Hi i have no idea if im in the right place but i started my chemo on 3rd may. I am having 3x docetaxel then 3x FEC. I am 35 and found out when i was 30 wks pregnant. I had my daughter at 32wks by c section and she is now home and doing really well.Thank goodness. I will have surgery after chemo 5.
I am feeling ok now but the first treatment was hard. Is anyone else having Docetaxel?
Good luck for tomorrow Bikerchic - it’ll feel good to get one under your belt!! Hi ther Doggirl, good luck to you too for tues. hope your SEs are minor ones. Harry Duck, many congratulations on your new arrival, so sorry about the circumstances though- cant imagine that mix of emotions, joy of a new baby and the bombshell of diagnosis. I’m having 3 FEC followed by 3 docetaxel and only had one FEC so far which hasn’t been too bad (touch wood!). Not sure what the different SEs are for each. Em xxx
Good luck for tomorrow Bikerchic - it’ll feel good to get one under your belt!! Hi ther Doggirl, good luck to you too for tues. hope your SEs are minor ones. Harry Duck, many congratulations on your new arrival, so sorry about the circumstances though- cant imagine that mix of emotions, joy of a new baby and the bombshell of diagnosis. I’m having 3 FEC followed by 3 docetaxel and only had one FEC so far which hasn’t been too bad (touch wood!). Not sure what the different SEs are for each. Em xxx
Hi everyone. I am joining you all next week. I will be having a Picc line inserted this week and my FEC will start next week (not quite sure what day yet)
x
Hi darling buds,
so lovely to have so many new buds joining. Welcome to bikerchic -hope it went well today. welome to doggirl, harryduck and josie. you will get so much support from this site and we can all hold hands together through this.
Merc - my 2nd FEC is the 23rd so at the moment I feel great-tired but great! good to hear you are nearly recovered. It sounds dreadful.
Emylou -I was brought up in Cheltenham and my eldest daughter lives there and i love the place. Hope to move back in about 4 years.
Rattles,Gillian, squeakymouse - i love reading your posts ythey keep me going!.
A funny story to share. All my family-2 daughters,partners, 6 year old grandson came for the weekend and we were playing cricket in the garden. My daughter who lives in Cheltenham asked to see “THE WIG” so I put it on for her(its very like my hair now). We then decided she would put it on and change into the clothes I was wearing and go back out to the cricket game to see if anyone noticed. It was so funny. None of the grown up men noticed anything-just shows how much they actually look at me. But my lovely grandson came running up to “gran” and was very very confused for about 30 secs then realised it was actually his mum. Then everyone realised and the laughter was very beneficial to us all. It took away any self consciousness about the wig.
Lots of love XX
That’s a lovely story ambarose - children can be so much more straight-forward in their responses. You have a very observant grandson! The thing I am most dreading is the school gates and facing the other mums
Bikerchic - hope today went okay. Like you, my attitude is one done- five to go. Gulp
Like amabarose said, welome to doggirl, harryduck and josie. Harry duck- I am so glad to hear that your little girl is doing well. It must have been a terrible shock to have to deal with cancer while pregnant. To answer your question, there are a few of the buddies having docataxel, but seem to be having fec first (am I right?) I am having docataxel, but with carboplatin as well but I know which side-effects are from the doctataxel if you want to compare notes? I also started the 3rd May and think someone else did too, but cant remember who…?
Merc, Emylou, Gillian, squeakymouse- hope you are doing okay…
I am trying to use everyone’s names to get them fixed in my soggy brain, so sorry if I have forgotten someone.
This has been my best day so far, and at home, I feel fine. When out, need lots of sits down. So for anyone feeling poorly- it does pass -you can remind me of this in two weeks time (I am bolding this for future reference!)
