Blimey, sfx city. I’m surprised you had the nerve to join in Natalie. Welcome to the middle of the chemo - the bit where we have all had enough, but it just goes on. In general, it seems that sfx are worse 5-7 days after chemo, then it slowly picks up. So, at day 10, you should be on your way to the light. Not sure you will turn into Pollyanna Maire though, but it’s always worth trying shopping. x
HI there all and welcome newbies…I too am shciked that you have taken the plunge to join us…(any excuse!)
I’m day 11 post Tax 1… and yes it was truly awful. I didnt do too bad on FEC, and am told some people find one worse than the other… (Cybele - there could be hope…that’s unless you have capacity for worse than FEC!!!)
One SE for me in addition to your long list Natalie, was itchy sore hands - and finally. Got a little concerned when my right hand looked like a sea urchin yesterday so bobbed in (as you do) to my hodpital and was sectioned until they got my blood tested.
Fortunately my wbc was ok so came home with 7 days worth of 4000mg Flocloxocillian and instant weight gaining steroids… so will need the next size of black leggings now!!! rats!!!
Am impressed Maire with the Pollyanna approach. I shall try in tomorrow maybe…
Lots of love all.
Mxxx
Thanks for the heads up so glad I will taste food again before the next dose, Cybele I was at the dentist on Thirsday for a check up as I have had bleeding gums and some swelling Dentist said she did not want to see me again till chemo over felt she could do more harm than good trying to do any work during this time.
Retail therapy sounds good although with thesize of my tummy think maternity wear may be required!! x
Maire, it’s lovely to hear you sounding so cheerful xxx
Morning ladies,
Mz - I see they stopped your chemo - can I ask if this was a change of plan? Just wasn’t clear and wondered why they stopped it.
Mandy - Rads - I would be interested to hear about the rads trial - I think the TN thing makes them want to throw rads at it as well, just to be sure they have done everything 1st time to kill the beast, as you don’t want TN back.
I am still having problems with my pufffy armpit and tightness in my Mx sight. Clearly no-one finds it a concern at the hospital as they are all on half term. Can’t really wear a bra now so I have to go about amazon styleee wearing 2 scarves. Anyone got any ideas on looking like a normal human being at an engagement party when I have one boob? Or, for that matter, in the posh restaurant of the boutique hotel I booked for the following night? Where is the flame thrower? I would take it to the hospital, but there is nobody there.
x
HI,
im new to all this came on last week , was geting down before my 4th chemo, i started 14th dec,
they rang to say my bloods were low friday morn n i needed another blood test, prob is they cant get any so they hooked me up to chemo to get blood, waited 2hrs for results and another 2hrs for them to make my chemo up, they lowered one of the drugs by 5mls, im on fec.
no what you mean about the sickness, it never really seems to go away, feel like iv been hit by a bus today, iim sure im one big bruise.
xx
Welcome Lilly-it’s a long road, but that’s another huge step closer to the finishing line. Can someone pamper you for a bit?
Cressida-What about A and E? Or one of these drop in hospitals? Surely someone can help you out. Is it something that needs drained? No way should you be left without support-medical and titular!
My Pollyanna demeanor has been modified by a sore throat and stinking cold but the sun is shining and it’s my son’s 17th birthday today so we’re off out for an Iranian meal tonight so nothing’s going to get me down. Have even been singing and dancing round the livingroom.
By the way Pollyanna was hit by a car and spent many hours depressed in bed and we all know how that feels!
Hi,
Welcome to all the newbies, sorry you’re in a position to come here, but you’re very welcome.
Cress, it’s terrible that no one’s been there to help you. It doesn’t seem right that all the people who can help should be absent at the same time. Where I work we’re not allowed to be off at the same time and we’re not looking after peoples health.
Maire, sorry the Pollyanna demeanor hasn’t lasted, I’m sure it’ll be back. Have a lovely time this evening.
I’m just off to my 4th treatment with dread that’s greater than usual because I found another lump, but on the other boob. I’m hoping it’s just a cyst but that’s what I thought the last one was. Acutally the last one was a cyst which they aspirated, the cancer was on the other side and catching it was a coincidence. I hope BCN Sue is at the hospital today, I hope she’s going to tell me that this can’t be anything sinister because I’m on chemo. What do you think the chances are? I’m definately going to fight for a bilateral mx.
Didn’t Pollyanna always say that when she felt down that she always tried to think of someone who was worse off? I suppose we could try it, but I think indulging in a little self pity doesn’t harm too much. I might spend some time in that when I get back from the hospital.
Hi… I find using a pretty scarf strategically placed covers a multitude of sins and makes me feel much better
hi Welcome new ladies! Hello er not old - mmm… existing ladies!
Best of luck Ham -I hope its what I had in the other side - a breast mouse. if it is more cancer then surely the chemo will deal with it.
Maire - I am soooo jealous and what to be here you are but …NOW!
