Starting chemo in September???

Hi, just back from chemo! Feeling fine, all dosed up on anti sickness meds, but I know it’s early yet, so we will see. The staff were great, made the whole thing as easy and fun(?) as possible. It was an extra long session, because I had the cold cap. The first 10 minutes were uncomfortable and cold, but after that you forget about it. I kept wondering if it was working properly because it was just not bad at all. Obviously only time will tell if it works, and the cap didn’t seem to cover round my ears very well, but I would say to anyone considering it, give it a go and get through the initial cold bit. I took paracetamol before I went, as that was suggested on the forum.

I hope Avonlady is ok and will post soon and I hope today’s session went well for Tracey. Good luck to those up tomorrow.

Re the query about having a line fitted, my onc just said I would have a portacath fitted, wasn’t really any discussion about it, but I presume as I’m having Herceptin for a year, it saves finding good veins each time.

Whoops, sorry, meant Rachel’s, not Tracey! Is it too early to blame chemo brain!

Great tips girls! Hahaha PTB you ordering for everyone?? Bloody annabandanna must be raking it in! Will deffo check out EBAy and get some of that gel thingy. Wonder how poor Rach and hevg123 are not to mention Avonlady WHERE ARE THEY??? Is there some alien abduction going on instead of chemo??? Lets hope they are ok I’m starting to feel nervous about it especially not hearing anything from them!! Pips jo and gold good luck tomorrow please let us know how you are xxxxx

Updated list for y’all

NME/DIAG. DATE/TMNT. NUMBER. LOCATION

Avonlady/no details. 28/8. #1. No details

Rachels/WLE gde3 ER/PR/HER2- 29/8 FEC-T. #1. Reading
HEvg123/MX/ANC(3/?). 29/8 FEC-T. #1. Kent coast

Jo43/WLE/ANC(2/20). 30/8 FEC-T. #1. Bucks
Gold63/MX. 30/8 no details. #1. No details
Pips64/WLE ER/PR/HER2- 30/8 FEC. #1. Cheshire

PTB/no details. 3/9 FEC-T. #1. Wrexham
Tracey46/no details. 3/9 FEC-T. #1. No details
Ally51/no details. 3/9 no details. #1. No details

hg12/no details. 4/9 FEC-T. #1. No details

Beam67/WLE gde3. 6/9 FEC-T. #1. No details
Thebatman/MX/SLN(0/2)gde2ER8-PR3+HER2- 6/9 TC. #1. E. Anglia

Barbarella63/MX ANC(2/16)gde2 ER+PR/HER2- 9/9 FEC-T. #1. Lincoln
Frenchfancy/MX/ANC(8/22)gde3 ER/PR+HER2- 9/9 FEC-T. #1. Chester

Cinderssarah/WLE/ANC(1/16). No date yet.

NIkki49/MX/ANC(0/11). ". ". Fareham

Hazey85/MX/ANC(24/43)gde3 ER/PR/HER2+. ". ". Warwicks

Elma55/MX/ANC(12/15)gde3ER/PR/HER2- ??? FEC-T #1 Chichester

Bonnie8862/MX/ANC(14/16)gde3HER2+ER/PR- ". ". Gatwick

Samjs/WLE. ". ". Northants

Sarahsomething/MX/ANC. ". ". Berkshire

Jinxy12. Kent

Bonellie/MX/ANC(4/7)gde2 ER+|HER2? ". ". Unknown

Austigirl/MX. No other details

Lulu welcome! Gosh I don’t know what to say…you have certainly been through a hell of a journey! So sorry that you find yourself back on the treadmill, but we are so happy that you have found us and we will be a source of support to each other! Do you want me to add you to the ever growing list of stars? It’s a good way of keeping track of each other and not forgetting about people if they can’t post for a while. PM me the details you would like me to put on the list and I will sort it lots of hugs to you whilst you wait for the scans/results the waitings always crap …hated those days! Lots of love Barbs xxxx

Hi there Lulu34… echo what Barb has just said… really sorry you find yourself going through this journey again :frowning:

 

I’m getting worried now for Avonlady, Oh I do hope she re joins us soon.

 

Hopefully we may hear from Rachel and HEvg123 tomorrow…hope so .

 

Well ladies, thank you so much for the good wishes , I’m taking my dunking at 12 so I will be thinking of you Sam having your Latte with the Maises in MK , Hopefully I will get to join you all another time…HAVE FUN!!

 

I already have my annabandana, soft hats x2 and a selection of mix and match scarves to wrap around them.

Got my wig fitting too on monday… Oh joy! lol

 

I will do my very very best to log on tomorrow when I am back, just to put your fears to rest. Unless of course my head is so far down the pan and unable to come up for breath… Yuke!! only joking ladies , I have my bucket at the ready instaed. 

 

Good luck to my fello dunkers for tomorow gold63 and pips64. Lots of viral hand holding!! <3<3

 

Night night ladies , Im of to finish a bit of ironing . 

