OK I know this has probably been asked before but when did everyone else’s hair start to fall out? I am now day 12 after first AC and no sign yet, I keep checking my pillow through the night when the lackofsleep gremlin visits and again in the morning and am paranoid.
Funny how lackofsleep gremlin disappears during the day and I crash out on the sofa though. If anyone sees him can they lock him in with NE please?
It varies a lot, but day 18 is supposed to be typical. It can be fairly gradual at first or even all the way through, but some people have a shower and find half their hair clogging the drain. You may just experience thinning for a while and then find that patched fall out, for example. The same applies to body hair–batches or patches may come out all at once, or it may just thin. A lot of people notice an itchy or prickly sensation before hair loss actually begins, and your scalp may be quite sensitive for a while. Of course, different types of chemo may have different patterns on top of the individual patterns. I still have a thin fuzz on my head after FEC5, but it gets thinner all the time.
Cheryl
Thanks Cheryl, its itching badly tonight but I suffer with eczema on my head anyway so am not too sure (yeah thats going to be nice with no hair!).
hi
i had my first corse of fec 2 weeks ago my hair’s not fallen out yet but it feels thinner my head hurts its very tender im glad im not the only one who the lackofsleep gremlin visits lol he’s in my room every night wish he’d go away lol
One bright thought, you can apply your cream without hair in rthe way joC.
SB I’m divorced too, very stressful, both living in the same house for a year and hating it. Butbthat was 7 years ago.
Pat
That is true. I could do with a few bright thoughts at the moment, having a bad day today.
Hi peeps. Just reading through several pages as I have been out of the woods a bit this weekend. This BC is a tough call so sometimes we have to step back and decide what is important for us right now.
Happy Mother’s day to all mothers. I don’t know if you are the same, but I felt more emotional today and really cherished the time we spent together. I plan to be around for at least 50 more Mother’s days but am aware that it isn’t my choice to make.
Tax (poison no 5) tomorrow I am full of dexameth and have ants in my pants, can’t sit still. Good luck anyone Feccing and Taxing and or other tomorrow. I shall be awake all night so I will be out with the flame throwers and reminding kind fairies to help with SE’s.
SB I am 49 and on OH number 3. Got married at 19 and had 5 lovely children in 6 years(inc twins). He left me for a pretty girl at work and the children grew up without him as he couldn’t cope with seeing them. I did fine with the help of grandparents and they are now all grown up and independent and more importantly good people. OH no 2 at age 40. We didn’t live together because of children, but when we decided to, it went wrong within months. OH no 3 is the love of my life and just when we couldn’t be happier BC comes along. Sometimes you have to make tough decisions because as we now know, life is precious and we need to enjoy every day… of the next 50 or 60+ years. Sounds really selfish, but it’s all about me now and I’m delighted that OH is OK with this.
Jo C I had FEC and had hair shedding about day 14 ish. Wandy, hoping to hear from you with good news very soon! x
Group hug time! we are all doing great and don’t forget it!`
Hi all,
Peachez - thanks for asking after me - I’m feeling a whole lot better now, still got no sense of taste and slightly numb lips and am horrendously tired, but otherwise almost human - I’m even going back to work tomorrow for a week or so before Tax 2. I’ve been out most of today so not posted.
I’ve been happily married for almost 20 years. My husband was made redundant in a very acrimonious fashion almost exactly two years before my DX and was out of work for five months by which time we were almost at the point of putting the house on the market. His new job pays a lot less so we’ve had money worries ever since and we’re both still very bitter about the whole affair. I’ve always thought that cancer can have a large stress element in its causes (maybe the last straw that sets it off).
Good luck to Shar for FEC tomorrow and Wandy for surgery - may the ClearMargins be with you.
SB - I really hope it all works out for the best for you, whichever way that is. I think we’ve all had to re-evaluate our lives to some extent - somehow everything is thrown into very sharp relief.
Jane xxx
Evening Campers!
I hope you’ve all had a good Mothering Sunday and been spoilt rotten. I’ve had a great day with my Mum and Kids, even if it didn’t quite go to plan.
FEC3 has been giving me major wobbles emotionally but as the injection SE’s seem to be passing now in a haze of paracetamol and neurofen life is slowly improving. I’m still not looking forward to next 3 and am in same camp as SB with wanting to flamethrower the I’vehad3pleasedoIhavetohavemore gremlin??
I’ve been wondering on the stress thing, I’d got divorced 8 years ago but split with my long-term partner about 2 weeks before DX, we’d had a cr*p 6 months prior since he’d had an accident with a chainsaw and (as I discovered later) met someone else whilst on holiday with his parents. (I’d assumed, as he’d a history of depression he was being distant because of the accident - wrong!)
I now see it was the best thing as he’d not have coped and I’d then have been even more stressed over that.
There are so many variables to this cr*p disease, who knows whether our circumstances have played a part, all I know is I want as few people to get it as possible.
I hope all of us having any treatment or appointments this week, that they go ok and the se’s are minimal.
