Sue - i think i’m feeling the same as you at the moment, as i was given the choice whether to go down the chemo route too. Try and stay strong. Im putting it down to a low point in the cycle today and hoping to perk up soon. Have you had an appointment with your onc to discuss how you’re feeling?
Ali x
Hi Ali
Yes I will be speaking to the onc before the treatment, I just hope I can go through with it, deep down I know its for my own good but my mind is totally messed up today. I think I’m dreading the vertigo kicking in again as I really suffered for 5days in the past if I had a bad attack it only lasted a day. But fingers crossed.
Hope your doing ok xxx
Sue
Sue and Jay - I’ve also got my 2nd FEC next Tuesday and although luckily my SE’s have been few and far between, I’m still bricking it. None of us know what we’ll feel like from day to day and it’s that unknown that’s scary.
I hope those of you sufferring, start to pick up soon.
Curly x
Hi Curly
You sound just like I’m feeling its nice to know I’m not the only one feeling like this though not nice for you.
Lets hope we are all lucky this time. xx
Sue
Hi Gorgeous Gals
Finally I am back from Zombieland. Feel like Ive slept for weeks. Tummy bug much better. OH found some meds that have done the trick. Had an exciting event at the farm…had 6 elephants walking through…AND I MISSED IT !! Been told they are still in the area and heading back this way, so cant wait to see them. Beats looking at the nasty horrible crocodiles and hippos in the river.
Ginge…what a nightmare you have had!! Hope next one much better. Interesting what your ONC says about animal products…ties in with the stuff Ive been reading about acid and alkali levels. Ive sort of started cutting back severely on all animal products and increasing veg and fruit. And guess what ??? I STILL feel like shite. Hehehehe
Ali…know exactly how you feel. It’s the combination of small things that eventually wear you down. Hope things look up over the next few days. Also, my Onc said that sometimes the SE for the 1st session are the worst, so hopefully yours will ease up.
Sozza…hope you still feeling OK and SEs not too bad.
Treen……losing your list made me giggle.
Lynmark……Im sure you look FAB……what about a pic ???
Rainbow Dancer……what about a pic as well??? Of you…not a ferret !! Hope you feel better soon.
Kate…WELL DONE on the money raised. Its fantastic that you have achieved so much even while feeling poorly. Makes me feel like a real pathetic wimp. Once again, you are an inspiration.
Anyway everyone, have a super evening, and hope that we are all much much better tomorrow.
Big hugs to ya all
Lil xxxx
Just quick update on response to letter I sent re nurse talking about permanent hair loss. Sister, who has worked on ward for 2o years, phoned me today and reassured me that hair will grow back and she has never,ever, heard of anyone whose hasnt. Feela bit better now.
Dont feel ready to post photo yet! You all look gorgeous though.
Good on you Kate - brilliant job!
Good vibes to all xxxx
Hi ladies, hope your all feeling reasonably ok today. Sounds like some of u have been suffering a lot of SE’s which does get u down.
Last week i was in hospital with neutropenic sepsis, then i started feeling unwell at the weekend again & rang unit, had bloods done at my surgery which showed that my kidneys were failing so i had to be admitted again monday & got home this evening. They don’t know what caused it but said it could have been the IV antibiotics i was given last week. Upshot is that they’ve delayed my chemo for a week.
Ive only had my first FEC & haven’t actually felt that unwell since i had it but it does just go to show that we need to keep a very close eye on ourselves as things can turn quite suddenly. The chemo unit said they would much rather have a false alarm than have someone worrying about picking up the phone. So please ring if u feel unwell everyone, that’s what they’re there for.
Anyway enough waffling from me, i need to sleep soon, the lack of sleep u get in hosp amazes me,lol.
Take care everybody, good luck to all those who have chemo this week & hope everyone has a good day tommorrow. x
Morning Ladies…
Well hair is falling out here there and everywhere, scalp is really tender, I guess it will be time to shave it soon! what number did you all shave it on?..
hjv, So sorry to hear you have been in hospital, what a relief to be home, take it easy…
Lil, Glad you are feeling much better, and how amazing to have elephants wlking through the farm, have you managed to see the yourself yet?..
