really hate it short (so that’ll be a bugger when it grows back!!) and the other is that WHAT IF it DOESN’T fall out - then I’d have short hair for no reason. Mind you most people who have a drastic cut generally like the change!!
Mine is going to go though - I have been reassured of that by my onc!!
i have a nice wig and scarves etc… oh god…!
Love Td x
I just wanted to wish any ladies good luck if they are having chemo this week. Keep your peckers up girlies.
I am off to have a bone scan on Tuesday, so please wish me luck with that and keep fingers crossed.
I just wanted to add, why are my nails so beautiful at the moment? I’ve wanted lovely long, strong nails all my life and until I found out I had cancer they just never grew, but now they are fantastic. Simple pleasures eh?
HI Peacock good luck with scan. I have only just noticed the same abour my nails, awful until now. Yesterday had to file and shape them and they are fab!!! all buffed up lovely.
Td, do you have a good head of hair, mine is thin and fine (and grey)
Hi everyone
can i just ask …how the hell do you get on live chat ???/
sal x
Hi mallysally
Here’s the link to how you can use live chat.
breastcancercare.org.uk/content.php?page_id=6218
Kind regards,
Jo, Facilitator
give one of us ashout on thursday before 9 and we’ll talk you thru it
oh but not me cos I wont be here. going carving while I can
Hey Sal - would be nice to have you on chat !!!
I had to folow the moderators guidelines the first 2 times and it worked, but it is quite easy if you folow the menu from the right hand side of the log in page. i get to the ‘log into live chat’ page early though because if I try too near to 9pm I miss it!!! You can’t log on until 9 though…
hope to see you there!
td xx
Hey Bridie -
I have mid length dark brown hair that I’ve always had a tempestuous relationship with, but I can’t imagine how it’ll be to look in the mirror and not know who I’m looking at…!!
Funy though because I’m hearing a whole load of new platitudes now, like ’ you have such great bone structure - you’ll be stunning without hair’ and ‘with your fine features you’ll look just great’
How do they KNOW??? What rubbish! I’ll look like Harry Hill or Gollem… thank god for the wig!!
Td xxx
Hi td yea know what you mean … every one that no’s me have said that you will look a foxy chick when i go bold…i keep thinking yea right …more like cojack … with no eye brows and lashes mmmmmmmmmmm very nice indeed…
Any way i will try and get on to live chat tonite …can you go on every night or is it just some nite’s ??
well chat soon …
sal x
sal - chat is on a THURSDAY night - maybe that’s where you’re going wrong!!!
xx
got ya … ok will try thursday…
billy bong aint i …
thanks
x
Hi all
I was invited to trial TACT2 at Chrisites in Manchester, but reading all the ins and outs have decided to go for EPI amd CMF at Bolton instead. Better the devil you know and all that.
Just waiting for start date.
Doesnt matter about how thick my hair is now, they dont have cold cap at bolton and it didnt sound that fantastic when they described it to me.
As my sister in law said to me a few weeks ago “what fun I’ll have choosing a wig”. Bugger off.
Give me a good short hair cut till it goes and a bright bandana when its gone.
Lad at work said he will shave his head so we will be twins. Bless hes only 20. Love him to bits.
The ear thing they think is just a bad infection, but i now know my nose leans into the right side of my face.
How as everyone faired on EPI. should I go back to work?
You must be relieved to have now got a plan, despite all the misgivings Bridie…
My ‘compatriate’ here in Bristol is having epi & CMF - she’s on the standard branch of the trial. This week she feels fine but I think that with all chemo it is very individual and you just need to see how it goes for you - I’m not feeling so great today… also it does tend to be accumulative so you need to see if you get tired.
Also - think about what work you do; my employer won’t allow us to work through chemo, but i’m in a position where I get full pay for 6 months anyway, then half pay for 6 months… maybe discuss it with your HR dept??
I do hope you rest well tonight and aren’t feeling too bombed out by the prospects…
Much love Td xxx
Hello everyone,
just thought I’d pop on and report how I am feeling.
The day got off to an OK start, had my interview and there were only 7 on the panel so not too bad, will know tomorrow but not holding out much hope.
Then rushed back home changed dropped the little lady off at my mum’s and then up to the hospital.
Got called about 11.15 to do height and weight so they could mix the cocktail right, I have put on 6kg since my first op on 23rd April.
Then went to the hairdresser but not sure the wig is me, my mum is coming next week when I am going to get it so she can have her say.
Then they hadn’t got my notes so had to wait for them to be sent.
Saw the Dr, not onc, who went over all the side effects again and then I signed my life away.
They gave us a bit of lunch and then about 1ish I was eventually taken down to the chair, lol.
I got out about 2.30.
They had to have 2 attempts at getting the butterfly in but once in felt nothing going in until the last one.
Had about 8 syringes in total, 5 anti cancer and then the steroids and anti sickness and saline flush.
Then let go.
Came home and slept but the nausea has been building up since, I’ve taken an anti sickness tablet but didn’t help, been sick once and can feel it coming again.
But other than that feeling fine.
So on the note I will love and leave.
Bridie - glad you have something to work towards.
Sorry not mentining everyone am trying to stop the icky feeling.
Love and hugs
Lisa
xoxo