Starting Chemo in May 2012

OMG- just had shower and pubes falling out in vast quantity- had to unblock the plug, haha :slight_smile:

Lol. Cannot stop laughing Emylou. I BRUSHED mine this morning to aid them in their new journey! Thatā€™s a first!

Hi everyone, feeling a bit better today, still very tired but not sleeping :frowning: managed to eat some soup for lunch, not been able to poo !!! last day of steroids so hopefully will get back to " normal" soon, hope everyone else coping ok,
Emylou that actually made me laugh out loud, so good that we can still have a sense of humour through this :slight_smile: Josiejo hope you are starting to feel better, brain really hazy just now , have typed and re-typed this till it made sense ,love and hugs to everyone xx

Fantastic thread today re: hair mine is falling out all over the place apart from under my arm on opp side which has grown so long that iā€™ve finally shaved it! dont tell the bc nurse.
Rattles donā€™t worry about my moaning have slept most of the weekend so i obviously needed the extra days for bloods to come up. :slight_smile:
Giraffe well done you school run! always difficult doing the firsts.
Love to you Emylou9 chance to get used to your head before family get home, hope the time passes quickly till they are home with you again
Love to all
viv x

Hello buds. Hope everyone is enjoying the sunshine as best they can it certainly lifts the mood. I think im coming out of the other side of the Docetaxel train ride. It has been so much better this time. Not nice but bearable. Just hoping i dont have a relaps. It just goes to show a frank talk with Onc can make a big change. All he did was juggle drugs a bit and lower my dose alittle. Baby Elizabeth has had a good weekend and i have felt so much better with her being looked after by my friend in another room at night. It has eased my anxioty levels alot. I also have never had such a neat muffā€¦ What are we like. Will we be as interested when it all starts growing back. The answer probably xxxxxxxxxxx

Hi buds

Hope everyone is managing OK with side effects and delayed chemoā€™s.

I followed Emā€™s example and just joined the no hair club!

I was fed up with it coming out all over sofas, car seats, bedding etc and I was having to wear a hat all the time to avoid leaving a mess everywhere. My hair did not look good anyway as I have been scared to rub shampoo into it the last few days in case it all came out in the shower, and scared to brush or comb it, so it looked all greasy and horrible and my scalp felt all yucky in the hot weather. Also I have my wig appointment tomorrow and would not have been popular with the wig lady if it had been coming out in handfuls all over her wigs as I tried them on. I hardly needed to shave it as most of it just pulled out. The thing I was dreading most was the shaver battery running out halfway through the job, luckily this didnā€™t happen. Hubby offered to help but I said no thanks, I need to do this on my own. I also hid all my shampoos, hairsprays etc in the back of a cupboard so that I donā€™t get upset seeing them around the bathroom.

Squeakymouse xxx

Hi all
Hope everyone is managing to enjoy some of this lovely sunny weather.Hope everyone having SEs is coming out the other side ok.
I asked for a very short ā€˜doā€™ at the hairdresser yesterday, in anticipation of FEC 1 on Wednesday. She asked if I was happy with a short fringe - I reminded her that within weeks a short fringe would be the least of it! I have short hair anyway, and nobody seems to have even noticed that this cut is more severe than usual!
The hairdresser kindly offered to come round and shave the rest off once it starts to come out - (though I suspect sheā€™s only talking about the stuff on my head!) lol
Alix xx

Hello buddies,
Me again. Bit better just now but fingers really stiff and hard to type.
Well done Alix, and sqeaky mouse - once the tears were over, I found it a relief not to moult everywhere. Good idea to hide the shampoos etc
Worked out that nibbling and sipping is the beat way to manage fluids otherwise my tummy feels lke a well-shaken bottle of pop. Not been out but it is cheering to see sun.
Giggled at all your posts. Can anyone tell me why I still have hairy legs?!! The one place I would have liked to lose hair (esp) in this heat, and it is still there - not fair. Richard Oā€™ Brien (anyone remember the Crystal Maze?) here I comeā€¦
Rattles,
xx
PS lovely to come on here for a catch up.

Hi there everybody hope everyone is enjoying this lovely weather.