Sue and Curly, I too am pleased I am not the only one dreading Tuesday, I cant bear the idea of feeling like s##t for so long again, maybe FEC 2 will be better, I am seeing the consultant on Monday…
Ali, I hope you are feeling better today, I am very emotional at the moment, so you’re not the only one, keep thinking have I made the right choice, but deep down I know I have…
Kate, Well done for raising so much money, hope you are ok…
Sozza, Hope you are feeling alright today…
Nicola, How are you doing?..
I know I havent mentioned everyone, but hope you are all ok, and have a good day…
Love Jay X
Good morning Ladies.
2nd EC tomorrow and hating the idea of feeling rubbish again. First time the port failed and hoping this time it is ok. Read your experience with horror Kate, it sounds awful, you do feel a bit/lot that it is the luck of the draw to how good the nurse is, I was rescued the first time by the senior ward sister after no-one else could get the venflon in. New portocath now, fingers crossed for tomorrow.
Lil - it is fun to be sitting in rainy gloomy England and hear about your life, sorry though that the b****y SE are bad though.
hjv - hope you are feeling much better now. When I went in with neutroenic sepsis the weekend after first EC, I felt a bit silly to go in, thought I was making a fuss about nothing (OH insisted) but the nurses said that was absolutely the best thing to do and so much easier to deal with if caught early. So backing you up, ring if even slightly worried they can always send you home if false alarm.
Lyn - good on you for sending the letter, hopefully it should mean no-one else will be given the wrong and upsetting information.
Apart from the new portocath being sore have felt pretty good this last week, even tea tastes good again (red wine still not worth drinking unfortunately - roll on January) but still feel tired and then unwell if I try to do as much as normal life which is frustrating.
To all of us, we are getting through this, ever dose down is one less to go. Love to all xxxxx
hjv123 - how awful for you. I have to admit I’ve been a bit blase about my temperature and even when it was 37.5 at the weekend, I waited until it was 37.7 before I rang the ward. I will be much more sensible in the future.
Lil - have I missed something or are you having very perculiar SE’s. Are you hallucinating elephants in your back garden??? There must be a tablet for that one! Reading between the lines, I guess you aren’t in England.
Had my picc line checked yesterday cos my arm is sore and swollen. They gave me Ibruleve gel but today it’s worse so I’ll go back in to have it checked - now I’m being a much more sensible patient!
Jay- like you my hair is coming out in big clumps now and occassionally I start coughing cos I feel like I’ve got a furr ball in my throat. While I’ve still got a decent head covering I’m reluctant to have it all cut off but I think I’ll take the plunge at the weekend. What about you?
Hope you all have an ok day.
Curly x
PS, reading what people say about animal fats - just thought I’d let you know I’ve been vegetarian for 37 years and it hasn’t stopped me from getting bc. I’m not vegan though and do still eat lots of cheese, milk etc.
Just a thought…
Hi Curly…
I too still have a decent covering of hair so am not shaving it just yet. just have to keep hoovering it up!!..
Sorry to hear about your arm, I am so paranoid about my picc line, I hate having it there, but am glad I had it done because of the needles, if that makes any sense!!..
What part of your arm is swollen? I hope its ok, let me know…
Love Jay X
Hi Girls
Feeling s**t today. woke up again at 4.00am - decided to fill in some claim forms and went back to bed at 7.45 but had to get up for daily injection at GP’s. Back to sleep and just woke up. Now I prob won’t sleep tonight. Feeling a bit icky and normally eating loads but really don’t fancy much at the mo. I know we shouldn’t but roll on Xmas!
Ali Jay and Sue - so sorry your feeling so rough but you did make the right decisions - got to throw everything at the b*****d. Its not forever and we will all come through this.
Kylie did it and so can we!!
Love to all
Ginge xx
Hi Ginge…
Sorry you are feeling so rubbish, I think you just have to catch up with sleep whenever you can especially in that first week…
I agree, I cant wait until January, it seems so far away right now…
You are right, Kylie and so many others have done it, its just hard…
I really hope you feel better soon…
Love Jay X
Hi All
Its 3am, cant sleep, so visiting my favourite website.
Hope everyone is either asleep, or feeling ok or having a LOT of fun ???
Curly…hehehe…youre right, I don’t live in UK anymore. Live in Mozambique near the South Africa border. In the middle of NOWHERE. I would love to take a tablet to make the elephants go away…they are about to ruin my vegetable harvest.
Southern Lucy…sometimes really miss England…I lived in Brighton for 12 years. Miss my local and pub food and TV…even miss the weather,gets too bl***y hot here.
