Hi Ladies… good to find you … problems with phone line, internet access and now Forum access! Changing password should be easier… changing my passwords ANYWHERE manage to be less than straightforward and cause me grief! … “Digital Dinosaur” should be my Name/Avatar! … anyway … here now… and so good to hear folks are home from hospital, and folks having Docetaxel are doing ok… I had to forgo work today & went back to bed … hope tomorrow will be ok … Head Fog … mouth ulcers… no “Get Up And Go” at all …apologies I’m not detailing names tonight - I’d get them wrong… hoping you all sleep well with minimal SEs… hugs… x
Hi Greg - opps blooming tablet converting your name again!!! Include me in your digital dinosaur club please geeG 
Have you got some diflam from hospital or GP for your sore mouth? It’s working for me. Good on you for heading back to bed to rest up…need to conserve your energy and listen to your body…to be able to grab at the end game :). Take good care of yourself xxxx
p.s. 10.45 and still good after first D/T early this morning… fingers and toes still tightly crossed. Very tired but just cannot switch off…heading towards the biscuit tin - yet again!!! Blooming steroids…will have to be back on the 5:2 again as soon as I’m done with this horribleness. Oh well, no point fretting about that now
Oh NOOOOOOO babbling, bubbling brooke is back…without any proof I’m blamming the steroids…yet again, it us my favourite past time lolol
Nearly twelve and just indulged in yet another midnight feast (coutesy of those steroids again) on the pretext that id forgotton to take my anti biotic and if not taken with food it makes my icky 
Can you tell I’m a bit wired and guess what, yes you’re correct…bl***y steroids!!! Ahhhhhhhhhh
Evening ladies. Im still unfortunately posting from my hospital bed. I was told today friday would be earliest day for release. Had 2 units of blood today and have started on these tummy injections. Doc said be having them till neutrophils are at 1, they are still 0.1 so havent got any better since I was admitted on thurs. Ladies please if you feel the slightest bit unwell get yourself checked out. If its nothing thats good but dont leave anything to chance. I just thought the pains I was having was due to lying about so much!!
My potassium levels are also wonky so tonight I was given a vile drink from dissolvable tabs that was so saulty. Truelly disgusting and to have three times a day.
veins are to pot, I am like a pin cushion. This is my 5th venflon since I came in on thur. I got one changdx at tea time tonight but the site tissued so another doc had the joy of finding another one. Good job needles dont bother me!!
I really hope those changing over to t get on fine with it. Its a big worry because its unknown but you will all cope superbly as we always do xxxxx
oh bcn came to see me. Obviously possible my 5th fec will be delayed next week. If so ill be xmas eve. Its the one thing ive worried about since dates were worked out at start of treatment. I wanted a reasonable xmas day with my family 
Right best get cooried down and get some zzzzzz. Hugs to all especially those having treatment this week xxxxx
Oh Murphy, poor poor you but hang on in there, I’m sure this is miserable as sin for you…but it will come to an end…you’ll see and we are all here rooting for you. You are being so very brave - an inspiration to me and many others I’m sure :). You give vital heads up for us to not ignore any niggles - thank you. Hope you are getting some sleep tonight and fingers crossed you get some good news on your neuts tomorrow. Xxx
Oh Murphy you poor thing. I know what it’s like being stuck in hospital but it does come to an end. Stick it out and you’ll be stronger before your next treatment. I know it’s frustrating to have a delay in your treatment but I think we all have to try to keep our minds open and not get too hung up on dates and end times so that if there are delays we don’t get so upset. It’s what I’ve decided to do because my delay really stressed me out and I don’t want to go there again. I hope you have a good sleep tonight and things improve for you so that you get home soon. Good luck and sending hugs xxxx
Morning - steroids buzzing around - been up since 4 - googling as well - not squeaky squirrels but that sounds intriguing.
Good luck all who are having treatment today - will do a proper catch up later on you all. Had a fun packed day yesterday, boob drain to see if infection gone - they took out 800ml of clear liquid so looks like chemo will go ahead this morning but have a breakfast meeting with my onc at 8:15 just to be sure - 8:15!!! Recon boob now looks like a balloon a few days after a party, a bit deflated, very soft and not much use really
Today’s breakfast will consist of porridge followed by 4 steroids, 1 antibiotic and a slow release Claritin anti histermine - could kill for an egg mcmuffin xx
Sorry just having a quick read / catch up and just want to do a quick shout out to the lovely Murphy - sending you a great big hug and virtual wine and chocs - thinking of you xxx
Love to all xx
Hi Junash, you’ve had a bit of a horrid time with your party balloon boob (love it ;)). Hope you are comfortable and it has gone well for you at treatment this morning. Sorry, having real trouble keeping up with whom is on what and when - are you D/T’ing?
Murphy, how you doing this morning?
Zelda, hope I’m in time to give you an update…once I got off to sleep at about 1.30 (which to be fair is about how it is for me weeks 1 & 2) I’ve sleep through till 6.45- woo hoo :). No sickness no nausea and feeling good so far I know we all react differently but it is very possible you will do good too…really hoping so, AND, any other ladies going on to D/T this week. Xxx
Going to try and snatch another hours sleep…catch you all later and hoping se’s are minimal
Oh ladies, sounds like we’re all have the crapist of weeks. I am especially bah humbug this year, husband and kids bought and put up tree whilst I wallowed in self pity on Sunday.
Admittedly I think I have good reason to wallow as I have a gaping hole where my boob should be - the wound had opened up and I can see my implant!!! Seeing surgeon today. Had rather too much wine last night as it made me feel better at the time. Husband walked out, neighbour was lovely. Washing machine broke down … Just had enough this week.
