Am so scared of FEC 3 tomorrow.
Areyou serious about the sedating thing, Cress, because I have been wondering about the same thing? The week after the steroids wore off was so awful on FEC2, and everyone says FEC 3 is the worst.
i was thinking maybe start taking the Lorazepam, when it starts getting bad, and then continue for the next 5 days…
Even once the nausea was controlled last time, I felt so toxic inside. I was really losing it at one point.
The thought of going through it all yet again, only worse, is just DOING MY HEAD IN.
Good luck to all having poison this week xx
Maire - I had a similar problem with scan scheduling. Total inflexibility.
Cybele how many have you go to have ? Seems absolutely potty that they can’t help you it’s just not on nobody should have to go through nearly 3 weeks of hell.
But fingers crossed the next one is different perhaps your body will start to accept the poison they are pumping in and not treat it as an alien because it is being given to you to make sure this bloody disease does not return.
Sending hugs x x
Cybele - sending hugs for tomorrow. I have considered the idea of checking into benzo land for the duration but the b*stards won’t give me enough drugs. If it helps at all, I don’t think it is true that any particular cycle is doomed to be the worst. I never found any pattern. The only thing I do know is that no 3 is half way through. All you can do is keep on putting one foot in front of the other. You are getting there. I’ll do mine tomorrow if you do yours, xxx
Ok, Cress, it’s a deal.
And cheering news about no3 not necessarily being the worst. Stan told me this, but then he hasn’t had chemo himself, come to think of it…
I’ve got enough Lorazepam to see me through the bad days, should it become necessary. And there’s also sloe gin if I get really desperate. Hoping that FEC3 will not be an anti-alcohol cycle, like Fec1. I didn’t - couldn’t - drink a single glass of wine during FEC1
Wendy - am having FEC x 6, but really it’s only one week that’s really bad - so far. I have the nausea for most of the time, but as long as I have the entire range of anti-emetics, it’s manageable.
And hey, I still have my hair. Until tomorrow, anyway.
Hi All. I’m fed up and needed to tell someone. My OH has got a stinky cold and has had an allergic reaction to something (don’t know what). He’s been to the GP and has tablets and cream. There’s no way I’m sharing a bed with his germs and lord knows what tonight.
Lisa Lou, I was so sorry to read about your hair, I do admire those of you who are coping with keeping the family life ‘normal’. I’m free to indulge myself in deep self pity and can’t imagine the pressure you’re under.
Maire, it’s good to hear your 2nd tax has been a bit better, hopefully your treatments will all go in that direction.
Cybele, I hope your treatment goes as well as can be expected, perhaps the meds will make the difference this time. Well done for holding out for what you wanted, it’s easy to be swept under the carpet if you feel they think you’re being ‘difficult’, I’m glad you didn’t let her.
Wendy, will your daughters be able to be tested too?
Good luck to all having treatment.
Hamley
If my results are positive for BRCA 1 and 2 my daughters then have the choice of also being tested. They would have a 50% chance of also carrying this gene. If they are not positive they can get screening from 40. If they are positive they have a 4 in 5 chance of getting BC in there lifetime. Their choice then would be double MX or MRI from 30 yearly and then mamo at 40 yearly and tamoxifen for life. Also would need to have ovaries removed. It’s going to be a scarey time for us worst than me having this bloody disease again.
Best to know what they are dealing with and my eldest can’t wait to get new boobs ! All the same scarey !
Wendy x x
Wendy,
It must be very hard for you to cope with this, I’m so sorry and I hope your results are negetive. I wish you and your daughters all the best. I suppose this would be the time when prevention is better the the cure, but I’m sure that’s no consulation.
Good luck to Cressida and Cybele for today. I am keeping everything corssed for an easy, side effect free aftermath.
xxx
Cress & Cybele
thinking of you today hope things improve. It’s one step nearer to that end
Thanks Clare one step at time hopefully will turn out ok.
Hugs to all
Wendy x x
Thanks to everyone wishing me luck for today. Eaten 4 slices of fruit toast with lashings of butter. Condemned woman’s breakfast…
Good luck to all those being poisoned this week . cress your breakfast sounded lovely- made my apple really boring!!!
my face is bright red and burning- it actually woke me up so 'phoned my bcn and she advised anti histamine. it has definitely helped but is making me very very tiredzzzzzzzzzzz x
Morning Crackers!
