Starting Chemo in February 2014?

Kess my hair is coming back too. My husband calls it my 5 o’clock shadow! I didn’t believe it at first either but there’s definitely a full head of fuzz there. I bought shampoo yesterday for the first time in months. I definitely won’t need it for a good while yet but it cheered me up no end just going out and buying it ?

Sue I’m so glad you got clear scan results. I know you’re still in pain and discomfort but hope the clear results sets your mind at ease. Been thinking about you a lot with your year anniversary coming up for your partner. It’s hard but you’ll get through I promise. One day at a time.

Caz I totally understand your fears about the other lump. I was exactly the same a few weeks ago and my onc said it was extremely unlikely that anything sinister could grow when on chemo. I hope yours turns out to be a cyst like my other lump. The onc you saw sounds like he needs a career change. If you can’t be compassionate in that line of work, he should move on. Sorry you had to face that.

Hope you are keeping well everyone and the side effects are being kind to you.

Lots of love

Hazel xx

Me too Kess and Hazel - I have blonde fuzz on the top of my head! very exciting. Nothing at the sides yet though. I splashed out and bought a real hair wig very much like my own hair style. I wear my synthetic one most days but my other for going out as its harder work and has a sweepy heavy fringe that cant be tolerated for a long time. But I do enjoy washing and blow drying it on my head. It makes me feel nearly normal. Small things x

I have a white fuzz that grows in between tax treatments and then goes again. My head is never truly bald. I did get a bit excited the first time - but now know it will go again.
I am still finding the tax difficult to deal with. I have so much pain from day 3 to day 10 that I don’t sleep. And it has made me so much more fatigued. I know it’s only 2 more - but am for the first time struggling to be positive through this treatment. All I do is have cancer, I don’t have much else to talk about and I am even boring myself! I so admire those of you that have continued to work.
I am on the fb Valentines group and the Breast Cancer UK group. I don’t post much - but read the comments of others. Happy weekend all Jilly

Hi Jilly

I read that antihistamines help with the pain and inflammation so I’ve been taking clarityn daily and has much less pain on my second tax than the first one. I’ve also been having bad muscular pain in my right leg so am now also taking cod liver oil and that too seems to be helping. It might be worth a try.

Hx

Thanks for that - good idea. I really can’t bear the idea of another two sessions as painful as the last two. I will get some of those to add to the daily glucosamine and chondroitin, magnesium and zinc and vitamin c! X

My eyelashes and eyebrows are shedding too. I only use my wig when I visit my Mum who has dementia so I disguise myself as me, if you see what I mean. I have loads of scarves (too sweaty), and hats (alright outside, but strange to wear a hat indoors), so mainly I go bald. I like the smiles I get, it feels like a real positive. I live in brighton which has more than it’s fair share if oddballs and loads of people have thought that my bald head is a fashion choice. I was steely grey before and if mine stays white I will be pleased. But then I am 58 so it wouldn’t be premature. X

My eyebrows and eyelashes are shedding too Jilly and Jaffacakes I spend a lot of time trying to look at my head to see if any hairs are growing back, ages ago I felt sure I could feel spikey bits but my husband said there was nothing ? One more session with the cold cap and then I guess I will know how much if any hair I am left with. I am wondering will this be a waste of time but I suppose I may as well stick it out until the last session. Speaking of which I seem to have developed a reaction to the Tax in my veins ( which were probably ruined by the FEC) as I have lots of nasty looking red marks on my forearm and a nasty bruise like mark on my hand, hot to touch and painful. I have been given antibiotics and am praying this will not stop Chemo on Thursday. I think they may have to use the arm I have had the ANC on :-(, anyone else experienced this ?
Sue so glad you have had good results, hope the days are getting a little easier for you xxx , thinking about you Caz, sorry to hear you had such a bad experience with the Oncologist- how horrible that must have been for you . I hope you get an appointment soon xxx
Love to everyone , oh and Im glad that you are all still posting on here, I would miss everyone too if you all stayed on Face book xxxx

Hello ladies,I am from the April 2014 chemo monthly thread and have had 3×fec,next 3 will be tax starting this Thur - just wondering if any of you could share you’re experience of this?  I know we are all different but just getting some idea.  Also the other ladies & I are confused about painting nails dark?! Thank you in advance xxx

Thank you very much kess that’s good to know.  Yeah I think I will leave my nails for now & see.  Good luck for the rest of your treatment xx

Thank you so much ladies this is all so helpful! Have written down & will also go & get some of the meds you have meantioned to be prepared!  Much apperetiated and hope the rest of your treatments go well.  First tax today so will see what the next few days bring! Xxx

 

Well ladies I finally made it. I had my last chemo this morning. I can’t quite believe that part of my journey is over and I’m praying the side effects are kind one more time. I still have surgery and radiotherapy to go but I’m so glad this part is over. The chemo has done its job well and my huge tumour is pretty much non existent. I think I can still feel a tiny, tiny lump but I’m honestly not sure as it could just be regular breast tissue. I’m hopeful i be able to get a WLE but if it has to be a mastectomy so be it.

Ladies you have been an amazing support to me and I couldn’t have finished this part without you. Keep well everyone. We can do it!!

