Good evening Stars,
Gosh you go out for the day and then there you all are posting away and I have a lot of catching up to do. Spent a wonderful day at the zoo even though it was a tad chilly. Sadly no unicorns but I did nearly come home with a red panda stuffed in my handbag! What a gorgeous little creature. Absolutely shattered now so it’s a definite total collapse on the sofa this evening and a " chat" with the Stars.
Bonnie I think my sleep problems are purely anxiety, apprehension and fear of the unknown. Unlike all you other Stars chemo is my fist challenge. The waiting around from dx to now has been awful as I’m sure everyone will agree. There has always been something to worry about. And once I wake up my brain goes into overdrive pondering over “what if this” and “what if that” . I’m sure you know what I mean.
So sorry Nikki that your day has been so rotten. Hope by now it has improved and that you manage a good nights sleep.
Bonsoir Frenchfancy. Wondering about the “A bientôt”. Is there a French connection? Originally thought your ID might refer to those delicious little cakes but now I am doubtful, especially knowing you have cancelled a holiday in France. Hope you have enjoyed your mini break. We all need lots of treats at this time. I’m with you on the fighting our way through this. I know how hard it’s been for me so far and I’ve got a hell of a way to go yet. Despite all my anxiety and fears I am determined to get through all of this. My family and friends tell me I’m a strong women and I have to keep that in mind to achieve my goal.
Thanks Chezzap for your good wishes today. I often take a peek at what you Maisie’s have been upto. Gives me a bit of an insight into what lies ahead and quite a few chuckles as well.
Kate as you can tell from the above I’m right there with you. Just try to keep busy for the next couple of days and most of all stay positive.
Everything you have said thebatman is absolutely right. Terrified we may all be but deep down we know what we have to do. Haven’t had the courage to shave my head yet though!! More like cowardly lion rather than a tiger!
Well Barbs sounds like you’ve had a great Sunday. It’s great when someone else is paying isn’t it. Know what you mean about the cancer card too. Hope the eyebrows settle down and you don’t frighten too many people while you are out and about enjoying yourself.
Well it would seem that my posting is rapidly becoming a novel just like Barbs so I am going to sign off with big hugs and love to all you wonderful Stars. Good luck to everyone who has something to get through tomorrow xxxx
Hi stars
Good luck to all those getting results or having onc appointments tomorrow (Monday) let us know how you get on.
I should be getting my bone scan results tomorrow sooooo nervous!!! They said they’ll call me if its shown up in my bones… going to be on edge now every time my phone rings :-/ already think every little twinge is bone mets!
Rachelr- glad them after injections aren’t too bad, like you my hubby had been volunteered to do mine. Hope you manage to get more sleep tonight and nausea has passed. Keep us posted.
Nikki- sorry to hear seroma has made an uninvited appearance blooming nuisance, have they said they’ll drain it again??
Chezzap- thanks for your words of encouragement, suddenly all feels very real so once we’ve all got one underway lets hope we know what se’s we’re dealing with and get on top of this!
Thebatman- well done on being brave and shaving your head, thats one less thing to sort out. my wig is on order so won’t be long before I’m doing the same think I’ll feel much more in control than waiting for it to fall out.
Frenchfancy- so glad you had a nice break! Apart from being shattered I hope it took your mind off things and you’ve got some good memories from it.
PTB- glad you enjoyed the zoo shame about them unicorns but I would’ve been right behind you in smuggling them red pandas. Hope you’ve managed to have a nice chill this evening.
Hoping all other stars are doing ok. Big hugs to all!
Sleep tight
Xxxxxx
Why is we’ve all decide to write novels today? Answered on a postcard please!
-Chezzap, nice to know we’ve got someone with previous experience looking out for us as well as each other doing the same, thank you. Have been too scared to check out the Maisie’s but have said here that’s probably due to a ‘mini-denial’ phase I’ve been having!! Terrified what it could do to us. I hate this being poorly lark. Not fun!! If I’m feeling brave some time this week, might take a peek.
