Happy belated Christmas everyone!! Hope everyone was spoilt rotten!
Rexi - can’t believe I’ve missed all this drama. Rubbish. Hope you’re feeling better.
Hope everyone’s feeling healthy and happy.
X
Hello all ,
Rexi , what a pain having to go to go to hosp. Hope it goes away as quickly as it came .
Slendab finished rads wow best x mas prezi ever !! Hope the nail loss slows down .
Just gona put the little people to bed , v tired after 2 days of excitement .
Had Indian today… We always do on boxing day. Yum …
Managed to cook a little of it too .with help from sis .
Hugs
Bb
.
Girls, I really hope you don’t get to bored with my step by step account of this - just step over it, if so :). It’s feels good to write the details down, nobody else really can relate.
Boxing day - one of the liquid filled areas had become bright red overnight and was suddenly leaking! I thought that can’t happen, once the wound is healed?! I noticed only at the hospital and was getting a bit upset, I must admit.
So here I am - in a reduced staffed hospital - they got a radiologist in extra for me (and one other patient) to drain as much as he could - needed to be done with ultrasound, still couldn’t find the stuff without. Drained another 400ml.
They have found the bug from blood through the port as well, so is the port the source of the infection? Anyway as I don’t need the port anymore, the removal date has been brought forward to this week, as soon as the admin department is open and we know when it can be done.
Silver lining? Temp seem to be under control, I can properly rest and don’t feel guilty for not being able to do anything ( way to painful to move, however Tremadol in hospital sorts the pain out, yeah), I don’t feel totally exhausted anymore and my spirits are on the up again
Rexi xxx
Hi rexi,
Never ever think we will b bored … !
I would also be upset . Hospital is somewhere you never want to be especially at this time of year .
I hope you escape soon.
Me … just has a needle nightmare, woke up sweating thinking I was in hosp . Relived to find I was at home . Just gona try to calm down and go back to bed ! Hate being up at this Time nothing to distract, still have mild ringing in ears from chemo.
Hugs
Bertha
Rexi - Ofcourse we want to know how ure doin, what a time ure having. I hope its on the up now.
Away for number 9…
xxxxx
Rexi! Oh no! Rubbish. Hope you feel better and escape soon! Are you feeling ill or is it painful? Or both?
Lorna - presume you’re back on the rads in between Christmas and New Year?
Have to say I’m enjoying my Christmas/NY break from hospitals. I’m down in Cornwall and have been on lots of lovely long blustery walks on the beach with our puppy and eaten and drunk far too much. Back in for Herceptin on the 2nd Jan, an appointment with my surgeon on the 3rd and with a fertility expert on the 4th though!! So will be straight back into the swing of things when back home.
X
Hi girls,
Still in hospital and they were thinking about keeping me in until New Years day. I do appreciate the free hotel room in london on new years eve, but not really keen. They listened and have now decided they can let me go home with more oral antibiotics from tomorrow, and the district nurses need to replace the dressing daily. It’s time anyway, because I am running out of space on my arm for bloodtests :(. Even more grateful for the port over the months!
I had my portacath removed today, deffo easier than putting in :). My wound is open and still weeping fluid, but the seroma area looks and feels much better now. I am getting my normal appetite back. So it’s looking up.
Sandytoes, Cornwall and beach sounds fabulous. Busy next week for you, too.
Thank you all for your good wishes :)I wish you all a good and health for 2012!
Rexi xxx
Hi Rexi,
Hope your escape plan works ok and your out of that room with family for new year.
Hugs,
BB
Rexi - hope you are now home and back with your family, really feel for you. I hope you’re not (for your sake), but just in case you are, I am at London Bridge Hospital on Tuesday for a Manual Lymph Drainage massage which I am hoping will ease the pain in my arm. So if you happen to be there let me know - I will PM you my mobile number.
Slenderblenda - let us know how work goes on Tuesday for you and what staggered return plan you come up with, I will probably be following you the week after, although to be honest I still don’t feel ready but am feeling a bit of a fraud now that all my treatment is over … I know it’s stupid!!
Lorna - I think you are back at work, how are you finding it?
Back in June the end of 2011 seemed such a long way off, especially knowing what we had ahead of us … BUT we are very nearly there and I would like to wish all my new friends and fellow sufferers A VERY HAPPY AND HEALTHY 2012, you have really helped me get through this year … so a BIG THANK YOU TO YOU ALL.
Love Linda x
Hear, hear Linda! Here’s to a fantastic and healthy 2012 and leaving much of this behind in 2011.
Rexi - I’m in London Bridge hossie on Weds! So you have another willing visitor IF you did happen to STILL be there, but keeping everything crossed that you escape tomorrow.
X
Rexi’s updated Facebook with news of her escape. Hurrah! She’s out!!
Brilliant news, glad to hear your home Rexi and can see the new year in with your family 
xx
Well done Rexi, good luck next week Sandy.
I agree with you LindyLou, back in June it was impossible to imagine this far ahead. It has been months of just following medical appointments and being “done to”. I am aware that many of you have had more set-backs and complications than I had. I hope your treatment goes more smoothly from now on.
Tidily for me my treatment ended on Dec 23rd. I’m still feeling surprisingly tired, no- exhausted, no energy. I keep reminding myself it is only a week since my rads finished.
Thank you everyone for this thread. There’s been so much support, useful tips and shared experiences.
