Whoop!! I love it when we are celebrating good news!! I am looking forward to my hair growing back although being bald does have quite a few positive aspects especially during the hot weather we have had recently.
Free drinks in the JM bar did I hear? Put me down for a couple of pints of chilled Strongbow please.
Supertrooper (how do you get your newts so high)
Thanks for the newts last time they did the trick scrapping in at 1.1.
Will be able to leave them in the jar for someone else this time as yesterday they were a surprising 1.3 so first TAX tomorrow will go ahead.
I loved the comment on the shrinking clothes side effect made me lol must use that one on my hubby for some retail therapy.
xxx Ducky
Missed a party! Hope it was good. Hair is worth celebrating. Who’d have thought, a year ago, that we would feel that so strongly? I want TO a wine tasting at a brewery last night, whict was also fun. Glad we walked! Back off to the beach, or bird watching or book reading. Hope Rachel and ninja continue to move forward gently. Lost a big toe nail yesterday (caught on oven door!) and still fighting post rads lympho, but no rads fatigue, which is a relief. Have a great day woodies… Jane
Greetings from stalagluft Chemo hut. Herceptin has just finished, saline is going on, can’t wait to just GO HOME.
Are you escaping today Ninja? Or do we need to dig another tunnel?
We’ll plump some cushions, get the camp fire roaring, light scented candles and put kettle on for when you get back - and we could sneak some fizz out of the JM later I reckon too.
Oooh losing a nail Jane, I’m totally grimacing…
Also popping in from the world of W.O.R.K. in between rads - 2nd nuking this morning!
Love the shrinking clothes SE - pity hubby doesn’t see it that way though!Reduced me to tears when looking at a lovely dress when we were on holiday a few weeks ago, when he said “no point in you trying that or anything else on until you have lost some of that weight!”
He didn’t mean to be unkind - just his practical head on, but still!
Hair cutting AFTER chemo Alto - that must be a woodland first! yippee!
Eunice, good luck with the scans, hope all is ok and your mind is put at rest.
Ninja - hope they let you go today, there is no place like home!
Sue xx
Insomniac roaming at dawn on the outer edges of the wood,in fact trying to use visualisation to describe experience in this wood to help with sleep,during this found a tiny chapel on edge in a clearing,nr mx marshes!!went inside just one large comfy chair a tiny altar and a bay of candles,one is now lit for you all.If you wish go to gratefulness.org/candles search for group labelled DDW(dark dark wood)lots of candles left for you to light if you wish,these stay lit for 48 hours.Saw ONC today and got permission to go back on Melatonin and vit D so my night wondering should cease and I can sleep again ,at least till steroids start again next week on tax,
Mavis
Thank you Mavis, that’s really lovely.
Hope you sleep better now - a pox on the s.e.'s of St Eroid, the patron saint of insomnia.
Alto, wow, you are brave - I can’t yet bring myself to get mine cut even if it is getting decidedly ‘wild and woolly’ after nine months of regrowth (Still < 2in at its longest, some still < 1in) (avatar was 3m of regrowth)
Sleep tight woodies old and new
Mavis stalking you again- you might see my candle glowing at the back of the peaceful chapel. I did n’t bring a chair but think I will rest and have a few quiet thoughts before the DN comes to extract blood from the Hickman that would not produce anything three weeks ago. I have a superb Scottish DN who comes and all is well with her. A true old fashioned nurse who asks how you are feeling etc. She also flushes the Hickman properly. ( in slow pulses) is on holiday and the male Automaton will be rushing in and out leaving me sore and worried.
Must try to get some sleeo now
God Bless
Cacklesxxxx
Mavis - I lit my candle - what a lovely idea. How nice to have a chapel in the woods - a place of quiet contemplation. Just what I need. I shall go to bed tonight and think of my candle burning brightly and the message I left.
Cackles - don’t take any nonsense from your DN - tell them they must follow procedures - I have to boss mine about every now and then.
