Starting chemo in September

FEC Kate - FEC 3 already!! Good to hear 2 was better than 1!!

I’m feeling much better now girls. Thanks for your earlier comments - I’m not sure if it had anything to do with the flu jab or not? One strange thing though … The hair on my head is hanging on … Elsewhere is a different matter (apart from my legs that is!)!!

Have a good evening

Axx

Hey girls
Feeling so much better today - did a little retail therapy
Hope all having chemo his week have an easy ride.
Jay - you mentioned headaches - my onc said they may have given me the chemo too quickly and that’s why i had chronic headaches - might be worth asking although i still get them a little but not as bad now

lovely lil - no way are you 53!!

It’s my birthday saturday and we’ve got tickets for george michael in a box at end of Oct! how wonderful is my OH. hope i’m feeling up to it.

Well i’m knackered - so off to sleep for me

ginge xx

Hi everyone, slightly back in the land of the living after 2nd EC on Friday.

Sick all evening following chemo despite taking all the meds but settled enough to keep them down by the next day. Had been ok the first time. Bleugh

Have zombied around the house for the past 3 days but am now starting to feel a bit better. Abandoned the cold cap half way through last session because of headache and dizzyness. Hair now coming out in droves, am completing (and winning) with my Golden Retriever who can shed the most. Have actually booked for the short crop probably to be quickly followed by the shave. Have an reasonably good wig which I have worn but worried about it slipping all the time (my Eric Morcambe moment).

Wow Ginge George Michael how fantastic! and lovely Lil you do look brill, I am 54 and can only wish.

Hope everyone is managing to have good times in between the sessions and sending hugs to all, am so sorry I’m useless with remembering names,

Julia xx

Hi Girls

I hope that everyone who had chemo today is feeling ok?

Funny old day for me… new bedroom furniture should have been delivered but then got cancelled as the wardrobes were too heavy!!! Long story but we collected the bed and checked the wardrobes out and told them how to make them more manageable for delivery - why does it take a woman to get things sorted???

My hair is now departing and starting to feel weird again - perhaps this is why I’ve been out of sorts? I’m really not sure!

Anyway, love to all & Good Luck to Kate tomorrow will be thinking of you!

(((((Hugs to all)))))

Axx

Hello everyone,

Ginge - i’m glad to hear you’re feeling better and got a good evening out to look forward to seeing George Michael. You’re a lucky girl.

Hope all of todays chemo sessions went ok, and that your SEs are small.

Well after having a pretty good weekend i’m now feeling anxious again, as i’ve found what feels to be a fatty lump on my ribs just below the right breast (this is the non bc side although there might be something similar but smaller on the left). I have an appointment with my onc tomorrow and have already phoned him to ensure he will check it out. Fed up with feeling worried all the time. This chemo is supposed to be a mop up to help prevent the chance of reoccurrance, but now scared that its already spread. :frowning:

I did have an ultrasound done on my left arm which turned out to be a benign fatty lump, and my sister also has one on her neck, so it could be i’m just prone to them. It just seems to be one thing after another. As soon as i feel ok something else comes along to stress me out. Aarrgh!!

Ali x

Hi Girls
Hope all feeling better today. Good luck Kate tomorrow - hope your S/E are small.
Ali - You poor thing - hopefully as you say just lumpy tissue. Hope you can get some sleep tonight.
Still feeling tired into week 2 and i should be bouncing with energy this week. Msybe the build up of Chemo has something to do with it. Talk about Chemo brain - can’t remember to do anything - poor hubby came home at 7.00 and didn’t even have dinner on.
What a terrible wife. Well back to see onc tomoz = hopefully blod cells ok - is temp of 37.4 OK?
love to all
ginge x

Hi Everyone

Sorry I’ve not been on for ages, my computer stopped working and I wasn’t up to getting it sorted.

Hope you’re all doing ok. I haven’t had time to catch up with what’s going on, must be about 15 new pages since I was last on here, but I’ll read them tomorrow.

I’m back at work, trying to avoid anyone who’s sneezing, but it’s hard, especially on the train.

All the medical staff I’ve met have been great, kind and efficient since this started but I’m finding the organisation and communication really terrible. I’ve been left off of district nurse visiting rotas twice, my notes have been lost and they thought I’d had 2 sessions of chemo when I hadn’t even started. Anyone finding similar problem? It worries me that something vital might be overlooked and I wouldn’t realise that I needed to follow it up.

