Thanks for your good wishes Jo. I may be tempted to start on the emergency crossword puzzles. Failing that it’s the ironing!
Sorry to hear things have gone a bit downhill Pips. Just do what OH says. I know we don’t like doing that but it doesn’t hurt now and again and besides which it makes them feel like they are in charge. Lol. Big hugs to you. x
Hope Tracey and Ally are treating themselves to some fun times this weekend and not letting the thought of Tuesday get in the way too much.
Keep smiling ladies x
Hi stars
Just back from my mammoth shopping trip think I’ll need to take a loan out at this rate. Bought lots of comfy hoodies and snuggly clothes to wear whilst having chemo and to chill out in afterwards.
Rachelr- good to hear from you post dunking, good tip on the drug chart writing. 12.5 is normal for your hb so don’t worry. Hope you continue to be ok over the weekend. Keep us updated on how you’re doing x
Gold- glad you’re feeling ok, even doing the ironing and making soup I don’t usually feel up to doing any of that on a normal day do way to go you 
may this continue x
Barbs- I’m on Facebook, love the idea but will go with the flow as to what the stars want to do as want to stay in contact with everyone x
PTB- have a lovely time at the zoo with your granddaughter and let me know if you do seem them unicorns because my little one would love that too 
x
Pips- sorry to hear you’ve had sicky se’s hope them anti sickness pills kick in soon and keep it at bay. Have you asked your team about the emend anti sickness pill it’s supposed to be the best? Have asked my team to give it me from the first time to hopefully try and prevent it. Keeps us updated x
Hope all other stars feeling ok too and managing to have nice weekend.
Hugs to all
Xxx
Hazey TK Max had lots of lovely fleeces in when I nipped in yesterday. Think I will be getting a few. xx
Well ladies , as you can tell from all my posts , I really am having a lazy day and am feeling good for it … I did break my neck on the lead up to chemo to get on top of ironing , bulk cooking , cleaning,school uniforms … you name it I did it , so I think I deserve this lazy day!!! and I dont feel an ounce of guilt for it lol
OH just given me my first jab in tummy . No where near as bad as I was expecting . Bless him, he was nervous and he did have to restle slightly with our little dog who is like my shadow and a tad over protective lol
Hazey , thats what I could do with on days like this when I just want to chill and not worry to much about how I look , when poeple come around. I’ve already had an early visitor who caught me in my dressing gown looking worse for where.
Glad you enjoyed it
Right ladies thats my last posting , I promise lol … until the wee small hour maybe ;-)
xxxx
Joining the September Stars as I commence chemo on 4 September. Hope this established group do not mind me joining. Not good to be having this treatment but it is good to read your postings. . Good luck to you all.
Hi Kate, welcome to the stars there are a couple of people up this week. I only have my onc appointment on Monday so expect to start the following week unless I can get a cheeky week away in then possibly the following week. Barbs will put you on the list- just email her your details xx
Ok for those that want to here is the Facebook link to secret group, hope it works outdone it before and I can’t get a background picture on either so if you know how tell meeeee! Will still be on here for those that don’t want to go on Facebook xxx facebook.com/groups/Startroopers/
Hi Kate welcome like the other stars say hope we can all be here to support you and get through this together.
Ooh thanks samjs haven’t tried TK Maxx yet, don’t blame you for wanting to get away as you don’t know when you’re going to feel well enough to go next.
jo- like you I’ve been caught out a few times too and have usually left my bra downstairs with ‘comfy’ in when ive got fed up of it so people dont know where to look either at my lop sided chest or bra hanging over the door ha ha. Either that or my little girl is trying to wear it on her head when people are round ha ha.
Hope your evening remains restful.
Barbs-I tried clicking on that link but it doesn’t work you may have to add ppl to the group to see it.
Xxx
Hi Kate and welcome to the Stars. Hope we can be of some support to you as we battle through the next few months sharing the ups and downs, tears and giglgles. Take care and keep in touch and let us know how you are getting along. x
Ok I’m crap at Facebook groups clearly!!! I have made it secret and I think that’s why no one else can see the link! Works perfectly for me lol sadly I don’t know how to change it from secret so if you send me your Facebook names I should be able to add you…fingers crossed if anyone is good at secret groups…that’s you Lulu!!! P,ease tell me how to sort it ta xxxxxxxx
FEC-T, First FEC, Day 3
Hi Stars ,
Welcome Kate , best of luck for the 4th .
