Hi lovelies,
I’ve not visited for such a while but sure glad I did! Reading your posts has made me laugh and cry at the same time THANKYOU for the much needed boost xxx
Agree no. 3 FEC has been by far the worst!!!
Upon diagnosis my mum bought me a little book titled Believe & Achieve, one of my favourite quotes from this is:-
"Life is not about waiting for the storm to pass but learning to dance in the rain"Anon
Coming on here again has certainly inspired me to carry on fighting and get through this.
Best wishes and hugs to you all. Xxx
Hello Ladies,
Loz I hope this number 4 is kinder on you.
Anne how are you on number 4
Twinky hope you are doing ok.
Rosie I’m sorry you are in hosp hope you are being looked after.
Wolsty, sarah, carrie, pauline, goldie , knxybabes,
Debster well done for getting through 3 its hard work all this.
Lynn thinking of you too.
hope you are all ok hope haven’t missed anyone.
Debh you still around ?
Well had another bad day yesterday Chemo number 4 . I got this male nurse who was bald and was busy and in a rush. They put me in the room with loads of other old people not in my usual room which is lovely and quiet and for people who use the cold cap. He did everything different. I asked why he said nurses do think differently. Then he went to wet my hair and was really rough with it and the conditioner. I kept saying please be careful I’m being careful that’s why I have the cold cap and then said you have a big bald spot there I’ll cover it. I don’t have any bald spots just thin ones. Anyway I got all upset and my sister told him I wanted someone else a woman. He got offended and said he had been doing this or 30 years and then didn’t even acknowledge me the rest of the time I was there another 3 hrs. I couldn’t give a s**t I didn’t ask for this bc or chemo. I just wanted someone to be a bit sympathetic to my needs. This was like yesterday when I was rushed out.
I know I’m hyper sensitive at the moment but I’m so angry with everything I’m just a number they don’t care. Sorry to moan like this but feel so rubbish about everything.
On a positive note. I only have two left and reduced so hoepfully this time it will be better.
Lots of love to You all.
Hi Everyone
Like most of you number 3 was not good and I to am dreading number 4 next week. But as my daughter reminded me to day we are getting nearer each time to the end of the chemo ( easy to say not so easy to do) but she is right. I read this today and thought it sums up our journey:
Remember, we all stumble, everyone of us, that is why it is comforting to go hand in hand!"
Lets hope we all start feeling better and try and enjoy the good days with people around us who really care. Hugs Linda.
Whoop, whoop! Fab day! I woke up with energy and have lasted all day! Sooooo pleased, was starting to think I was never going to feel human again. To all of you still suffering, hang in there - it WILL pass. We are all more than halfway - the summit is in sight.
Still not quite with it so sorry to not name everyone, but sorry to hear some of you not been good, Rosie and Loz especially.
Pauline so glad you have turned a corner, YAY! And you Jane, great and you also Twinky, yum pot noodle.
Fran sounds like you had an awful time at the hospital, I feel angry for you, that’s all you need, the mail nurse you had sounds a complete knob!
Debster nice to have you back, the forum really does help doesn’t it.
Jo well done for getting into work, but be kind to yourself and get your rest, make yourself the priority.
Linda lovely words.
Rach good luck with the keep fit.
Ann how are you doing? Are you on Tax now?
My first Tax experience turned into a very long day got into unit at 10am and was home at 6pm, I had a reaction, it came on really quick, my face suddenly went very red and hot (thought I was having a hot flush) but worse it’s a wonder I didn’t combust! And had sudden severe back ache. The nurses were brilliant without panicking me they turned the drip straight off and they me gave me anti hystamines, steroids and something else I can’t remember the name of and it soon went off. They said they would call my Oncologist and ask him what to do next, maybe try again next week, which I didnt like the sound off as just wanted it done but was more upset that I might not be able to have Tax again. Anyway all eneded up well, he said to re try but slow the drip down and do it over 4 hours instead of 1 and thank goodness it worked, no more reaction, so all ended well. I will have to have it over 4 hours for the next 2 now, and they will give me the other meds first also.
Feeling so much better now and managed to go all of yesterday without lying down - what an achievement!!
Jo - one glass of wine went down so well that I poured myself another one which tasted vile - obviously my body telling me that one is enough! Also dreading no 4 which is on 30th April. OH will be away that week playing golf in Spain (which he thoroughly deserves) so my Mum is coming to look after me and help me deal with the Tax SE’s.
Rosie - so sorry you are in hospital but hope you might be home now. Take care of yourself xx
Loz - well done on no 4 - I also have a cold and really sore nose. Got some antiobiotic cream from GP to shove up there as it keeps bleeding or if not bleeding just randomly dripping. Need to glue a tissue on the end of it I think!! Hope the ultrasound shows good shrinkage - its good that they check what’s going on but also nerveracking. I am also getting fatter and am going to have to take things in hand re eating I think.