Be thinking of you
Love
XXHelenXX
Evening everyone- I have been staying firmly out of the woods for a few days to make the most of actually feeling normal for a short time. Will have one last conference call for work in the morning while I still have a brain, before I go for my meeting with the grand master of good poisons to see what lovely cocktail he is planning to pump into me. The trouble is, after feeling so well the last few days, and having a lovely day today with my daughters, I also have a ireallydontwanttoplaythisgame lurking at my shoulder tonight!
Hope chemo goes well for SCACO and Silvershar and anyone else joining me in the wizards tent tomorrow, and goodluck to Wandy for your op.
Sue x
Evening everyone,
Hope you’ve all had a lovely day however it was spent.
Thankyou everyone for good wishes for tomoro. In at 7.00am, just hope that I get an early slot and don’t have to wait till late afternoon with nothing to eat or drink!! Will keep all informed! MG love our new piccy!
Yes, Yes, Yes,! stress is definitely a trigger as far as I’m concerned. I probably had some of the indicators, ate too much, went through a 2nd divorce, drank too much, but then last year became reeeeeaallly stressful for one reason or another and I’m sure it tipped things over the edge. Although the compensating factor was I am with the love of my life! However as Cherly says, I don’t think we can beat ourselves up aboutwhat got us here…Its happened and we all have stresses in our lives of one kind or another and I think we must keep our strength and positivity (is that a real word??)for getting well.
SB, keep your chin up, good luck to all who are having treatment, Scaco, Shar and Alto?
Snuggle up in your tents, I’m off to zip mine up as I’m about to Nil by Mouth again!
Love and ((hugs)) to all
Wandyx
Sorry all, I’ve been hogging the Sleep fairy for the last couple of days.
Have spent the last couple of days snoozing and intend crawling off to my pit, having had three naps already today.
But feeling very relaxed and comfortable, and well-fed as had pork chops, potatoes and peas and gravy for my tea. Yum.
Lots of love and good thoughts to all who are having treatment tomorrow. Wandy, extra hugs for you xxx
Survived a pretty miserable mothers day, OH gone back to London, so atmosphere has at least llightened somewhat.
Off to bed and hopefully a decent sleep tonight.
Xxxxx
Sorry, not been on today. Have had a lovely but busy day.
Daughter’s(The one who doesn’tlive here) birthday as well as Mothers day so joint celebration. Apart from making birthday cake I just ordered in Indian buffet and OH did all washing up and clearing up. Really nice day but exhausting!
Sara —Really sorry all this is happening when you’ve got young children and BC to boot. Men’s Pigs!!! Do you have any other support from family or anything?
I moan because daughter, her child and two teenage grandchildren live here and all cause mess and chaos! Only time my OH and I are alone is when we go away on hols or weekends!Been together since we were 17 and married over 40 years so think we’re going to make a go of it lol. Not all a bed of roses but problems mainly money when the kids were young .Should count my blessings !
I also have wondered about stress and BC. Lost my parents when I was young but 3yrs ago sister died in tragic circumstances and I nursed her for a week at a rime for 7 months- she stayed a distance away - then her son developed Non Hodgkins Lymphoma, grade 4 before DX over a year ago. seems to be doing OK but not out of woods yet and now he’s worrying about me. He came to see me yesterday- 7 hrs round trip!Then last summer my daughter was on ventilator for 2 weeks with strange respiratory disease and is now asthmatic and diabetic and has come back home to live with son.
Anyway good wishes to everyone having surgery or chemo tomorrow and lots of big hugs!Going to bed now with all my nice pressies,
Take care everybody
Margaret X X X
hi everyone
just popping in to wish everyone on chemo, and wandy for her op tomorrow, much luck. Hope everything goes smoothly.
maria x
Best wishes to everyone having treatment today.
At least those of us feeling knackered because of family occasions are feeling knackered for a good reason for a change! I think this will be a duvet day for me, despite waking early. Hope to see you all in the JM tonight.
Cheryl
Hoping to get out from under the duvet today for some of the time, having have a fairly duvet-ish weekend. Well lots of snoozes, catnaps and lie-downs. But hey, if it has to be done, it has to be done.
Good luck to those of you who are having things done this week. It’s going to be a bit difficult writing and even walking, as I’ll have my fingers and toes crossed for you all.
Goodluck to all having treatments/Ops this week, love to you all.
Sarah.xxx
Morning Ladies,
I hope you all had a lovely weekend. i was truely spoilt, as it was my bithday saturday,
Im sending love and hugs to you all and wishing everyone good luck who are having treatment, op, emotionally,
Ive just returned from having my bloods done, so fingers crossed for tomorrow, fec 4 omg…
take care all
Donna
xxx
ChoccieMuffin please can you capture the sleep fairy and pass her over this way. I am sick to death of the lackofsleep gremlin now and have locked him in with NE for a bit - that will teach him.
Hmmm I wonder why nice fairies are female and nasty goblins/gremlins are male - shall I open it for discussion?
Been for a nice ride on my horse this morning and am now exhausted so the house will have to stay looking like a disaster zone for a bit longer.
Huge good luck to everyone being poisoned/having surgery today. Thinking of you all
Jo