Ginge, I think 37.4 is a bit high and you should keep checking it regularly in case in goes up much higher. Mine seems to be higher at night than during the day though, but not by much.

Good luck to everyone who’s being zapped this week. Hope the ses are few and little.

Night all.

Nicola.

Good morning all

Jay and curlyclad I hope all went well for you yesterday and are not suffering to bad.

So far I’m not to bad but I do know its early days so fingers and toes crossed.

They also gave me emend yesterday to try and stop vertigo kicking in and I must I have felt alot better than the last time other then a slight headache.

Hope everyone is ok hugs to all xxx
Sue

Hi Gorgeous Gals
Hope everyone feeling good.
Had a NASTY scare with a dog that has rabies…it went for me twice, but both times the bites didn’t break skin, just left me bruised. My Onc says not to panic, they will test me next week when I go for session 3. My OH had to kill the dog, which was also horrible. Apparently 6 dogs in the area have had rabies and have had to be killed, so we have gone on a major mission to get all the local stray dogs injected.
Annie……I LOVE YOOOOOO……just want a girl wants to hear when she is feeling low and self conscious. Thanks so much for the lovely compliment.
Sue, Jay and Curly…how was your second session ?? Hope you ok.
Fi…I haven’t got my wig yet…really looking forward to it, but think I will also end up doing the scarf / buff thing. Much easier.
Sozza…glad you have the 1st one well under your belt now. When is the next one? You don’t look anywhere NEAR 44……or is that pic of you at least 10 years old??? Hehehe
Ali……FAB pic…nice to be able to see who I am writing to. Glad you are feeling better, but sorry to hear that this lump is stressing you. Keeping my fingers crossed that its nothing. When will you know results??
Hey CurlyGlad….its nice and hot here in Mozambique…wouldn’t it be FAB if everyone could get here….I would treat us all to a trip to the Kruger National Game Park and a couple of weeks on the beaches of Moz. Its an idea ???
Kate…how was it today? Hope you up and running soon. Is this your last chemo session…sorry I don’t know what FEC stands for…a bit thick you know! What other treatment have they got lined up for you?
Ginge and Julia….lol for the lovely part. Feel like such a freak at the moment…sometimes don’t even want to stick my head out the door. Ginge, I don’t think ‘bouncing with energy’ can describe any of us at the moment. Sometimes I can barely drag myself out of bed……happens really often when I have a good book to read…hehehe
Anyway….I always end up writing too much
Take care everybody
Loads of hugs and good thoughts
Lil xxx

Hi Lil

That must have been really scary for you with the dog glad you came out of it ok.

so far so good on my fec2 but still early days.

That sounds so tempting coming to Mozambique to see you and to go to a national games park. somthing I’ve always wanted to do, so you never know when we have all finished this awful treatment we are having we might all decend on you HeHe.

hugs to you xx Sue

Lil - OMG I’d love to come - now you’ve opened a can of worms Lil and you must tell what pills you take to stay looking so young.
Blood counts good today so keeping me on the 5 injections after Chemo - what a bore! BUT then he said hmmmm you might have to have a blood transfusion - what??? I don’t understand all these blood counts anyway he then went off on another tangent and I think he forgot about the blood transfusion!!!
Off to Costco tomorrow with my friend and really excited as never been to a big supermarket like that! - how sad is that! That’s what not working now has done to me!
managing to get dinner ready tonight!!.
Next tuesday seems to be creaping round so quickly and then smack another shit week. Never mind onwards and upwards
Have a lovely evening everyone
Ginge xx

Hi all

Well oncologist said the fatty lumps are absolutely nothing to do with cancer. I asked if he could tell that just from the feel of them and should I have an ultrasound, but he is convinced that they’re nothing to worry about and it could be that I’m more aware of them as I’ve lost weight. So I’m letting it all sink in and feeling much better. With all this extra cellulite I think I’ll have to go and sit on the lardy bench in Benchland :slight_smile:

Lil - I love reading your posts. Sounds like your having one big adventure out there despite having to undergo all this treatment. The dog episode sounded scary tho, and I’m glad your ok. As for is all coming out there - wow wouldn’t that be something to look forward to!!

Teas up so might have to post again later

Ali x

Evening girls…
Two down four to go!..
Have felt very sick since I got back, a bit better this afternoon…
Spent the day in my pjs!..

Sue, Glad you are feeling ok, and tablets are helping with the vertigo, you have enough going on without that on top…

Curly, how did you get on, hope you are feeling not too bad…

Kate, hope things went well today, and you feel alright…

Ginge, I mentioned to the nurse about putting it in slower, but she said it wouldnt make any difference! so god knows!..
Good you have something nice to look forward to on Saturday, enjoy! you certainly deserve it…

Julia, Glad you too are starting to feel better, long may it continue!!..

