Hi Jaffacakes, glad you are feeling a little better. Hi everyone. Well you know that old saying it never rains but …,. Well my little boy has a possible hairline fracture of anke and has his leg in plaster. Goodness knows how he did that- he’s been to a Bouncy Castle party but ??? anyway I noticed a couple of spots on him yesterday and low and behold its chickenpox !!! My Chemo is scheduled for tomorrow, I now await a return phone call to see if it will go ahead. As you can imagine Im right up there with having a bad day !!
Hayley hope your little one is a bit better xxx
Hope you are feeling better Mariecay x
Hope the side effects are being kind to you Alice. Apparently I had gold star meds in the IV before the last chemo, swapped Metrocloperamide for Domperidome also got some Lorazepam to take before Chemo (if it goes ahead)
I could just do with a good nights sleep xxxx
Thank you everyone x x
Chemo on schedule as planned (gulp)
Good luck tomorrow Kess x
What time does your session start ? Im 10am
I will be thinking of you xxx
Good luck to everyone having their chemo today. You all sound like you’ve been through the wars of late so I hope this time round isn’t so bad.
Hazel x
Sorry to hear about your added family troubles Mariecay, its hard enough going through treatment without additional stresses. Hope your sons is coping well with the cast. I had a wobbly start to chemo- just blubbering away- couldnt really stop myself. I am such a private person and would not dream of crying in public
I clapped eyes on the Paxman and well it all kicked off from there really. My treatment is in but just waiting the extra 2 hrs with the cold cap. Kess how are you doing xx?
Hubby told little spotty pumpkin to see orthop pead and he seems please with his ankle. Hopefully 2 weeks and he can have it taken offx x
Hows things Hayley, these children are so precious but they sure make us worry xx
Hi everyone.
Well I had an exciting day yesterday. Been having problems with my stomach and since chemo this has got worse. I was given meds 2 weeks ago to help but I felt that it was making it worse and on top of that my tummy swelled yesterday morning. So I phoned me usual GP who said I shouldn’t have been given those tablets as it would make the problem worse and I should speak to my oncologist as a matter of urgency regarding the tummy and swelling. The oncologist asked me to go in to be checked over and have bloods done. They agreed there was a problem with my stomach and gave me some meds to try till next chemo and if they don’t work they will investigate further.
We were going away for the weekend and as I was walking out the door with my weekend bag the hospital phoned to say my bloods were dangerously low @ 0.3 and that I was to inform them immediately if I felt unwell or develop a temperature. They told me they strongly advise that I should not go away and should stay at home as I can go from being really well to seriously ill in minutes!
Obviously I have took heed of their advice so have unpacked my bag and am now sat at home nursing a sore throat that I developed yesterday evening! Temp is still ok so fingers crossed it remains that way.
How’s everyone else doing?
Marie x
Hi all 3FEC day 2
Oh how miserable you must feel Mariecay, one foor over the doorstep ! Of course you must take heed.it will be better for you in the long run, you need to get better- no point going away and worrying about things.are you garging with Difflam? Its good stuff xxx
I was offered a councillor too on Wednesday Kess, I said I would think about it and I may well give it a shot - anything than may help has got to be a bonus.
Fingers crossed I feel pretty much ok- nausea has not raised her ugly head yet !! Maybe its hoorah for the Domoeridone- time will tell. Little spotty pumpkin is happy enough with his brother biggest brother who drove down from Yorkshire and Sam his middle bro who lives with us. Infact having us all here together is like the Christmas we never really had a family reunion as my second op was looming in the begining of Jan. , tried to make Christmas special for the pumpkin but now its soo good to see the boys laughing ???
How is anyone else .? Hope you are all good
???
Oh I have a question. Yes I have lost some of my hair mainly from my partin on head but can feel like bristles there. Is that my hair growing back? I know a lot of you have been brave and shaved your hair- any comments would be appteciated xxxx oh Im pretty sure my leg hairs are trying their hardest to grow too!! I havnt even lost my arm air yet, which I was actually looking forward to !!!
