Hi shawshankredemption, My birthday is on the same day as yours.
hello can eney one help iv had operation and snb snb got microchips in now iv got to have another operation on 20 dec for removal of ln im scared then on to have cemo is this weekly thing and well i be very pooley
hi everyone
caroline60 happy birthday… thought id say it now in case im not up to it on fri as have my first chemo on thurs. maire am i right in thinkin u start chemosame day as me thurs 29th
OMG pmsl sorry just got didtracted by celeb juice repeat keith to joe essex how many sided dos a square have joe 6… lol which country boarders wales n ill give u a clue its not london like u thought last time joe i dont no so he has a guess… RUSSIA lol wat the fec how can one person b so bloody thick???
anyway hope every ones feelin ok tonite well as ok as there gonna do while goin through this sh**e hope all treatments r goin well n to plan, had to go 4 my first ever flu jab today…my god he gets worse hes got a watch on his ankle… lol n on that note im gonna log of n watch rest of it nite all x
sue x
Yes Chemo tomorrow. Going to see the nurse today. Not feeling 100%. Feel a bit of nausea and am getting mild twinge in my left side. finding it hard to sleep.
I’ve been coping well up to now. Worrying so much about this twinge that it’s probably making me feel ill. Going to mention to the nurse today just incase anything’s brewing. Having said that don’t want to have chemo delayed if there’s nothing major wrong.
I’m not normally like this so hope I can perk up later.
Good luck tomorrow Caroline.
good morning christmas crackers im mand from the sparklers, just popping in to say a big hello and good luck to you as you start your journey. there are some great tips for getting through but one of the main ones that pops up alot is drink lots of water before, during and after it somehow helps to flush it through your system. i did and apart from having a couple of days feeling yucky was fine. oral thrush and mouth ulcers is another, at the 1st sign of thrush go to docs they will give you nystatin goes in a couple of days and keep your mouth clean and use the mouth wash. any way hope this helps, lots of hugs and good luck wishes. xxx
Hi Ladies i am off to the Chemo ward today to find out my Chemo starting date. I was at the Cancer unit Monday i now know what drugs i shall be on i am having 8 sesions of FEC-T (4xFEC then 4xT) Plus Herceptin. This is pre op to shrink my cancer before the lumpectomy.
Good luck Maire with your first Chemo tomorrow. Xx
Good luck to Sue with your frist Chemo tomorrow Xx
Goodluck to anyone else Xx
Shron Xx
KEEP SMILING Xx
hi just though i would share my news, been to get my results of the lump & lymph removal, they got all the cancer out i had a 2mm clearance, and it hasnt spread to my lymph nodes which i good news, the lump was 22mm big and grade 3 so i have to see the oncolgist next wednesday to see what treatment i will have to have, i know i have to have radio, and am likely to have chemo, but still feel very pleased that they got it all and i hasnt spread.
wish you all the best if you are having chemo tomorrow or results x
lolly x
HI all, Iv just back from the hospital regarding results. They removed 17 nodes 3 were positive. Im also HER2 positive er and pr negative. So will definately be joining you in Dec Chemo. Will be having Herceptin, chemo and rads. I was so scared of tripple diagnosis - but was told this is also treatable.
I shouldnt feel so happy - but happy re ouitcome given the curcumstances.
hi polly, how was your results today ?
Good luck to all who are having Chemo tomorrow.
Hi Funki, yes I would put this in the waiting for results section - you usually find someone who has gone through the same experience. Please be kind to yourself. If your consultant says it is treatable then it is.
Hi Caroline 60!
Re Visit with BC nurse. Gosh this seems like weeks away now lol It went Ok and she took some fluid off. It didnt make any difference to pain but it’s Ok now and the fluid that has come back is staying there until the body reabsorbs it
I have far more on my plate now I got my results today from my Lumpectomy and Sentinel node biopsy. The good news is they managed to get the lump out with clear margins, The bad news is there were signs of cancer in the sentinel node and 3/5 of the lymph nodes.