 

Love to you all xxx

Evening Stars
Finally managed to place AnnaBandana order. Stayed in control in the end and just ordered some sleep caps and a couple of pretty scarves. If you are planning to place an order delivery is upto 21 days. Hope I haven’t left it a bit late otherwise it’s wig only or baldy lady!
Really hope our chemo junkies are okay and good luck tomorrow Jo, Gold and Pips. Hopefully we will hear back from you all at some point. Thinking of you all. x
Welcome Lulu to the Stars and thank you for offering us your support. Like Barbs said you really have been through it and hopefully we can be some support to you too.
Take care all you bright shining stars. Good luck with everything you are doing tomorrow. Love and hugs to all. x

21 day delivery for annabandanna??? That’s because all the bloody Maisie’s have bought them lol

Sorry hevg123 somehow managed to miss your posting. Glad to hear you are home safe and sound and that everything went ok. Hope you get a good nights sleep. Love and hugs x

Hevg123 I missed you too! Blame the new forum! Soooo glad to hear you are ok and not as bad as you expected! Lets hope it continues that way for you! Feeling better now that I have heard from you! Lets hope the girls to,or row will be ok too! Don’t worry about the wig fitting girls I really enjoyed mine it was a bit of a laugh actually tried on all sorts I looked truly shocking as a blond I can tell you! Not quite the temptress I had imagined! More Bet Lynch than Marylyn Monroe…gutted! So went for a brunette instead wig lady was lovely and after telling me they didn’t get much call for auburn wigs she only managed to go,and order one in my exact shade of auburn I was very impressed! Sarahsomething I checked out the eBay site looks great and good prices too, need to bloody order something before its too late I keep blooming dithering…case of if I don’t order it I won’t lose the hair doh!
Dont forget girls if you need your details updating/adding let me knowXxxxxxBarbs

I know it’s late ladies & probably most of you asleep already, but just wanted to check in.
**WARNING** this does go on a way down but didn’t want to miss anyone out.
I think I must be going through a ‘mini-denial’ phase at the minute. Don’t get back from our little break until Sunday and just thinking everything can wait til then. I’m certain this will come back & bite me in the bum as there’s so much I know I should be doing. It’s going to be a crazy week to catch up. Anyway, for where everyone seems to be upto…
-Avonlady, where are you? Really hope you’re ok!
-hevg123, glad SE’s appear to be minimal right now. Long may that continue x
-Rachel’s, hopefully resting up well after your visit to the bar. Let us know how you’re doing when you feel upto it x
-Jo43/Gold63/pips64, good luck for your first round tomorrow (was later today when I started writing this!!) thinking of you all x Jo, I think you saw the ward on your Onc visit, so hope its not as scary as you thought x

-Sam, your boob demon seems to have visited me on a number of occasions as well haha! I had mx so not sure why this is but glad to know imagination not playing tricks. Sounds like something we may have to accept :frowning:
-BonEllie, so sorry to hear of your recent loss. Can’t imagine what you must be feeling not having your ‘go to’ person to help you through this. Of course we are all now the next best thing hopefully and can be called upon anytime, night or day x
-Nicky49, hopefully drainage has provided much better nights sleep & does not recur too soon (or at all if there’s any justice)
-Sarah, PICC line is the way I’m going too. Think may already have mentioned my distinct lack of veins & so glad they agreed with me to do this (goes in 5th Sept)
-Lulu, a big welcome but so sorry to hear you’re going through this again. Sounds as though you may be a dab hand (in the worst possible way) at this dunking business. Not good news! x
-Beam67, re-feeling guilty…we should never feel guilty, it’s not a choice we’ve made! I can understand where you’re coming from though as it feels like we’re responsible for everyone’s lives around us having to change as well. Ultimately, they love us, would do anything to not have us go through it but sometimes people just have a difficult time showing this. If you need them, they will be there in a heartbeat I’m sure x

-PTB, from the sound of it we’ll be in the same place (Maelor) at different times. You start before me though so can let me know how you get on with everything :slight_smile: The nurses I saw seemed really nice. I also hear what you were saying about eye drops, can’t get them near me either. Will try the spray though, that might work!! Thanks for the heads up.
-And last but not least, Barbs. I will have a 2hr head start on you on 9th by the sound of it. Your list of shopping was great, thanks. As I mentioned earlier, have having a tough time getting to grips with all that needs to be done before we get started. ‘Ostrich’ ‘head’ & ‘sand’ spring to mind. I agree, no wig order means I won’t lose my hair. Yeah right, if only!! To be fair I have arranged to go with mum next week to the place that also supplies the hospital. Won’t get to see them there until after we get started so thought I would get a look in beforehand. Am way behind on several other things as well & probably too late for some of it. Eyebrows tattooed - will have to give that a miss I think. Would tinting be an option do you think? Also thought about toothbrush. Know we have to be gentle but wondered if you know of anyone who’s used a sonic/electric brush? Thought they might be quite gentle on gums and had thought about getting one anyway before we got sucked into this alternate universe. Have taken a look, and thats all, at annabandana but its like I can’t bring myself to accept the reason I need to be wearing scarf/hat/etc. is that totally ridiculous or what? Actually, I know it is but doesn’t make it easier. I think it’s because it will then become obvious to Everyone & Anyone what’s happening to me. How vain is that? And I’m really not!!

