Starting chemo in June

Hi Funlady - sounds like you had a great response to the chemo! I had to have an MRI after my chemo as my tumours didn’t show up on US or Mamo even before I started chemo.

Lorna, glad you’re healing (albeit slowly) and that you’re harier! Great news! I’m still putting on weight! Eating relatively healthily - but still not exercising as still so unfit. Walk my dog every day, but that’s it. I’m with you on the scared thoughts creeping in… And I haven’t had any SEs from Tamoxifen either.

Rexi! Hope the appointment went well and the house?

3 of my rads done. Hurrah.

X

Good evening girls

I have a date for the op now - Mon 5th Dec. Lumpectomy (local wide incision thingy ) and anx node clearance. Ooh, and they have to put a wire in 2 hours before to guide the surgeon to the lump - urgh. Somebody else on here had that as well, can’t remember who. I am sure it won’t hurt, but the injection in the boob and the thought - yuck. Who had it? And how was it?

6 weeks ago at the last ultrasound, the sonographer said, that she couldn’t see the tumour anymore, but there may be a small cyst. We were cautiously happy of course by these news. This week though a diff lady did the ultrasound and we also had the results from the MRI and the lump is still there. It’s the size of a broad bean, compared to the original lime size, it’s pretty good, but still, they shouldnt say stuff like - it’s gone, when they are not sure…

Funlady - I don’t have that type of bc, however an MRI can give much better detailed and slightly different information about the bc than a mammogram or an ultrasound. I had an MRI right after dx, in the middle of chemo and after the last chemo. It will help your consultant to understand your bc status.

Lorna, doesn’t sound great, but it’s healing! That’s good. And the weight thing! Bonus! I have my taste buds back and my body wants to use them a lot. You went to work - how did that go? Emotionally, physically? Was that the first time since ages? Or did you pop in in between ? Are you phasing in?

Linda and Sandytoes et al - how is the radiotherapy going?
Linda - Have you bought all Xmas presents from John Lewis yet ;)?
BB - all prepped already for Xmas?

House - We finally exchanged contracts yesterday. Woohoo! We are moving next Wednesday. I have a removal company of course, but bit daunted by the fact that my oh is in Spain on a business trip till fri, and now the teachers decided to strike too! On that day! Typical. I l be fine :). Looking forward to a few days rest in hospital :slight_smile:

Hope you are all well!

Rexi xxx

Hi girls
Have been AWL recentely as despite good news re all cancer being gone and lymph nodes clear have been on a total downer and weep fest.I even had a 24 hour cry which was ridiculous.Cant understand just what is going on but i think the fact that i wont be finished my rads this year just tipped me over the edge as i was really hoping to start next year treatment free.Feeling slightly better today and are off to edinburgh to the christmas market for some much needed festive spirit probably in the shape of mulled wine.
Rexi- i had wire inserted and boob injection before op and honestly it was fine.They couldnt do mine with ultrasound as they couldnt find it so had to have it done using x ray to find metal marker and although a little more time consuming was perfect.The worst part as usual was getting the local anaesthetic but once that was done it was a dawdle much less painful than original biopsies so dont worry.
Hope everyone else is well and i have been still thinking about u all in my absense.Must go catch my train for muchos mulled wine.
Pam

PPAM - I think u are normal as i have been a wee bit like you . However each day is a new one so we plod on.
Rexi - I have been at work for the odd week and went to some meetings . However this week went in for 3 days and did feel like OMG get me out of here . They have replaced me while i am off sick so i am feeling a bit useless. Def not ready to commit full time , i have came of sick and using my accumulated A/L so that i delay gettin halve wages .
SStoes - I resembled a wee fat ball a few weeks ago , so i am glad that has gone , i am still kinda bulging…lol…lol…not!
Went xmas shopping today to make my mother relax as she thinks i am dwelling on things too much and need a shake…Grrrr. Clueless comes to mind , god bless her.

Awa for a wee dram

xxxxx

Congrats on exchanging contracts Rexi. Sounds like you’ve got a busy time ahead.

Evening ladies,
Congrats on the house rexi, busy week ahead hope it helps take your mind off the op for a while.

