Thanks LainieG - Pauline thought same but has been really supportive on the phone with this - she doesn’t keep on about “but for MOST people…” (really not helpful if you are not one of the “most people”) ! …
So glad you are temporarily off the hook … hope you are managing to enjoy this reprieve - and the August thread folk certainly found seem to have found the Docetaxel easier to cope with/less SEs… hugs x x x
Front room is very warm just now (OH was sick in the night and a bit under par today…) … so I shall go upstairs and lie on the bed with the window open … won’t make any difference if a ‘real’ temp & I need to take steps… tho may be a bit less warm! LoL! Give me a chance for eye drops too … aaaaaaargh! … hate all this feeling grotty … ( and took so many Imodium to control guts that nothing is now happening on that front! ) This Thing just keeps giving …. 
That’s good to hear. I start T next Friday. Seeing the oncologist on Wed. I’m starting on a lower dose so hope that helps. Hope your SEs settle soon. You’re so good at soldiering on through all of this between work and your choir. So glad you managed to sing on Christmas Eve. Xxxx
If you have a temp GeeG don’t leave it too long. Phone the helpline. If it’s not something to worry about they’ll tell you but better to check. You don’t want to become really ill xxx
Hi geeG, I am with lainie and Betty, I have landed in hospital twice by leaving it for too long before checking with the helpline. The first time I ended up very ill, so much so they have stopped my chemo as it would be too dangerous for me to continue. The temp that was coming up on the thermometer the chemo unit gave me was 37.5, however when the paramedic came it was 39.2 on his, so be wary of thermometer!!! Please phone to get yourself checked out, it can’t do any harm and they do prefer to have you checked out than to wait and get really ill xxxxxx
… grump … Just COULD NOT get a temp from R armpit (Boots digital thermometer …) … but L armpit is down to early afternoon temp, as are all the ear temps … also feeling much better in myself … so have discussed with OH so he is fully aware and he agrees we were told to “go by how you are feeling” - and I AM FEELING SO MUCH BETTER than earlier … not having taken any painkillers all day because of masking temp will not have affected that … aw gals … it just wears you out, all this, doesn’t it … hugs x
Just look after yourself geeG and if in any doubt phone xxxxx
Hi peta hopefully i will rebook for xmas next year but as soon as i get the go ahead from oncology im booking somewhere asap ive missed my holidays this year.
Im having bloods checked monday amd see oncologist and then chemo tuesday.
Lainie ive lost a stone in total and see to be staying around the same weight now. I wanted to lose a bit but this was a bit of a drastic measure to lose weight.
Reading the posts about temps i must admit im constantly checking mine which maybe is too much so many of my friends family got colds just hope i dont pick anything up.
Right off to bed now night all xxxxx
Morning lovely ladies and i hope we all had as good a nights sleep as possible. GeeG, just hoping you are alright this morning. Are you taking Emend for sickness/nausea? If not i would be laying it on with a trowel at your review so your onc prescribes…it has made all the difference for me.
Re temp taking, i was told to take once every day and to keep a check on it if feeling off side. I’ve got an ear thermometer and in the 1st week/10 days my temp bounced during the 3 consecutive readings, which made it impossible to know what was true. It has stopped doing this now so can only assume was my temp was spiking!!! Weird. I told chemo nurses this was happening but they weren’t concerned!!??!!
Fingers crossed you have a better day today xxx
Hi ladies , had my weekly paclitaxel yesterday . Miserable thing to do on Boxing Day ! Was at hospital from 9 to 3 a long long time waiting for bloods etc and it was v busy . No sleep due to steroids until 6 am ! But feel ok ish now .
