Yes it does make sense Rattles, just to make sure I can black out the sunshine if I get so tired that I have to go to bed, I was looking at where the lgfg workshops are, and the closest one to me is Leicester, so will prob give them a ring at some point this week and book an appt, or I can do what you did, and go get a make over at a big department store, how bad would that be lol anyway hope you all sleep well tonight, no more bad dreams Harryduck , hugs to all night night xx Toni xx
Josie - no Iām definately not superwoman! I suppose itās my way of coping - just carry as normal until I canāt anymore! May64 - I rang up today to book on a Headstrong thing - I left my number so hopefully they will ring back tomorrow with an appointment. I know what you mean about being anxious - just ringing up I felt really upset. Iāve got a LGFB booked for 10th July in Leeds - am really looking forward to that. Julie
Ohhhhh - so excited about being toxic! BP lower so they FECāed me! Damn - I wish I could sleep, but having steriod housework frenzy atm. Will be back soon Gals - Merc xxxx
Morning Ladies!
Hope you all slept well or as well as can be expected!
I now have heartburn kicking in, off to find the drugs my Onc gave me for this one.
MRI tomorrow on liver so fingers crossed that comes up clear.
Have a good day everyone
X
Morning everyone,
Hope you are all feeling good today, managed to get out and about yesterday, absolutely shattered when I came home tho !! Am eating ok ,but everything tastes awful, thought I would try something spicy so made fajitas last night, tasted some of it but think it was a bad idea , heartburn not good, and donāt think the yogurt this morning helped lol , raining up here today why was all the sunshine on the days I was stuck inside !!! well done Merc, seems silly to be congratulating you on getting toxins pumped in but means you are one step closer to finishing it , hope all you ladies have a great day xxx
Hi Merc , glad you are back and able to carry on your chemo( that does sound weird but you know what I mean!). Hope SEs are better for you this time. Polarbear- good luck with the MRI tomorrow - when do you get results? Harryduck- hope you had a better night last night and managed some dream free sleep. Iāve been thinking about Doggirl/Sarah too hoping she is on her hols not still in hospital. I was wondering what, if anything all you May buds are eating/taking to help combat the cancer - Iām trying to eat a lot of fruit and veg and have Mediterranean style diet, also taking vitD supplement at the moment, oh and trying to get turmeric into my diet too! I was going to ask onc about taking milk thistle during chemo as I used to to take it as a support to my liver- it helps to flush out toxins. Anyway just interested what you all thoughtā¦ Have an good day everyone , Em xxx ps. Lying in bed trying to motivate myself to get up and go for a (dogless in my case) dog walk with my usual dog walking mums from schoolā¦ hmmm bed or walk ? Will let you know later ā¦x
Hello buddies,
Great news Merc (in a strange way) but be careful (I never knew I was SO bossy) and donāt over do the housework. Fingers crossed for an easier cycle.
Em - I am ashamed to say I am eating a limited diet so in no way feel able to boldy share my wonderful regimen!! I usually eat very healthily but can only seem to manage bland food, chicken, nothing cooked in tap water, milk, cheese atm. I have been told that it is really important to eat high-energy foods for carbs/fat/protein but I (usually) love my veggies. Lots of people swear by juicing and wheat grass shots during chemo as it can limit bodyās ability (just during treatment) to take up nuturients.I guess it is about what you feel helps you. What I do know is that you have to be really careful about checking supplements (even so-called ānaturalā) as they can interact with chemo and other drugs. So for example, I canāt take a few things with carboplatin - vit c (which I feel I need) and my usual Kalms (to help sleep). Canāt remember the others now.
Harry duck - hope you got some sleep.
Good luck to polarbear with your MRI scan and hope you and ginger will start picking up now - like me!!
Last night I lay in bed and the room literally was spinning around and around.I have today and tomorrow of steriods and that is it. 14 days. Will I still be sane? How low will I go?
I have a busy day ahead. Sister coming later. Baby going away for weekend. Why is it so hard to let her go?