Morning Woodies I have managed to sneak on here for 5 mins. Surgery went well but I haven’t managed to get out of bed properly yet as I keep blacking out and vomiting - lovely. Ended up having a blood transfusion so hopefully that will help. Best wishes to all my fellow Woodies. Xx
Jo, take it easy and rest. There will a lovely selection in the patisserie yurt freshly baked for you when you’ve recovered enough.
Morning Campers,
The candles are a lovely idea, they shine light in a dark place and bring a sense of calm.
Jo - great to hear from you even though you sound like you’re suffering. I’m sure Mezzo’s talk of cakes has made you feel less sick !!!? Have no fear, if you can’t bring yourself to eat them I will!
Xx
Hi ladies,
not posted recently but thought I would pop in to see how you all were. Ninja and Jo C hope you are both well, RevCat your hair is FAB!!! mine has been trimmed and looks like I may need another little tidy up around the ears, I just wish a fringe would appear!! i’m away to see what’s left in the cake department mmmmmm
take care woodies
speak soon
Lizz xx
Hello!
Jo - been thinking of you, glad to hear that you are OK. Hope the sickness subsides and you feel better soon. Gentle hugs.
I love candles, nice idea Mavis.
I’m just on a whirlwind tour of the patisserie yurt before heading off for an MRI of the ‘good’ boob.
Ninja - the fluff thickens!
I still don’t have any upper eyelashes, but lower ones are sprouting - weird!!!
Think I’ll need a G&T in the JM tonight.
Love to all
Dx
So glad that Jo has posted. Sorry to hear that you’re suffering, Pet.
Glad to hear from Jo C, take it easy, hope the transfusion helps x
Ninja - your hair looks much better than mine, I’ve got a bit sprouting at the back and sides but have two definate shiny bald patches on top, no lashes returning yet either. Still on hair envy bench…I need some fluff, it’s too cold ooop here and we’ve just had hailstones…
Cackles and Supertrooper
Look after your lines and MAKE SURE the DN’s are doing the job right.
Cackles. My troubles started to show when we couldn’t get blood from the Hickman so keep an eye on that.
I am currently 7 days post Tax 1. I had a bad reaction that has turned out to be an infection in the line, so last Sat the Hickman came out (and not without a struggle) I was so furred up with the infection that it didn’t ‘slide out easily’
I had already lost faith with the DN’s and asked to be ‘flushed’ by the Unit each week.
The Story: The 1st DN wasn’t going to clean the end before the flush until I asked her to.
1 had to confirm with me that the line needed to be sealed with the Heparin as she was more used to just using the Saline Solution. I was asked to check with the Unit next visit.
Trying for bloods. They were so nervous of the line, if it didn’t work straight away they went for veins. (precisely why the line was requested by a needlephobe)
Then the DN who was happy to flush but admitted she would send another DN for bloods (I told her she only needed to ‘suck’ instead of ‘blow’)
Then, just last week, during the flush this one realised that she hadn’t pulled out an end from my box. Using her ‘gloved’ hand she found the end, opened the pack, and slipped it on - I know, you are all asking ‘why didnt you speak out at the time June?’ I dont know, think I was so shocked, mind I didnt notice whether she cleaned it first — prob not.
So here I am, over the infection, but still in hospital. The blood test to check the infection has gone showed that the WBC’s are 1.6 and Newts are 0.5. Docs have isolated me for my own good.
I am so sick, if I’d been OK last week I would be cosied up in my own house to get over this stage.
I have had a visit from the Unit and they have booked another Hickman, and put back the Herceptin start and next Tax til 26th October.
I’m going to be trained in line flushing. I wont have another DN.
Good SE’s All
Love June
Sorry glint meant double posting.
Love June
Well imade it to the chair twice today and am now out of the high dependancy unit, let the recovery commence! Think I’ll pass on the cakes for a bit though, but thanks for the offer.