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Hi Stars,
When trying to upload an image just drag box over the best part of your picture, don’t try to enlarge it as that doesn’t work.
I will definitely be a Star with dual membership to the Maisies as i rang nurse yetserday and she said they have my referral but oncologist hasn’t looked ta it yet. Apparently it is 6 weeks from results to seeing him, then chemo starts 10 days later. So I should have 2 more weeks to wait to see him so chemo should start mid September! Not a happy bunny.
xxx
I feel I’m more sports car than van man!! Don’t think you can upload your photo from an IPad! It keeps saying you have to download Adobe! Thanks for the tips though PTB will try again later to see if I can get my ugly mug back on here! Sam how is your leaky boob/ceiling hope you managed to sort both out! You’ll be getting a complex. Anyone on here a Big Brother fan? It’s my guilty secret ( one of many crap tv shows I love! I won’t be getting chemo brain it’s too late already fried by too much rubbish tv hehe) anyway celebrity version tonight and I shall be glued! Love the soaps too but not Emmerdale (sorry Chez and Maisie’s!) although I have to confess I have checked out Brenda’s road kill! Will def be getting a decent wig now! Someone earlier was asking about wig prescriptions, at my hospital you pay £63.50 they give you a script and you take it to your nominated shop but you only get a limited choice and you can’t upgrade your wig and pay the difference. Wig lady I. Off to see tomorrow told me to hold off on the prescription till I’d been incas I didn’t like the NHS ones she said the ones that are not included in the NHS choice are not that more expensive than the ones in the choice. Apparently the price li it on NHS is £100 so you’ve practically bought it with your £63.50. I’m thinking ill have a look tomorrow and if I prefer the others I won’t bother paying for prescription and put the money towards a better one! I just know if I don’t get one that looks good I won’t go out EVER!! Well not until the hair grows back anyway.
I spoke to soon yesterday about the boob not leaking. This morning another hole appeared and it leaked then the old one started leaking too! I do have an appointment at the hospital tomorrow so that’s something good at least.
i wonder how many stars there will be… I hope we do not break the Maisies record that would actually be quite sad- says the competitive one!! xx
Why aren’t my post showing?
Hello all, please could I join your club?? I was diagnosed on 26 June, IDC 2.8cm, grade 3. Had lumpectomy on 21 July, lump nodes clear thank goodness, and I will start chemo on 6 Sept, 3 x FEC then 3 x T, plus Herceptin for a year and Tamoxifen for five. I have delayed things as I a teacher and did not want to have my summer ruined! So it is fitting in with the school year now. Needless to say I won’t be going in and they have employed a replacement to cover my classes (I am Head of Modern Languages in a large Catholic comprehensive).
To be honest I was an absolute mess when it all kicked off and this site has been a massive help. Everything people have said is true - the waiting is the worst, telling your kids is horrible (my boys are 20 and 16) so it would be good to feel part of the September Stars. I feel very positive and upbeat now, ready to face the horrors of chemo and I am sure being part of this group will help.
Bring it on, we are going to beat it!
Hi everyone, I have a meeting with Onc next week to discuss further treatment but have been told chemo will start sometime in September. I had MX and ANC on 18 July - 5.5cm tumour with node involvement - Grade 3 IDBC Triple Negative. Hoping to share this unexpected journey with others and exchange useful tips and advice along the way. Thanks, Elma
Great news, I’m now a tiger. Definitely more fitting than van man! Confession to make, my son sorted it in the end. He got fed up with me muttering and mumbling under my breath. Can’t believe how quickly the numbers are going up here. I know it’s comforting to know that we will all be there for one another but on the other hand quite depressing that there are so many of us going through this. Are we going to try and put some kind of Star members list together or has someone already started that. pas_the_boss
Hi Stars
Wow so many of us now, yes good idea to have chemo list so can keep track and eye on everyone. Seeing my onc next wed so will have a chemo date to add to the list hopefully.
Hope you’re all well this evening.
Nikki49- I too had ANC over 3 weeks ago and am still being drained weekly although it has lessened think our bodies may eventually get the message and start absorbing it.
Samjs- sounds like a right palarva with your leaky boob how frustrating hope they sort something tomorrow.
Barbs- I too will be tuning in to celebrity big brother love a bit of trash telly for distraction .
Gotta get on with trying to pick my avatar now, im a bit technically challenged though.
Xxx
Hi everyone,
I start chemo on 29th August, but would like to join the September Stars as the August crew are already so far ahead. I had my pre chemo appointment today and it makes it all very real. Half of me wants to get started so I am on my way, and the other half wants to run away!
I am going to try the cold cap - anyone else doing that?
Look forward to getting to know you all
Heather
Hello ladies. Feeling a little overwhelmed with everything at the moment so won’t stay long tonight. Appt with Onc went well yesterday but now have loads of stuff running round in my head! Thought I was handling it all just fine so far and this just seems to have knocked me sideways. Could do with taking a bit of my own advice…stay strong, stay positive, stay me!! Here’s hoping!