Alex I am also having my first fec on Wednesday so we will be going through this journey together, debating whether to go and have my hair cut before or to wait until next weekend.

All seems to be happening to quickly now and the nerves are starting to appear but suppose as soon as you start the sooner you are to finishing and getting back to normality.

Anyway take care all you lovely ladies.

Helen x

Oh god yes I remember Crystal Maze, lol Richard Oā€™Brian, my legs and under arms have stopped growing hair, I last shaved them on Thursday, so was expecting a gorilla, but NO, well chuffed, only a couple of hairs woohoo, lol, hair on head is all still there, donā€™t know how long for

Sorry bout this, website is only putting half my posts on, :frowning: my youngest daughter has bought me a totally awesome wide brimmed floppy sun hat, tried it out today and it looks and feels great, so Iā€™m now all set for when hair does leave my head lol, hope everyone has enjoyed the sunshine :-)) Love to all Toni xx

Hi to all you lovely ladies.
I hope you are all enjoying this beautiful weather as best you can,so nice to see the sun shining it really does lift my spirits.Got to say though im enjoying indoors lol one and only time i every remember doing this.Normally i would be out there lapping it up.My SE,s i thaught would of gone with the last of the tablets,i was wrong i feel really weird today with stomach cramps off and on and feeling really tired today.Got my Mum staying over but i really havent got the energy to be bothered talking i just want to go to my bed now and chill but cant.There is normally just myself and my son who is sixteen and he is really understanding and leaves me to chill when i need to.He just knows me better than my Mum i suppose but then she is a lot older.Its just hard work when Mum keeps forgetting she has just asked me that same question or told my same story about fifty times since she got here.Sorry i love her to bits but just finding it really difficult at the mo.
Rant over,sorry ladies!
Hugs to you all,i hope you are all feeling a lot happier than me at the momentā€¦
Donna xxx

Stupid cancer. Stupid chemo.
Am in hospital as neutrapenic.
So holiday to Newquay tomorrow not looking so good. Am super sad for my son (9 years old) as he is sooooo excited.

Am about to be moved to somewhere sterile so hope Iā€™ll still have wi fi/ phone reception. Little bit concerned as on a ward at the moment! Full of sick people I assume (sherlock holmes watch out).

Hope you are all doing okay! Will update if I have signal.
Thank God I have the kindle with me.

Look after yourselves, Sarah xxx

Sarah, Im so sorry, what a b***** shame just before your holiday! Can they give you one of those neutro thingy injections to boost your blood cells? Did you start to feel poorly or get a temperature ? I really hope they can sort you out so you can still go away. Thinking of you honey, Em xxx

Hiya Dā€™Buds,

What a mixed bag we are - SEā€™s are so personal! For those waiting to start Chemo - please donā€™t go into it expect anything negative. I felt a bit woozy leaving the suite after my first chemo, and to be honest I think everything else I moaned about was more cos I had heard it could be a problem. Hmmm - I say that - but the ā€˜migraineā€™, weight loss, and BP issues - I can explain them too - and none of them are chemo or BC related - I donā€™t think?

OK - the hair is gone. The fuzzy body hair is reducing alot too, and the thatch disappeared down my mumā€™s loo before I even realised I was shedding anywhere else. The legs though! I have to say that I am sooooo p1zzed off! I grew them specifically to enjoy watching them fall. All previous chemo ladies have confirmed theirs never went, or remained embaressingly patchy! Therefore I have now shaved - and although it strangely doesnot seem to be growing back, I am sure it will just to cheese me off! Head hair is scissor cut (to reduce risk of cuts via shavers), but still falling. This is easier to deal with as it is short enough not to notice as much.
It is a major relief that blonde jokes no longer apply to me. On that note, I was looking for a suitable slogan for my girls tee shirts when they do the Race4Life? Found thisā€¦ cancerisnotfunny.com/cancershirts.html

Em - I was prescribed 6 x FEC-T - so 3 x FEC and then 3 x T. We will see what is decided on Tuesday. Am very envious of your family freedom atm - got room for a lodger?

Sarah - hope you are feeling better. Itā€™s ok to feel crap - but make sure you come back and tell us all how you whooped their ass to come home!