I’m in a bit of a mess as although my husband came with me for the results and stayed with me all afternoon he has had to go back to work now for a few hours and im on my own and although im OK my head is spinning
My surgeon said he wants to do some more scans to see if it has gone anywhere else first and then depending on the results of those scans he will tell me what comes next. I think it means that if the scans are clear then he will go back in and remove all the nodes and then depending on how many are affected may or may not do chemo. If it has spread to other organs or my bones they wont bother with the node clearance and just go straight to chemo. Im so confused and cant take it all in. I want to just focus on getting the scans first and the results but I have so many what ifs
Do you or any of the other lovely December ladies have any thoughts or advice please?
Do you think I should post this in the waiting for results section?
Funki x x
Had my clinic appointment today and I’m feeling a bit better about things. The staff have seen so many of us I feel safe in their hands.
Got my wig token too!
haven’t got round to drinking loads of water yet. Maybe later. Will def be sipping all day tomorrow.
Funki-sorry to hear your news but chances are there won’t be any spread. I hope the scans put your mind at rest. I knoiw what you mean about the head spinning thing. You get some scary moments. The only thing I can advise is a stiff drink and a good night’s sleep.
Shaz I’m getting similar treatment to you, but 3 and 3 rather than 4 and 4. Also getting herceptin. Going to be a long journey.
Shawshank-good luck to both of us tomorrow. I’m in first thing at 9a.m. and the nurse assured me I shouldn’t be sick. She said if I throw up, call the doctor right away to get an anti sickness injection.
Jelly mould-Thanks for the tips. It’s nice to know the Nov ladies are keeping an eye on us.
I am supposed to be having Neoadjuvant Chemo ie chemo first and then surgery.
The chemo was supposed to start last week, then it was scheduled last Tues, then it was re-scheduled to start today, and the last I heard it on tomorrow instead, but someone was supposed to phone today to confirm.
No one phoned (and no one phoned the last times it was re-scheduled), so I’ll just have to travel in tomorrow to find out if it is on or not. Don’t know why hospitals have these information black-outs. Perhaps they think mega-stress is good for you? How hard can it be to phone?
Not sure if I should come in early in case they want to tests? With the information blackout, I’ve got no idea if any are required.
Hi, finally got my results today.
I have a mix of invasive lobular and invasive ductal in the same tumor, biopsy just showed lobular so news to me. Apparently uncommon (oh great!) but treatment is the same. 26mm, grade 2, not fully clear margins, ER+, HER- and 2 out of 3 nodes affected. So Hi Ho, Hi Ho it’s back to surgery I go for another WLE and ANC. Then another wait for results.
Maire & Shawshank, best of luck with your first chemo. xx
Blackswan, that’s so unfair that your being messed about so much. I hope it goes ahead tomorrow and it goes well for you. x
Anyway I’m off to pig out on some more chocolate , don’t care if I get fat!
Polly-enjoy the chocolates. Goos luck for your next surgery. I had to go back for more too but 2nd time they got it all and it was much easier than the first surgery.
