saw onccologist today and got more info on my cancer - looks like I may have cancer near my nipple so unlkely to have nupple sparing mastectomy as I had hoped. Safety omes first though so if it might be infected - bye bye nipple!!
Also got him to change my meds - he was very good and has upped my dose of something for the three days after chemo, increased the dose of something else which they put in my picc line before chemo (some anti sickness thing?) he has also given me a sedative - I think beginning with “L” for after the chemo to come home and sleep through the nausea…and given me the name of an injection I can get from the GP if the nausea is still bad an hou later (hmm can see the GP rushing round on their white horse - not!)
Bu really took it seriously so was impressed!
I asked why I hadnt had any scans as know several people who had bone scans and CT scnas Apparently (in our hospital?) they only scan if you have 4 or more affected nodes. But they only take two out in a SLNB and only one of mine was infected. So why do they only take 2 if that doesnt give them enough info to know if scans are needed???
am reassured re meds for tomorrow - and have also found out that I will have rads beforeXmas. Which puts paid to my idea of a lovely weekend away with my OH in December. Suspect I will be too sore and tired to appreciate it!
Maybe need to look at a pre mastectomy weekend away in September instead.
Thanks Egret, I feel like I am in the right place now
Sounds like so many are suffering at the hands of PICC lines atm I feel pretty guillty at having a new portacath that seems to be good so far!
I must say that when I had 6 x FEC-T about 3 years ago I had a PICC line in and only once was it used successfully. After the third blockage they removed it and used a vein in my hand which has never recovered. I just hope this PC stays good!
The nausea I know can be difficult to cope with, but if you let your team know how debilitating it is to you there is always a cocktail the doctors and nurses can whip up to suit you better. I think you are quite right whenmy2become1 - I guess we all react differently and so the treatments must be just as individual too?
Kellc - sorry you are having such a rough time of it - at least you know the chemo is fighting the bad guys…?
Huneebee - last time I lost my hair mid round 2 of FECT-T. I didnt use the coldcap and shaved the rest off when the hair kept falling out into my food - far less stressful. Looking back it started with a bit of a giggle - I went to see my mum (an elderly and frail lady in early eighties) and needed to pee. I had just had chemo and looked to check if the pink pee had gone and saw a great clump of pubic hair on the side of the bowl. I was gobsmacked thinking my mum had been trimming her thatch - at her age! why? Until, that it is, I went to pull up my pants and realised it was mine! That was when the hairloss really started - the thatched cottage lost its roof in a day, and the rest was soon to follow! Worst of all was loosing the nose hair - my nose ran all the time afterwards - drove me crazy!
Tough as it was at the time we still managed a few laughs. I am trying to remember that now as I do chemo again, and am looking for the amusing things that pop up. Doesn’t feel like there are so many at the moment, but I will have a giggle and I will get through this - and anyone who needs a hand to hold - hey - I will hold it guys!
Enjoy italy egret!
2become1 I had scans etc as soon as Id delivered my son but they did say it’s very unlikely it would have spread without node involvement so try not to let it worry you x
Laying awake dreading today, round 3
Feels weird to send yourself off to ‘get sick’
I have started in the senakot today though so that has time to take effect at least
Praying it’s not too bad and I ha e done energy to enjoy the sunny weekend x
Hello to everyone hope you’re all ok x
Thanks ladies
Mrs merc I missed your post last night but it’s made me chuckle this morning, sounds like you have a lovely positive outlook!
This weeks randomness I’ve lost my tache! Well it was more like baby fluff never noticed or bothered me before but now it’s fine I have a constrnt sweaty top lip ! Oh well
Got my magazines ready for later, nice bit of zoning out. Sun is shining here so will try to squeeze a walk in before I go
Jane are you in again today? I thought I remember us being the same day
1981Mum number 3 today for me too! I have been for a cooked breakfast this morning. I feel like a three year old tantrum is going to happen today. Bleh. I don’t want to go!
And! My lady garden is still clinging on! Seriously!
Morning all! Hugs to all those struggling. Laughed myself silly at the ‘thatching story’ it is so good to laugh today.
Yesterday spent all day at hospital with a collapsed Picc line. I honestly thought it was coming out. Gave me a nasty pain in my chest! But they saved it, phew. So I feel a lot better about things today.
I have a nasty sore throat but most things are in control.
Thinking if you all. And I have holiday envy!!! Enjoy Italy!! Xxx
Hi mrs merc and welcome to,our lovely group.
Egret - have the most fabulous time in Italy x
Good luck to all you ladies chemo- ing this week. Mine is next week and I’m hoping my hideous stomach settles down before then still having so much trapped wind and now just to make a change I have diarrhoea - can’t believe how knackering it all is lol.
Hope we all have a good BH weekend xxx
I am back. That last drug going in just does it for me. Hits me right in the face and i can’t go home for twenty mins before it passes! Horrible. Neutrophils were only 1.3! They still gave me chemo but I have to have the injections whatever they are? In your stomach? Either one injection tomorrow or four injections next week. They won’t know which ones til onc is back tomorrow. Has anyone else had them?
