Cybele - I told my nurse that I was feeling really really weak after FEC 2 for up to day 8/9 and she said “Well you will do!” (I’m in East Yorkshire, so not quite as tough as the women in the north ridings!).
I dont know - I suppose if you’re really concerned get your bloods tested??? mine are taken at 13 days as I get my expander filled on day 14…and although they are dropping, they are still reasonable.
I’m off to get eyebrows tattooed on Sunday in expectation of them falling out? anyone else had it done or thinking of it… ???
And Cybele - I know you have been feeling wrotten but I am envious that the cold cap has worked for you…(in a nice way of course… 
…
sorry to hear your mum is sad - I’ve always maintained that my worst nightmare is one of my children being ill and my second worst nightmare is me being seriously ill… it must be hard for our mums to stand by and watch us suffer…
…both my parents are in denial…when I see them they dont mention it… at all!
Big hugs xxxxx
Love it Cybele!
My consultant literally just said to me “it’s malignant!”
No niceties in Yorkshire!
Sleep well.
xxx
Morning Crackers,
Welcome back Teal & SheilaP. Chemo def messes with your vision Sheila , I had a range of blurryness and little stars/flashes going on in FEC-T, now I just get the blurryness. Can’t imagine how much more annoying it must be with the cataract. Grrrr. Also the rash - I am sure you will have thought of this but you could be allergic to some product you are using, even if you are not usually. Don’t forget how chemo changes the skin. I have had a high speed menopause thanks to chemo so my skin has aged years (along with the rest of me) in just a few months - products that were suitable before are not now. And chemo dries out your skin as well. It’s a whole, horrible new world. NOT FAIR. Mind you, still make sure you are not being fobbed off by the Onc and keep an eye on it.
Lisalouw - sorry you are feeling a bit sh*t. I know what you mean about feeling that the chemo is worse than than the cancer. I was fine until they diagnosed me and started treating me! Hope you are feeling a bit better by now. Are you having the jabs to boost your immunity?
Maire & Cybele - neuts levels - the only way to know is to have a blood test. You may feeel sh*t for lots of chemo related reasons apart from neuts levels. In fact, I felt fine when my levels were 0.02. Zero would require living in one of those plastic bubbles but I was at home with a man with a cold. Oh, well…
Sorry about your weeping mother C** ybele** - it’s really hard to upset elderly parents, even though your mother is Yorkshire and glamorous. Mine is a chirpy cockney who comes from a music hall family (no I have not made that up) so she would prefer a sing-a-long to having to deal with this. I never know how to get the balance right.
I am still suffering the effects of the drugs I did not need. Not much sleep and bowels are not playing. Feeling anxious that neuts will still not be up by Tuesday. I feel about 75, but at this rate I actually will be by the time I finish this chemo round. Will be having blood test Tuesday and then ringing one hour later for results.
Keep on keeping on, Cress, xxx
Lolly and I are going to meet up on Monday for coffee (if it doesn’t snow). Anyone else near enough to Bedfordshire to join us? Message me (or Lolly) for the details.
hi Cressida,
just read on here and you already have done what mentioned on my message to you, and see if we can get anyone else to join us if they can.
looking forward to meeting you weather permitting.
lolly
x 
Too far away for me but have fun when you meet up!
Too far for me too, but would have loved to have done…
Enjoy the rest of your weekends.
Loads of lovexxxx
Good Morning Crackers,
Thanks Maire makes me feel better knowing I’m not the only one who has had freakish stuff going on from the chemo.The rash is still appearing every night but the cream and antihistamines from my GP who seems to be taking the rash seriously unlike the onc do, calm it down.
Cressida The vision thing is bloody annoying, hate going out as I really can’t focus too well, dreading the day when a simple bus ride to the hospital turns into the magical mystery tour. Thanks for the tips about the skin changes from chemo and if the rash continues the onc will have to listen to me.
Good luck to everyone having CT this week and everyone dealing with the aftermath of CT I wish you all the best.
I can be changed by what happens to me,but I refuse to be reduced by it Sheils xxx
We went to the Hollywood Costume exhibtion at the V&A! On a little outing, like normal people!
It was fab - saw Dorothy’s ruby slippers. Darth Vader, and Marilyn’s iconic air-blowing-up-her-skirt dress.
V. crowded, whch made me anxious for reasons you will all understand, but I don’t think anyone sneezed in my direction.
Feel so much better psychologically, just by having gone out and done something. Have been staying at home too much in my safe, warm little germ-free cocoon…
I can’t wait for FEC3 to happen, now. I know it’s going to be horrible, but I also know that then I’ll be half way through.