Hope I haven’t missed anyone, and apologies if so… Will try to get better at visiting here more regularly to see how we are all getting on.

Goodnight to any Night Owls or good morning to any Early birds.
Keep well, stay strong and keep shining . Xx

Apologies in advance for the waffling everyone xx

Hi Ladies

 

Well as you can see I am not sleeping too well.

 

First round of FEC at 9.

 

Had a bit of a trauma yesterday having line fitted. I have a needle phobia anyway, was booked in at 8.30 in the morning. After waiting to be seen for an hour and I started to get myself worked up for the proceedure and wobbles set in! Canula was fitted, bloods were taken, radioologist visited to discuss proceedure, REALLY wobbly now!

 

In wheelchair to be taken to theatre then informed bloods needed to be taken again as machine in lab broken down! Then I really lost it and cried like a baby!

 

Back to day ward (still crying) waiting for more blood letting. This was done, another half hour wait for results, in the meantime was informed my slot had gone! Didn’t think I could cry anymore but oh boy I did!

 

Staff struggling to get another slot later in the afternoon (they are all panicking now as I was a MESS!) I went home with canula in hand and bandage wrapped around it. Back in Christies at 2 (oh yes STILL crying) thankfully line in at 3 and home 6.30. I feel like I have been in a car crash, can’t stop shaking - thought of chemo at this moment actually pales into insignificance in comparison with yesterday - hope there are no surprises.

 

My lovely bc nurse had found out what had happened and came to see me just before the proceedure, she took one look at me and cried as well! Lucky to have her with me tomorrow .

 

Will let you know how I get on.

 

xx

Oh dear Gold63, nearly cried with you when just read about your trauma yesterday. It’s bad enough having to have these procedures done anyway without it all going wrong at the same time. I really do hope today goes so much better for you & will be thinking of you , and good luck as well as to Jo & Pips. Let us know you’re all ok when the worst of it is over
Big hugs to all this morning (((((X)))))

Good morning Stars, yes I realise it’s early but seems I’m not the only one who can’t sleep.
So sorry to hear you had such a bad day yesterday Gold. I really hope everything goes better for you today. I know there will be lots if virtual hand holding going on. Lots of love to you.
Yes, Frenchfancy it’s the Maelor for me too. I use an electric toothbrush but have bought an ordinary soft bristle baby one as well.
Hope everyone has the best day they can. I’m off to take the dog for an early walk. x

 

Welcome Lulu, so sorry you find yourself here, you really do need a break. I was moaning yesterday about getting it once and thinking it wasn’t fair so I dread to think how you feel about it. 

Good luck  to Joe43, Gold63 & Pips64. gold sorry  you  had such an awful time yetserday. That was one hell of a day. Your BC nurse sounds wonderful though and I am glad she will be there today for you.

Jo me Kaz and Angie (pendragon) will raise our lattes to you at 12pm!!

Frencyfancy- the boob is sorted- hurray!!

Bonnie I have onc on Monday too.

Just so you know girls my Annabandana order came within 5 days, I didn’t even realise it had a 21 day wait!

 

I keep having bad  dreams that my OH will leave me cos I will put on weight with the chemo and cos I will be bald. We are getting married next year  and he has told me none of the side effects will change how he feels but you know when you just over think things. I hate how this thing makes my mind work in overdrive.

 

How all  previous dunkers report back in  with minimal SEs xxxx

To gold… Sounds like you’ve had an awful time. Seeing you hugs for today. I’ll be at Christie bar at 3pm. Hope today goes smoothly for you.

To Jo my fellow dinner stay strong nd hope the se are minimal

To Lily I’m so sorry you’ve found yourself here again but you have already proved that you are a formidable adversary to cancer.Kick its butt. Sending you massive hugs

To all the stars shine bright xxx

Hello there Stars :slight_smile:

 

I"M BACK!!!  yay!!!   absolutely fine at the mo , just slight headache but to be far , I"ve had that since this morning.

 

HEvg123 … so sorry I missed your post yesterday saying you are back…good to hear all went well and I hope all is good for you today. 

 

Hoping my fellow dunkers are ok , gold63 and Pips ??   

 

Still no news on Avonlady or Rachels or have I missed posts??

 

Will pop back later to catch up with you all but have mother and sister here at the mo so off to spend some lazy time with them.

 

Love to you all.

xxx

Hey Stars

Just  Got back it went really well. Spent a fair few hours at Christies this evening :smileywink: Luckily l had an amazing chemo nurse who had me and the OH laughing all the way through treatment :smileyvery-happy:  Well until they gave me the steroid injection and i felt like just sat on a load of nettles:smileyfrustrated:  but nevermind,

Been a big day , Im a little tired and hav a metallic taste in my mouth yuck, but im ok :smileytongue:

Jo Im glad it went well for you today, and hope Gold got through today without any hiccups .