I do have a wonderful friend who had genuinely offered to clean tidy do laundry etc , but if rather her spend time talking to me and having a giggle!
Let’s hope things pick up for all of us, good thing for me is I’m sure next weeks chemo will be cancelled because if my hole so no more until after Christmas!
Hi Zelda…just a quicie. I’ve got the flushed red face…noticed yesterday…blaming the steroids too (as I do for everything lolol). Take care, enjoy your bracing walk with poppy and do let us know how you go on xx
Riversidedawn, pretty crap goings on with you and in your house…don’t know if any consolation but me and OH had the BIGGEST row on leaving the house yesterday for hospital (put on quite a show for the neighbours I’m sure lol) which carried on as we set off. Both way too hyped up ahead of my treatment and my OH has a pronounced ‘tone’ issue with me at times - crucially now - I JUST WON’T PUT UP WITH IT ANYMORE!!! (so sorry for the shouty lol). Surfice to say, he got VERY angry with me, me back at him, screamy shouty shouty…bit of a sob…apologies exchanged 5 mins later and the air cleared…a little. It did seem to have spiked my blood pressure mind …opps! Hope you get to work things out with your OH. Hope your mood lifts soon, but remember this is all about the rubbish journey we are on, the rubbish se’s we are having to endure, and it’s really OK to have rubbish days and wallow … I certainly BL***y do ;), but the end is just about coming in to view - yeah. We can do this this and we are all here for you hugs and xxxxx
Murphy I’m so sorry that you are still in hospital . I escaped after 2 days . I have developed a wracking cough since , so it was obviously that which caused my temp . I know how horrid it is being stuck there . I was rubbish at it . Cried nearly all the time and didn’t speak to anyone after the woman nxt dr launched into a 'I’m 3 years in on all of this ’ conversational opener . Xxxx
Oh Junash I have an image imprinted on my mind now of your deflated balloon boon. It’s making me laugh but I do realise how upsetting it must be for you too. Hope its all sorted soon and I hope your chemo went ahead as planned ?
Zelda hope your treatment went well and you’re feeling ok ?
Riversidedawn what a horrible time you’re having. I hope the surgeon sorts out your boob and you start to feel a bit better. The strain of all this really does affect our relationships. I’ve had a few cracking arguments with my OH. Sometimes we can’t help it. I think it’s the most stressful time we’ll face and sometimes we just have to explode. Unfortunately our OHs are usually the closest target.?
Murphy I hope you’re feeling a bit better today. Try to take the opportunity to rest while in hospital. Easier said than done I know. He the food is better than the disgusting stuff I had. Every day seemed to get worse lol. ?
geeG sorry you’re having a rotten time. Hope you’re feeling a bit better today. I had horrible mouth ulcers after my first fec. They really got me down but as I’ve told others soda Bic rinses, difflam oral rinse and gelclair have been a godsend. If you haven’t already, ask your GP for them.?
Bettypoppit and jingo glad you’re both doing ok. Hope it continues and you have minimal SEs. ?
I’ve probably missed someone again so apologies if I have and good luck to anyone going to the bar this week xxxxx
Had first Tax. A smashing staff nurse found a vein first time so that was a big relief to me.My veins in my hand are hurting now though . I read somewhere that it’s not advisable to take Ibruprofen with steroids maybe paracetamol is ok.
At the moment I feel ok but I have been pumped with anti nausea drugs , steroids etc . I don’t feel any nausea yet although I have taken Emend but after FEC I felt ill straight away.
It’s too early to say really but not having that horrible sickness makes me feel so much better Fingers crossed xxx
I hope everyone with side effects recovers soon sorry carnt remember everyone’s name my brain is fogged.
Good luck to everyone having treatment this week xx
Hi Zelda, glad you are felling OK at the moment…sounding just like me wirriedvthat the sickness etc was there in the background just waiting for an opportunity to spoil the party …but I’m still good 36hrs on…fingers crossed for you too. Yes, ‘Dermol 500’ - it seems to be doing the job and more effective than the E45 that i have been using. Really sorry you didn’t get the help that I did on this, which I just don’t get - the inconsistency and this was the same unit in the same hospital! You can get it on Amazon but it is expensive…I’d contact your GP and ask for a prescription as its 2+ weeks until our review meetings. Sounds like you need it and you defo deserve it:) xx
Hope all goes well with all…bubbling, burbling brooke continues unabated lololol oh the joys of it!
p.s. more shouty, shouty, going on here…grrrrrr, glad OH has just headed off to his night shift and just me and the ‘puppy’ again tonight
Definitely inconsistency around the country, why are you on steroids and what’s the immune boosting drug? I could do with thst.
Wish my husband was on nightshirt! Oh maybe not cos that would mend he’s under my feet during the day!
Riversidedawn I didn’t automatically get the immune boosting jab. I got it after becoming neutropenic after FEC2. They gave me the jab after FEC3 so that it doesn’t happen again. I’ve had steroids after every session tho. I thought everyone did? Xx
Hi Junash. Glad you’re ok after tax. I’m on day 11 after FEC3. I start tax on 19th. It should have been 5th but FEC3 delayed 2 weeks. Surgery isn’t what you want on your 50th but maybe you can have your far flung trip later to celebrate the end of all this horribleness. I’m dreading the big dose of steroids! Everyone seems to be hating them and I’m bad enough on the smaller dose lol. Hope you stay as SE free as possible and hope you get to sleep tonight xxx