Here’s to us for 2012 ladies. Happy New Year. xxx
A happy and healthy 2012 to all to you!
Nice quite evening for us
Yes, I have escaped I just hope it will stay this way. I don’t have any unblemished vein anymore, i don’t want to think about where they would want to stick a needle in before it’s all healed up, so I have to stay out 
The district nurse has been today for new dressing, which I really needed as the fluids started to escape. Yuck. She said I should be eating protein, which seems to help the healing process… And something about ‘packing’ the hole to help the healing. Argh! She didn’t do anything, maybe I should be asking on the surgery threads.
Anyway,
Linda, I won’t be in London on Tue. The children are also not back to school yet. I ll be in london daily from whenever radiotherapy will start - no idea yet, need to fully heal first. I wish I could fast forward to that stage. Sorry about your arm pain 
Sandytoes, I may be in London bridge Hospital, if my surgeon has a slot avail, he has been on holiday during this ordeal. I ll find out on Tue and pm you
You are going to see the fertility expert, right? Good luck!
Happy New Year! X
Happy New Year Junies! 2012 felt like it would never come when we started but here we are and I think we can all give ourselves a pat on the back. Some are now done (Katie), and many of us still have further surgery, rads, herceptin and/or tamoxifen to go. May 2012 be much kinder to all of us and bring much hapiness and much, MUCH better health.
X
Hi all
Happy new year to all and wishes for a good 2012 wherever you are in your treatment.
Rexi --Great news that you are out, a good start of the year for you !
Great to hear talk about being “done” it realy spurs me on. Allthough my goalposts keep moving for the rads start I will get there and apparently will need less after a MX ?
Starting to sleep better now at night. School starts again on Thursday so going to have to get up a lot earlier !
Back to work on the 5th for a week or so …
hugs,
BB
Hi ladies
Well halve way there, woo hoo, though getting kinda scared of the treatment stopping. I still feel I need the security of being checked and x rayed etc…but I’m sure I will adjust !!!
Sandy toes you are looking great, great eyebrows, mine are getting there slowly as is hair
Rexi…u coping ok…
Bb …good luck with ure op.
Now…to wine or not to wine…lol
Xxxxxxx
HAPPY NEW YEAR TO ALL THE JUNE PEEPS IM STILL WAITING ON MY SURGERY AND RAIDIOTHERPY JUST HAD MY 6TH HEPERCTAN ON THE 3 JAN SEE MY DOCTOR ON THE 9TH SO I GUESS IM GOIN TO BE BUSY THIS MONTH OH WELL …STAY BLESSED ONE AND ALL
Hi girls
Happy new year to you all.Just home from RAD 17 out of 20.Seems to be going ok although was very tired over the festive period so had a very quiet time.Am onto my booster doses which do appear to be stronger and poor little booby very hot but skin intact so happy days.Eventually mentioned mood swings to GP who although I didn’t agree felt I was a bit depressed so I agreed to go on a small dose of anti depressants and although I hate to be proved wrong do appear to be making a difference.
My lovely long suffering hubby has booked us a lovely holiday to gran canaria on the 21st of this month so I am really looking forward to relaxing and being pampered in the sun.
Rexi- so sorry you had to be in hospital hope you are on the mend
Bertha b-good luck for your next op so sorry you have had to go thorough al this on top of everything else but at least u can be sure they get rid of it all this time but I’m sure it must be daunting when u were not prepared for it.
Sandy toes -hope the appt with fertility doc goes your way you deserve some good news.
Katie how was the holiday.Hope it was great
Everyone else a happy and healthy new year
Pam
Hi Pam! A holiday! YAYEEEE!!! I’m hopefully going to get some booked up shortly!! Desperate for something to look forward to now Christmas and New Year are over. Glad the tablets are balancing you out a bit (you’re not on Tamoxifen are you…??) and hope the last couple of zaps go well.
Rexi - hope appointment yesterday was OK and your fears of your seroma filling up again were unfounded? Sorry we missed each other yesterday - but hopefully catch up over a coffee when you’re in for your rads. Hope you heal up super quickly and get the rads started soon.
I had an appointment with a fertility expert who led one of the seminars on the Young Women’s Forum and she was brilliant and gave me some hope. She was very down to earth and sensible and told me I obviously had to worry about my health first - but I know that. I guess all I want is some hope for the future. However, she did say that the information that the other fertility expert was wrong. Basically I’d paid quite alot of money to a local clinic for tests as they told me they’d be able to accurately tell me whether the chemo had left me infertile or not. When I went for my results the consultant told me that my ovaries were olbliterated and my ovarian reserve was undetectable and there was no way I would be able to have children. When I pushed him on the levels he’d expect from someone who’d finished chemo only 6 weeks ago he said he had no idea as he’d never dealt with anyone who’d had cancer before (this is despite their website and huge posters in their clinic declaring their expertise with cancer patients). Anyway, the lady I saw yesterday specialises in young women with cancer and she said that no tests can be accurate so close to chemo and that the ovaries can recover. My period started again on New Years Day (Happy New Year!) and she thinks that is good news. SO FINGERS CROSSED!!! Now just have the small hurdle of keeping the cancer at bay…but feel happier with having hope for the future again.
BB - thinking of you. At least you’ll be saying goodbye to this exploding gremlin for good.
Lorna - you still with us? Haven’t blown away yet…?? Great news you’re halfway through…
Funlady - good luck with surgery and radiotherapy.
x