Hi Zumba,a big welcome 
Sorry you are suffering with your Se,s,i hope they pass quickly for you.Try to drink water,the tap water tasted awfull to me so one of the ladies suggested bottled.So much better.Love your user name,i miss doing my zumba classes.
Donna xxx
Hi Zumba
Firstly, welcome to the forums, I am sure you will find it a great source of information
and support.
As well as the support you are receiving on the forums you might find it
helpful to order the BCC resources pack. It has been specifically designed for
those newly diagnosed and contains information to help you better understand
your diagnosis, test results and the various treatments available. If you would
like to order a copy just follow the link bellow:-
Also, do give the helpline a ring if you need any further support or
information. They’re on 0808 800 6000. Open 9-5 Monday to Friday and 10-2
Saturday.
Best wishes Sam, BCC Facilitator
Good afternoon darling buds.
Hoping everyone is managing with SE and emotions. Today has been a busy day so far for me in my own little way. Elizabeth was discharged from the neonatal nurse this morning and weighed in at 9lb12oz…! 
Then the health visitor came who is just lovely. Followed by Mr tesco who emptied most of his shop into our kitchen. I did this order whilst on the docetaxel train so some strange things arrived.Its a bit like ready steady cook, empty the bag and see what you could make. In my case ready steady not a lot today…! I have had to ask a friend to go and get all the things i forgot. The bill was double the norm but i have lots of booze as today will be my first drink since juicing (day9). I dont drink until i have finished all the drugs and feel as normal as poss. Ihave dettoled the fridge and ordered two new salad trys for it. This took an hour on the phone and i am pretty sure the wrong ones will turn up. Fisher and pykle customer services = 0. My beautiful dogs will be home tomorrow and i hope to keep them now until next juicing. Will get the dog walker back a day a week and try to do it my self the rest of the time. Its good for me im sure. I do worry i might pass out in the middle of a feild and no one will find me. We dont have a phone signal where we live. Sure my boys would sound the alarm 
My very good friend is on her way with her children now first time i have seen the kids since i lost my hair. Hope they are not scared! They are germ free for the first time since all this started bless them. We have decided to wait and Christan Elizabeth next spring when all this is hopefully over.
I spent 3 hours awake last night worrying it has spread. When i saw the Onc he mentioned something on my CT scan that scared me. He said nothing to worry about its either calsification from preg or a flaw on the actual scanner but i got my Knickers in a knot. Anyway spoke to the Nurse and she said there is nothing in my file and the radiographer did not think a repeat was nessersery. So i need to stop stressing. Speak later lovies xx
A quickie from the a303 on the way back frOm my holiday 
Have had a quick skim through the posts will catch up later. Lovely comments and feel bad that hadn’t been able to post but had not wifi in Cornwall!
Got on my holiday, a little bit later than planned.
My neutrophils went down to 0.1. I cannot say thAt I felt that bad. My temp went up to 38.9 and my heart rate was doing it’s own thing and I was “tachy” (I love holby city). But didn’t feel poorly so this temp taking thing is a good idea!
They put me on the burns unit in a lovely little room. That was after 2.30am. Managed to get some sleep before obs at 4am, then woken at 6am!
Saw a few doctors. No one could work out where the infection had come from so it’s gone down as neutrapenic sepsis - source unknown.
They wanted me to stay in but were very understanding about the holiday and agreed to let me out if I had my PICC line removed. So short story is I am fine. Next chemo #2 due Wednesday bloods permitting.
Thanks for the support xx
Sarah xxx
A quickie from the a303 on the way back frOm my holiday
Have had a quick skim through the posts will catch up later. Lovely comments and feel bad that hadn’t been able to post but had not wifi in Cornwall!
Got on my holiday, a little bit later than planned.
My neutrophils went down to 0.1. I cannot say thAt I felt that bad. My temp went up to 38.9 and my heart rate was doing it’s own thing and I was “tachy” (I love holby city). But didn’t feel poorly so this temp taking thing is a good idea!
They put me on the burns unit in a lovely little room. That was after 2.30am. Managed to get some sleep before obs at 4am, then woken at 6am!
Saw a few doctors. No one could work out where the infection had come from so it’s gone down as neutrapenic sepsis - source unknown.
They wanted me to stay in but were very understanding about the holiday and agreed to let me out if I had my PICC line removed. So short story is I am fine. Next chemo #2 due Wednesday bloods permitting.
Thanks for the support xx
Sarah xxx
So pleased you are ok. You had us worried there! Hope you had a lovely holiday.