And finally- what about eyebrows and lashes.i think my brows may be thinning but still have lashes xxxxx
Morning all Fec 3 day 4, still keeping this nausea under control. It makes such a difference, I hope everyone else is doing ok x x Thanks Mariecay and Jaffacakes, just had my husband examiming my new head growth with his head torch on lol !! But I think its going to take a while !!!
al
Hayley how are you after Chemo, how is Ellis??
Alice, how are you after your Chemo?
Hope everyone is foing well.
I have my husband home today to look after spotty pumpkin, so that is a big relief!!
Take care xxx
Oh Alice, I am so sorry they cannot control this. “don’t suffer in silence”, they would bleat down the phone as I was in tears, but they never did anything !! As soon as I clapped eyes on the Paxman I was in tears and that is how I remained throughout the Chemo- just the thought- well no need to explain that to you I expect. The Nurse was so lovely and it felt good to get it out. I had a Lorazepam 1mg, never taken anything like that in my life but was willing to try anything (apparently its for sickness too ) When I met the Oncologist the Wed before treatment she offered me to stop FEC and start TAX, maybe if Id had any time to think, but it was just thrust upon me right at the end of the consultation and I didnt know what to do. I decided to go with everything she offered. This time I had the same cocktail in the IV beforehand (same family as Emend apparently) ondansetron for 5 days, Domperidone for 7 days and my usual Omeprazole, which I have been taking 2, I also gave in and have a Lorazepam 1mg morning and night and A zopiclone for bed. I didnt want to go down that road really but it has made a great difference. I would feel so sick that I was unable to sleep but now I get a good night sleep. I am having a break before TAX starts which would be the Thur before Good Friday but now it will be the Thur after. At least I may hopefully enjoy the Easter Bunny with little pumpkin x x the Nurse who did my Chemo said it was so totally unfair to feel sick all the time and she promised me that if the tablets didnt work they would take me in to hospital and put me on a syringe driver (again not what I would want - but any port in a storm) could this possibly be an option for you. Oh and being told “you are just one of the unlucky ones” really gives no comfort does it xxx Alice I really hope they will do something for you. Please let us know how you are xxxx
Hi everyone,
Jaffacakes is right Alice, it was me who took Nozinan and it meant I had zero nausea during FEC2. I’ll get it again when I go for FEC3 on Thursday. I did vomit 3 times the morning after the chemo but took domperidone for that. My regime was a nozinan in the morning and one at night with domperidone in between times (up to 8 a day if needed) but I only needed 2 or 3 in between times.
I understand your fear of it messing with your head. I read the accompanying leaflet and was a bit freaked out to see its also used to treat schizophrenia BUT at 16 to 32 times the dosage to treat nausea. It didn’t mess my head at all. It can cause drowsiness until your system is used to it but for me, I wasn’t drowsy at all mainly I think because of the steroids offsetting it for the first few days and by then my system was used to the nozinan.
You have been so ill up to this point that it might be worth a try. Having no nausea has made FEC2 really easy for me in comparison to FEC1. I’ve been out and about a lot more and even had an overnight with my husband on Sunday. I still don’t have a massive appetite but have been able to eat all kinds of things without any worry at all. I just hope it still works for FEC3 ?
I hope everyone else is doing ok and keeping well.
Lots of love,
Hazel x
Absolutist PM me Alice. Happy to give you as much info as I can.
Hx
That should say absolutely!!
Hx
Hi, I’m popping over from March starters, my scalp is so prickly has been since FEC1 day 18, I’m now FEC2 day 3, it’s uncomfortable to lay on a pillow. It’s shedding obviously and in a one inch crop. Help, anyone, please, what should I do? x
Hi everyone,
How is everyone doing? It’s been pretty quiet on here and I’m not sure if its because everyone is well and enjoying life or if everyone is too ill to post! I am hoping for the first one!
I had my third and final FEC yesterday. I’ll move into the dreaded docetaxol next time round. It feels good to only have three more to go. I had the usual sickness this morning but again was able to stop it in its tracks with all my anti-sickness meds. Other than a really acidic tummy and a bit if tiredness, I’m feeling ok.
Alice how did the meeting with the oncologist go? Hope you’ve got a better plan in place for next time round. I’m thinking if you.
