Helen; Baileys brings on the sleepfairy for me! And I’m a fully fledged bell ringer, so I’m off up that tower to lower the bells so they can’t disturb you anymore. I wrap a few spare Merkins round the clappers so if the wind gets up you still won’t hear them…
Choccie; OMG!! Once you’re in the system it seems they just chug along at their own sweet pace don’t they? Head in sand is one way to cope, but well done for the cake sale and not stuffing on them instead – though don’t lose too much weight, there’s not much of you to start with!!
MG; I expect that Sec was hiding behind her answer machine today. She may well cower, I hope she feels our vibes and does the decent thing asap. Sounds like the woods will be alive to the sound of flails and axes tonight with all the frustration.
Think we’re all climbing the walls with you two now!
Scaco, love the song, soon be Proms season again!!
Good wishes for gentle SEs to all who have been Fec’d’n’Tax’d xxx
Peachez - I’ve tried the Cointreau & hot chocolate mix, but it wasn’t very effective and I woke up at about 4:30. I’m a hand-bell ringer & I’ll have to smile nicely at the tower captain maybe
CM & MaryGrace I’ll have a hunt for the ResultsMonster & clearmargins Fairy over this way & give them a stiff talking to If I find them.
I hope the sleepwell fairy and her sisters visit us all tonight!
My personal recommendation is moderate alcohol no later than the middle of the evening, just to start the relaxing process, although a tot of something in hot chocolate probably has a good psychological effect.
Can anyone explain why so many of the nice things I would like to do turn out to be immediately after a scheduled FEC? Is there a noyoucantenjoyyourself witch following me around?
Sarah good luck for Wed ! I couldn’t sleep last night for worrying about fec1 today - and so far only se,s are fuzzy head and tiredness.
Had foul taste but only for a few minutes.Hopefully I’ll sleep tonight. Have to give myself injection tomorrow so may get some bone pain from that apparently but got the paracetamol anf Ibuprofen ready lol
Mary grace laughter is something I do all the time - sometimes if you didn’t laugh you’d cry -and keeping busy! Although the lazy people in my house have been spoiling me today - hope it lasts lol
Hope you hear something soon!
Cheryl - didn’t have to wait too long at all, thanks
Scaco - love the anthem and all the positive vibes.I still have my hair but I’ve tried my wig a couple of times but couldn’t help tugging at it so anyone would realise right away! I’m not bothered about people knowing it’s a wig just don’t want them to see me bald! Ithink I’m too old although I think you all look great without hair!
Sue - your staycalm fairy arrived well on time, thanks
Choccie- cakes looked scrumptious but beware! I’ve put on nearly a stone since dx in early December!Started baking and couldn’t stop!
Anyway thanks to all of you x x x x
Sarah and anyone else still to start fec – I’ve been fine tonight- maybe it’ll get worse tomorrow but maybe not! I’ve followed all the advice.Heat packs to arm drip went in – nopain!
Wrist bands - so far so good
Water -plenty
se,s so far - fuzzy head, bit staggery and p**ing red!
Going to take my Domperidone now, make my homemade ginger tea and get to bed with mallet in case hubby starts snoring!!!
Margaret
Margaret, I decided to call my Domperidon “Dom Perignon” instead - at least it makes you feel better imagining you’re going to be downing champers several times a day!
Cheryl I think I’ve got the noyoucantenjoyyourself witch sitting on my shoulder. DD is coming home from uni soon for a little break but I’ll be in the throes of SEs from FEC2 so I don’t think I’ll be quite the mum she needs.
Also DH’s band are playing in a special Beatles themed concert for Marie Curie in Milton Keynes theatre on Sunday night, but again I suspect FEC2 will stop me from going - I hope I can get a ticket at the last minute if I feel OK and all those nasty little gremlins leave me alone.
I’ll be needing that merkin soon. I’ve also got a nice little bald patch developing on the back of my neck so if the merkin knitters can help out with a sort of reverse eye patch to cover it up when I get taken out for lunch tomorrow, I’d be very grateful!
I’m glad she phoned, even if it was with no news. But she tells me the surgeon is back from a well-needed break and was operating all day today, but will be getting on to the path lab in the morning to beat some results out of them. Reading between the lines I gather I’m not the only person being driven up the walls. Do you think I should offer her the loan of a flamethrower, a meat cleaver or a billhook?
Peachez, you say the loveliest things! My BMI is over the 25, so saying there’s “not much of me” is just a downright fib! But you can say it again if you like!
My wig fitting has been put back a week, so if you’re down for Fec3 on 23rd, how about meeting up and you can help me pick?
All this waiting is good for my waistline, I’ve been so stressed with the waiting I don’t think I’ve actually eaten anything today…
Who was it that attached the bungie cord at the Limbo swamp to my waist? I’m getting really fed up in here. The mud’s cold and sticky, it smells horrible, and there are lots of unpleasant creepy crawly things sliming around in it and they keep biting me. Probably relatives of the nastier land-dwelling inhabitants of the wood. Unfortunately a meat cleaver or billhook is no use under the surface of the mud, and trying to use the flamethrower earlier just ended up with me baking a housebrick round my left foot.