Bloods for me tomorrow and then hopefully chemo 4 on friday. fec x 1 . have had tax x 3 which was horrid (fingers and toes STILL painful) so im hoping fec will be better.
Cress - i agree with prev commenmt. A&E or a walk in centre or maybe just go to the chemo ward and plead.
I also had a polyanna moment today. My form (year 8 so ages 12-13) have all made me get well cards. They are so lovely. Also my son has got 2 university interviews! 1 on March 8th the other on March 20th. He wants to do primary teaching specialising in year 1 and 2.
QD x
Hamley - Sure it can’t be anything to worry about as you say with being on chemo and did you not have a mammogram that side at the beginning of your journey ?
These things are sent to try us !
hugs Wendy x x
Hello ladies , sorry I’ve not been on for ages, can’t believe it’s been nearly 4 wk since I last posted , there is alot of posts and new ladies so hi to all new and old and I need to catch up as I feel abit out of the loop now and don’t know what’s going on , TC 2 was bloody crap , I had a reaction to the antibiotics I have to take with my injections as went neutropenic on TC 1 which gave me depression and bloody hallucinations , I only saw big black bin liners in the middle of the night! So when realised it was the antibiotics I called the chemo ward up whom brought me in and told me to stop taking , and never ever will I take again , I have read up now that it can cause acute anxiety and such problems, I felt better the day after taking, horrible stuff levofloxacin , then after that I had the most painful toothache which I had to sort out a dentist appointment with getting bloods done with heavy duty pain meds , so all in all it’s been a s…t month , I’ve now had TC 3 and feel very nervous of this time , I’m still armed with my injections from day 5 for my bloods and have more antibiotics from tomorrow to take , and im sure the menopause has kicked in, ive started with hot flushes at night , has anyone else , and as im 41 does that mean i may have to go through it all again ahhhh !!! Lv to everyone and sorry I can’t post as often as I would like but I have a 3 yr old which leaves me little time , I am stopping with my mum and dad so they help out alot and could not have managed without them, also I only have my phone to do this on so I’m slow , in fact I feel like a big bloated sloth most the time , lv to you all, I’ll try and read some posts later xxx
Bloody hell . Just had a phone call from consultants secretary to say that I might not be able to see breast surgeon at 11am tomorrow as they have not yet discussed me at their MDT meeting. Had hoped I would get a date tomorrow and actually know what surgery was going to be done as really want MX. Their meeting is tomorrow but after my appointment time so lets hope they don’t all think lumpectomy as I might be having a hissy fit. Grr
Wendy x
oh Wendy thats dire! but its your body so dont be pushed ! if you want MX hold out for MX
Lisa - sorry youre having such a bad time. I had an allergic reaction on tax 2 - but mine was to tax itself.
Maire - enjoy your Iranian meal. Ive never eaten Iranian. Is it good?
QD
Cybele i had terrible toothache when i was in hosptal with the dreaded sepsis but they managed to take the tooth out once my levels were up. I got antibiotics and mouth wash and it was fine.
Natalie i have had a lot of the same side effects as you and would say day 11 is when you start to feel normal again although still tired. I’m day 13 after my first Tax and to be honest not looking forward to the next one! I thought FEC was bad but this is just as crap.
Is anyone starting Herceptin. I get my first round next week with the tax and i’m a bit nervous. I’m on the new injectable trial so thats a bonus but still dreading it. It’s just one thing after another, it really amazes me how much a body can take!!!
Hi Marge
I am on 3 weekly IV herceptin. I have number 4 this week. I was having it with Taxol but have just finished chemo.
Chemo and the cooling cap was taking hours so hope to be in and out in an hour this week.
I have a portacath as my veins were destroyed when I had Fec chemo last time.
A nuisance doing this till December but no alternative.
Just had the letter for my pre apt for radiation treatment. I managed that ok last time so hopefully that part will be ok this time.
good luck
Morning ladies , I actually felt normal yesterday but today since starting more antibiotics which make me feel so spaced out im back to feeling crappy, I’ve had an argue with my 3 yr old about getting clothes on and doing as he is told, fallen on deaf ears and now I’m sat in the dentist and feel like having a hissy fit in the waiting room for no reason, the goldfish are not calming me one bit , I need to get out of this mood, where does it come from , I hate all the meds today and want the sunshine back we had yest , it’s soo cold again , hope everyone well xxx
Hi Lisalouw
I know exactly how you feel and today is miserable in Yorkshire too. It’s amazing what a little bit of sunshine can do.
Wendy - hope you are ok. What’s news from your ONC?
and Cressida - how are you doing?
Welcome to all the newbies, we really are a big group now…goodness…what a club?
My infection is healing, but the steroids and antibiotics are making me feel totally sh*t! Puffy eyed and pretty wasted…need to get well before chemo number 5 next week…
Lots of love to all and to those having chemo this week.
Mx