Jo , like you I found that the Neulasta jab was fine - I didn’t look but hubbie said it worked! I’m only having one jab after each chemo so that’s not too bad.
Gold , I have been drinking lots as well - my nurse said that the 24hrs after chemo were the most important - but I found it really hard as I did not like the taste of tea, coffee or tap water any more and the only things I can manage now are sparkling water and squash.
Bonnie , we will all be thinking of you on Monday - like Elma says, try not to worry too much xx
Pills are still keeping nausea at bay but only 3 hrs sleep last night - an improvement but I am feeling rather zombie -like.
Rachel
Good morning Stars,
Hope all of you that have been dunked so far are having no or at worst minimal se’s.
My seroma saga continues 
it’s back not quite as big as last week yet! but sore enough to put me back on regular pain killers as its pulling on my ANC wound, the stretched skin feels like sun burn
It’s really getting me down now - I had a good old blub about it this morning, how much longer is this going to go on for?
I’m over the blubbing now , now I’m just really pee’d off with it all.
Sorry rant over, hope your all having a better Sunday than me xxx
-Katepb, welcome to this group of wonderful ladies. I hope you’ll find it as helpful & supportive as I have found so far.
-Sam / nicky49 / bonnie8862 good luck for Onc appt tomorrow. Lets hope you don’t have to wait too long to get this show on the road!
-Bonnie8862-also feared the worst when they did extra scans. They tried to reassure me it was just to find out what dealing with though and it was unlikely to change chemo plan either and luckily mine were also clear. Will keep everything crossed for good news for you. Also, easy to say I know, but try not to worry too much
-Sam, we also needed to get away for a short break, just back from Cardiff & while not the hols we had to cancel in southern France at least we’ve had a break b4 getting stuck in. Just be careful not to do too much! If ur flying, was told I’d need a sleeve for arm in case of lymphodeama. Not sure if this is a risk for you but worth checking maybe.
-Nicky, so sorry to hear seroma has reared its ugly head again. It does seem to take forever & am actually finding my ‘ridge’ (ex-seroma) seems to be spreading across chest so fluid is not being absorbed by my body as had been told. Still trying to get the mx wound to heal as well 6wks down the line - so understand your frustration.
- For everyone who was dunked this week, hopefully all your se’s are easing off. I am taking notes though in preparation for next week, so any advice is invaluable.
Hope everyone is getting a bit of this lovely weekend weather and enjoying it to the fullest.
Big hugs to anyone in need if one (((x))) and lots of positive thoughts for anyone due to get started for real this week. Will catch up with you all soon
Hey girls its officially star season now!!!
Good luck to you all intrepid pioneers!!. Dont be scared its DOABLE!!! Not pleasant by any stretch but most definitely doable.
It will soon be October and then you will feel like wise old sages no longer the new kid so the block so to speak!!!
massive hugs to you all xxxxxx
Hi Bonnie ,
It probably is the steroids keeping us awake - I am having to take Dexamethasone for 4 days - I thinks it is to prevent sickness/nausea and then I have some back up pills called Domperidone which I can take if I feel nauseous (and these have been really good ).
Neulasta is an injection (or a course of injections) which help you to produce more white blood cells from your bones and so reduce the risk of the dreaded neutrpenia sepsis. Some hospitals give you it automatically but others wait and see if you have a problem with your WBC levels as I believe that it is very expensive. And of course, as with everything that is supposed to help us, there may be side effects ; I was warned about pain in my hip & leg bones.
Hi Nikki - poor you. Seromas are such a pain (literally). I have still got mine 5 weeks after surgery altho’ it is about half its original size. It felt like it would never go - I had to have it aspirated twice but they were happy for me to have chemo just as long as they thought it would need no further aspirations. Mind you it seems to have got a bit bigger since my chemo which is a little worrying after it was decreasing nicely until then!?
xxx
Ive Just shaved my head ready for my 1st chemo this Friday.
For those of us apprehensive about starting chemo this month i want to say this:
This is a battle with cancer.
We have to fight it hard with everything weve got.
Chemotherapy, Radiotherapy & Endocrine treatment are our weapons.
We are ready for the fight ladies. Dont dread the day the chemo starts because every day until then the **bleep** cancer can multiply away without any resistance.
Hi the batman,
Couldn’t agree with you more! We all know we have to come out fighting as hard as possible and do whatever it takes for however long it takes to kill this thing dead. I know what I’m finding difficult is that, no matter how hard we try not to let it, we lose some control of our lives to varying degrees. And I for one am not dreading the day the chemo starts but more the fear of the unknown on a daily basis.