So sorry your feeling down pinky pam I think this is a very long slow process.
I have 2 rads left now and all finished on Tuesday. A day I never thought would come. I have complete mixed emotions about it and very tearful. I have a busy week of celebrations that I am going along with even though I do t feel like celebrating but I know how happy my family and friends are for me.
Lots of love to u all x

Hello everyone,

I can’t believe we’re coming to the end of treatment for some! It’s been a long shlog though hasn’t it?

Katie - maybe you’ll enjoy the celebrations when they come round - nice to see family and friends. I hope so!! And when are you off on your hols…!!!

Pam - so sorry to hear you’ve been really weepy. Hope you’re feeling a bit more up now? Sounds like we all have our weepy moments.

Lorna - am well jell of your svelte figure! I’m still rotating about 3 tops and 2 pairs of jeans as I refuse to buy any more clothes in a larger size. Not sure Christmas is going to help my waistline…!

Rexi - congrats on the house exchange. Can’t believe you’ll be moving house just before your op!! A busy couple of days making sure it’s all nice for you to come home to. I agree with you about them getting your hopes up. My surgeon did the same.

Radiotherapy all good so far. Boob’s a bit swollen and pink now. Katie - how’s it gone with the implant? No problems?

I have had a stinking cold though and my chest hurts SO much when I cough or sneeze where the implants are behind the muscles. So every cough or sneeze is followed by a little cry or a scream!

x

Hi Sandy
Sorry about your cold/cough. I’m starting my rads tomorrow, about mid-day. My OH will be there with me the first day. If you are there about the same time you’ll recognise us - he’ll be wearing shorts!

Oooh! Good luck SB! I’m not in until late afternoon tomorrow (good job - you will have left before me and my germs arrive!). And then they’re striking on Weds.

So far I’ve been in and out really quickly. Sometimes there’s a bit of a queue for parking, but nothing more than 3 or 4 cars so far… The car parking guy’s so sweet…!

Hope it goes well.

x

Thank you - you too. xx

Katie - I hope u are a happy lady tonight - ALL DONE !!! Well done.xx

Well i have been a right idiot today . Waiting on hubby to take me to Edinburgh to see surgeon and a guys at the door saying transport service for blah blah to go to Glasgow?? He must have thought who is this weird baldy person as i said really sorry their must be a mistake as 1- i never asked for transport and 2 - my appointment is tommorrow… DOH oh no it wasnt its today . Had to cancel Edinburgh as Glasgow was my planning for rads. I think the chemo has affected my brain !!

On the plus side i now have a run to and from radiotherapy when it starts and i never even knew , Its not as if i have anything else to think about in my diary and i still get it wrong…

Never mind alls well and all that

xxxxxxxx

Katie’s finished! YAYEEEEE! I know you’ve been feeling down and emotional (normal - we all have) but I hope part of you manages to enjoy the celebrations your friends and family have planned for you. You deserve it. You’ve been through so much and it’s ALL OVER.

Obviously we’d love to hear how you’re doing every now and then - but if you disappear we’ll know that you’ve put all of this BC cr*p behind you and have MOVED ON. But if you have any emotional blips, come back and see us.

Oh, and one last question from me - did your boob swell up massively? Mine is HUGE! I wouldn’t complain if the other one had followed suit…

Positive from me is that I’ve gone for 2 days without a hot flush (am on Tamoxifen!). Amazing! Loving it!

Lorna - a ride to and from rads? Great! And how’s your wound doing?