Rattles, xx
Hey Merc, glad to hear that your back on the juice train lol, at least itās another one done Polarbear I had heartburn during 2nd week after chemo, lemonade helped,and mints, hope your MRI goes ok, let us know:-),Hope you all have a good day :-)) Toni xx
Hello all. I got lots more sleep last night and feel so much better today. Rattles roll on end of steroids. I really feel for you. I cant taste anything at the monent so its all about texture. Mum and i are off to melton mowbray and think we will pick up a famous pork pie. Maybe if i have mustard on it i might enjoy it!!! Also a net curtain rod for a fly curtain. My life is just so rock and rollā¦!
Hi to all you lovely ladies, I hope youāre all okay
Julie, I
went to the head strong class today, youād love it. I donāt ever wear
hats or scarves, but Iām a converted woman. I was given a free scarf and
tie, and I went on to buy a few more including a sleep hat. The
hairpieces were amazing (also worth a try). Did any of you ladies know
that the best hair products to use are the āSimpleā range? Merc- good
luck with your treatment and I hope the SEs arenāt too bad. Take care and lots of hugs! Polar Bear- good luck with your scan and I hope the results come back good. Harry Duck, I know that rock ānā roll feeling, Iām getting excited about hats and scarves also. To all the other maybuds, hope youāre having a lovely day.
Take care, hugs
Donna
xxx
Hi everyone
Em - suggest you check with your onc before taking milk thistle as I think I read somewhere that it was a bad idea during chemo as it does strange things to your blood test results which is the last thing you want at the moment. However I read this during steroid high and chemo brain so might have hallucinated it. Have you had a date for FEC2 yet?
Harryduck - glad you are feeling better. I have had nightmares too and am sleeping in the spare room as I keep screaming and crying in my sleep and waking hubby up (and probably the neighbours), so you are not alone.
Merc - glad you are back on the FEC.
Polarbear - Good luck with your MRI scan. I found peppermint tea helped with stomach pains. You asked about Herceptin - I am starting mine with my 4th chemo cycle. Are you having herceptin?
I just had FEC 2 - The Sequel. My blood test showed my liver function was only just borderline so had to wait while they checked with the doctors whether it was OK to go ahead with todayās chemo (I donāt think they had looked at the results before I turned up). They said yes but I have to go for another blood test next week, and they might have to reduce my chemo dose if its still dodgy. I wonder if it was the wine I had the night before the blood testā¦
Then the nurse couldnāt get the cannula in a vein and had to go and get a hot young man in a white coat to see to me. The young man was very nice and sorted me out, but they recommended I get a PICC line, and I talked to another patient on the ward who has had one for 6 months (PICC line not young man) and had no problems, so I might get one. Or I might just keep asking for the young man each time.
Looking forward to a nice long weekend on a steroid high!
Take care
Squeakymouse xx
Squeaky mouse glad you got FEC,d Think from what people say Picc lines make life much easier. Hope the steriods dont keep you up tonight. At least its cooler well here at least. Donna oh how our lives have changed. I actually live in my house now, i am enjoying that part. It was just a b&b really when i was working. My mum has just gone on a lightbulb hunting trip for a bulb that goes in the shower they cost Ā£25 but washing in the dark is getting me downā¦ Think i might get the hoover out while she has gone. Really worry all this is to much for her. She is coming in every day at 7.30 and doing everything for the first week after treatment. I feel very guilty but just cant do it myself that week. Fed Elizabeth in bed last night and that worked much better. OH got up with her at 6 and i went back to sleep til 8. Mum will get a 4 day weekend for the bank holiday but i will be Knackered by wed. OH 2 step children 2 beagles and a new baby. The thought of it makes me feel floppy. OH does all the cooking now and Mr Tesco will deliver the nosh. Dog hair may well have to become the fashion for a while. Off to change a nappy of all nappies now. its gone through 3 layersā¦
Hi Ladies hope your all keeping well.I was dx in feb had 3 ops to get clear margins and was told i would only need rads and tamoxifen only to be told when i met my onc that he wanted me to have chemo,hormone injection,rads,hormone tablets i was gutted as iām getting married in 8 weeks time.Had my first fec chemo on monday and cant believe how tired i am feel sick but have not been sick my head is itchy and my hair really dry.Big hugs to you all xxxxx
Hi Ladies hope your all keeping well.I was dx in feb had 3 ops to get clear margins and was told i would only need rads and tamoxifen only to be told when i met my onc that he wanted me to have chemo,hormone injection,rads,hormone tablets i was gutted as iām getting married in 8 weeks time.Had my first fec chemo on monday and cant believe how tired i am feel sick but have not been sick my head is itchy and my hair really dry.Big hugs to you all xxxxx
Harrryduck- haha I can still remember those nappies!!! Just wait till Elizabeth is old enought to undress herself in her cot and decide its really funny to take her nappy off - a party trick of my daughter who would then do unmentionable things and it all ended up looking like a dirty protest!! Squeakymouse - well done on getting FEC2 - mine rescheduled for next Thursday, blood test on Tuesday so those neutrophil blighters better be all present and correct by then. Yes, Iāve decided to lay off the milk thistle as its also not recommended for ER+ which I am. Hope all you recently juiced ladies arenāt suffering too much, Em Xxx
Hi ladies.