Hope everyone doing not too bad…
I’m a week since FEC 3 and am feeling OK. Wasnt as bad a 2…how wierd is that…it’s been different every time…
I had reflexology on monday … and it was lovely… the lady was so kind and told me about her own mother’s fight with the beast 16 years ago and that her and her 4 sisters were all arranging a 70th birthday party for her… stories like that are good for us. I dont know about you but I find it hard not to think aboout the negative,…
I’m sleeping really bad, not sure if it is because i now have no hair and my head is cold… tried to wear a hat last night, but it wasnt comfortable…
lots of love to everyone…xxxx
Morning Ladies,
My white cell count was so high there was no space for red cells so the filgrastim has been stopped. I did get the chemo tho. Woohoo. Then, inspired by Cybele’s tales of Yorkshire culinary glamour, we went for a drive through the snowy Woburn deer park and finished up in a very posh pub where I had a chocolate martini by the fire. Almost worth the chemo. Almost. I am a great believer in having a treat to accompany anything unpleasant.
The whole thing made me so exhausted that I have slept all night without chemical assistance. It might just be that I have no red cells, and I think they carry oxygen, so without them sleeping is common. Lets hope I don’t need the threatened blood transfusion cos I am already running out of viens. Efficient, but not very personable, chemo nurse managed to get cannula pretty much in my wrist. Ouch. (Still too stubborn for another line Cybele).
For those of us interested in our bowels (and who isn’t these days?) I have been promoted to Movicol and Lactulose. Will let you know…
Hope everybody is bearing up
xx
Morning all.
wendy 56 - thinking of you, Its scary when you have daughters. I look at mine and think - this is something I cannot protect you from - and I feel like ive failed as a mother.
Mandy p - i wear a premade heradscarf in bed cos my head was cold too. (make one up and sew into position). Couldnt wear a hat - FAR too itchy!
Cress - Chocolate martini sounds fab! hows the lactulose doing? havent had that since my kids were born!!!
Well the anti hists are working. My face is now no longer very angry - just a littlle annoyed!!! its my skin thats hurting now - so swollen and sore aaaarghh xxxx
Good afternoon everyone, hope your all ok, just back home from 2nd TC , got a bag full of drugs including injections which I give myself from day 5 to boost white cells , I’ve now got a good tyre round my tummy so shouldn’t be a problem to stick it in, the cadburys cream egg I’ve just polished off will help too , I’ve seen wig lady who showed me how to put my wig on , it looked like Lego hair when I did it , wasnt pushing it back enough , did everyone get a free one on Nhs? Wendy your choc martini sounds so nice , thought I’d write this before chemo brian and moth mouth kicks in which was very quick last time , I had cold cap again but I’ve shed alot of hair and it’s still coming out so not sure how long I’ll keep it for, it’s very thin on top , I’ll end up looking like terry nutkins, if you can remember who he was , and I’m wearing a hat all the time now , I need to get it cut shorter in a few wks if I’ve any left , love to you all xxxx
hi everyone.
FEC 2 day2 feel really rubbish today, even had a little cry on the phone to my OH he is on his way home now i and i cant even be bothered to get him his tea, first time since i started this cr*p but he is great and is going to sort himself out, and get me something too not that if feel like eating.
As for all of us that is finding it cold on the head i have found just the thing for night wear it is called a DU RAG look them up on google,mine is a black one and is made of nylon but very light and does the job, if you have any shops in your area they seem to sell them in Carabian shops or hair dresseres that deal with affro hair.
anyway take care hope you all coping, ok if you can. 
hugs lolly
x
Hi LOLLY 123 when i had my FEC 2 it was horrible i just had no energy what so ever for at least a week. Like you i couldn’t be bothered to do any thing i just kept sleeping. This lasted for me around a week. I do hope your be feeling a bit normal soon. Xx I have got my FEC 3 next week i hope it’s going to be better. Take care Sharon Xx
It was a very bad day at the hospital yesterday:
'One of our PICC lines is missing… ’ :
today’s post on chemonights.blogspot.co.uk/