Toni - what sort of reaction did you have? Hope you are feeling better. I soooooo need a little Elizabeth to cuddle! My grandson is too big now - he will be 2 on 11th June - just dont tell his mum that he will always be my Prince!

1J - you go girl! Many happy returns!

Josie - I made the most of my steroid agitation - havenā€™t needed to do any house work for the rest of the month!

Donna - you donā€™t have to feel to feel crap - some people have hardly any reaction at all !

Rattles - If you can make it to sofa, you can make it back again - always look on the bright side? Tee Hee! That song - the chumba thingy - can you search utube, and send me a link? I need to hear this now!

Squeaky - If you wanna share BPā€™s, lets PICC a time ? *giggles*

Ginger - hope you are feeling ok - thinking of you!

Claire - well done hunny - 1st one down! Hope you are doing okā€¦

Gillian - thinking of you - let us know how you are getting on - itā€™s not easy, but remember you are not alone!

And all the others my fingers cannot type the names of right now - I luv you all, am thinking of everyone. We are in this together, and will come through !

Hugs,

Merc

xxxx

Wow merc, photographic memory? Or pen and paper?
Will defo do some arse whooping!

Em, didnā€™t fel particularly poorly. Sore throat and mouth, nothing Iā€™d have been concerned about in pre chemo life. Temp started creeping up though until I couldnā€™t ignore it any longer. Donā€™t actually feel that bad if Iā€™m honest.

Am waiting STILL, to to moved into isolation room. At moment just have the curtains closed. That will fool those pesky germs lol! My Picc
Line is not playing ball so now have a canular on the go. Am being annoying customer by all accounts!

Not feeling too down, just wa t to go to sleep zzzz zzz.

Have a goOd day ladies. Xxx

well still not sleeping, but strangely brain feels more alert at this time !!! Sarah hope they get you moved soon and that you start to feel better quickly, just shows how quickly things can happen and that we have to listen to our bodies more, hope veryone else managing the SEā€™s ok , love and hugs to everyone xx

Doggirl - so sorry to hear you are in hospital, hope you got moved to the proper ward and managed to ge some sleep in the end. Hope they will let you out soon - perhaps you will be able to start your holiday a day or so late?

Merc - love the link for the T-shirts!

Squeakymouse xx

Morning Buds

Sarah hope you start to feel better soon. I hope everyone had chance to enjoy the sunshine over the weekend.
I hope everyone else are doing ok.
My SEā€™s are not to bad just not sleeping that well, not much of an appelite and not much energy. But mentally Iā€™m feeling low. All of a sudden itā€™s hit me. I went through the mx &recon ok, now all of a sudden Iā€™m facing chemo. First one down five to go. I read how brave everyone seems on here. I really donā€™t feel brave at the moment, the thought of loosing my hair scares me, how Iā€™m going to feel. I have a wonderful husband & 17 year old daughter. Who are always making sure Iā€™m doing ok. I just want that normal feeling I had 3 months ago.
I am really sorry for the rant.
Wishing you all a good day
Take care Gillian xxx

Ooh, Merc- while well impressed, canā€™t follow that impressive re-call and memory. Good to hear from you.
I have managed a glass of water this morning. Sister suggested bottled
water in case it is the chlorine in the tap water which has helped a bit. Not drinking in this
heat is not a good idea.
May -sorry you are feeling down at the moment. It WILL pass. Sometimes when you feel ill, you just really donā€™t know what you want, or anyone around you. I put my mum off coming next time because as hard as she tries, she finds it all so stressful. I always feel so irritable and then end up feeling like horrible.
Sarah- so, so sorry you are in hospital and the timing is so lousy. It is a good thing though that you arenā€™t feeling too bad and maybe with some antibiotics you will start to recover -where are you in your cycle? (used to talk with my mates about menstral cycles, now it is chemo cycles!)
Gillian- I would never describe myself as brave and I bet the other buddies wouldnā€™t either so donā€™t feel that you have to be brave too. If you read back, we have all had our low points. I have learned to accept it and that it will pass. What we have been through, what we are all still going through, is tough. But we can hold hands, and support each other and we will get through it. I am sure we are all sending you big hugs.
More later. lots of love Rattles, x