Hxx

Well done Hazel, It sounds like the Chemo smashed the tumour almost clean away, Im so very pleased for you !!
It was my last Chemo this morning too, I cant quite believe it, It has not sunk in yet. I couldnt wait to get that cold cap off my head for the very last time!! I have a positioning scan on Monday for the Radiology but I had expected to be having 3 weeks of rads but a Dr I saw yesterday told me my Doctor wanted an extra boost to the breast so it will now be 4 weeks.
Anyway we can cross those bridges when we get there. First hurdle over and done with yay !!! Take it easy, hope the S/E are kind xx
Cath

Thanks Cath. Glad your chemo is over too. It’s been a long time coming! Hope your se’s are kind too.

Glad you’re getting your appetite back Alice. I’m counting the days until I can have pate again ? its the one thing I have really missed. I hope you really enjoy your treats.

Hxx

Sooooo glad we have all finished or coming close to finishing chemo, im soooo proud of us all xxx

Hi Rowan

I’ll be having radiotherapy too but not until after surgery. I don’t know how long I’ll have it because it will depend on the pathology report. I’m still feeling quite giddy knowing chemo is over. Hoping to get through the se’s and then I’ll have at least 3 weeks of normal life. I’ve got lots of plans for those 3 weeks - a wedding, 2 parties, a weekend away and a bcc strawberry tea fundraiser. I’ll be exhausted at the end of it but for nice reasons ?. I hope your radiotherapy goes well and I’ll be the same as you when I get my tamoxifen prescription. It’s just fear of the unknown all over again.

Welcome back lowfatlovatt. We’ve missed you! So glad you’re through your chemo too and hope you’re keeping well.

Thanks Jaffacakes. I’m so delighted with the vanishing lump. It gives me hope that the chemo has also mopped up any stray cells that got past my lymph nodes since 3/4 had cancer in them when I got my slnb. The rest will be taken out when I get my surgery.

Keep well everyone and have a wonderful weekend. Sun is due out here for today only so I’ll be out in the garden albeit shaded by an umbrella but out nonetheless!

Love to you all. Hxx

Well done lowfatlovatt for finishing your chemo, have you had dates for your Rads yet?
Im having my positioning scan on Monday, but Im not sure if I will get dates then or if I will get them in the post. Initially I was told I was to have 3 weeks of rads but this has now been increased to 4 as she wants to give the breast a boost. Im a little apprehensive about this as I dont know why and my Oncologist was not in clinic that day. ( there’s always something isnt there!!?)
However she is sending an appointment out in the post to chat about the Tamoxifen, which Im sure she is starting me on after the rads, again I thought this would start after Chemo but will have to wait and see.
Busy times ahead for you Hazel good luck have lots of fun, you deserve it !!
Totally understand you putting off the Tamoxifen for a little Rowan- give yourself a well earned break with your fella first. We have has enough if side effects for the time being!

Love to everyone (even thinking about your garden duck and chicks if hatched Jaffacakes)

Cath xx

Don’t know what to do, I hate my mum and dad xxx

Thank you rowan44 yes I am making the most of feeling normal as expecting it to kick in Mon or Tue so will have to wait & see…xxx

Hey up me ducks
My mum n dad havent been a mum n dad since I was 15 when they kicked me out for getting pregnant (andys mum n dad took me in) my mum n dad saw freya for about 10mins 2 weeks after she was born, had no contact with them since but knowing cousins have told them about my bc n treatment thought I’d try build bridges n spoke to them n went to see them, to be told that I brought shame on them getting pregnant at 15 n then few days later them knocking on our front door saying they want see the grandkids, while going through bc, chemo n soon to be rads ive decided me, andy n the kids dont need then, sad thing is im questioning why I tried get back in touch with them in the first place?! ?
Keep going dudes, we kicking ass ? xxx

Hi everyone. Thanks for asking about me Sue. That was really kind. I’m still here ?. I have been reading and keeping up with you all but not posting. I was giving those of you who have completed chemo cheers and cyber hugs. My last is in 10 days. Dreading it but want it here. So glad so many of us are getting there. sorry tax is so hard for you jorge. You sound like you have had an awful time. and as for you sue that radio is cracking on! well done. Hoping your thickening is nothing sinister, im sure its nothing to worry about but im sure you will understandably be worried. I too am back on the 2 week wait for an appointment for another lump in other breast and underarm and also waiting for ent and thyroid appointments so my head is a bit ‘mashed.’ Excuse the vocab but its the best way to describe it. Just had a funny sort of few days. Sort of a bit like Rowan ( I think) said where you are just a bit low and feel like cancer is all you are. I want shopping on my own and was trying on some stuff in river island. Shopping is sadly usually the thing that makes me feel like me again ( hence depleted bank balance through this!) Anyway I suddenly looked at myself and couldn’t breathe. I just saw the bald head, mastectomy scar, patchy eyebrows and swollen tummy ( when did that develop??) and it hit me. I had a bit of a meltdown moment or two. ( You lot must think i do nothing but have meltdowns but Honestly most days are normal!) It wasn’t how I looked, it was the reality of why I look like that. Anyway, more importantly I didn’t buy the lovely little yellow daisy print skirt so I’m annoyed cancer won that battle ha ha. Must call back in tomorrow ?
Sorry to hear about your mum and dad lowfatlovatt. Jaffacakes is right, in that you need to do what is best for you and your family. I can’t understand why people don’t just understand we are dealing with all our brains can cope with right now and not add additional upset. It’s not just the physical effects of the treatments it’s the worry and over thinking everything that is hard. I hope you don’t get too upset about it. There’s time after this to make decisions. Right now put you and your children first. Lots of love xxx