Nicola, God the lack of communication is terrible, touch wood I havent had that problem, cant believe they thought you had already had 2 sessions!..
Hope fully it is now sorted, try not to worry…

Lil, how scary with the dogs, thank god you are ok, maybe you should move back to Hove!!..
I second what Annie said, you look great for your age…

Ali, thats a weight off your mind about the lumps, i’m so pleased…
So glad you are feeling better…

SGL, where are you, I hope you are ok…

Have a nice evening All…

Love Jay X

Hello everyone.

Just popping in to check on you all and say hi!!

Been suffering with ulcers, yuk! Painful! (Have difflam mouth wash)

S’laters,

xoxo

Hi Jay So sorry you are feeling a bit sicky have you asked your onc to let you have emend thats what they gave me this time and I can honestly say so far I have not had the slightest feeling of being sick and have slept really well. they gave me one to take half hour before treatment then I take one a day for the following two days, I do know that not all nhs will give it as apparently its expensive, but there is no harm in you asking.

Curly I hope you are ok.

hope everyone else is having a reasonably good day.

Hugs to all xx
Sue

Hi Girls
Bigbird Kate, so good to know that you second fec wasnt that bad.And Lil yes that pic is very recent !! I’m pictured with my toyboy husband who is 10 years younger then me!! lol
Alibaba thank god those lumps were fatty lumps.
God I so hope that we are not going to spend the rest of our lives worrying. That is the thing about this that I hate the most, it has taken away our carefreeness.
I have been fine apart from an emotional breakdown on Tues . I have at times felt quite ill emotionally so I am seeing a clinical physcologist next week. I think that it is becuase my family has already dealt with a lot of medical crap and this just seems one thing too much.
Anyway I need to get it sorted.
My next treatment is 25th Oct and they want me to stay in so that I don’t suffer with sickness again.
I have been told that it takes longer to get over each session as the time goes on, I really hope that this isn’t the case and I guess we are all different.
Hope that you are all feeling ok.
Lots of love.
xxxx

Evening girls,

I am glad that everyone seems to be feeling a bit better. Alibaba, very glad the lumps are nothing to worry about. I am very paranoid about everything on my body and found a lump under my arm last week but the onc told me yesterday that it is my rib, doh!

Just a quick one from me tonight as I have been feeling crap. Can’t sleep because I keep getting hot flushes from the zoledex, feel queezy, very thirsty, generally rubbish and can’t stand the smell of anything. But a small price to pay if it saves my life! My blood was borderline this time, neutrophils were at 1.26, have been told to stay in and stay away from people, great! I think my next chemo will be delayed so my bone marrow can recover.

Hope everyone is ok, sorry to moan.

Kate xx

Hi Girls,

Just a quick post as we’re waiting for a Dave Gorman gig to start - OH’s early birthday bash (B’day on Mon - chemo day :0( )

Off to see Onc tomorrow & have my bloods taken - getting concerned now, lots of what if’s etc!!! I’m dreading feeling pooh for the next week or so!!

Big hugs to everyone - I hope the se’s are only little ones!

Axx

Hi girls
good to hear from eveyone even though you all seem to be feeling crap. This is my good week so not feeling too bad. Still tired and my brain is getting more mashed every day. Went to try some more wigs toight but hated them all so ordered some more in to try.
Kate - glad your OK - Its shit after chemo isn’t it? I hate the following 5 days before you start to feel even half human again.
Annie - good luck with bloods etc - iI have my 4th chemo tuesday and i know i will feel pooh as well until the following Monday.
Kate - whats zoladex for?
Jay - hope you are feeling better soon
Sozza - you seem to be going through the mill a bit with everything - try and keep your chin up
You know what we need is a bloody good laugh - i haven’t had a good laugh since I was on holiday in August
Anyway off to sleep my lovlies
ginge xx

Hi ginge,

The zoledex is to put my ovaries to sleep so hopefully they are not effected by the chemo and fertility will return. They didn’t have time to do tissue or egg harvesting as this would have delayed chemo by a couple of months. I just have to keep my figures crossed that the zoledex works and I will be able to have children in the future.

I hope everyone is feeling ok today. I managed to sleep all night and am feeling much better for it, if a bit constipated. Off to have some prune now, that should sort it!

Kate xx