Lolly - “mothwash” is a good description of trying to get rid of the furry stuff growing in mouth 
hi Cressida,
That made me laugh out loud, i even read it back before i posted it, funny how that sounds mothwash.
Stop the bus I want to get off - or is the roller coaster !
Onc appointment today ready for 2nd tax on Monday yippee oh what joy. Only got to have 4 and will scan me after 3 to see about shrinkage but she thinks the lump is less than 4cm - 4.8 cm at start so hopefully that is good. She is going to refer me back breast surgeon in next 2-3 weeks to discuss mastectomy and immediate reconstruction after chemo so all in all happy bunny today just that sometimes things move so fast yet other times it drags.
Hope everybody is having a good day.
Wendy x x
wendy - that sounds fab!!! x
Good news Wendy - now you will be able to plan surgery/wedding! x
Sounds like very good news, Wendy - bIG HUG xxxx
What’s all this about a wedding? Have I missed something?
lolly - the mothwash had me in fits!
Cress - yeah, I gather Clarissa was ALL of those things and more in her hey day - and presumably also had the wonderful attitude and hilarious style of discourse which is why I imagine you as her, if you see what I mean. I’d love to see you pulverising an unruly oncologist…
I am feeling MASSIVELY more cheerful - I think it was PMT that floored me this week, a truly awful mix with chemo side effects.
The fact that I’m still getting PMT at my age is startling - I was so proud of not having had the menopause yet (Oh, I’m still just FULL of oestrogen) until it dawned on me, post dx and a little research, that all the s***ing oestrogen was probably a significant contributory factor to my getting breast cancer. Doh.
Hello everyone , the snow is here in South Yorkshire , which sort of make me more paranoid with the what ifs !!! re getting out for emergencies , I’m not keen on this person I’ve become , went to docs today who gave me more antibiotics for sinuses and vit b for my smooth tongue , very strange
cybelle , hope you feeling better , the tiredness is so consuming , and glad I made you laugh re ferret ha ha
mandy , hope you ok , just been reading back about wanting to use your bad arm , terrible , hope it’s all sorted now xxx
queendrama , I have TC so not the same but my left eye has flickered ever since and my eyes sting , very frustrating
jayne and alpal , love the nails and I so love the saying cancer fun sponge , that’s so true
wendy , do you have the immune booster injection ? Did you have to he same as me where they plummeted to nearly zero , I’m going to ask for them when I go next weds for my bloods
love and thoughts to everyone on this snowy evening xxxx
My youngest daughter gets married 20th April was booked before this bloody disease reared it’s ugly head again x x
Hi all
Had FEC 3 yesterday in mx arm!!!
I spoke to lymphodema nurse who said it wasnt advisable but to speak to surgeon who said that id only had sentinol node removed that it shouldnt be a problem - i then spoke to a friend who is an oncologist and said that that was right and that using the bad arm is a historical thing… the more i learn the less i know! is how im feeling right now!!!
felt shocking last night but managed to get a decent night’s sleep…my friend treated me to a lovely massage on Wednesday and it has improved my back pain so that combined with my friend zopiclone actually made me sleep…
very cold here in East Yorkshire…Cybele are you still venturing up north this weekend?
Marie - how did you get on yesterday?
Cressida - i cant remember, but are you TN? think i may have responded on another thread to you…what’s the plan? I’m thinking of insisting on the gene test and then also asking for RADS even though not on my plan???
