Quick post to all you darling buds who have come back after awful SEs . Hope today is good for you.
My hair has gone -was shedding badly at work yesterday so came home and daughter and I prepared the kitchen. She had a G&T and I had a ginless G&T as alcohol makes me feel yuk at present. Then out came the clippers and off it came!. I do feel released from the worry of when will it fall and I feel it gave me some control albeit temporary. Wore WIG to work and it was fine. Friend gave me a lovely book to read today called “Go with the Flow” by Gemma Levine the photographer. Its all about guess what-Breast cancer but it is extremely readable.
Lots of loveX
Hi Buddies, I like the sound of that Em !
I was an emotional mess also, but i have up days and down days. I have a georgous 17yr old daughter who worries terribly about me. When she stayed away for a weekend i really missed her, but the fact she could go and have fun with friends, normal no-chemo life, really made me feel good. Also i was free to feel sorry for myself, stay in pj’s all day and not have to put on a brave face on.
My skin has gone to pot. My face, back, shoulders and chest have erupted in spots, I am trying to ,make out it’s the drugs, but Lizzie (daughter) thinks it’s all down to the cr*p i keep eating to make up for the four days post chemo when i couldn’t eat anything. A craving for crispy bacon sandwhiches with brown sauce. 
mmm
So far my wig excursion’s have been a bit of a fail. I decided to google wigs in my area and came up with a shop name and post code. With the aid of sat nav i found a shop that had birthday things in the window. Oh well maybe the wig area is disgreetly possioned somewhere. Upon entering i found it to be a small family run shop with very attentive staft asking if i needed help? feeling a bit unsure of myself i just had a look around, at the back of the shop i spotted the “Russ Abbot wigs” with loads of fancy dress stuff!! LOL 
I made my excusses and got out of there giggling to myself.
Go to see lovely Macmillan ladies tomorrow so I’m sure i will get on better there.
Lovin not working, first time in forever, even though I’m stoney broke (self employed, no sick pay)
Hope to have more fun than SE’s.
Luv to all Viv XXX
Well done Ambrose!!
I feel alot better when i can get some controle.
With the wig, did you go similar to you own hair or different? I feel it might be the opertunity to have a change, most people know i’m having chemo so it wont be to hide the fact.
Luv viv x
Well done Ambrose!!
I feel alot better when i can get some controle.
With the wig, did you go similar to you own hair or different? I feel it might be the opertunity to have a change, most people know i’m having chemo so it wont be to hide the fact.
Luv viv x
Hello All
Just sitting watching other half run round the kitchen preping Lamb chops, mash and lots of green veg (for the bowels). He talks to himself while he cooks its very funny. Sorry for those that still feel yuk talking about food is almost worse than having to eat it when you feel grotty. I had morning sickness for 4 months and now this…!
Im back on the wine in small measures but makes me feel ilke a grown up!
Emylou - My treatment is the same as yours but the other way around. I think its as im on a drugs trial although i didnt get the trial drug when i was randomised by the computer. I am releaved about this now as it would take an extra 1.5 hrs to give and then extra SE i guess. Docetaxel is not so sicky but achey. I also had a clothes sort out today and put away elizabeth’s tiny baby clothes away and got out the new born size. Her due date would have been this sun so that seems about right. Ambarose - Love your clothes swap story… And go girl with those clippers xx Rattles - Thank you for my waem welcome. It was a massive shock but at least i didnt have time to worry. I had to get baby out and then 5 weeks with her in SCBU while i recovered from the C section.
Vivibell - I to am terrified of the next treatment. My next treatment is on thurs 24th so we can do it together.
I hope your plants are not to confused with this crazy weather.
Merc - I will have a look at April when i get a mo. Thank you
Bikerchick - Hope you are feeling better now. I found tinned fruit ok chilled so it was cold in my mouth. Might be worth a try.
Im not great with computers so sorry this is all out of joint but other half is going to give me a few lessons later. Im feeling good today both body and mind. Watch this space as i go up and down faster than a bar maids knickers…! Elizabeths sends wet kisses to all that fancy them xxxx
Just a quick post from me to say hello to a ll the lovely buddies,
Harry- love the idea of the bar maids knickers. Made me giggle. 
Thinking of bikerchic esp. as the first few days are a bit uugh! I have been catching up with my cleaning. My taste buds have come back a bit too and I am hungry! This time next week, there will be a few of needing your moral support and you will be feeling better!
Vivibell that is a funny story with the wigs. My skin is also awful - how can it be possible to be menopausal and adolescent at the same time!!! In the wig vein, I am detecting that we might enjoy a giggle, and hope what follows won’t cause offence but we started reading Roald Dahl’s ‘the witches’ to my daughter-turns our this is not the best choice to support her in coping with a mum undergoing chemo. as apprently one of the ways to recognise witches is that they are bald and wear wigs!!! 
There ended up being a certain amount of poetic licence when covering this bit from me!
Merc - hope your picc line service y’day went smoothly. I am having mine done tomorrow- lovely, lovely picc line. Are you impressed?
Well, it is story time for me now, so time to sign off. Take care to you all (and sorry for not mentioning everyone).
