Ta Cybele, there is not much that takes me by suprise anymore in the treatment arena.
Not sure if you read the blog thread, but you have to link your blog in some way to enter the comp. Hate you to miss out on Gok.
x
It feels fantastic Cybele - the best bit was taking the cold cap off for the last time! I have felt great for the last 2 days, just waiting for my inevitalbe steriod dip and hoping that the elation of it being over helps me get through the dark days.
I cant believe how quickly the time has gone, many of you are now 1/3 of the way through. I found it helped to count down the weeks to a week after the last treatment - the week when I would start to feel better knowing I wouldn’t have to dip again.
Just waiting to find out when my rads will start and will also be on 5 years of Tamoxifen.
Take care and keep going with the blog although I’m not sure how you manage it on the bad days - credit to you for keeping your many fans entertained!
Jayne x
Posting gremlins are moving all the posts about…
Cressida - that is ridiculous - seriously. p**s ups and brewerys spring to mind - it’s not even funny!
Have you been offered nulaster - I have it the day after each session and it is meant to act should your levels drop below a certain level… I know it’s expensive and not always offered, but i think if you get a problem, then it should be given.
I have some good news… my CT scan was clear, so all the pain in my back is muscular after all. I am so relieved…
Sleep well crackers.
xxxx
Jayne - that all sounds good. Can’t wait t o get to the same stage. Am also counting down the weeks like that - on the basis . as my sister said, that you haven’t finished with the chemo until the chemo has finished with you.
Cress, I don’t know how to tell you this, but the blog competition was in 2010 - the prize is long gone… 
Something amusing - have just seen that I am now being followed on Twitter by Paxman, the company that manufactures the cold caps, and by a cold cap campaigning organisation…
Mandy - I am not sure what injections I had last time - I will check and ask about nulaster. Really good news that your back pain is “just” muscular, hopefully when you can exercise again you can get it sorted. x
Mandy - it’s Neulasta - it’s what I had before. Willing to have it again if I have to. I just had a more severe reaction to it than is normal, but not so severe that they had to stop it. Oh well…
Cybele - I claim Chemo Brian for myself.
Thanks Cressida.
Cybele - you could be the new ‘face’ of the cold cap 2013!!! Nevermind Gok, he miss timed the Cybele boat!!!
Hi all
have not been on here for a while, had my 2nd FEC on Friday and today is the only day where I can say am feeling ok. Am dreading the next 4 will they get worse I just dont know. Cybele I can’t believe what your friend said to you - dreadful I think having bc you find out “who your friends are”. My hair is all gone now my husband had to shave it off it was shedding so much, found it everywhere even in food yuk. At least it has got a bit colder now so hoping this willkill off all the nasty bugs around. Good luck to everyone starting chemo or going on this journey by the end of January if all goes to plan I will be half way there!!! xxx
Cress - you’re going to have to fight me for him!
Mandy - that really made me laugh.
Teal - so sorry to hear you’re feeling so vile - I’ve had truly awful week as well after FEC2 last Wednesday, but am feeling so much better today - there are some comment further up from Jayne, who has just finished FEC x 6, which are quite cheering.
And as soon as we’ve had FEC3, we’ll be at the top of the hill, and can start going down the other side, and the end will be in sight
I’m also really dreading FEC 3, but have decided I’m just going to put it right out of my mind now I’nm feeling a bit better, and focus on enjoying and getting the most out of the ‘good’ week ahead.
Really sorry about your hair, BIG HUG xxx
Oh Cress- that is shocking shocking shocking. I had my bloods done on wednesday in readiness for tomorrow and was told that if there was a problem they would 'fone me. Well cupcakes to that! I phoned my onco nurse this morning with another query and casually asked for the resuts of my bloods. And I shall do the same next time and evrytime after. Your stress levels must be through the roof!
Massively big hug!
Cybele - thanks for the link! I shall enjoy it later!
Cressida- Cannot believe how mucked about you’ve been. Why had they started if they didn’t have your results??
I ask to see my results before they start (and I’ve got a way of finding out before hand which involves computer hacking of a sort. Sh, don’t tell).
Hope your bloods improve soon.
Teal , sorry you’re feeling rubbish and hope you start to rally soon.
I continue to feel good post TC but am getting mighty scared about next Thursday.
I though my chemo symptoms had completely disappeared but today I managed to cut the skin between my pinkie and ring finger with the smooth rim of a teacup. I’ve no idea how that happened but have had to resort to a plaster as it wouldn’t stop bleeding. This chemo does freakish things.
Maire , am v. impressed re the computer hacking…
those are just the sort of skills a girl needs at a time like this.
I have lost track of what everyone’s having and when - how many TC are you haivng? Are yours ALL TC?