-thebatman, I haven’t got the bottle to do the shave just yet. Not only that, I still don’t have a stitch to wear!! Will start my search in earnest this week.
-Barbs, we always used to holiday somewhere in the UK, until we discovered a lovely area in France. Everything else feels like second best now. Next year again maybe?!? Btw, didn’t realise you were trying to sort out Sam &Bonnie for FB. Never mind, they’ll get 2 new friends for the price of 1, haha
-Rachel, does injection have to go into the bone? Or am I just thinking the worst? How big is the needle? They asked us if my OH was going to give me the jab & really not convinced if it has to go in too far. Hate needles & they hate me!!
-PTB, lost count of how many yrs we’ve said will go to Chester Zoo…and we only live 20mins away! Glad you had a lovely day out. Have seen a pic of the new panda cub, sooo cute. Not surprised you wanted to take him home! Have really tried to stop the ‘what if’ way of thinking. Have found it not productive & no point wasting time worrying about things we can probably do nothing about. Much more serious things to worry about, like what the heck (*watered down!! Ha) am I gonna wear on my little baldie head when the time comes?seriously!! Am I the only one here that’s not got it sorted?
-Kate, that’s good advice from PTB re keeping busy…will be finding as much as possible to keep me occupied this week. It’s going to be a long week as I’ve a never-ending ToDo list
Just another shout-out to anyone with any appts/scans/ results tomorrow(today) the very best of wishes, and for anyone due to have your first trip to the bar this week, try not to stress too much. We all know this is the only way we can help to beat this sucker!
Keep well, stay strong and keep shining xx
Bonne nuit ?
pps- for all those we might not have heard from recently, hope thats a sign you’re all doing ok!
pps- will update tomorrow where the ‘french fancy’ comes from. Not a very interesting tale though, so you’ve been warned 
Good morning stars, just popping in from August to wish all those starting this week the best of luck. Hope it all goes smoothly and the se are ok. It is good to get things started and then you can start crossing each off off and another step of the journey completed. I had my hair all shaved this weekend so that was another milestone and boy it feels much better now it has gone. Thinking of you all xx
Looks like it’s me, lulu and Bonnie seeing onc today. Harry hope your results are good, they rang me to tell me I didn’t have bone Mets. Agree with lulu that getting bad news is almost better than the waiting. Each time I had a appointments I would be so worked up, then when given bad news it’s was almost a relief because I knew what I had to deal with.
I am not up until 4-15 and am praying we can nip off to Greece for a week,already found flights for tomorrow afternoon. Will check back in later, hopefully with news I can go.
Not sure if anyone is at the bar today, if so good luck.
Sam
Ps French fancy think I may have accidentally declined friend request on Facebook can you send again please.
Hi all
I think I have just posted to the August thread, and as I start my first cycle on Wednesday - perhaps I should be here with you guys. I still not very strong, tears and fears… but I am trying.
They really have changed the web site haven’t they - still have a few problems on finding where everyone went!
Georgina.
Morning laydees? good luck girls with the Onc apps today may all your news be positive, ill be thinking of you all and waiting to update the list with your cocktail start date. Woke up this morning and thought EEK I start the chemo A WEEK TODAY ARGH feeling a tad nervous…only option is to take my mind off it and that could involve spending more dosh oops think OH will be relieved when I am no longer feeling up to going out on spending sprees, but then I reminded him about Internet shopping and he visably paled haha I’m still farting around with the blooming Facebook group LULU,did you get my invite? Have now sent friend things to SAM Sarah Hazey and Bonnie you’ll have to accept before I can add you! Anyone else that want in let me know! Also if you don’t have Facebook you could sign up and just not add any friends but me and you will get access to the group without anyone knowing you are on, all posts and pictures to the superstars group are SECRET and can only be seen by other members so don’t worry no one will know about it if you don’t want them to!!
I’ve got an eye test today so I shall be off to town for that hope all of you manage to have a good day and Onc girls check back with us so we know you guys are ok Barbs xxxxxx
Just realised I got away with the word fart not being bleeped!!!