Sue…you know you have done the right thing deciding on chemo…you gonna blast this thing with whatever you got !!
Ali…you are NOT a moaner or a wuss. The fact that we are all here chatting about this means we are all determined to beat it, and its great that we can rely on each other for a bit of TLC and support.
Ginge…so sorry you feeling rough. Hope you feeling much better soon.
Jay…wonder how Kylie managed to get through this and still look glam. Wouldnt it be great if we also had make up artists, and the bucks to pay them!! I can dream I suppose
Sozza, SGL, Skinnyminx…you OK ???
Wanted to ask….is everyone on 6 x chemo sessions? I am going to be having 8, …4 of 1 type and 4 of another…and wondering if this is normal??? That means Im only going to be finished in February….feels like a million years away.
Anyway…going to try get some sleep
Take care Gals
Big hugs
Lil xxx
Morning Ladies…
Lucy, lots of luck for today, I have also been really tired this week, and must admit I was expecting to feel better in my third week than I have!..
Mind you this indigestion isnt helping! Take it easy…
Lil, I have no doubt Kylie had lots of times through treatment when she felt like we do! It is normal to have 2 different types of chemo, there are quite a few different combinations…
For me I am having 6 X FEC, radiotherpy, and Tamoxifin tablets for 5 years as my lump was hormone fed, others have 3 X FEC and 3 X Tax, or various others combinations, do you know what Chemo you are having?..
By the way I live in Brighton, well Hove actually!!..
Hope you managed to get some sleep…
Hope the rest of you lovely ladies are ok…
Take care…
Love Jay X
Had first one on Tues, been throwing up a lot since. Back to hosp twice for new sickness meds which seem to be doing the trick.
Feel so low, mum is here and I know she is struggling as she cant really say anything to make me feel better.
I can’t seem to eat anything.
Really want my life back.
Sorry to sound so negative.
x
Hey up you lot - Hope you are all well today xxx
Can’t remember specific names to comment unless they on thread below typing area - But I have hair ache even though I had a number zero shave - it’s patchy now but still been growing oddly enough have had to have re shaves!
Feel a fraud as SE’s been fine but we’ll see what happens later as 2nd FEC today at 2pm!
Want to move house - am I mad! Decided now mortgage paid that we could have a new build bigger place and I found a gorgeous pad which has been reduced as they desperate to move to next phase of building it’s fallen through twice because of finances and we would only need a teeny mortgage to buy it!
Sozza so sorry you feeling so rough and do not apologise - no wonder you feeling so neg- hun big hugs to you xx
Jay I hope things improve it’s rubbish eh! Gaviscon all the way for you then xxx
Lil - I went to SA 6 years ago to stay with friends in Jo’berg he owned a chain of bars called cool runnings and whenever I mention it to saffers they know of them! We went travelling aroungd then relaxed at the end in sun city to be spoilt xx
Ginge good luck with claim forms and hope your sleep improves chic x
Curly be careful with your line my friend ended up in pt 5 days in isolation and had to have it removed grrr xxx
Lucy OMG port failed poor you - I’m still waiting as onc communicate to surgery what they want and when in cycle but surgery can’t make the instructions happen at right time so keeps getting cancelled grrrr!
Gotta go sorry if i’ve missed you out but got estate agents coming to value house ha ha love to all xxx
Goodmorning all
Well I bit the bullet last night and got my hair shaved as I was fed up of it falling out everywhere. and I must say it feels a lot better, I will post a pic soon.
Sozza so sorry you are having a bad time but there is light at the end of this dark tunnel.
Jay I hope you are feeling better.
I cant remember everyones name but I hope you are all ok hugs to everyone.xx
Sue
hi girls, sorry some of you are not feeling too good. I am on the road to fec 3 next thursday. Have manged to work three days this week and felt ok but a bit tired by late afternoon. Sorry about the picture I look deranged!! but wanted to support everyone else who has been brave enough to share a picture. Been and bought a bath pillow today as the bath is cold on my head. My friend thinks I should work out how much I am going to save in shampoo, waxing, hair cuts and put it to one side to treat myself next year. Not a bad idea!! I agree January seems a long way off and then there is radiotherapy after that .
Jay sorry you are not feeling so good hope it is getting better.
Going to lay on the sofa and watch some rubbish tv now.
Take care
FI XXX