Please have the Sleep Sprite stripped and oiled and brought to my tent.
Thanks.
Elltiks. Just tell them what you want.
I found my lump in March and there was no choice from day 1. The surgeon told me the 5 options open to me but i had already talked to oh and didn’t want to have a question over the rest of my life.
I had my mx in may. At first they offered instant recon but between them couldn’t get enough theatre time so i told them to go ahead with the mx. We can consider the mx later.
Tbh I feel that i have been in control throughout this Ordeal.
Good luck with whatever you decide to do. As long as it’s your choice you Will be able to live with it.
Love June
Ninja I think you’ve hit the nail on the head saying it is out of my control, that is it exactly, at the moment I feel like throwing myself on the floor and having a tantrum toddler style.
I have been looking at the info from Macmillan and here and just can’t get my head around the fact that that is what they are going to do to me. Particularly as the lump has totally gone, I just don’t want a Mx but know deep down I have no choice. How do you get your head around this?
Jo, Sweetie, I cannot get my head round it. I still have not ‘accepted’ the Dx, I hate the chemo, am going to hate the rads, am dreading being mutilated though I know that I must accept all the treatment/surgery that is recommended.
I feel so out of control of my life it’s awful.
Thank you Ninja I totally understand. Family and friends keep saying ‘well the main thing is that the chemo has worked’ well yes I know but…
Helloooo Fellow Woodies,
Been a while since I was on for varying reasons but one of the main ones being an inability to even look at a computer let alone type on one for about 8 days after chemo!! FEC 3 was baaaaad and I’m dreading FEC 4 which is a week on Tues depending on my neutrowotsits!! Saw PW’s? post about low wbc’s meaning quite good for outcomes…am liking that! Mine have been getting lower and lower, 2.5 at FEC3 so am hoping I’ll still scrape in at FEC4.
JoC, I sooo know what you mean about life being out of control and what decision to make etc…or even feeling that YOU don’t get to make the decision. But remember you do. ITs your body and your life and you DO have the final say. Obviously you will want to do whats best for your health but make sure the pros understand your anxieties. I understand too about decisions re mx or WLE.
I had multifocal large tumours and initially it seemed that mx was the way to go. I had lots of chats with surgeon/OH and bcn and we went WLe route, unfortunately I had 2 further excisions to get all tumour but managed to end up without an mx. My surgeon wanted to do one on the last go but I said lets do 3rd time lucky!..I have been happy with that, although am now concerned that despite chemo, there are still tumours and am now reconcerned about the other breast (which was also in the firing line initially), so I’m having a check and scans next week to hopefully put my mind at rest.
But none of its easy is it? And its really hard when well meaning friends and family say things that they think are helpful but…
Just make sure you talk it over a lot until YOU feel happy.
Margaret, I know its a few days back but well done on finishing rads and btw your photo looks fab.
I have had my gorgeous stepdaughter out to visit here for the weekend and just put her on the plane home, wish she could have stayed longer but she had to get back to work…Have made plum jam and spicy plum chutney all weekend!! Alto, I could put some in the patisserie yurt, great on scones!!
Anyway, hope all are well. I’m going to enjoy my good week before heading back to UK for FEC4…Aaaargh!! (Deep breath…‘the only way forward is thru’…)
Wandyx
Greetings All
I bring glad tidings from yonder Mx Marsh for those who need courage and the path to be lit: it’s alright.
I’m 4 weeks on and, although posting for info about recovery concerning immediate LD recon, it’s going ok.
I was dreading it, terribly scared and worried about the aftermath, the actual op didn’t scare me. I thought I would look like Egor and be terribly mutilated but im not. Babs looks good. I’m more than happy to show you if it would help (but think babs as my avatar would be a step too far for some!) so if you want to pm me I’ll email you a piccy.
I’m a bit sore, still got a flippin seroma and my arm is misbehaving a bit but I’ve just come back from a weekend in London, so clearly not that bad. 2 weeks after the op I went for a day out to Chatsworth.
I’ll light the way, don’t be scared x
Hello guys. This is our last weekend in our house! Lawn has been mown and hedge trimmed for the last time. Not by me; I supervised ;o)
I haven’t packed any boxes this week; been too Taxed. OH is now on holiday so he can do most of it this week while I drink tea and do some encouraging stuff. Actually scrub that; I’d rather do it so I know what is where!
Oh dear, lots of deflation going on by the sound of it.
Wandy, you NEED Emend. Beg, cry, plead, lay it on really thick, with a trowel. With all the travelling you have to do you really don’t need to be feeling totally dreadful.