Hi Superstars
Any extra questions I should be asking the chemo nurse tomorrow? All suggestions gratefully received.
Georgina.
Morning Maseo, and welcome to the Stars ?lovely to have you on board. I think everyone of us is still a little overwhelmed by where we find ourselves but its absolutely fine to be teary & a bit scared about it all. We have no problem being a listening ear if you need a moan, rant, or to tell us how you’re feeling. We’re all here for you. Big hugs (((x)))
Barbs (Barbarella63) has a list with everyone’s details/dx/treatment dates etc so if you want to let her know where you’re up to we can all keep a look out for you.
Keep letting us know how you’re getting on xx
Yeah, Maseo, Pm is great and she’ll add all your details. Will also let us all know when she posts updated info. Any probs let us know x
OMG! Barbs. Been busy with bits so far this morning and completely forgot about this time next week. How did that happen? Have PM’d you re-FB so just let me know how you want to do this. Good luck at opticians today. I have an appt with nurses to check wound again. They’d better see an improvement, do not want any delays getting started. Grrr!
Hazey_85, they might call you to give you all clear as well so don’t think the worst if the phone rings. They called me with bone & CT results. Hopefully good news for you too.
Lulu, thanks so much for the info on the jabs. I’m sure they told us all that at our Onc appt but as with a lot of the details, it needs to go into my head a few times before it stays there. Think this will become known as ‘chemo brain’ haha!
SpikeyRed, thanks for looking in on us. Hope you & all the other Maisie’s are doing ok. If I get a chance will pop over to see how you’ve all been coping x
In case I haven’t said yet, best of luck to all you lovelies with visits of one sort or another.
Will see you all later. Xx
Hi stars,
Nikki I think it’s cos you are triple negative the coil wasn’t meantione dbefore. Mine was 8/8 on both hormones and I had that results just from teh biopsy. BC consultant told me to get it removed immediately!! Luckily I had an appointment to have it changed for a few days later.
Feeling a bit sad after reading an email. I intended popping into school to see my colleagues (if I don’t get to Greece) and the head teacher has asked that I don’t as he doesn’t want to compromise me, the school as my employers and HR maybe on his back as they have to abide by the Burgandy Book rules . (This is a school thing). This has knocked me for 6! I do feel rather fragile today due to onc appoint this afternoon. I wante dto see them before I lose all my hair!!Sorry to those of you who have read this on FB.
4 of us with onc appointments today then. Anyone up at the bar today? xx
Hi Everyone
Hope you don’t mind me joining in. I am due to start chemo next week. Dreading it too. I was dx with invasive lobular . cancer - left breast, had mastectomy, then full axcillary clearance after SN showed cancer cells in two nodes. MRI showed the other breast is clear - although I am still considering having this removed after treatment.
I am having FEC-T , going to try the cold cap, although I know it may be uncomfortable, suffer with headaches, so not sure if this is a good idea, but I will try anyway. I was told told the first session is the worst, as you don’t know what to expect or what side effects you would expect to happen. So I am sure I will be wanting loads of advice and support.
xxD
Morning Stars
Good luck today for all those of you with ONC appointments today :) Day 3 of SE’s all i can say is someone hit me with an acme mallet. Im alright just got a headache which I can’t seem to shift. Sure I’ll be ok. Off to rheumatolgists laterr, bring on the pain , he justs love to manipulate joints :( . I’ll kick him today
FEC-T - 1st FEC - day 4
Hi Stars - welcome to DTebbs and any other newbies.
Well day 4 now and still feeling fine. Keep waiting for some bad side effects but nothing so far. Did get fed up with not sleeping but took a sleeping pill last night and managed to get a few hours - so feeling much more human today.
Sorry for being stupid Sam , but what are the Burgundy Book rules?
Good luck for all those with onc appointments and those getting their first dunking this week.
xx
Hi there Stars!!
Welcome to the newbies , sorry forgotten names already as I have serious chemo brain these last 2 days , cant string a blinking sentantance together sometimes.
In terms of SE"s ,I think i"m getting away quiet lightly and touch wood it stays that way.