Rattles, x
Hi Ambarose it was ok felt a bit light headed, and nose felt a bit fuzzy, and touch wood, as yet not feeling sick, and had chemo at 1.00, hope all went well with everyone else having chemo today And aren’t grand kids great, they do make me laugh lol bless em
Rattles, it is good to the first one done and dusted, and yea it’s a big gulp, but they’re great in the unit, I was laughing most of the time which helps, so if they’re all like today’s it’ll be ok
Thank you for my lovely welcome. My head is all over the place but at least i have a tiny baby to distract me. Sleepless nights are a little tricky but now i have had my first treatment i can put things in place to help. My friend will do the first 4 nights with baby after the next dose and my mum will come in during the days. Is it the steroids that keep me awake for days on end and make my heart feel like its about to escape my body? Lots of love to those feeling low. Every day is a new day and lots can change overnight xxx
Hey All,
Hope everyone is getting through ok.
I have been having a bit of a hard time of it, which has made me terrified of facing the next session. Unfortunatley, coward that i am, i just shut myself away, didn’t want to put others off. Feeling more confident now and am seeing the onc on Friday before my 2nd chemo on Friday 25th. Have got a wig/scalf appiontment with macmillan this wed so looking forward to that
The weather, being so lovely, has seen me in my green house playing with bedding/container/basket plants which has cheered me up and made me stop feeling sorry for myself.
Went bell ringing on Friday night and again on Sunday morning, it is amazing how real and good life can feel when the SE’s pass, mouth is still very odd and getting really tired but that’s not much to contend with.
How is everyones hair? as i said, i go to hospital macmillan session for wigs and not sure how it will go as i still have hair.
luv viv x
Hey Darling Buds,
Viv - would PM but not sure its working right. Is it the Headstrong
appointment you have? They are brilliant - I hadn’t even started chemo when I
saw them - hair is not an issue - a popsock can see to that !
BTW darling Buds - I want to know if you feel cr@ppy. I wanna be able to give you a virtual hug and
say yep - I felt like that last week - but this week I beat my youngest on some
football game on the xbox (sorry - wii fit is still a bit beyond me atm) ! And
vice versa - I hope you guys carry on doing the same for me cos I just know I
will be wimping out on you all again soon!
Harry Duck - I have been so lucky as to be able to meet up with a few people
in my area from the Easter Bunnies warren in breastcancercare.org.uk/community/forums/starting-chemo-april-2012
. Many of them have started the Tax (Docetaxel) part of their chemo - perhaps
having a scout through their warren may help a little too?
Bikerchic - enjoy the steroids hun, and just take each day as it comes. Don’t
bother looking for SE’s - they will find you if they want to! My ironing pile is
growing so can’t wait for next steroid dose!
Rattles - dont worry about brain fog - if you cant remember it cant be that
important! *scratches scalp and winces*. As for the other mums - when they have
earnt enough stripes to hold the badge of honour you already do, then let them
justify judging your always perfect hair style! Impressed with the bolding !
Doggirl - Goodluck tomorrow Sarah - I will be thinking of you. I’m taking my
grandson to Addenbrookes to discuss further syndactyly surgery, but will pop on
intermittantly to see if you have been able to get on and update us…
JosieJo - PICC lines are good - arent they Rattles ? No need to worry about
about sore and failing veins! Might all sound a bit scary right now, but just
take every day as it comes. Personally I still think the waiting and
anticipation was the worst bit. I will be juicing up on 22nd, so we can compare notes next week?
Ambarose - Have you named THE WIG? Mine has been awarded the title of
Barbara, The Blonde Bombshell - courtesy of Patchit. My prosthesis is now called
Pitstop (cos it sits near my smell armpit), and the PICC is called Spot (cos I
used to pick my spots as a teenager???).
Hi to Anni too, and everyone else reading this.
This evening, after I read all the wonderful posts here in the homely branches of Darling Bud tree, I raised a glass of G&T to us all and
thanked the stars for finding such a group of brave and determined ladies.
Hugs to all,
Merc
xxxx
p.s. …then I ran to the loo cos the FEC’ing FEC didnt like my G&T
!!!