Rattles, x
Hi rattles, yea my taste don’t know whether they’re coming or going, I’m eating littles bits, and what I fancy, today it’s really only been toast, bit boring but I’ve enjoyed it lol, metal taste is a bit of a bugger tho, pear drops help a bit, so my diet for today has been toast and pear drops, :-D, hope ur picc line service goes ok will be thinking of u 
take care everyone. Toni xx
Harryduck, thanks for the tinned fruit idea will give it a try, cold stuff sounds like something I could go for, something better than toast and pear drops anyway lol, u will get the hang of computer, but don’t worry bout it, and I like the milk maids knickers I did laugh, glad u r feeling good today, it certainly is a challenge, dealing with all the dif things that happen to us cos of the heavy duty drugs, still we will all come thru this and as long as we keep smiling we can do anything. Take care . Toni xx
Hi All
I am having my first chemotherapy (FEC) on Monday and have been told that my veins are good enough so I don’t need a PICC. Has anyone else just had it done through this method as I am now worrying having been told of the dangers of having it this way!
I have also opted for the cold cap but they were unable to give me any real info re the success of it and just told me that very few people tried it.
Any thoughts would be welcome - am feeling a little nervous.
X
Hi Langdon, I am just having mine through a cannular and my first one was fine. Sorry i cant help with cold cap but hope it works for you x
Langdon, welcome to the May buddy group!! I found my first chemo not half as bad as I imagined. I just had a cannula in my arm and it was fine, not painful at all. I wasn’t offered a PICc at all. Nurse sat with me as drugs went in and was all done and dusted in an hour and half. I’ve not had any bad SEs either( so far). Can’t help with the cold cap as I didn’t choose to have it. I think you’ll feel better once you do your first one as the waiting and imagining is usually much worse than the reality!! Em x
FEC’d!!
Hello lovely buds. Had FECing about 11 o’clock yesterday and finished off with a pub lunch in Salisbury. Actual process smooth and painless.
Started vomiting about 5pm. 
called the out of hours helpline who asked me to get the out of hours doc to come and do anti sickness jab. Not feelin too bad this morning. Face bright red! Only managed half a banana and struggling to get my water down. When posting from the laptop will say hello to lovely buds. Phone to small to see you all!!!
Doggirl, Sorry your sicky. What anti sickness tablets have you got some are better than others from what i can gather. Hope you feel lots better soon. At least its a nice sunny day. xxxx
Today my hair has started to fall out. Its everywhere. I was not to worried about this but now its happening its horrible. Have my wig app tomorrow so may get the clippers out after that and get rid of it.
Hi to all, glad to see that most of u r doing ok, I’m not feeling so good today very weak and tired, meds working to keep sicky feeling away, just want to sleep, love to all Toni
Hi everyone - hope those feeling poorly feel better soon. It’s my day off work today - been to see the wig lady again this morning and then went for a coffee and bacon sarnie with my friend. I’ve just uploaded a photo of me in my wig from the appointment this morning! It was the one I chose first last week - tried a few more on today but went back to this one. My scalp feels very sore today so maybe this means my hair is on it’s way out!
I felt rubbish last night - shivery then hot so took temp and it had crept up a bit but not over 38 so I went to bed. Woke up at 1am feeling worse so took temp again 38.1 - got out the ward number to ring and then I thought I’d leave it a while and go back to bed for a bit - slept through till 7am and temp back down to normal!
Julie
Hi Julie, glad to hear ur temp went down on its own, how long did it take for ur wig app to come through? I’m still waiting for mine, had first fec on Monday so maybe it will come soon,
Hi everyone
Hope you are well. I went for my pre assessment yesterday the staff were very friendly showed me around the unit and explained what would happen. They gave me the number for the feel good look better workshops so I have booked in for July. I have my wig appointment next Friday. First chemo Wednesday.
Take care, gentle hugs
Gillian xx
Giraffe50 - wig looks great and natural!! My hairdresser friend came today to give me a short cut, which I really like and wish I could have it for a bit longer!!! Doggirl and Bikerchic- sorry you both feeling poorly but a couple of days will make all the difference. I feel loads happier today and really think my downer was because of the steroid withdrawal- another SE no one warns you about. Harryduck- sorry about your hair- however prepared we think we are it must feel awful when it actually happens .Ambarose- let me know if you come to Cheltenham to see your daughter anytime so we could try a meet up. How are you doing Squeakymouse? Any new SEs yet?
Hope all the other May buds are ok, em x
Harryduck, the cold tinned fruit is sooooo good, Langdon, I had my first fec in cannula and it was ok, no pain, not been offered picc as I’ve got good veins, I know of some who’ve had picc and they’ve got on just fine with it, just have to keep a check on it for infection, but ask lots of questions the nurses will tell u all they know. The nurses r great they sit with u all the time if u have cannula, mine was finished in a little over an hour, I’ve had SE’s,sickness, foggy head etc! But nothing really that meds won’t sort out, tiredness is the worst I think, but go with the flow and I’m sure u will be fine. We r all here for each other, so just ask questions here and we will help all we can, keep smiling