love to all and thank you for your massive support…
xxx
Lisalouw not had immune booster did get antibiotics and anti fungal for prevention of thrush in middle week that’s all. Had bloods today and ok for Monday
x x
Mandy - I am TN and it laughed in the face of FEC-T. This is not common. I have only met one other lady whose TN got worse on FEC-T. I had mx. no recon, and super rads. Now I am having more chemo. I am waiting for gene test - TN under 50’s should get it on NHS regardless of family history. Then I will decide whether to have other breast removed and ovaries and any other bits that might be trying to kill me. No-one will be able to say I shirked any horrible treatments. I had to be persuarded by Onc to have extra chemo and super rads were also her idea. I did not insist on them. I do trust her, but she can’t see into the future and neither can I. My tumour was massive (10cm) so, if yours is smaller it might not be so necessary to be so aggressive with it. I contacted the BCC ask the nurse and talked it through before I signed up for the extra stuff. They were very good - maybe you should try - email them first as then they phone you (with your permission) a few days later and are well informed on the topic and you don’t have to battle with the engaged lines. Good luck! xxx
Hi Crackers. had my Tc on Thurs and 1st Herceptin. I had a reaction to the taxotere this time. Just mild lower back pains and throbbing. The nurse stopped the infusion and gave me more hydrocortisone, then started me up again 30 mins later. i felt a bit silly but nurse said I’d done the right thing as woman in next ward had full blown reaction and ended up with major emergency situation.
So far feeling fine. Have spent last 2 days clearing leaves in the garden. Expect side effects to kick in tomorrow. Moth mouth may be about to begin and that’s without Lolly’s special medicine.
Managed to put on 4 lbs overnight after last round of drugs. Just hoping it’s fluid retention as I cannot cope with being fat and bald.
Thanks Cressida - yes mine was smaller…26mm, although it had measured 5cm on the original scan…
When i mentioned that gene thing, my onc didnt think it was worth it given i have no family history BC or indeed cancer (although i have a very small gene pool; my sister died at 24, my mother is an only child as is my father and both his parents…) I think i owe it to my daughters to get tested, so will demand and then for me as I dont want this to come back if i can avoid it!!!
Were your lymph nodes clear Cress? again I might push for Rads as well - anything really.
Lots of love all.
I’m feeling pretty yucky but not too bad. managed a trip to M & S for some food and am going out on dog walk in a mo… no where near as bad as FEC2!!! …yet!!!
xxx
Hi Ladies, my I join you (belatedly) on this thread? I’ve only just found this forum (I’ve never used one before) and would like to be part of it having seen the tremendous support from other people in similar situations.
I was dx in Sept 12 with BC and have had 2 WLE neither of which had a clear margin. My treatment is now chemo (6 x FEC), mx, rads, Tamoxifen and hopefully recon at some stage. I’ll be having FEC 3 on 28th Jan and am dreading it because I felt so awful after 1 & 2.
Hi Hamley. Welcome - rubbish that you are eligible to be here - but you are very welcome to join us. Sorry your feccing chemo makes you feel so awful. Good that you are amost halfway through tho. Roughly what area do you live in? We seem to have most of the country covered between us so you might be near someone else. In any case we are planning to have a delayed christmas party when all this chemo sh*t is done. So it may be worth hanging about for that. Keep on keeping on, xxxx
Glad you made to Yorks Cybele.
Maire - clearing leaves? Hope they are under snow now.
Mandy - my nodes were clear in feb 2012 but have not been looked at since. Offically burying my head in sand. The other lady I met whose TN grew on chemo also spread to her nodes whilst on chemo. I know we are all different (I may have to ban that phrase) but that is scary. The reason my Onc is treating me so aggressively is the size and the growing on chemo. Oh well.
Hope everyone is moth mouth free and can get to all their piosonings, xxxx
Welcome Hamley. You will be glad you found this site it really is great for support and info . Any questions or concerns just post and somebody will help you as we are all on this roller coaster together whether we like it or not.
Just chilling watching the lovely snow out of the window and just hoping we will make it for Tax 2 tomorrow. Strange how I can’t wait for chemo - think I have lost my marbles . Anyway will be half way there and just the lovely surgery to come.
Wendy x x
Hi Hamley, welcome to the christmas crackers, sorry you have to be here like the rest of us but we will all become very good friends by the end of our journey i am sure.
Hi to everyone else hope you are have a fairly good weekend, I am due my 2nd FEC on Tuesday, but I am now starting to loose my hair, I have only half a fringe left now so looking quite lop sided, feel like pulling it out .
It still snowing in Bedford, hope it stop soon or I might have to walk to the hospital for my Chemo 
.
Take care everyone, and good luck to those who are having treatment this week & big hugs
Lolly
x