Hayley Im so glad to hear that Ellis is back home, you must be so happy. Been thinking about you all x x x you have been so brave xx
Cath xx
Hello ladies. This journey seems to be affecting so many of us badly. It’s ok being told to be ‘strong’ but we are being and it’s still ridiculously difficult. So sorry you are feeling so ill Alice. I went to see the onc a week after chemo. A lady walked in the waiting room who has a plaster on her hand and I could tell she had just had chemo. This massive wave of nausea swept over me and I went really dizzy. Just then they called my name to go in and I collapsed in her office! How embarrasing! I had to have a lie down and a cup of tea for an hour. No wonder she keeps asking if I’ve seen the psychologist yet! The whole association thing is really difficult. I’m the same alice with clothes I’ve worn, food I’ve eaten, smells, anything really! My next EC is next wed and I really don’t know if ill go. The nausea is horrendous ( and lasts over 2 weeks) and I am literally comatose for at least 4 days. Can’t eat, barely talk, move. It takes me a week to get my clothes on. I have been in hospital after both treatments. My onc also offered a change to tax but then talked me out of it with the side affects but she said I’d feel less sick. I’ve had nearly all the sickness meds and they are trying one more this time. My main problem is its really scaring me. I feel like they are sending me close to death then just bringing me back ( I know it sounds really dramatic!) the onc said if I can get to 4 it would be better. She said a dose reduction would not be effective but it really feels like they are giving me too much of the stuff. They sent me for a brain scan as last time my side effects included the whole of the right side of my body going weak and I was dizzy and seasick like I was on a ship. It was clear thank god and I’m just wondering if they sent me to check I had a brain as I moan to them that much! The chemo and side effects really meses with my head. I really hope you got some help from your onc Alice. I’d love to hear if it works. This is sooooo hard for all of us. Big hugs ladies xxx
Sorry everyone, I’d missed a whole page of posts. I wondered why it was so quiet! Hope the new meds work for you alice 
So glad Ellis is home Hayley. You must have been so very worried about him on top of all this. Sorry that you have been low Rowan. It is so hard to stay constantly positive through all of this and probably not very health to anyway! Glad you are feeling a bit better. Xxx
Thank you for your post Caz, I enjoyed reading it because I agree with everything you said. Infact just last night I was only saying to my husband that Im suprised the Chemo dosnt actually finish some people off !! . Ok I was joking but sometimes I feel so awful !!We knew it wasnt going to be easy, but that dosnt make it any more bearable. “you’re halfway there!” people chant, Im just thinking 3 flippin more to go !! What’s worrying me is they say Tax is worse. My husband seems to think that Im feeling better when Im having a good winge , but its got to come out somewhere! I yearn for a glass of red wine but Im too worried it will make my indigestion worse 
! I’ve been offered an appointment with the Psychologist, I think I may go for it. Is anyone seeing a Psychologist and finding it beneficial ?
Alice how are you ?
Hope everyone is doing good today .
Cath xx
Glad Ellis is home now Hayley and you’ve got your family back together. Sorry to hear some of you are struggling just now. I’m on FEC 3 day 4 and definitely more tired than last time though I did get an extra week to recover before FEC 2 so that’s probably why I’m feeling it more this time. I sometimes feel like I spend so long managing side effects that I forget I’ve got cancer! I’m just living day to day just now.
My sister and bro-in-law have just bought a caravan in a lovely wee Scottish village so I’m hoping to get up there for a break next weekend. My husband works weekends so I’ll be going solo while he brings in the money! I’ll be right in the middle of my risk period for infection but I’ll take it easy and stay away from coughing crowds!
Keep well everyone.
Hazel x
Alice, I was chatting to one of the Nurses taking my bloods one day and mentioned I was sure I could feel new hair growing. As you may remember Im using the dreaded Paxman, so still have hair but a VERY wide parting. Anyway Im not sure if its true but she told me me that new hair regrowth becomes resilient to the Chemo. Fingers crossed that is one bit of good news for us !!!
Coughing cows just made me laugh out loud Alice ? I shall certainly avoid those!!
I should have explained better but I’m going with my sis. Just solo from hubby since there’s only the two of us because we’ve no children. It will be good for him to get the break away from me too for a night I’m sure!!
I too have a fuzzy head after 3 FECs. My other sis calls me a coconut! I’m actually getting used to seeing myself with the fuzz and when I put my wig on, the reflection of me having hair is the one starting to look strange. I’m just so used to seeing myself now with a jersey sleep cap on or no cap on at all. Who’d have thought that would ever become the norm for us!
Hope everyone is well.
Hazel x
Ps Alice I’m day 5 FEC 3 and no nausea again so fingers crossed the nozinan has the same effect on you.
