BB - glad you are out and ok. Will cross my fingers for you for the results in a couple of days!
Hugs,
Rexi
Hiya Junies- What are you all up too ??? Im day 5 of rads , god its tiring getting up at 6.30am , however gets me moving this week when ive lots to do. Im one busy elve !!!
Hope ure all ok, BB how are u ??
xxxxx
Hello All,
Results were not good there are still bits of the monster in the margins due to the shattering.
Next op MX on the 12th or 19th Jan.
3rd time lucky I hope !!
Going to enjoy Christmas with the kids
Hugs,
BB
Oh BB! What a HUGE pain in the bum. So sorry to hear that you’ve got to go in AGAIN! Grrrr… not nice to have this all dragging on and being in and out of hospital. What a pain. 3rd time lucky.
Rexi - hope your seroma’s OK.
Lorna - hope rad’s are going well? I’m now 10 days after my final radiotherapy and nothing to report apart from a slight tan!! I had a slight swelling and pinkness at the beginning, but that went pretty quickly. So all good I hope. I’ve been embracing the end of radiotherapy and throwing myself into the festivities and have been partying ALOT and now having a bit of a guilt-fest today as know that booze is one of the things they KNOW increases your chance of recurrance… But it was fun - and so nice to feel NORMAL for the first time in SUCH a long time. Have also dyed my hair a festive red (it was always blonde - so thought I’d have a bit of fun now that it’s short). See my surgeon in Jan to discuss reconstruction as the plastic surgeon said I’d be able to have it in March or April…but my surgeon said I’d need to wait longer. I’m keen to get everything over and done with - am finding the recon op (which will be a monster op - 20 hours and 2 weeks in hospital to recover) really daunting and a much bigger deal than the mastectomies - which is crazy seeing as that’s the life-saving op. I would love to get it done so that it’s finished by the time I finish Herceptin as I don’t feel I will even be able to think about “moving forward” until I’ve finished having IV drugs and get my portacath removed and have my new boobs…
Anyway - I am whittering!
Have a wonderful Christmas all. We all deserve a fab one - whether it’s nice and relaxing - or party central!! Hope Santa brings you lots of goodies!
x
Aw BB , you must be shattered (())…They will def get margins with an MX, though when you didnt think you were getting that it must feel daunting
Take Carexxxxxx
I am in hospital! I seem to have some infection - have cold shivers then temp of up to 39 degrees!
They are not quite sure what the cause of the infection is, however they did drain the Seroma - with the help of ultrasound -
The bcn tried to drain it, but couldn’t get any out. Turned out the liquid is deep and in several pockets and it was very gloopy, not liquidy - that’s why the ultrasound. They drained 345ml. - it feels so much better
Hope you are all doing well!
Rexi
Poor you Rexi, hope you get home for Christmas. BB what a run of bad luck you are having! Hope everything gets sorted out very quickly for you. I am propped up on lots of pillows in the spare bedroom again - drain in left side makes it impossible to get comfy and I don’t want to feel guilty about disturbing OH during the night. I don’t feel very Christmasy - hope I don’t spoil it for the rest of the family!
Hya all,
Rexi - oh no , last thing you want just before Christmas , I hope your out of there soon !!!
Super T - I keep waking my hubby up. poor man is getting tired. if it is not me then it is the kids.
I’m frustrated but the last op seems to be healing … Started excercises yesterday. again !!!
My little girl greeted me this morning bouncing up and down - Mummy! mummy! only one more sleep mummy isn’t it?
Hugs,
J.
After much sleep, a drip and more iv antibiotics, I woke up and definitely feel better. More with it. So hopefully they agree and let me go later.
ST - you are at home with the drain? Sounds creepy. Who checks it and changes it? When was you op and how long do you think you need to keep the drain in?
Totally understand about the separate room.
BB - I feel for you. I feel hard done by when they try to put the needle into my port 4 times - but having 3 operations sucks! I wish your next operation will be successful and you heal just as nicely. Virtual hug coming your way - *splat*.
Rexi x
Rexi - yes I am at home with the drain! District Nurse comes and checks it every day and empties it (yuck!) Operation was on the 20th and the maximum length of time the drain can stay in is 7 days so will be out Tuesday at the latest! I have managed to tuck everything under my jumper, looks stupid but so did carrying around a bag everywhere I went.k
BB - what rotten luck - all these ops that you start to heal from and then they cut you again! Just think what a party we will be able to have next Christmas! Roll on 2012.
Hi Ladies, I haven’t been on here for a while, such a lot to catch up on!