We are all strong, determined and, I’m absolutely certain, fully prepared to fight to the death…of this disease!!
Good afternoon one & all,
Hope we are all enjoying our Sunday afternoons. For those of us fit & able, what have we all been up to? And for anyone not shining quite so brightly today, your time will come soon enough!! Thinking of you all xx
Just a quick update for something Barbs had mentioned yesterday. If anyone is interested, there’s now a ‘secret’ group on Facebook that she has sorted out for us to meet up on as well. It doesn’t mean we have to choose one or the other, as I know some of us don’t or won’t use FB , and this wonderfully supportive forum will of course still be here for us all but it might be nice to put faces to names, etc. or get an idea what’s going on in our lives besides this horrible intruder!!
Anyway, let Barbs or me know, via PM, if you’d like to be included or if you have any questions about it and we’ll see if we can get this up & running. Apparently the Maisie’s already have one on the go which works very nicely.
That’s me done for now as I keep losing a signal. We’re on the train home after our ‘mini-holiday’ in Cardiff. Not the most exciting choice of places I know but what a lovely time we’ve had To be honest, probably done a bit too much over the last few days. I’m absolutely shattered!!
À bientôt!! (Until later!) xx
Helllloooopo girlies been out to the pub for lunch which was fabbbbb! Gotta be some bonus to having the cancer card had LOTS of treats lately and positively no moaning despite the vast amounts of money I’ve been spending on potions and hats and god knows what else!! Had the eyebrows finished off yesterday OMG they look scary…they go very dark when you have them done (they fade by 30%) and I have to put this stuff on them to keep them moist, so they look a bit gooey lol and the hair has to be pinned off the face so it doesn’t infect the brows so all in all I looked most attractive at the pub hehe wasn’t going to stop me going tho!!
So as you can tell I’m not as clever as I thought I was and am having probs with the bleeding Facebook group, however it will be sorted and I think it will be great to see each other as real people and not just on a cancer forum, we can put our photos on, I think (I will put my baldy head on when the time comes) and loads of other stuff! And we can say what we like without being bleeped lol. I know it won’t be for everyone and we will still be here on the forum but its just a more personal outlet for those that want to really get to know each other! So bear with me! I’ve found frenchfancy and made her an adminer Ashe seems to know what she’s talking about, and when lulu replies to the invite ill make her one too then hopefully between us it will be done!!!
Anyway I’ve been catching up on your posts
Rach glad you’re not feeling too bad, and the injection was doable, shame about the lack of sleep and the dodgy taste buds but I guess things could be worse!! How’s the joints after the jab? I’ve heard they can ache!! Anyway keep drinking the fluids and hopefully you will continue to do well, lots of love to you xxx
Bonnie going to be thinking of you tomorrow girl, sending loads of positive vibes to you and really hoping your results are good. When you’ve got your date to start let me know and ill update the list!!
Nikki can’t believe your blooming seroma is back, how rude!!! It’s like the guest that won’t leave the party!!! I do feel for you, the short time I had mine was hell. Really hope it settles and you can start to move on from it. Sending you a mahoosive virtual hug!
Kim/frenchfancy sorry to hear you have healing issues, what a drag!! Still I’ve made you an adminer on the Facebook group so sorting that out will take your mind off things hehe Cardiff is a nice city, perfect for a mini break!! I’m all over the mini breaks at the moment lol if I can’t have a full blown holiday I’m having some mini breaks - been to Norfolk, London and the Lake District …lovely sometimes I think we forget how lovely the UK is!!
Chezza nice to see you spying on us for a change…makes me feel better hehe hope things are ok with your dad and poor Sergio, stay positive and don’t lose that wicked sense of humour!!! As you can tell the copying continues lol a Facebook group is coming (hopefully before we have all finished chemo haha)
Kate keep your chin up, everyone has a wobble now and again but we need to remember that thousands of poor sods have done this before us and got through it and we will too!! We are all here for when you feel upset and fed up, no one quite knows what you’re going through like someone who’s going through it too!! Get yourself on Facebook ?
Bonnie/batman still working on adding you to the Facebook group, have sent you a msg.LOVED your fighting talk, what number have you shaved your head to? You sound well up to the challenge, I’m loving your positive thinking, we do need to get tough and DO THIS!!!
Phew that was a novel and a half, hope you haven’t nodded off reading it haha Barbs xxxx
Barbs: Its a zero (no attachment). Nothing like a shaved head to bring out the cage fighter in you!