Hey up me ducks
Hope everyone is doing well
First big day of the week out the way today, freya passed her driving test!!!
Next big day on thurs for megs gymnastics competition and then the biggest day of the week on sunday when noah turns 6 - hes having a superhero party, then its my first T next tues
Love and hugs
Hayley
Xxx
Well done Freya! You must be very proud Hayley. Good luck to Meg tomorrow and enjoy the superhero party!
That’s great you’re managing to work most of the time Kess. I’ve been off for ages now and sometimes think maybe I should’ve stayed working because when I feel ok, I end up bored around the house. There’s only so much housework I can do before I lose interest! I do read a lot so that helps pass the time and hubby is about during the day so I’ve got company. I hope your pain lessens but you should talk to the onc just in case. It’s probably the bad cells dying off from being zapped by the chemo. Their cosy wee days of being an unwanted invader are numbered!!
Keep well everyone.
Hxx
Hi all, I’m usually seen in the started March thread but have a small FB group if you’d like to join private message me your name and profile pic description I’ll be happy to add. For privacy you can change me friend status to restricted, I then only see personal posts if tagged. To add me **** profile pic daughter in dark rimmed glasses ; I, Purley School.
Yaaay meg placed 1st in her gymnastics competition, just noahs party to go now but im not feeling too well, dont know if its chemo coming up again or my 1st T and a whole new ball game of side effects (sorry to be a pain) xxx
Good luck with your first Tax Jaffacakes , hope the s/e go easy on you xxxHayley I hope you feel better soon too, you’ve had a lot on recently, but Im glad the girls are doing very well and hope Ellis is too, bet Noah cant wait for his Superhero party !!! Im dreading Tax too, its back to the unknow again, although Im really hoping I will not feel as sick. Next Friday would have been my first Tax date but as its Good Friday, its been postponed until the following Thursday. In one way Im glad but then again I just want to get it over with x x x have a lovely weekend everyone
Cath x
Thats 1 very excited noah finally asleep, now to get his balloons and banners up and iron his and ellis’s costumes for tomorrow, cant wait see them as batman and robin, nails and lashes booked for monday ready for chemo tues, feeling a bit better now, good job or andy would of ended up under the patio xxx
Sorry you’re having a tough time Rowan and Jaffacakes. I am sending you both big hugs. I am utterly dreading Tax because I’ve got all my FEC side effects under control and Tax moves me into the unknown again. First one is not until Thursday 24th so i need to get organised with manuka honey, strong painkillers and dark nail polish!
Hope the party went well Hayley and your superheroes has a wonderful time.
Love to you all.
Hazel x
I am dreading Tax too - my first one is on 30th April and I haven’t been too bad on AC. My chemo nurses don’t know about the dark nail polish, but didn’t think it seemed a good idea to cover up the nails and just suggested nail strengthener. Has anyone got an internet link to evidence or research that they can share with me? Happy to give it a go - but I find it hard going against the people treating me. Good luck all xx
Hi Jorge
I got advice on the dark nail polish from my wig lady (she has bc too previously) and from the forum. Lots of the ladies on here suggested it to protect the nails from uv light and hopefully help them stay put. The link below is for a blog written by a forum member that I saved way back and it’s been really helpful for me.
Hazel x
thelittlestjojo.blogspot.co.uk/2012/11/top-tips-for-getting-through-chemo.html
The blog is great isn’t it? It’s been such a great source of info for me and because it’s from a bcc forum member who has gone through everything we’re all going through, it makes it all the more helpful. I’d never have the energy to write something like that ?
Hope everyone is doing well.
Hazel x
Hey up me ducks
Noah had a fab time yesterday, him and ellis looked fab as batman and robin!
Had my nails and lashes done today ready for my first tax tomorrow, had my acrylics painted dark purple, whether it works or not is a different matter but I arent taking any chances, proper scared of having my first tax cuz its all new again but hey ho lets get it done
We can do this dudes
Love and hugs
Hayley
Xxx
Good luck with your first Tax Hayley, let us all know how it goes when you get a chance xxx
C xx
Hi Jilly
Thanks for looking into the nail polish thing. I’m going to give it a go because the thought of my nails lifting just horrifies me ?. If they start to lift anyway I might rethink.
Glad you’re feeling better Rowan. It is actually helping me a lot to hear your and Jaffacakes experiences on Tax. It’s making it not as scary! Apart from the first FEC, I’ve has a fairly easy time of it and I read that if FEC goes well, Tax will be hard and vice versa, hence the dread!!
Good luck today Hayley.
Hazel x
Ps anybody heard from Alice or Marie? They’ve not been on for a while and I’m a bit worried about them. If you see this ladies, I’m thinking about you. xx