Starting Chemo April 2015

Lovely to hear you are enjoying italy!

A caravan sounds great , hope you get to squeeze in lots of sunny relaxing weekends to forget you treatment
Merc, secondary sounds tough but intend you have an amazing spirit and I’m sure you are fighting just as hard this time around
As for me, totally bleugh yesterday but anti sickness starting to take the edge off now so hoping for a better day tomorrow. Managed half a fish and chips for lunch and a sandwich for tea and all stayed down!
Totally understand the wig dilemma, they stay on pretty well but take a compact mirror as I didn’t feel how messed up mine looked in the wind, it’s totally different. Good luck!

Any if you lovely ladies woken in the night with Wind !!! Yes sorry you heard it right :relaxed: constipation and a bloated stomach I look 6 months pregnant. The wind is ferocious and keeping my awake … !!! Anyone ?

Yes! I have that too. It’s pot luck what happens with my stomach. I shall down three movicol today!

Ha ha not wind coco but the constipation yes, 3 times!
I just logged in to report that after 3 days of senakot we finally have movement this morning YIPPEE!
Feels great x
Only you ladies will understand that

I will so be at the Dr when it opens … It is the worse wind I have ever had … Constant smelly and SO loud !!! So embarrassing !

Oooh Hunneebee caravan sounds fab hope you have a fab weekend x

Egret Italy sounds fabulous glad you are able to enjoy it x

And to you constipated ladies don’t take it lightly I ended up In Hospital with a bowel obstruction last week - it was so painful I took movicol which resulted in really bad stomach pain so instead of reading the leaflet which said " if you experience severe stomach pain reduce the dose and contact your doctor" I just took two more -bad move for me I didn’t react at all well to it -major lesson learned there! I have Senna and lactulose ready for next time!
Happy weekend to you all x

Is lactulose a drink like movicol? I am getting sick of movicol. Not good at drinking medicines.
I had my tummy injection yesterday. It wasn’t so bad :slight_smile:
Holidays sounds like a good idea. I hope you are enjoying them :slight_smile: I am about to have Mcdonalds breakfast and then head back to bed if the steroids will allow me to sleep the will be a bonus!
I have just painted on a third eyebrow as a test! Best remove that before going to McDonald’s! xx

Well I went to the Speech day in my wig. Thankfully not too windy! Stayed on my head. Phew.

We have even managed to have friends round for pizza & Pimms. Lovely to do something normal.

As for the old stomach problems, I have the opposite problem! Too much of it coming out of me. Today, I jest you not, I sat on the loo and it just kept coming out. I thought, it must stop soon!!! Eventually I stopped, but had a moment of panic, there was so much of it, I didn’t know whether I was going to flood the wet room when I flushed, as I thought the toilet might overflow!!!

Any hoo, that’s my toilet story of the day!

Eyebrows, patchy and very thin. And I have no idea how to pencil them on! Mild panic starting. I’m not touching them now in the hope they will stay fora bit longer!!! Love to all xxx

Hey ladies :slight_smile:

 

T3D - I swear by Movicol. In hospital they had me on 6 a day and senna then added in an enema and said I would be having four the next day if it didnt work. I think the fear of the enema was what did it in the end! I keep things movicolling now as required –> you are quite right… dont underestimate constipation! (My mum reckons kiwi fruit is what works for her, but alas my taste buds just dont stretch to them atm).

 

You ladies made me think about wigs again. I still have the two I had when I was on FEC-T and I got them aout and gave them some TLC this evening. They look ok, but made me wonder how easily I will get used to them again. Dont know how long before it comes out cos they had to start me on a lower strength chemo and build up, but at least I know what is coming.

 

Jane1978 et al - Thank you all for your kind words about having a strong spirit etc, but I will be honest with you - I am having a couple of really flat and low days atm. Dont know why - not even sure if it is mood or physical. My daughter thought I was a little jaundice this morning, so maybe its the chemo, but I have to ‘show a front’ to people to be able to keep myself going. Does that make sense? I am not anything special and strong - I just will not give in :slight_smile:

 

My mouth feels horrid and I feel rubbish so I am going to attack the Ben & Jerry’s in the freezer - anyone wanna tub? Phish Food tonight - tee hee xxxx

 

Hugs

Pen x

 

P.S. Perhaps we should start a ‘Spoiling and Treats Thread’ where we post how we treat and spoil ourselves - might give each other some cool (sorry - I have ice cream on the brain now LOL) ideas?