Like many of you, its the sleeping that seems to be a problem.
Had my wig fitting today and really not looking forward to the end result , I look hidious!!.. think it will be hats and head scarves for me .
Good luck to PTB, Tracey and Ally tomorrow. Remember ladies to follow all the tip for your first dunking and hopefully all will go well
Hope to hear from all you ladies with oncol appointments today , Sam try and keep your chin up hun…bloody rules!!! :(
Seen a couple of posts on here about Mireena coil… I had mind removed on advise of my oncol.
Hope the rest of you stars are enjoying your day :)
Love to you all .
xx
Hi Stars
What did I say yesterday about going out for the day. You have all been even busier today. Still at least I have had a good day out attempting to put tomorrow out of my mind. Although it did start with an appointment with mt GP. I did ask about the flu jab. He said speak to oncologist tomorrow so not a lot of help really. He did tell me to stop taking my rosuvastatin (cholesterol lowering medication). I have familial high cholesterol and thought that was bad enough to discover aged 42. Oh how wrong you can be! He said there was little point in taking medication if
I am suffering from sickness and going without them for 3 to 4 months wouldn’t be a problem. One less thing to thinks about I suppose.
After GP visit and a little retail therapy (not chemo related at all) my son took me out for lunch. Then a little more shopping and a visit to my Grandaughter. All in all I have kept as busy as possible. Still going to take the dog for a walk later and that should just about finish me off for the day! Even tomorrow morning I am going out for morning tea with my best pal. I keep telling everyone to keep busy so I am doing just that.
Frenchfancy, hope your appointment was ok today. No you really don’t want a delay in chemo start date. The wait as we keep saying is already long.enough. Btw we actually went to Welsh Mountain Zoo on Sunday as my grandaughter has type 1 diabetes and we felt that chester would be a bit too much for her to handle. There is a lot of ground to cover and she can sometimes get a bit tired so we thought WMZ would be a bit easier on her. I have only managed Chester zoo twice in the 26 years I have lived in north Wales.
Lulu, Thanks for all the tips. I am busy writing everything down. It helps to have all this info to hand. Brain is not funtioning very well at the moment. Hope your onc appt went ok today.
Spikeyred thanks for your good wishes. It’s really nice to know that the Maisie’s are keeping a watchful eye on us.
Sam, hope your onc appt was ok too and that you manage to get away tomorrow. Don’t suppose you will have any room in your suitcase for me. Lol.
Bonnie and Nikki, hope your results are ok.
Kate, pleased to hear that you have had a better today. Don’t forget we are all on wobbly legs at the moment with good and bad days for all different reasons, so just keep posting and we will all try to help each other make things feel better.
Pips , Keep those posting rolling please. I’m sure they will help me through what’s about to happen. Knowledge on the se’s is really helpful. How’s the rheumatologist?!
Elma and Jo, not sure when I will see the wig lady but I have bought one already. Outrageous dark blonde even though I am not. Cost me £25 and everyone says it looks like real hair and really suits me. So I suggest you check out some wig sellers you might be pleasantly surprised. I actually prefer it to my own hair but I have got scarves and things on order too.
Big welcome to George and T. You are in safe hands with us lot. Mad as a box of frogs we might be but rest assured you will get all the love and support we can give to help you get through this.
Finally, as you must all be sick of me by now, Just like to say thanks to everyone’s good wishes for tomorrow. I will do my best to get back in touch with you as soon as I can.
Love and hugs to all the Stars especially those we haven’t heard from , hope you all ok. Also to my chemo buddies Tracey and Ally, good luck tomorrow x
Elma, that’s weird. I was just about to ask the same thing. Am doing my list as we speak as I’ve left it as late as I can. Had some news earlier this afternoon which has thrown my plans for this final week of freedom right up the spout!
Will wait for some of your replies to guide me and will be back later
Hi Annie, I’m at the Maelor for all of my treatment and op (chemo first for me) except radiotherapy which I believe will be done at Glan Clwyd. How’s your chemo going. Hope you are doing ok. x