My rads finished on the 1st December and they went pretty well, just a bit sunburnt and tender inside but since then I have tried to pick my life back up, taking friends up on their offers of lunch and coffees that I neglected during chemo. Not yet up to going back to work, but planning a staggered return in mid Jan which still feels very daunting.
Are any of you still suffering from the after effects of TAX the same as me? I feel a bit frustrated at times when people think I am well now that all my treatment has finished and I find myself telling them that I still have pins and needles in my fingers and toes and stiff joints, not a lot of energy (so hard to get out of bed in the mornings) and get tired easily BUT I hate saying it I am really not one to complain but I like them to know that it IS NOT all over … is it just me ???
REXI I really hope that you are now on your way home, if not already there, to spend Christmas with your lovely husband and children. I had to have a seroma drained twice, can’t remember how much but I remember how surprised the BCN was on the amount she drained off - I also tried for a few days before having it drained but luckily I didn’t get an infection. I mentioned on here before that I am still having physio and that my arm and shoulder are still painful so I hope you heal quicker than me and do your excercises when you feel able.
BB so sorry to hear that they still did not manage to get clear margins and it now means another op for you! grrr just not fair!
Wishing all you lovely ladies a VERY MERRY CHRISTMAS and a HEALTHY AND HAPPY 2012, I for one can’t wait for this year to be over and I expect you are all with me on that one
Lots of love Linda xxx
wishing every a happy christmas all everyone will be pain free on that day at least…i finish my chemo on the 9th nov now im waitin on surgery …can anyone help me i been of cheme but my nails change colour went to doctors who prescribe me antibotics as my nails were sore an slight discharge and smell,right now im trying tree tee oil can anyone please advise or even had promblems with they nails.
one again happy xmas to all god bless x
Funlady - Im afraid i lost all nails eventually , there does not seem to be anything we can do to stop it
MERRY XMAS EVERYONE !!!XXXXXXXXX
thanks lorna i guess i have to keep up with the pain awww oh well did u c the new nails gowing what was it like
My fingernails just break when they reach the end of my fingers so far. My toe nails grew in great , then popped off like falsies. again but no pain…Its a pain , but im hopeful that now 3 months post chemo im gonna be fine
take care
xxxxx merry xmas…
Merry Christmas everyone.Hope everyone has a wonderful restful day.
Pam
Hya,
Merry Christmas to everyone …
The kids had a great day … lovely to see them so happy !
Hope you are all enjoying the holiday what ever you are up to .
Hugs
J
Merry Christmas!
The hospital let me go home on Christmas eve, with oral antibiotics. I had to phone them this morning find out the results of the cultures.
The cultures showed a same bug in my blood and in the seroma fluid, so I had to come back in in the afternoon to get more intravenous antibiotics, and tomorrow again. It interrupted the day a bit, as there are no trains today or tomorrow and the hospital is an hour away, but I am glad they have found the problem.
I am still sporting a temp every now and then and am in quite a bit of pain. One of the area is now reddish, too. I hope it doesnt mean it gets worse and I really don’t want to move at all - which can’t be good for mobility.
I don’t quite understand how and why it has developed. It’s quite annoying also because I phoned the bcn several times last week about the liquid, and can it turn into anything nasty if we don’t do anything, I didn’t have any of the obvious signs other than lots of accumulated liquid above my breast, on the side to my armpit, on the side of the breast, towards my back and literally on my back, too. The wound is healing quite nicely. I felt such a fraud when I asked to see her on Monday, even got the surgeon to look at it and they said it will go away. The unwellness started the next day.
Just shows they don’t know everything…
Other than that we had a really nice Christmas so far and I hope you all too
Regards
Rexi xxx
Rexi u have certainly been through the mill , what a pain, i hope u are now on the road to recovery.
I am gonna have a day on the couch and xmas tele…bliss
xxxx
Happy Boxing Day everyone.
BB, Rexi, Super - I hope things improve for all you very soon.
My rads finished on Dec23rd. HURRAH!
My OH and I don’t have children so we’ve had a quieter Christmas than usual. I’ve succumbed to ready-prepared foods instead of everything being home-made. OH has been great and I never knew he was so capable!
There’s no going back for him…
I’m still gradually losing all my nails , only have 3 pairs of shoes I can wear at the moment.I won’t be buying shoes in the Sales this year.
Am getting anxious about returning to work on 3rd. Jan. I’ll have to discuss a phased return with my Manager. Still getting over the effects of chemo.
Oh well, I’ll worry about that next year.
Happy New Year everyone. xx