No rads tomorrow due to strike.

x

Well. first rads done today. As Sandy says, everyone there is so nice and friendly. It seemed so hassle free I wondered what I’d been so get up about. I know I’ll probably get side effects as time goes on, but I’m just going to try and take it a day at a time, keep up the water and use the aqueous cream. I got a big tub from the GP on prescription.
Yesterday I had my six month follow up wit the surgeon. He is pleased with my progress and no signs of any nasties at the moment. That was a relief. I hadn’t realised how het up I’ve been during the last week or so.
Like you Lorna, I’ve been feeling quite down and emotional which isn’t what I was expecting. Chemo finished 5 weeks ago and I thought I’d be bouncing back by now.
I’m with you on the weight Sandy - keep going out for meals doesn’t help. We went to the Marina after rads today and had a steak in Wetherspoons. Certainly can’t get into that habit. It was great though watching the waves crashing over the sea wall.
I can’t wait until after Christmas to cut back. I’ll be the size of a house by then!
Have got posh Christmas do on Saturday, maybe next week…

Aaw! I stopped down by the Marina too today. The sea was so menacing. Loved it. Travelling to radiotherapy is a pain, but it’s lovely to be beside the sea every day.

Hellooo - Wound is doin well , only a wee 1cm diameter to heal before rads start so all good .
The weight thing …i am still a very large 14 , which is kinda my normal , i was really puffy on chemo and thats gone but omg i am still in need of a kick up the behind to get motivated , in every aspect of my NEW life ??? ehhh and what should that be …lol

Please leave tips below… jealous muchly that rads have started for u all , but enjoying the break .

xxxxxxxx

Are you feeling fitter? I still get out of breath really quickly and am really wheezy. Am walking my dog every day but even that makes me feel as though I’m about to pass out! Let alone doing some proper cardio.

i have never done cardio ever !! I can now walk without passing out virtually after 30 yards , however i have pain in my limbs since starting tam , only when i get up in the morning or after sittin for long spells , mood lower than my normal , will need to monitor it to see if it is a side effect , Its not like me to be down for a lengthy period , i normally snap out of it . On the up side i have had no hot flushes , but also not had a period foe 2 years, god knows why now as they all agree i am not post mena ??? i will keep asking…
Conclusion is i feel well phisically in comparison to 2 months ago , however i am struggling emotionally a wee bit , that in my experience is worse.

Ho Ho Ho xxx

Morning everyone
Well this is my first morning not rushing off to the hospital as I am all done!!! I cant believe it!!! It is a bit of an anti climax but I am massively relieved that I can finally get back to normal.
I had a big suprise party for me last night that my lovely hubby organised and although I was very emotonal and overwhelmed I did have a fab tme and got a lttle bit tipsy!
My bood is very sore from the rads and red and a little swollen but I think I have got away with the effects quite lightly.No broken skin or blistering. I did use the aqueous cream very day 3 times a day so it must have helped. But dont think im out the woods yet as apparantely the burns peak 10 days after finishing so will keep u updated.
I will never disappear - we have all helpoed eachopther through such difficult times and I hope we can con tinue to do so!
xx

Super Katie - finished with the treatment ! Oh and your hubby sounds so sweet!

We have moved house today. My OH is in Spain on a business trip, so it was down to me, a very very good friend and my au pair - well ok, and 5 young lads from the removal company. Although most of the packing was done before yesterday , there was still loads and loads to do. How much stuff does one accumulate in 11 years, 2 children, one au pair, 2 cats and various hobbies? I can tell you - lots and lots. The lads turned up this morning at 8:30, we cleaned the house as it got emptier, I directed the stuff into the new house and at 6pm they were done. Amazing. My back is agony, everything is still packed, but more or less in the right rooms, we have bedding and clothes for tomorrow, i even figured out how to switch on the hot water and central heating, couple of the new neighbours have already come around with their name, number and even cookies and we live in this really nice house now. Woohoo.
I think it worked quite well that my hubby wasn’t here - he would have already unpacked more and plugged in the telly , set up xyz etc, but I really like it bit slower and it’s nice and quiet.

And this all keeps me from worrying to much about next week ( op on Monday ). I quite like the idea of having a few days ‘holiday’ now after a job well done :). And I cannot imagine to have done this fresh out of hospital though, so glad it worked out.

Hope you are all well,
Rexi xxx

Rexi. I am exhausted just reading your email! I don’t know how you have the energy!! But glad you are in and happy!

Aaaw! Katie! Partying away! Good on you. And what a lovely husband!! Hope the burns don’t come and bother you on hols…although maybe you could use it as an excuse not to go on the scariest rides…!! :wink:

x