I’m having trouble getting my head back into work, and as I traipse into Rads Rushes on Tuesday I’m wondering how it’s going to affect me. Hopefully I’ll breeze through it like I have done through chemo (I can’t believe I said that!) but I’m more than a little nervous that some so-and-so has saved up all the crap and will dump it on my doorstep in one large, stinking, steaming pile.
Tam’s been behaving itself fairly well, with just the occasional “warming” and the ever-present duvet game, but at least I don’t wake up drowning like many, or turning completely scarlet like others. Well not too often anyhow. And I’ve somehow remembered to take it almost every night!
I know choccie, and I am going to scream for it. They haven;t agreed to let me have it so far but I’m seeing my onc this time and am going to insist!! And I know…you have been telling me this for ages…!
Sounds like you’ve had a lovely break away Scaco, sorry you still have a seroma tho, hope you get it under control soon. Good luck with the final packing Ninja and hope your move goes well.
Am feeling much more tired these days so am off to bed for an early night.
Hope everyone has a peaceful night.
Wandyx
Anyone give me advice about a low temperature I should be concerned about?
I am shivery but body feels hot. Temperature only 36.4.
Thanky
June
June,
My chemo team told us to phone for feeling shivery, regardless of the actual recorded temperature. Better to ring and be seen and be OK, than to leave it and end up ill.
Let us know how you get on
Lavender xx
June
I agree with Lavender - better to ring and get advice than not to ring and risk being poorly. Just one thing - don’t medicate yourself or use heat methods (hot water bottles) as this can make you feel more shivery (or so I was told).
Deb
Gypsy said: “Anyone give me advice about a LOW temperature I should be concerned about? …Temperature only 36.4”
The point is, what is your normal temp? My normal is 36.4 or 36.5, it wouldn’t be “low” for me.
Anyway, if you feel unwell, get in touch with the hospital, even if your temp is not raised. I went in once with a normal temperature but I was clammy and got admitted with hypotension.
St - love the new piccie, made me snigger…
My normal is 35.8 … !
beverlie - thanks. I’ve had a week of wig wearing and this is how I feel tonight. Head is itching and hot but I will stick it out until bedtime.
ST-- I love your wig- looks a bit like my brown one lol
CM----Don’t worry about rads! I had 15 plus 4 boosters and felt fine. First week a bit tired but think that was still effects of chemo. The travelling was a nuisance but actual treatment only lasts a couple of minutes.
Wandy-- that’s my wig!Hairs about half an inch and I think it’s black on top and white at the side - but OH says the white bit’s grey!!!
Scaco – so glad you’re doing so well-can’t count the number of times you’ve cheered me up in the last 7 months!
Ninja – good luck with your moving house !Get everyone else to do all the work though.
Well now, what will I do with myself this week? Shopping tomorrow,sewing macine demo in Glasgow on Wed and Slimming World here I come on Friday!
Margaret x x x
ps 10wks 3 days until Orlando
Just a reminder to my fellow campers, I’m doing a barbie this Friday for any BCCer to come along to. I’ve bumped the thread so if you want to come along, please post your name on that thread and I’ll PM you the address. I tried to type “Jingling Merkin, Dark Dark Woods” into googlemaps and it didn’t show up…
CM - I will be there in spirit but alas not in body as you are far too far away. If anyone up North fancies a get together please respond. I am in the North West - so Manchester/Preston/Blackpool sort of area.
I think it’s wonderful that you are doing a barbie and I hope the weather holds out for you but even if it doesn’t I am sure you will have a fabulous time. Take loads of photos and erm…we will have to find a way of you sharing them with us all - Facebook??
I am holding off going to bed at the moment, had a couple of drinks which haven’t gone down which isn’t like me. Went to a funeral procession for a local football team that was relegated at the end of the season - what a weird event that was. Hearse and coffin with funeral cars following with all the team players inside. Carnival atmosphere with lots of drinking in the streets. I got back home and ended up nursing a can of beer for nearly 6 hours which is pretty much unheard of for me.
Suffering from deep leg ache during the night for the past 5 days - any tips or hints for what I should take or do to ease this? Feels like growing pains.
Only other thing that is particularly bothering me at the moment is that I am so flipping BORED and restless. Steroids have left my system now, just need to find something to occupy my days until my white cell count is back up and I feel back to normal before the next poisoning.
Right - going outside the tent with Buggerit and the flamethrower to go and zap some gremlins. If I see any of the sleep fairies please can you hang a lantern outside your tent so I can try and send them your way.
Sleep well fellow woodlanders - may you sleep well and wake refreshed because tomorrow begins another day.
Deb