Take care and stay well everyone.
Hazel x
Hi Hazel and Hi everyone,
Glad you’re at the end of the FEC’s, I had my final one a week today. I was doing great but when the Ondansetron ran out after the five days, the sickness hit like a sledgehammer. For some reason it always seems to drag on with me and I have had a very sorry for myself couple of days, especially with a little pumpkin with a cast on his ankle and chickenpox it all got way too much!! But ! I am feeling somewhat better today thank goodness, hope tomorrow will be even better.
Hope everyone is well, thinking about you all xxx
Aw Bigpumpkin, you and little pumpkin are certainly having a time of it! I hope you have a better day today but get straight on the phone to the docs if you need more anti-sickness meds. You shouldn’t have to suffer ?.
Hazel x
Alice I’m so glad it was a productive meeting and that you’ve got a good plan for next time. My first time on Nozinan also involved quarter tablets but I didn’t get a cutter. It was easy enough to break in two because of the line down the middle of the tablet but when breaking again, I always ended up with a big ‘quarter’ and a small ‘quarter’! I had to weigh up when I thought I’d be most nauseous and take the big or small accordingly ?. I know have 6mg individual tablets so if you have any problems ask for those next time. I have all fingers and toes crossed for you to get relief from the nausea.
Kess I hope you’re ok and enjoy your lunch out today. The treatment certainly messes with your emotions as much as it messes with your body. I try to be strong but it’s not always possible and I end up a weepy, morbid, shadow of my real self. That’s been really hard to deal with too for me and my husband and family. I’m normally quite an upbeat person so it’s shocking for everyone when I’m weeping and wailing!! Thankfully my good days are outweighing the bad. Anyway, I hope you have a wonderful time today. Only piece of advice I can give you is my ten minute rule. People get ten minutes to talk about the big c and ask questions and then it’s banned for the rest of the conversation! Works a treat for me ?
Hazel x
Hi all,
Alice I am keeping everything crossed for you with the sickess. Tax next for me and they are promising the sickness is not as bad. They know Im not sure I believe them and assure me I will still have anti-sickness meds. Im keeping my fingers and well everything crossed.
Rowan I hope you are still doing well x x my middle son is 21 and said earlier "hey Mam was that your last treatment last week en?"oh boy ,if only !!! Hope you get to see your fella, its tough missing out on events etc isnt it? I hardly seem to be able to plan anything at the moment but we must remember its not forever.
Kess you are not alone with the crying, those last couple of days I have been exactly the same, sometimes its all just too much isnt it. Lets hope we have better days ahead xxx
Anyway really hoping everyone has a lovely evening, enjoy if you can and sending hugs if you are finding it hard x x x
Cath x
hey up me ducks
not been on for a while so hope everyones well!!!
Had a crappy couple of weeks what with ellis being in hospital, his op went well to remove the cyst from his windpipe which was stopping him from breathing properly but when he had his feeding tube out he couldnt keep any of his bottles down and I couldnt be with him cuz I had the stupid chemo, I lost it on thurs though couldnt stay away from him any longer so I drove to birmingham with his regular formula, the nurses proceeded to tell me that I couldnt give it him as they knew what was best for him, I went up like a bottle of pop how dare they, hes my baby and I know whats best for him, They told andy to calm me down to which andy replied ‘trying to calm her down when shes angry works about as well as baptising a cat’, anyway my baby boy got to come home today so my house is back to normal and noah is happy to have 'his woody ’ back
got a busy week next week with the kids, fingers crossed for freya on tues on her driving test, megs got a gymnastics competition thurs and noah is 6 on the 13th and just for my own amusement sometimes, just sometimes I like to agree with andy just to see the look of fear, confusion and nervous anxiety on his face ?
love and hugs
Hayley
Xxx
Hayley - I am so glad to hear you have your baby back home. What a lot you have to go through … On top of the chemo. I have thought about you a lot over the last couple of weeks. Jillyx
Thank you jilly, im just trying to put the stone in weight ive lost since ellis was taken in to hospital back on, its not good when I can fit into megs age 10-11 jeans so weve just ordered a big fat take away cuz none of us could be bothered cook tonight xxx