Hope you have a good time tomorrow, Lolly and Cress xxx
Today’s post is a tribute to the BCC community, and everyone who posts on these forums - and that means YOU
‘You’ve Got a Friend…’ :
today’s post on chemonights.blogspot.co.uk/
Hi, Had first chemo 13th Dec, tried cold cap, but couldn’t hack it for more than 2 1/2 hours, part from nausea both during treatment and the following day, got away with it fairly well!! Had weird muscle spasms in back and stomach on day 8 after first treatment, has anyone else had these? Had second FEC on 4th Jan ~ good start to the New Year ha ha. No nausea this time, just felt a bit shaky for the week following, once again had same muscle spasms on day 8. Had hair cut really short by my great hairdresser, she came to house, and also trimmed wig. Still got some hair on top, spect it won’t be long before it goes altogether. Wore wig today and my 13yo grandaughter walked in and the first thing she said was, ‘I like your hair Nanny’, so it must look fairly realistic ~ good old NHS. Been reading other posts re alcohol, my usual tipple is Southern Comfort, but gave this a miss over Christmas, incase I go off it!! Stuck to ocassional glass of wine and Baileys, nice to have a treat every now and then, I think we all deserve it. Hope you all managed to enjoy Christmas and are trying to be positive about getting through this treatment, just think, by Easter we’ll be all singing dancing!! Good luck to all. Keep posting.
Sandxxx
Hi Cybelle ~ Love your photo ~ when’s your FEC3 due? mines on the 25th Jan, as you say at least it’ll be halfway through ~ got to be a plus side somewhere! Hope your mums coping ok, Take care Sand x
So this is how the side effect plan goes after FEC i’ve just discovered after round one: nothing for 4 days then pretty intense nausea and headaches and achey limbs followed on day 6 by very sore mouth ulcers. I don’t like it. And i’ve given up drinking and fun, infact this whole house has become a fun-free zone. Cancer is a fun sponge. And i have to drink soya milk and eat huge amounts of cabbage. All good for me I know so I must get a grip and stop moaning. Thankfully I feel OK now so the side effects seemed to last a week. That gives me a clear week coming up to enjoy not having fun with friends before round 2 on the 21st! Moan, whinge, whine
Morning ladies,
Cybele - Yey to “normal stuff”. I tried normal yesterday by going to country pub for sunday lunch. EVERYBODY in there had a cold or a cough. Virtual Howard Hughes kept whispering in my ear and spoiled all my fun.
Sand - Baileys should be on prescription. Jealous of halfway.
Alpal - “cancer is a fun sponge” is my quote of the day, possibly of the week, but it is only Monday.
Snow looks like it wants to spoil plans to drink coffee with Lolly. Sky and ground are the same snow colour here at the moment and forcast is for heavy snow from midday. I always laughed at nervous snow drivers before cancer, but now it seems cancer has run off with my cocky confidence and I am worried about sliding about on country roads whilst I have the concentration of a gnat.
xxx
Morning Crackers,
Only a dusting of snow up here in Scotland (central belt). Gorgeous clear skies and some icy puddles. If we get more snow, I hope it’s just a further sprinkle because next chemo is looming and my legs were shaky enough with the last lot without slippy surfaces to contend with.
I am so dreading Thursday. Getting my loading dose of Herceptin as well as TC. Yikes!
Cybele-I enjoyed your last blog post. This really is a great forum and I have also been dipping into the other chemo threads to get a heads up on SE’s further down the line. You learn so much and it’s good to find reasons for some of the feelings we’re experiencing.
Good luck with the snow and chemo this week crackers and hope neither knock you off your feet!
Afternoon ladies! Well the tax truck is parked on my drive (thats how it feels - that I’ve been knocked down by the darn thing!) I feel totally stoned and today I couldnt stop shaking. I couldnt settle to anything but feel a bit calmer now. My left eye feels like a glitter ball - v odd sensation.
Cressida - Thanks for the corsodyl tip - its really helping
Cybele-got on to your blog Very entertaining!
Here’s hoping that tomorrow will be better and thanks that Iam a thiord of the way through this rubbish!!!
Queendrama -I know what you mean about ‘couldn’t settle to anything’. I literally couldn’t sit down. I either shuffled about the place or had to lie down. Sitting made me feel too agitated. On the plus side days 10+ have been really good and I haven’t felt as though I was on chemo, unlike FEC which made me feel below par the whole way through.
More snow in Bedfordshire than Scotland? Now I know the universe has it in for me. We cancelled our meet up, but we will do it again - so - anyone near enough to join us in a few weeks? I have already kidnapped someone from the January thread so 3 of us so far… Sorry if it is a bit exclusive. When we are chemo free we can go further afeild and more of us can meet. Don’t forget the summer Christmas party, xxxx