good luck to those that are starting chemo in the next day or so…been given my first session date which is the 5th dec, bit nervous as I am not a great lover of needles but its gotta be done ! I will be having 6 sessions in all FEC-T and docetaxel , I am going to give the co;d cap treatment a whirl…see how that goes-got to meet 2 lovely ladies on the ward on wed that were sat there having it-looked like two horse jockeys sat there…! the caps were nothing like I imagined (I kept thinking of the deep blue sea divers caps - the nurses thought this amusing… ! ) and they came in a pretty shade of pink…the ladies seemed ok sat there happily chatting away to me - advised me to take painkillers beforehand as it can be uncomfortable to start with , to wrap up warm as you will feel cold and to have plenty of hot drinks on the go.so treatment plan is _
6 sessions of chemo
another op as there is one margin that was quite tight from the first and so they want to be sure they definately got it all as my lymph nodes were affected , I am classed as a grade III - thats why chemo is advised because of my age 36 - as the consultants put it just added insurance to make sure I dont get this sod back again…
5 wks of radio - no meds needed afterwards
so yes I am a bit nervous as some of you are aware by now I hate needles so that doesnt thrill me in the least but nurses did say see how 1st session goes and see if possibility of a port being placed may be easier (more for them I think !!! ) half of me is I dont really want to be doing this but the stronger half is saying got to - havent a choice…so despite how ever nervous I may feel , just want to get this show on the road now - see the light at the end of the tunnel and get on with living life again…I know with one anothers support on here us ladies will be more then just ok so chin up,stay strong and keep smiling - good luck again for those starting chemo any day now - big hugs to you all xxxx
Shelley x
Good luck Maire and Shawshank for today xxx
Well its been exactly 2 weeks since my WLE and ANC. Gradually getting more movement back in my arm but still have a lot of numbness in underarm and a lot of sensitivity down my arm, which makes pulling on a sleeve or putting my coat on a bit painful!! Very anxious to get results from the op but my appointment is not until the 14th December. I am starting to miss work too, I work as a teaching assistant in the Nursery of a Primary School and the children I mainly work with are those with special needs and those on the autistic spectrum and I love my job. Its harder because I have to go there every day to take two of my children who attend the mainstream school there. I’ve been getting funny looks from a lot of the parents wondering why I’m not at work and those who are brave enough actually say “not working today” to which I simply reply “no, not today”. As my chemo probably wont start until mid January I’m thinking of going back to work in couple of weeks just for a couple of afternoons a week. I was a stay at home mum for 11 years until 3 years ago when I re-trained in childcare and can’t believe I would rather be at work than at home lol. I think its because at the moment I do not feel ill and am a bit uncomfortable with all the attention and constant texts and phonecalls asking if I’m ok. I must sound very ungrateful, I really do appreciate all my friends and family rallying round and all the offers of help, and I know in the weeks to come I will be in desperate need of their help but I sometimes just feel a bit suffocated by it all. I should count myself lucky as I know not everyone has that support so I have just given myself a stern talking to lol.
Dawn
xx
I too work with pre school children. CP. I’m going to really miss them. A lovely parent gave me a hug yestarday and said “God is with you” and I started blubbing. Absolutely the last thing I wanted to do. One of the kids said “Why has your nose gone red?” It’s those wee honest gems I’m going to miss.
Had my first chemo and am now back home about to eat lunch. I was a good girl and drank tons of water throughout. Have already had 2 lots of pink pee!
So far I’m ok. Am being a good girl (again) and taking anti sickness medicine.
I did have a wee bit of a reaction and started shaking all over during admin of drugs but I think it was the cold. I felt pathetic and then had a wee teary moment. I was a bit anxious but nothing major. I really do think I wasn’t wrapped up enough and the drugs going into my veins were cold. So my advice is, wear lots of layers and if you’re offered a hot drink take it. I stopped shaking just after the last drug went in and I had had a few mouthfuls of tea. It stopped pretty suddenly-so am guessing it was just a wee minor reaction.
There were lots of other women in chatting about wigs etc so quite a companiable wee place. The staff. of course, were lovely!
Hi Chemo Crackers,
Can I join you? I am slightly out on a limb as I have already had chemo (FEC-T) but my cancer did not care and got bigger so I had a mastectomy and now I have to have some more, different chemo (GemCarbo). This is very unusual so don’t panic and think it might happen to you; I asked my onc how often she does this and she said about 5 times altogether in her career. But, it does mean that I am starting chemo again, even though I do not have evidence of secondaries, so I would like to join you. I didn’t do the forum thing last time - I just kept my head down and tried to get through, but I think I will need support to do it all again.
I’ve just been told by the chemo unit that my first session will be on 13th December. So the chemo fairy is coming for Christmas. Oh joy.
Cress. xxx