Iāve been having a practice tying headscarves so I can get used to it before the weave goes. Iām on day 7 and still no malting but I doubt Iāll get away with it much longer.
Anyway, I came across this and itās given me some ideas, so I thought Iād share with those of you, who like me will be going wig free.
Iāve learned quite a cool bun style, although Iām only using an old polka dot neck scarf so I look like a cross between a pirate and fortune teller. Time for an online shopping spree methinks.
Hope you are all well this evening xx
Ha ha Josie I like the cross between pirate and fortune teller, did make me laugh :-D, my hair has started shedding, knew it was gonna happen, and it started exactly 14 days after 1st juicing, scalp not sore so thatās good, donāt like losing my hair, brave face but crying inside , but I bought a really gorgeous scarf from Peacocks today itās a big square one with roses and polka dots on it, really nice and soft too, and it was only Ā£4, bargain, lol, I get my wig on 14th June, I wanted to have all options for when hair has gone x love to all Toni xx
Hi Zumba, welcome to the May buds!! Sorry youāre having to join us on the chemo journey especially when you have your wedding in the middle of it allā¦Iāve had one dose so far and wasnāt too bad at all but second delayed due to bloods not recovered enough. Itās a real bummer this cancer malarkey but we just have to focus on the fact that weāre getting the best treatment available to get rid of it so we can carry on with the rest of our lives. Weāre all here for each other so you wonāt have to do this on your own, Xxx
Hi ladies,
Squeakymouse you made me chuckle,how much wine did you drink?just so i know for future reference lol well why not i might get a fit young man in a white coat like you did to come and sort me out lol im single so not gettin any other excitement.Jokes aside now i hope your SE,s are not too harsh and you get some sleep tonight,thinking of you.hugs xx
Oops nearly forgot to ask you recommend peppermint tea for stomach pains,i thaught it was just me suffering with these cramps! how long do they last because i had my treatment last wednesday and ive still got them.Im going to try peppermint tea and see if it helps though,ill pop out in the morning to pick some up.Be nice if i could get rid of them by the weekend as im going to stay over at my brothers in chester and i hope to have a good night out on the town with his wife and a few friends.
Harryduck my heart really goes out to you,it must be so hard for you having a baby to look after aswell.If it was one of my daughters i would be exactley the same as your Mum,i wouldnt want anyone else looking after them.It might be hard but im sure she will be fine,so try not to worry too much.Im sure she would hate to think you were worrying.hugs xx
Got more energy tonight cant believe im still wide awake,i almost feel back to my old self again.
xxx
Quickie from me(ha- I hear you laugh!) just to say I STERIODS FINISHED ME (this is a genuine typo but thought it says it all)!!! Awake at 3am, got up with sudden compulsion to check box and realised I had taken last dose yāday. Just as well as I feel seriously strange.
Hello Zumba, I think we all feel for you and the uncertainty and changing plans make you feel so out of control. Your life gets turned upside down and it must be so hard to cope with this at a time in your life when you are filled with such happiness and excitement. We are all thinking of you. The SEās will pass. Just give it time.
Em- I relate to the nappies. I remember being given a box of Napisan- best gift ever! Harry, like May, think that while it is so hard for those around us, they want and need to help.
May , my daughter in Chester just now. It is a lovely city. Have fun with your family.
Thanks for the thread Josie- they make it look so easy.
Meeting my work-stand in at 10am. Looking forward to seeing her. She thinks she can pick my brains (yeah?) on the subject of decision-making?! I might disappoint her.
Thinking of all the buddies who had their chemo this week. This is the hard bit. You can do it.
Rattles, xx