Starting Chemo April 2015

I can’t believe u still working full time moll?! I’m on sick I wanted to carry on working at beginning but I’m a gp receptionist n doc said was a bad idea as would be picking up everyone’s bugs ! I’m glad as couldn’t imagine having to worry about work on top of everything else !! I know sometimes money is an issue but if u can get by. I have nervous belly this morn already for thurs !!! My first tax !! I thought the worrying may have gotten easier by now !

Thanks Egret. They put me in Imodium. But then I block up. It clears & it all starts again. I’ll try the flat coke!

Hiya. I’m not eating too well with my stomach problems. So I’ve list 5kgs first round. Waiting to see what comes off this time. It’s definitely going down for me. Luckily I had extra!

I work in a jobcentre.
I am not having tax and i don’t really understand why some people have tax and some like me don’t.
My bloody period started today after not coming for two months! And it seems like the period from hell!

I’m not having tax! I’m not sure why some do and some don’t?

The chemo gives you periods from hell, I had an awful one first round. It does pass though. Hot water bottle night help? Xxx

Mol, sorry you’re suffering with the dreaded AF!
I’m having Tax after 4 AC , I intend to ask a bit more about it at my next appointment
Could it be because we’ve bit had our surgery?
Ladies that are still working you are amazing, I couldn’t cope with the banality of it all
We are having a sofa day as weather is pants here.

You haven’t had surgery yet?
Today I am wishing I wasn’t going to work. I have streaming eyes and a period and if anyone asks how I am I might cry :frowning:

Morning girls. I’m still working but as self employed I can do my hours when I like and mostly from home. I do the books for my husband and my business so not like trying to hold down a proper job really admire you girls that are managing that.
It must be so hard for you all that have little kids to mine are grown ups - my daughter lives at home still but is 24 and my son left ages ago but he and his fiancé are coming home for a week it’ll be the first time he has seen me without hair so he is in for a surprise - I have skyped some they’re fully prepared!
I’ve lost about a stone in weight and have had two rounds of FEC so far. Fortunately I had weight to spare but can’t lose half a stone with each round or I’ll be skinny lol. Hope you all have a good week x

Mol that was meant to say I’ve not had surgery yet! Bloody phone
Yes I think they do treat us all slightly differently depends what we need I guess
My tumour was circa 5cm, but luckily no lymph nodes involved
So my chemo is meant to shrink my tumour so I can have a lumpectomy
So now it’s 4 AC 4 Docetaxel, surgery, radio for about 6/7 weeks ( I think) just want to be done for Christmas x
Then hope the bloody thing never comes back ladies I think any work is amazing, week 1 is a killer I can barely find the energy to get dressed so well done!

Not sure it we have different regimes iv wondered too !!! Iv not has surgery yet but I do have node involvement so maybe that’s the reason for the tax as another lady I know bit having it either n she not got node involvement !!!

I had one node involved and only having Fec. I did wonder if it goes on grade too as mine was grade 2. I have also had my surgery. Mx and immediate Ld recon (incase I haven’t gone on about it enough lol)
My eyebrows :frowning: I need a quick lesson in eyebrow applications. I have cried at work today!

Moll have u got an eye Brow pallet with a slanted brush ?? I always use em anyway before mine came out so pretty used to it u can even get em with a stencil thing so u know war shape to do x

I have bought one of those brushes today. Also a black eye shadow and I already have a brown eye shadow and a black/brown pencil. I watched a YouTube video. My eyes are so sore tho. Had to leave work early as i couldn’t stand looking at the screen anymore :frowning:

Aww maybe u shud have a bit if time off work hun !!! Really
Don’t know how u r doing it!! Re: eyebrows the trick is small strokes to build them up not just a line or will look too fake ! Also not too dark gud luck !?

I am in awe of all who are working!!! You guys are amazing.

Egret will try the banana tip today! Thank you.

Rubbish couple of days, hogging the loo, too breathless to walk and kept falling asleep mid sentence! I’m a lightweight compared to you guys! But my health was compromised by Septicemia 8 years ago, so maybe that’s the difference.

I have a cupboard full of meds now, trying to control everything. Seems to be a bit better this time.

As for me, I had a 3cm grade 3 invasive, no node involvement and I’m on FEC. Followed by radiation. So we are all on diff treatments by the looks of it.

Mollianna, I cried so hard at the thought of doing the second round, that they put me on lorazepam for a few days. It really helped.

Well, that’s me up washed, dressed and tucked back into bed for the day. OH is off for a normal day at work-the in laws are on route!

my hair started falling out today (Day 20 after first FEC) so am waiting to see whether the cold cap worked or whether it will ALL come out. Am kind of glad in a weird way to have reached the point where it is coming out as at least I will soon know if it is all going to go or just a bit which is liveable with.

 

Round 2 of FEC on Thursday. Dreading the nausea the evening after - I am so in awe of people who can eat afterwards. I was so so sick - but without actually vomiting. I was on emend the first time so wasn’t expecting any sickness and was so shocked and scared when i felt so poorly. Sounds so pathetic when its “only” nausea but OMG I was so so ill and I didnt know how to cope

 

Seeing oncologist tomorrow and the breast care nurses seemed to think I can get extra meds (I actually want to get something to put me to sleep till morning).

 

Cant believe some people dont get any nausea but I guess we are all reacting differently to it all.

 

As for treatment  it seems to be different from place to plae and consultant to consultant! Am amazed at how different the different areas are - from whether or not to give you picc lines, to whether you get 6 FEC-T or not to whether you get the white blood cell stimulating injections.All a lottery and no idea whats best :frowning:

 

Is anyone else on here persevering with cold cap or has everyone else that tried it found it didnt work?

Hi Ladies,

 

I only just made this group, if you are happy for me to join, as I started my chemo on the 30th April. I am having weekly Taxol with Herceptin and so will be having chemo number four and Herceptin number 2 this week. I had a Portacath put in last week and have already had one treatment through it, but I still feel a bit nervous of it. It didn’t hurt last time even though it had only been in 3 days so I braved a routine mammogram on that side today - a little uncomfortable but it was ok.

 

Hope everyone is doing ok atm,

 

Luv

Pen x

Oh Keliac,
You’re having such a bad time! So unlucky. I have a link in my Picc line, so much as it’s painful, they’re going to try to keep it in for 3 & 4. So I can sympathise with your worry and frustration.

I know some types of chemo can be given by tablet, maybe they can help you that way???

Chin up. Big hugs xx

Meant to write kink! In Picc line!

Hi When2become1

I can completely understand your feelings about round 2. I think I said to someone, the consultant gave me a few days lorazepam to calm me down, as I cried solid for two days before it. When I arrived for round 2, consultant came to see me, gave me a tablet to calm me, then told the nurses to distract me for half an hour til it took effect. I only took them for another couple of days, then stopped. But I have them on standby if I feel that anxious for round 3. I don’t know if you can get some help too?

I didn’t use the cold cap I’m afraid, so my hair is mostly gone. I shaved it off as it started to come out. I found it less upsetting.

I think feeling afraid of round 2 is normal. Round 1 we didn’t know what was coming, but round 2 we do. I don’t consider myself a coward, but it scared me.

Talk to your GP or Consultant, they can probably help more than you think, stay strong - big virtual hugs xxx