Have party invite for n ye so thinking need to wash wig . No specialist shampoo will ordinary be ok ? Going to get frock in sale and some stick on eye lashes . Love to all hope ur all ok and geegee hope your temp has settled x
Further to last post , the situation with my dad is bringing me down . He insisted on spending Xmas day on his own despite our efforts to invite to ours . He is an incessant heavy smoker and the flat reeks . The air is literally blue , all the walls and windows are stained yellow with nicotine .If we visit even for 5 minutes it means all our clothes have to be washed to get rid of the smell and I get a very irritated chest at the moment .In fact myself and my daughter visit in our mucking out clothes and I never where my wig so our decent clothes don’t get ruined. He had had many strokes falls and blackouts and his hospital admissions have ruined too many previous Christmases and birthdays to count on 2 hands .My mum passed away 7 days before Christmas last year of pneumonia and strokes and I’m sure his smoking played a part in that He smokes so much I’m convinced he gets light headed as a result regardless of the Heart and stroke issues he has . He has been pretty dismissive of my illness and situation not listening and asking me did I take my chemo as pills despite me explaining many times and criticising the way i choose to live , until I burst into tears about his attitude on the phone one day which did jolt him a bit .my husband whilst exasperated with the situation visits my dad when I can’t face it - even on Xmas day . My dad had a cigarette lit all the time on Xmas day and again all clothes needed washing in the middle of everything else going on . When I lie awake atnight this is what I worry about ! Sorry for the rant but it’s not helping me get well at all having to deal with this ! Xx
Hi Debtex, that’s a miserable way to spend the day but hopefully today will be much better for you. Sorry cannot offer any advice regarding washing wiggi as only worn mine twice for about an hour inbtotal…much prefer my beanies. Hope you are snug as a bug in this cold, snowy weather. Xx
Oh Debtex, just read your second post and my heart goes out to you…how difficult and totally dreadful for you. You certainly don’t need any more on your plate to deal with, getting through treatment is more than enough. Sorry, but I don’t know what to say to comfort you but sending BIG hugs, xxxxxx
Hi bp yes it’s been building up and up . It’s so stupid because I actually want to visit him but can’t stand the smoke at moment - I’m an ex smoker myself so not v tolerant of my dad for not stopping at some point . When my mum died he started coming to us for teas etc for a while which we all liked and the abruptly stopped saying he couldn’t be bothered etc . Prob is I’m in catch 22 if I don’t see him I feel guilty but if I do I feel even more ill . He also has a neighbour who helps out a lot for which I am v grateful at the moment but he also has my number now and has started ringing me up giving his opinion etc and intefering a bit too . I just need to find the right mindset to deal with this . Deb x
Oh Debtex I don’t know what to say. This would be difficult enough to deal with when well but must be horrendous while you’re ill. I can only hope things get better for you soon. Sending hugs xxx??
Meant to say I was told to use something like lux flakes to wash my wig but it’s not real hair. Xxx
Hi Debtex. So sorry to hear about the situation with your dad. I can’t offer any advice really, but you do need to look after yourself foremost, even if that means drawing back from him and his ways for a little while until you are fit again.
As for the wig, I was told usual mild shampoo and some Lenor for conditioning. I think it might take ages for it to dry though and you have to not hang it on something that will stretch it. I haven’t washed mine yet, in fact I was told it would last longer if I only washed it once or twice in 6 months. I do, of course, intend to wash it a bit more often than that!
Hi debtex, sorry to hear about the situation with your dad. It must be awful to have this to contend with, and all the things that come with your treatment.
I know it would be hard to do but I really think you need to take a step back for the time being and put yourself and your health first. It really can’t be good for you sitting in a smokey atmosphere. Do you have brothers or sisters who could step up to the mark for a bit? My thoughts are, apart from our children, everyone else needs to take a back seat at the moment, hard as that might sound.
Hope everyone else is ok and had as good a Christmas Day as possible. Mine was the most relaxed ever, and was a great day.
Hugs to you all xxxx
Sorry, no advice re wig, I have never had mine out of the box!!! Total waste, I don’t think I will ever use it. I much prefer beanies. Don’t know what I’ll use when I go back to work after my rads :-/
4 weeks since my last fec and I can see hair sprouting roll on for some hair yay!!!
Debetex Sorry about your dad I would be the same couldn’t stand the smell of the cigarette smoke , it’s a hard call because he’s your dad and you only have one I lost my dad a long time ago and I still miss him.
At this moment though your own family and health is more important and your dad has to understand that.
Re the wig I ordered some wig shampoo from Amazon but baby shampoo would be as good,I haven’t washed my wig yet as I don’t wear it too often but I was told it takes 5hrs to dry and to put it to dry on a plastic wig stand,one came with my wig. Hope all ladies are ok today xx