Morning gang
Since we are still sharing toilet woes I’ve over done the sena, on the loo all day today ! I don’t mind though it’s better than the other option
Not sure oh will agree though my wind is awful :slight_smile:
I can’t do ice cream in chemo mouth
Today I’ve had coke, fanta and cheap ice lollies, getting fatter by the day but who cares!
I’ve got roast lamb for lunch, bloody hope I can taste it

I am going to have to force down some movicol today too. Haven’t been to the loo since Thursday morning now.
I feel crap after Fec 3 :frowning: I didn’t sleep well at all yesterday despite being in bed all day and all last night. I feel hot flushes and then freezing. Feel a bit sick too. I need to snap out of it. Only took my first day off sick from work Friday having worked through Fec 2. I also need to find the energy for my four year old. It’s really hard being on my own. He bounded in to my bed this morning with “mummy, you know when we say shampoo? It’s like saying “sham” and then “poo””. Fits of giggles. Typical boy!

Hi Molliana, make sure you haven’t s temperature if your shivering etc … Hope you have a nice weekend with your boy … 4 is such a magical age … Mind are teenagers and just like to be with their friends… Xxx ps will take everyone advice and get movical !! X

Mol, get yourself better, that’s all your boy needs
Can you be signed off sick for the first week after chemo? That’s the worst bit for me I can cope with the rest
At first I was gutted this has ruined my maternity leave but actually relieved I don’t need to worry about work and I’m being paid which is great as no money worries.

Gosh Molianna! You shd consider signing off the first week after treatment! Save your energy for your little man. Great poo joke, btw!!!

I think a spoiling ourself thread is a good idea! I’m going to take time to paint my nails a funky colour today! And persuade my OH to get me a pot of Pralines & Cream Hagen das. It’s all this icecream talk!!!

I’m craving bananas at the moment, which is ok, as they’re soft in my mouth.

Ladies, go spoil yourself somehow, then report back!!! Hugs to all xxx

Well hope u all well ladies !! I feel like I been hit by a bus lol thurs wa fist tax and have sore throat bad ears achy breast bones n under arms head ache!!! But I done feel sick so that’s great for me as I really don’t do sick well
Lol been camping with my family n now having an early night !!! Hoping for but better feeling tom xx

Hi Jane, well done on camping! I hope you feel better today. X

Good luck for today Val. Hope it all goes well. HALF WAY yay! I’ll be catching you up on Thursday love Tracey x

I am 5 days after FEC 2 and surprised at how rough I feel Honestly feel like I could just go to bed for a month.

 

Last time I wasnt too bad but have been laid up either in bed or on the sofa in full invalid mode since last Thur when I had chemo.

 

On the positive front other than sickness and tiredness I am not too bad and even managed a pooh today (hooray!!!)

 

I guess it just knocked me for six as I wasnt too bad the first time round. Just worried if it gets this much worse each time!!

Normal is 2.5 - 7.5.
xx

Hi ladies! Another two days and I am back from Italy. I am amazingly well, I can’t believe my luck! The only reminder is the vein in my right arm which feels a bit tight and slightly achy (where my first FEC went in with a cannula). I am due my third FEC on 5 June. I bought more antibacterial lozenges tablets, they are probably a better bet than the surgical mask for the plane trip back to Gatwick.

I know I took a high risk by travelling during chemo, but I was getting very upset and so angry. I was considering to refuse the chemo in order to get my “normal life” back. I even wrote a letter to my consultant telling her that if my (adult) children did not insist, my choice was to refuse treatment. I was that much oppose to chemo. I was frightened witless of the side-effects and how it would cage me. I asked (twice, in writing) and got the EndoPredict test, because I was hoping it would show that I did not need chemo. But the genomic test showed the opposite!! High risks of recurrence!!! A 18% decrease with the chemo!!! More with radio and tablets.

Now I feel a real fool because of all of us, it seems that I got the least dreaded side-effects. Yes my hair are still falling by the handful, but otherwise I am feeling pretty well with tons of energy, no nausea, and pipes functioning. I think that my oncologists let me go abroad, to show that if I wanted it THAT badly, they would support my decision. I am so grateful!
Now I am thinking of escaping to Spain between chemo 3 and 4, hahahahaha! Unreasonable?
Thinking of all of you, and having many thoughts and I lit candles in churches here for us - I am not a Catholic -but II still think prayers help.
Egret x