Anyone heard from Giraffe/Julie?
Em?Squeakymouse?You guys ok?
Hi Merc, how u feeling now, I was ok at first, had chemo at 1.00, home by 3.00, fell asleep, had dinner at 7.00, by 8.00 was really really tired so was in bed by 8.30, and was being very sick bout midnight, but felt so much better once I’d been sick, so managed to sleep for the rest of the night, got a very foggy head this morning tho and a bit wobbly :-/ next one 6th June,
Hi there buddies. Had a bit of a downer yesterday probably due to coming off the steroids so decided to stay busy and sorted out my kids summer clothes ready for their holiday to Portugal at the end of the month. We had the holiday booked months ago before my dx and I’ve managed to persuade OH to still go and take the children away so that they won’t miss out on their holiday. I will be having my 2nd FEC while they are away but a good friend coming to stay with me for the night I have it. I’m going to be bereft when they all go off to the airport knowing that if it wasn’t for this f****** cancer I’d be going too. But I HAVE to keep the brave face going or they won’t want to go without me. OH will benefit from a holiday too and his Dad will be there for a few days too (its his villa) so he’ll have someone to talk to about things. Hope all you ladies are ok. I’m feeling fine physically, just emotionally rubbish…seems such a long way to go at the moment…Em X
Bless ya Em , life certainly can be a b***h, not only r we thrown int turmoil with this poxy cancer, we also have to be denied things we want, like you with your holiday, I am the same no holiday this year, still we r going to go to America next year when all this s**t is finished, glad u got someone to be with u on the night of ur next fec, take care. Toni xx
Hi everyone
Just a quick post because I am working! I have a desk job and am set up to be able to work from home, and so far my chemo brain has not stopped me negotiating through all the complicated security passwords etc to get remote access to my work files.
Bikerchic - sorry you were feelng poorly last night, hope you are feeling a bit better today and hope you were given anti-sickness meds.
Em - sorry about the holiday, will be thinking of you at the end of the month. Perhaps you could go for a weekend break with your family in the UK over the summer.
Merc - loved your post, I thought I was the only person who read this forum at 2am! Hope you recovered from the G&T.
HarryDuck - I was very shocked when I read your first post here, my heart went out to you but I did not know what to say. Hope you get all the support you need.
I have been more tired the last couple of days, probably due to working and another hospital visit. The hospital visit was the ultrasound for the suspected non-cancerous womb fibroid that the scan looking for liver secondaries found by chance. The ultrasound confirmed these are indeed non-cancerous fibroids, and not just one but loads - I appear to have been cultivating the National Collection of Fibroids! I am not particularly worried about them and will probably leave them until after the chemo has finished doing whatever its going to do to my hormones.
Love to all
Squeakymouse xx
Hi Sqeakymouse, I’m feeling a bit better today thank you, just tired and a foggy head, and don’t know what to eat lol, :-D. Harryduck I hope everything goes ok for you, I’m sure I can speak for everyone on here that our heartfelt feelings went out to you when we read your first post, take care Toni xx
Hi to everyone - hello to all the new people! Just a quick post in my lunch at work - hopefully this one will work been trying to post for a few days with no success. Had a busy end to the week/weekend - my daughter had her dance show Thurs/Fri/Sat - we went to watch Friday night then I helped to dress Saturday night. Looking forward to tonight - I run a girl guide unit and one of the older girls wanted to run the race for life but she couldn’t get anyone to do it with her so she asked me if she could do a fundraising evening and it’s tonight- she’s already raised £45 by selling cakes at church parade on Sunday - I’m very proud of her! I’m still feeling OK - nasty metallic taste in my mouth all the time now and my lady garden is shedding hair big time! - so I could have my NHS brazillian very soon! The hair on my head is still there but I have another appointment with the wig lady tomorrow to choose my wig.
Julie
Glad to hear u r ok, I’ve got the hair loss to come, haven’t heard from wig people yet but only had 1st fec yesterday, so early days yet,