Debster - seems No 3 has been the worst for us all - cumulative build up of poison in our bodies I suppose. Love your quote - very true that we have to learn to adjust to this treatment and enjoy the days when we feel good (even if they are less often now)- or literally dance in the rain at the moment!!!
Fran - last thing you need at hospital - sounds like a very mean nurse - make sure you don’t get him again. At least you had your sister there to support you. Hope No 4 was OK - was it FEC or TAX?
Linda - love what you wrote - that s so true - we all struggle at times but it is very very comforting to know that there are lovely ladies here who know exactly what we are going through. Was just saying to someone yesterday that unless you have experienced chemo you cannot begin to understand the impact of the SE’s especially the fatigue which is just so all-consuming. I really do appreciate the support of everyone xx
Pauline - how encouraging to hear that you are feeling good again - gives all of us about to embark on TAX a feeling that it is doable. Hope you continue to feel full of energy.
Well done Sarah on first TAX - must have been a bit scary having a reaction - I think its fairly common but I know several people who haven’t then been able to have TAX so you did really well. Great that they looked after you and took the time to adminster the drugs slowly - some units just wouldn’t bother to do that. Hope you are feeling OK?
I am off to hospital again this morning for more physio on my arm and have another appointment on Saturday with my breast surgeon and then an appointment with Onc next week to discuss switching over to TAX. Also need to go and by a Freeview box as despite all the warnings about losing analogue channels I have done nothing about its and now can’t get any TV in my bedroom - disaster!!
Well I’m pleased to report that I survived the keep fit class although going either up or down stairs is now a bit tricky! I have an appointment with my onc tomorrow so have a list of questions ready. Is it just me or does anyone else’s onc not say any more than they are forced?? I always come away feeling really disatisfied so I can’t say I’m looking forward to it.
Hope everyone has a good day - I feel a nap coming on later!
Love Rach xx
Been out & about today for the first time since juicing but gosh I’m like a 90 year old woman! I huff & puff & look for seats to rest on. Am on day 9 ( well I was before midnight) but suffering the last few days with bad trots. Is there anything I can take. Didn’t mind at first ( body getting rid of what it didn’t want) but getting a bit tiring now & not pleasant with guests in the house (my toilet is central to the house & is the tiniest one in the world with room for just two people standing if you leave the door open).
Yes I was thinking the same too about the SEs. No.3 was a lot tougher than I thought they would be. Sun shining here too. Will get up once I’ve had my fix of Heir Hunters. Lol
I too feel great today 1st time since no. 3. How are you lovelies getting on with TAX?
Appetite back and head in fridge. Talking of food has anyone changed their eating habits or diet to boost their chances of recovery and to help in the long term to ensure that Mr C does not re-enter the building?
Hi,
I’m new to the on-line community, I’ve been reading the comments on this thread and have found great comfort so thought it was time to join you. Started chemo on 1st Feb. Have had 3x FEC not too bad, hair fell out 2 weeks after first treatment. Now onto 3 X docetaxel. First session 13th April and one week later very tired and achy, mouth v.dry and I’ve not enjoyed a nice cup of tea in weeks. Can’t stop eating though, especially sweet things at this rate I’ll need a serious exercise regime when this is all over as well as lots of dental work.
Is it lunchtime yet?
Hi Everyone
Not been on since monday and have now caught up with you all. Sorry to hear that some of you are having it really tough at the moment.
It feel ages ago that I had no.4 i think it must be easter etc although it is only the usually number of days. Im finding it takes longer to recover each time, although Im not sufferig like some of you.
had a fab time at Rock of Ages with my daughter. 6 rows from the front (wow) recommend if any of you fancy a trip to the theatre( Its a bit raunchy in places!! Like twinky i did feel old as had to stop and rest and at points held on to my daughter!!
Loz - i laughed at your comment about your hubby and the fat controller. I cant say anything to mine as he’s super fit.
Debster loved your quote ,especially as the weather is as it is at the moment, may put it on my FB page.
fran -thinking of you xxxx
Hilly- welcome
tonight Im off out again with my daughter to see STEPS at the O2! I know how to live! lol
Then on sunday takng her back to Uni, it should have been her father (my X) doing it but suddenly he cant do it, a cousins party! Daughter or cousin get your priorities right!!!
As you can see the peer support here is amazing and in addition BCC has further support ideas and information sources which you may find helpful, the following link will take you to the ‘Treatments’ web link where you can browse for these:
Hi ladies
need a bit of advice got my 4th fec yesterday and felt really funny after they had finished they lay me down and gave me an injection,of something that they said was a kind of steroid i was real scared and too upset to ask questions .Had to go back today for an injection that was to boost my immune system when i asked about yesterday they told me they dont really know what happened that my pulse and blood pressure was fine and it was nothing to worry about, has this happened to anyone else? also all last night i was a terrible colour but today i feel better than ive ver felt a day after chemo.
Mnay thanks Lynnxx
very happy bunny! Got a plumber at my door with a brand new shiny boiler.