Will be starting chemo in Sept too methinks but haven’t seen oncologist yet, chasing appointments, breast care nurses etc, umpteen calls.
I can understand all the humour & joking that goes on in this forum because I think we really do have to block it out of our minds as much as possible.
It’s a brave decision to go through chemo but it’s the right one.
As chemo is my first challenge I feel I’m back in limbo land and playing the waiting game again. Luckily (not even sure if that’s the right word to use) I don’t have long to wait now. Possibly because I haven’t had surgery and I have positive scan results my mind isn’t working overtime anymore. Not that I’m looking forward to chemo and yes the side effects are impressive aren’t they. I’m sure we will all have some delightful stories to share once the Stars start shining but by the seem of it the humour has already crept onto these pages and let’s do our best to keep it going. If everything happens to me that could according to the books and leaflets given to me at my onco appointment I’m going to need a good sense of humour! On a more serious note I hope I get the right results from this and that the interloper tucked away in my boob, who incidentally I have called Damion, will pack his bags and clear off! At least then I might just get away with having what’s necessary taken away but that’s a way off yet. Need to get through chemo first. So come on ladies, virtual hand holding and all that and let’s get on with. Oh I’m gonna so come down off this high with an almighty bump. Thank heavens I’m still taking the diazapam! Best wishes to all you Stars. pas_the_boss
Hi heather!, sorry didn’t see you down the list there! Welcome ??? Barbs xxxxx
I’m with you Barbs. I’m gonna fight this with every ounce of my being. I’ve got far too much to stick around for and besides which as you can probably tell from my ID I am the boss and this time I really intend to stay in charge. As for your comment, Sarah, about not falling from the sky that’s an excellent observation. Might just stay on the diazapam a while longer. Apparently it’s not a problem with the chemo either so happy days! Will pm you later Barbs with all my info. In between reading posts on the forum I’m desperately trying to sew a recently knitted cardy together for my Grandaughter and I have a girlie shopping trip with my daughter tihis afternoon. Might even get chance to look at some wigs and perhaps make enquiries about eyebrow tats. Need to order some headgear too. This cancer lark’s a real drain on the old finances isn’t it? pas_the_boss
Think I might have left it a bit late with chemo starting on the 3rd so I’ll probably end up looking at alternatives or I could just be brave and go without eyebrows altogether. Just have to make sure the wig has a long enough fringe! By the way forgot to say welcome to all the new Stars. Hope everyone is having a good day in the best way they can and that we all have a good bank holiday weekend . A decent bit of sunshine to shine on us would be nice wherever we all are. I’m in North Wales and it looks like it’s gonna be wet at some point later. pas_the_boss
Afternoon Stars,
I have just played catch up on all the posts. See some people did night shift last night- i just hate that. Thankfully Diazapam sorts that out when I get them.
We are certainly a large group already. It amazes me and to think there are many more who do not access these forums.
Leaking boob suggestings from helpful males: Dad suggested a plumber yesterday and Oh suggested getting some felt(he’s a roofer) however that was cross wires as he thought I was talking about our leaking bay window!!
Saw the consultnat again today(thankfully he didn’t suggets either of the above) and both holes had scabbed over by the time I saw him, and he wasn’t too concerned. He did prescribe more antibiotics though due to how long wound had been open and the fact it is bank holiday and they are not open again until Tuesday. He says to just use gauze dressings no sticky dressing as my skin is so sore. He also asked nurse to fax my referral to oncologist again with a note attached saying I haven’t heard any thing yet. He was quite surprised I hadn’t seen him. So hopefully this will move things along especially as I was first diagnosed mid April!!!
Take care sparkling stars xxx
Good afternoon Stars, I’ve been dipping into some of the other threads & a lot of people are recommending ‘bio oil’ which is supposed to be good for scars & massage etc. Anyway Boots online have buy one get one free offer at the moment @ £19.99 for 200ml that’s a good saving
Sorry Sam, no suggestions for leaky boobs but I hope everything is ok for you over the weekend and good luck with the onco appointment, they do like to keep us hanging about don’t they?
Hi Bonnie, Welcome to the Stars. It’s awful how this nasty thing creeps up on you when you least expect it. I was dx in July, a week after my birthday. What a wonderful pressie!! Like you I was feeling on top form and in actual fact still do. Apart from the fact that I have Damion nestling in my boob there is nothing wrong with me and that’s quite a thing to deal with. Plus the fact it’s the solution to the problem that’s going to make me sick. There’s something not quite right here!!
Tracey, my chemo starts on the 3rd too, 1.30pm to be precise. I’ll be thinking of you. We have definitely been on the same page today because I have bought my wig too and like you I prefer it to my own. I’m afraid for me it’s been an opportunity to do something outrageous, I need to keep spirits up, so I have changed colour and style and might even start wearing it as soon as I have my hair cut tomorrow!