And I can’t even get on with the knitting because the wool just lands in the swamp and gets all messed up. Can’t get on with ANYTHING in fact!
I’ve given up with the screams and am now resorting to pathetic sighs, followed by a little sniff.
Thank you to whichever lovely lady sent me the sleepthrough fairy last night, NO alcohol was required!
CM - I’m looking for the findtheresults fairy and will kick her up the a*se her to your surgeon and you. <3 & hugs
Am off to sort out FEC survival pack now & I’m so please everyone who’s already started se’s are not tooo drastic, here’s hoping the SE gremlin is having a long snooze today.
love
H xx
CM, think a lesser woman may have buckled under the stress by now. I really do think it is absolutely outrageous you are still waiting.
Well, I decided to go and buy my front fastening PJ’s, stretchy tops, and MX bras yesterday. Had a small weep, as reality hit, but pullyourselftogether smacked me over the chops, and i made it through. Is it just me, or do John Lewis changing rooms make you want to shoot yourself? Three way mirrors, and hidious lighting… Did not realise, that from behind, I closely resemble one of the MITCHELL BROTHERS from Eastenders. Was slightly cheered at the till when my VAT was refunded, and have used the £5.45 to buy some choccies, which always helps, although perhaps will only exacerbate the Mitchell Bro look.
Morning campers, well I have found the appointments fairy but she is dragging her heels and cannot book me in for re-excision until 24th Feb and then with a different surgeon. Gremlins have appeared and are muttering that this is four weeks from original surgery, that remaining DCIS - if indeed there is any - will be running riot through nice neatly scarred right boob and that a different surgeon will find it harder to follow-on from someone else’s handiwork. I appreciate this isn’t rational and it probably doesn’t work that way at all but I’m back in the swamp of Whatif… Time to go out and try to keep busy I think
Helen,i completed my fec survival kit yesterday, ready for the go tomorrow.
Hospital appointment went ok yesterday although so long, got there at 8.30 & didnt get out till 12.40 !! on the plus side have bagged myself a gorgeous new doctor who is Greek & was most pleased when he informed me heart & lungs are good & after Saturday nights party in the woods my liver function test is also good also had a visit from changemymindaboutchemo fairy & gorgeous said Doctor informed me that i was definitely doing the right thing, advised me that after all the treatment, chemo, rads, hormones etc that my risk of bc will be only 2 % higher than someone who has never had it, wanted to kiss said gorgeous Greek Doctor, he also told me not to listen or read anything about Bc & if i am worried to ask him or one of his team & I quote " people who really know".
Its a gorgeous bright sunny day today so am going to leave the woods temporarily to go meet friend from forum for lunch (Deed) & then a walk along the beach before becoming an official feccer tomorrow.
Hope all is well with everyone else & that the gremlins & se fairys are staying away, CM have sent for results fairy to visit you TODAY !!
If you have any nice scarves, Jane, what about tying one like a bandeau round your head, flapper fashion? Put the knot over the bald spot.
My DD2 was offered paid orchestral work locally on the Sat before Mothering Sunday and then is in a lunchtime concert in Manchester on Mothering Sunday itself, so wants me to come up for a treat, as well as needing to get back pronto in the morning. I really hope we can build in enough rest to make it all feasible, but of course just seeing her on Saturday will be nice. That’s assuming nothing happens to delay FEC3 or 4, of course.
Sarah --exactly what my doctor said as well!So we’re all go!
When do you start.
Not had any nausea but didn’t sleep at all!!! No anxiety just can’t sleep! Should have asked the -what do you call the gotosleepfairy?Tried making my own anthem in my head but it just wouldn’t work.Phoned Gp this morning who said no such thing as non dependant sleeping tab and prescribed 7Zoplicone or something!Been neglecting my knitting but going to get it out today and have put in order for flame thrower just hope I don’t set myself alight. Might creep into the woods tonight once I get a great big headlight(need to keep my hands free for weapon)cos I’m scared of the dark!
Marym - You don’t need to put an order in for flamethrower, there are ample supplies in the flamethrower tent, unless it’s been burnt down of course.
For those about to ‘do’ FEC2, up until today ( Day 10) I’ve had no SEs at all and today just a bit woozy. Reading other’s this seems to be fairly norm (apologies to those that aren’t), in as much as whatever happened before the 2nd one’s not as bad. So try not to worry.
CM - I’m coming over with a pump to get you out of the swamp. Not any old pump but an industrial sized, petrol powered pump, that will not only suck out the water but all the gremlins in there. Can I suggest that you then take the tank which now contains the said swamp and empty it onto the surgeon’s desk.
Dont be scared of the dark, will enter woods with you tonight with all the flame throwers that we need & will hold hands, we will have the bringiton & positivethinking & imnotscaredofyou fairies with us & will do this & get through to the other end with all our other woodland warriors
I second the keep drinking loads bit. Nibble. Rest when you feel tired, don’t wait for exhaustion (may not hit this time anyhow, phone the chemo number if you get worried or scared.
Hello Sarah, i drank over 2lts of water the day before and kept dring throughout, also during the admistration of the chemo i was drinking and they had to wait for me to spend a penny.im now on day 5 post fec and im drinking just under 2lt a day but i will definatly do the same again next.
love and hugs
Donna
xx