1981/
Yes back home from chemo 4- 1st TAX I was pooing myself and was ok !!! Apart from had an upset at 3 nurses trying to canulate and goin in tissue and having to send for vascular access team!!! Who ended up in vein I sed !!! No rwaction to chemo anyway which is what I was worrying about as my done when he had his chemo aged 3 reacted and it was awful!!! Kept thinking was gunna happen to me too seen as I’m so unlucky!!! Haha so now waiting for the se to kick in achy bones etc not exactly a thrill! Molliana my friend just been sent home with injections too it’s to boost your immune system as she been neutrapenic both times but I think it gives u achy bones too!!! Take paracetamol !!! Hope
Everyone eell xxxx
Hiya Guys - and thank you for such a lovely welcome
What a beautiful day to day - albeit stuck in a chemo suite with a tempting garden through the picture windows!
Egret - so jealous - Italian mmmmm *sniggers*. Sorry to hear about the bad throat - I do hope it des not progress into anything…
Tussie - Thank you for your kind words. In some ways it is easier this time as I know I got through it the first time and that all the horrid worries and side effects can be controlled and will pass in time. It’s taken a few years to grow back the hair - yes I will lose it again but hey - it grows back (and I think it is/was healthier this time). The curls it came back with were a challenge at first, but they have relaxed big time and with some coaxing they behave now - I had a tight afro style for a long time and I didn’t have to pay out for a perm!
On the other hand, I recognise that this time round I am not going to be ‘cured’. This is not going away and is a management programme only - but none of us know how long we have…my nan always warned me to wear clean knickers when going out in case I got knocked down by a bus!
1981mum - Glad you managed a chuckle - laughter is a great medicine for all ailments. I loved the sweaty top lip comment and loosing the tache! Cant wait to be able to stop waxing mine
Molliana - the lady garden! What a lovely description! Good luck with #3 ! The injections really are not that bad and they do help alot. As Jane1978 said - they are for the immune boosting. I didn’t ache too bad, but I know some people did. If it becomes a problem hopepfully the Docs can shake rattle and roll a cocktail or something to suit you better…
Huneebee - Glad they saved the line - fingers crossed the bad throat remains at bay !
T3D - Thank you for the welcome - and this IS a wonderful group. Everyone seems so supportive and friendly - thank you so so much…
Mrs merc-
So sorry u here again after being thru it all before ? how long ago did unhav primary?? They are very gud nowadays at keeping u living as long as possible but I bet u have been in an awful state and I really wish u could get rid of this evil thing!!! ?? stay strong and positve vibes !!! Had anyone tried the you tube meditation and healing and cleansing your shakras I really fiind it helpful last night I helped my angels heal and cleanse myself xx
Storm - your dad I’ll
Too!? Poor family ? my son had lymohima age 3 so already done out share I feel !!!?he’s a fit 15 year old now giving me grief!!! Thank
The Lord ! Lol x
My primary was diagnosed end of Feb 2012, MX & ANC in March, and started chemo (6 x FEC-T) on May 1st 2012, followed by rads and then tamoxifen. From what I remember of the diagnosis then - Stage 2 - I had 3 tumours in the right breast - the largest being 52 mm. Lymph node involvement - but not sure how much now (8/21 ?), and it was HER+ 5/8 then.
Now I am HER+ 8/8 and have been started on Herceptin as well as chemo - so fingers crossed that is another bonus. They have also found a could of lymph nodes in my stomach that are infected - but hey - treatment is treament ehh?
What about your primary? When were first diagnosed?
Oh dear merc feel bad for u!!! Iv just recently been diag in March 4 left boob and spread to nodes under arm!!! chemo down two to go then surgery n rads !!! What a whirlwind !!! Finally got my head round it but this group of ladies have really helped !!! It’s nice to share experienced and only we understand each other xx
Well I’m having a wig dilemma. To wear it not to my sons Speech day tomorrow. Just not confident of it in wind & rain.
We went crazy yesterday! All these holiday conversations rubbed off on me. So we bought a little Eriba Troll caravan!!! Picking it up next Friday, just in time to squeeze a weekend away before round 3!!!
Good luck to all starting their next round. Hugs to all xxx
Just checking in to say I hope everyone is able to enjoy the bank holiday weekend as best they can and to wish for nice weather for those managing to get away for a break xx
I am enjoying Italy, it is about 23 degrees sunny, but at times overcast. My sore throat cleared away, but I bought a thermometer anyway… I happily put my feet in the Ionic sea today. I am even “managing” four courses evening meals with a glass of wine. When I say “manage”, I keep a keen eye on the availability of toilets. Around the pasta course, I run for it. I wear clean knickers with a spare in my bag. Bananas for me tomorrow, and flat coke of course. I am reading all your postings. Egret x