I’m feeling quite good today and have a friend popping in for a catch up. Also going to have my first alcoholic drink in a while. I must be feeling better! I think I will be a cheap date.
Love to all xx
I’m so glad u r ok Sarah and that u got ur holiday, my 2nd juicing is on Wednesday as well, but as u say bloods permitting, I feel great so fingers crossed that bloods are as good as I feel, hope everyone has a great weekend and that you don’t suffer too much with SE’s, lots of luv and hugs Toni xx
Hi lovely ladies, Harryduck - I’ve just visited my friend and her two boys who are 2 and 4 and are little darlings. First time they have seen me without hair but i kept my bandana on so not to scare them!! I had taken my wig round to show my friend and both boys ended up trying it on and then running round the garden in it - it was hilarious!!! I’m sure if you passed out in a field your dogs would make like Lassie and raise the alarm - well its nice to think they would anyway…I hate it when oncs/docs come out with stuff like that which then terrifies us for no good reason. Mine once said something to me about ‘skin involvement’ as the reason i would need rads after chemo and surgery which I then panicked about thinking it was really bad until a nurse reassured me about it. If you cant cook anything from your random ingredients at least you can enjoy the booze - hic!!! I’m getting regular updates and pics from OH and kids in Portugal - they are having a lovely time. They will now get home on the day I have my delayed FEC2 (thursday) which isn’t great timing as OH will have to go back to work straight away but hopefully my SEs wont be too bad. Josiejo - thanks for the headscarf link - not sure I could replicate her look - she made it look very easy!! Rattles - hope you are feeling more normal now steroids have finished…Bye for now, Em XXX ps. I did do the dog walk yesterday morning, despite not having dog, and really enjoyed the exercise/fresh air, company of friends, so am glad i got my lazy bones out of bed!
Hey Doggirl - your post crossed with mine - sooooo glad you got to go on holiday - hope you and your family had a lovely time, XXX
Hi Ladies
Doggirl /Sarah - so pleased you are out of hospital and hope you had a lovely holiday. We were worried about you.
Zumba - welcome to the thread, sorry to hear your story and hope your treatment works out.
Harryduck - glad you were able to talk to your nurse and get some reassurance. Hope you enjoy your cooking and the drink.
Em - you sound like you are having an OK weekend and not totally on your own, hope your FEC2 goes OK.
I am feeling much better after FEC 2 yesterday than after FEC1 - much less weak and wobbly, and no nausea or sickness. However it might come back and bite me later. I just spend most of the day doing what started off as a bit of light weeding in the garden but which turned into extreme gardening with the help of the steroids. I had bad stomach cramps and…er…windypops last time, but the nurse yesterday had said I could take the omeprazole she gave me last time for this. I had not taken them yet as I though they were for heartburn and stomach acid rather than cramps lower down, so I am trying them out, so far so good.
I will be having a drink tonight. Although my liver is apparently a bit iffy from FEC1 they didn’t tell me I shouldn’t and the extra tests they asked for on the blood test form are for kidney rather than liver so as usual I have no idea what is going on. I may just have been a bit dehydrated on the day of the blood test as it was hot and I probably hadn’t drunk enough water. I have no symptoms of liver or kidney problems.
Hope everyone else is doing OK and not suffering too much with SE’s
Squeakymouse xx
Hi Merc
I loved your ‘LIFE IS NOT ABOUT WAITING FOR THE STORM TO PASS - IT IS ABOUT LEARNING TO DANCE IN THE RAIN’. I really needed some of that possitive thinking today as I got told I am going to need chemo and I crumbled…like you it is more belt and braces move as I had a mastecomy last week with reconstruction and they are preety sure they got it all. Out of the 23 lymph nodes taken only 2 showed any signs of BC and I am to get a all over CT scann to make sure it hasn’t gone anywhere else. This is the second mast I have had I had one this time last year for DCIS this year it was Invasive Lobular. I have to admit that I really wanted to through the dummy out of the pram when they told me about the lobular cancer and now with the chemo I really want to say chapps…but can’t, I know I need to do what is needed and reading these posts have helped. Still feel really shallow about worrying about lossing my hair but I can’t help it.
Hi Sam BCC,i tried that link becase ive never had that pack and thaught it might be helpful to me.Each time i clicked on it and try to order it was just a blank screen.Would appreciate your help with this please.
Donna x
Hi may64
I’m sorry you’re having problems with the link for the resources pack, I have just double checked it and it takes me to the page with no problem.
Can I suggest intead of ordering this on line, you give the BCC helpline a call on 0808 800 6000 as you can request it here. The lines are open today from 10 to 2pm.