The bleeding thing sounds nasty - I read that you should use washing up gloves in kitchen to protect hands, but have I done that? Um, no.
Am feeling a lot better than I was earlier in week, but I just long for ONE SINGLE DAY without nausea.
Not going to happen…
Cybele and Maire - stop all that washing up nonsense immediately. It’s very dangerous, as is hoovering, dusting, tidying up etc.
Spent the morning shouting and cyring at people and will be having injections to boost my immunity along with the full dose of pioson, providing my neuts scrape themselves up to an acceptable level - but no-one will commit to the magic number. So now I can look forward to the full side effects, which were a bit like someone had a voodoo doll of me and was torturing it. Carefull what you wish for, as they say.
Maire - computer hacking - I am impressed - want to share?
Thankyou to everyone who has sent me good vibes - it really does help. Probably the reason that I managed to pull myself together and shout at people.
xxxx
Hi everyone been catching up on all your posts since I last visited,
I’m lost for words you are all wonderful people, all your bravery,courage,compassion,humour and love is amazing.
After the 1st treatment (FEC) I felt nearly every horrid side effect had to stop by for a Christmas or New Year visit.
The one that stopped me coming here here was my vision, that became blurry and distorted almost immediately,it made reading, writing impossible for about 18days. the left eye which had a miniscule cataract liked the treatment so much it grew and grew. The onc told me yesterday that it should improve after the treatment has finished and to try and manage till then but to expect it to reappear with each treatment.
I did manage to get through the cycle and had my portacathe inserted last Tuesday, was supposed to have my 2nd treatment yesterday but the wound from Tuesday had not healed enough so will be having chemo next Monday hopefully.
One really weird thing was the appearance of a burning and itchy rash on various parts of my body last Monday (day 21 after treatment) night after my shower. it now seems to come up every evening and some mornings.My GP has given me cream and antihistamine for it, but the onc absolutely refused any suggestion it might be a reaction to the treatment as my last treatment was 3 weeks ago.
Anyone got any ideas about this rash? I’m not the kind of person who has allergies normally maybe hayfever for 1/2 days every 3/4 years is about my average allergic reaction to stuff so this is very much uncharted territory for me.
Wishing all of you better health in 2013,
Hugs to you all xx Sheila
“I can be changed by what happens to me,but I refuse to be reduced by it” ~ Maya Angelou.
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Hi ladies sorry not been on for a couple of days , I now have neutropenia , ace , I don’t have a fever so I’m at home with lots of antibiotics and antifungal for my mouth and throat , I don’t seem to be picking up much just so tired , on the plus side I have my wig it’s a Rachel welsh one ha ha , I’m calling it ferret , hope you are all bearing up and cybelle , I’m so gob smacked about your so called friend , I’m really sorry it must knocked you for 6 , my little boys dad is abit strange about the cancer thing , total denial about it all , lv to you all, I’ll catch up when I’m feeling a little better , which is soon I hope as it’s beginning to wear me down at the moment , and im feeling like chemo is the enemy not the cancer, I hope I’m not like this every session xxxx
Cybele -I was due 3 fec and 3 tax but they had rethink about fec after the first one as they thought I was having heart spasms. So now getting 2 tax with the c element of the fec and a final tax on its own followed by lots of herceptin and tamoxifen and poss radiotherapy but not really been told about that. Basically I’m missing out on 2 x FE.
Cybele and Cressida- It’s not really hacking but can’t say too much or I’ll get into trouble.
Washing dishes was obviously a big mistake and will point this out to husband tonight.
Sheila P -sorry you’re having a rubbish time. I had a freakish pain in side that felt a bit itchy but no rash appeared. I convinced myself it was the start of shingles but then it disappeared. I’d keep an eye on your rash and see if it happens again next time.
Lisalou- How do you know if you are neutropenic? I only get bloods done the day before chemo and wonder where my neutophils are at, in between times. Sorry you’re low and hope you’ll soon be well enough to post a picture of the lovely ferret!
I’ve been wondering about the neutropenic thing, too.
i have been feeling so catastrophically weak for the last few days - it was a bit better yesterday, but today the weakness and fatigue is just swamping me…
I’m sure this is normal for chemo - I think I’m just a cancer hypochondriac.
Grace under pressure FAIL
Not only that, I went out for a brief totter earlier, and came back to find a phone message from my 81 year old mother, weeping down the phone after presumably having read my rather emotional blog post of the other day, from what I could make out between the sobs.
My mother doesn’t normally do weeping; she’s from north Yorkshire.
She’s been a bit under the weather with a bad cold herself, and now I feel really bad about upsetting her.
On the plus side - um… there must be something, but I can’t think of it right now.
Oh yeah, my hair hasn’t fallen out - yet.
I think I need some chocolate now, a stiff gin being off the agenda…