I hope this helps.
Best wishes Sam, BCC Facilitator
Hope you buddies are all planning something nice for the weekend, even those of us not quite there yet with SE’s.
Hector- you are just above this post so thinking of you. You must be reeling from the news. I am being treated for my second breast cancer after bilateral mastectomies in Feb. This time, I only had one node out of 29 affected but I am having chemo again. I have very mixed feelings about it but was cancer was triple negative, it was chemo!! It has been really hard to lose my hair and just the whole thing. I just wanted you to know all this in the hope that you would not feel so on your own. It does get easier and we are here to support each other through.
I had a moment this morning, I want to be here in 20 years time and to tell my daughter what she and we did for the Jubilee weekend. I want to be able go, ‘well the chemo was hell, but we still had some great times.’ Most of all, for it to seem like a bad dream.
Squeaky- nice cold glass of pino grigo! Delic!
Doggirl - so glad you managed to get away for your holiday. You certainly had the best of the weather.
Enjoy your weekends whatever you are up to.
Rattles,xx
Hi all
Nice to catch up with eveyone’s posts - hope all are feeling ok this morning. Great to hear that Sarah got on her hols.
Had first FEC on Wednesday - first attempt at cannula insertion popped out of the vein, and my hand swelled and went very red and hot. Lovely chemo nurse was beside herself (my fault for bigging up the anaesthestist who put one in before my op which I hardly felt!). Eventually another nurse got a cannula into another vein. Felt fine for a few hours afterwards, and probably ate too much - sick later on in the evening. Feeling bit better each day since.
Scarf lady was at the chemo suite, got a lovely large cotton scarf for bargain price of £1.50! There was also a cannabis leaf print bandanna that looked like it had been waiting for a new home for years, which my partner talked me into getting!
I don’t seem to get any of the lively SEs from the steroids - dropped off to sleep soon after my dose yesterday morning, so the house hasn’t benefitted from any manic cleaning as yet…
Love to all, Alix
Good morning everyone, hope you are all having a good weekend, feel soooooo much better today, going out for lunch with family , eating properly again and no sickness , hope everyone else is coping with SE’s .
Love and hugs to everyone xxx
Hi everyone
I haven’t posted for a while partly because I have been back at work as I have felt pretty good. Also because all of a sudden I felt I was letting this “thing” dominate my life and wanted a bit of escapism! I have just spent an hour reading through all the posts I have missed and it has made me laugh and cry.
Think that may be my way of coping just dipping in and out?
Due to have my second chemo on Wednesday. Day 15 my hair started thinning now on day 17 and between me and my black labrador my son and husband are fighting a loosing battle! I have a christening tomorrow and am worried I will be there and a lump of hair will fall in someones drink! My scalp is sooo itchey it feels on fire at times. The bonus is the hair on my legs seems to have disappeared and like everyone else in other places too! I don’t know when to get it all shaved off. How quick does it all go or is everyone different?
Cannot get my wig until Wednesday so have ordered a few pre tied bandanas as I am useless at tying them. Bohemia headwear is quite good for anyone looking. I have been really lucky with SEs. Worse one seemed to be headaches and the “drop” after the steroids finished. Thought I was loosing the plot but after looking on here realised it appears to be normal. Onc recommended spreading the steroids out a bit more instead of taking all of them over three days.
Good luck to everyone who has just been or is due to go for their next one.
Alesha xx
Hi Alesha, my hair started falling on day 14 I’m now on day 19, and be honest I think will get this weekend done and dusted, and OH will get the clippers out and get rid of it all, cos at the moment it’s worse than having a couple of dogs lol, I get wig on the 14th June I’m so excited about it, cos are just amazing, anyway hope everyone has an awesome long weekend love Toni xx
Have just had mine shaved to number one. It’s day 18 for me. Was looking quite ridiculous. Like old lady hair. We had tears during but I feel good now. I do have a Mohawk going on. The middle bit is clinging on. Only realised once shaved how many bald patches there is.
My wig feels horrible to me so think it will be scarves for me. All feels hot today though as it’s quite humid.
Off to have a soak in the tub. Making the most of no Picc line until I get the new one in Wednesday.
Take care buds, thanks for lovely comments xxxxxx
Sarah dog girl x
Thanks for the comments. Bikerchic, I think I will get through the weekend too and see how much I have left as it is driving me nuts.
Doggirl think I may be doing the scarf thing too. I keep trying them on and they actually start looking not too bad when you get used to them. I will give the wig a go to though when I get it.
Have a good weekend everyone.
xx