Thanks ladies for your support . I had a sleepless night last night due to the steroids which I find do make me anxious and negative as well as sleepless . I will try to put the situation with my dad into some perspective . I am an only child so no one to share the problem with unfortunately . X
Hi all
Lah21 just read your post re wig or road kill that me me chuckle! i started wearing mine on my birthday so couple of weeks ago and im still getting use to it i think because im now use to thin hair and patchy hair my long thick wig feels totally wierd. I will have to upload a photo of me with my own hair and one with the wig.
Ive only bought 2 hats did try a scarf but i felt horrible in it this sounds daft but i felt it made me look ill and i dont want to look poorly.
Starting to think about 1st T on tue and dreading it i think ive read too many posts on side effects and scaring myself what will happen !. At the hospital tomorrow late afternoon for blood tests i really hate that place now roll on next couple of months.
Debtex hope your feeling a little bit better today the extra stress isnt what you need but must be hard espescially being only child. Xxx
Much love to you all xxx
Interesting to see how your OHs have reacted to this. I don’t think we have sat fiend to discuss it since I was diagnosed in September. His biggest sorry was how the kids were getting to school end I wrote up a rota for pick ups,clubs, rugby matches, shopping, taking me to hospital etc etc all he had to do was morning run but that was too much and the washing/dishwashing fairy is still very much a mystery.
He wants to come to surgeon and onc appointments but only to ask when I’ll be back to normal to look after him!
I know my OH is worried about me and tries to look after me by making me endless cups of tea and bringing breakfast to me in bed sometimes. But I need him to take charge of the housework etc so that I can rest when I’m feeling ill. He will do some jobs if I ask him specifically but would happily live in a pig sty so he wouldn’t think of cleaning the house if I don’t tell him. My mum sometimes comes and cleans for me but she’s getting older and has arthritis so I don’t like her doing it while he sits around. He’s not usually a great listener but I have found he’s better at that now when I need to talk about how I’m feeling. I don’t often do that though. I tend to keep my feelings to myself most of the time and tell everyone I’m ok. I don’t want them worrying about me. I know I should let them know when I’m feeling down but I can’t seem to do it. My sons are very good. My youngest is a clean freak and will help out when he can but he’s a chef and works very long hours. My middle son has really stepped up. It’s usually really difficult to get him to help out but he is doing anything I ask of him recently. I think he’s worried about me. It’s great that he is helping out but I don’t want him to worry. I’m just glad I have this forum. It’s great to talk to people who know what I’m going through and I can moan without worrying my family too much. So thanks ladies. I don’t know what I’d do without you all xxxx
I know how you feel nicnac. I start T on Friday and I’m really worried about how it’ll affect me. I’ve managed to land in hospital after every fec and like you feel like I’m starting all over again. This is the 2nd time I’ve felt like this as I was supposed to start it over a week ago and got delayed at the very last minute. Good luck. Let’s hope T will be kind to us. Sending hugs ? ? ?
I have been told earlier tonight that my good friend has passed away today. She was diagnosed with cancer 3 years ago, not bc. I am totally devestated and cannot believe I will never see her again. 50 year old, far too young to be taken xxxx
Murphy I’m so sorry to hear about your friend. 50 is far too young. This is such a cruel disease. Thinking about you. Xxxxxx
Murphy thoughts are with you at this sad time its definately no age to go. Xxx
LainieG Fingers crossed for both of us will let you know how i go tomorrow had the first 4 steroids this morning and another 4 this afternoon have you got to take the same dexamethazone. ?
Hi nicnac. Yes I’ve got the same steroid. Took it for a day last week before my treatment was delayed. Fingers crossed it goes ahead this time. Good luck for tomorrow. I’ll be thinking about you xxx
I’m so sorry to hear about your friend. Thinking of you xx
Such a young age Murphy sorry about the loss of your friend.
Taken 8 steroids like to take them early to try and lessen stimulation and lack of sleep. Tax 2 tomorrow not looking forward to it but will be glad to have it I know that sounds strange but after this one there is only one more to go !
Hope everyone is as well as can be today xx
murphy I’m so sorry about the loss of your friend .
I’m off to see my surgeon in a few minutes for my 4 month check up . I guess he will ask me if I want the cosmetic surgery which is to take some fat from my tum and put it into the left boob where I had the lumpectomy . Truth is whilst not perfect , it doesn’t look too bad , having had 2 surgeries already not sure if I can face a 3rd particularly as my stomach will have a scar too .
Still ok on weekly paclitaxel no dramatic side affects just salty taste And usual tiredness . Still don’t know if I need 4 more or 6 more depends on how far onc wants to push me ! Been to see horsey this morning . Ground too frozen to ride so had a play and brushed her etc . Have bought a fab dress for nye . Black , sequinned only £20 in sales . Now need some stick on eyelashes . Love to all x
Bettypoppit I’m having a reduced dose T too and I was told by nurse that it won’t make any difference to the effectiveness. I’m happy to accept that as I’m scared of the extreme reaction I had to the fec transferring to T. The nurse said it’s a real possibility so would rather not take the risk xxx
Hi Ladies Thanks for the good luck wishes tomorrow, if the SE follow the same as the last T I will go downhill when the steroids finish but the Oncogist said that is normal.
Although I took all the steroids before 1 pm I still feel hyperactive, last time I did Xmas present wrapping maybe Poppy will have an early walk but she won’t be keen on that as she is sleepy first thing.
BettyPoppit maybe we will still see each at hospital reviews hope you enjoy your extra week.
I had a reduced dose of FEC x2 and the Oncologist said nobody knows how much you need, I forgot to ask if the Tax is a reduced dose I’ll ask tomorrow.
Hope ladies having treatment them s week have minimal SE .
Evening all had my bloods taken all seem ok now ive had 4 week gap so its all go for tomorrow 2pm. Only got to to my onc registrar today as she was on holiday and last week poorly bit annoyed i always see someone different. Im wide awake had steroids at 9am and 3 pm today so will see how i sleep and adjust tomorrow. Good luck peta and zelda for tomorrow lets hope we manage the SE. Xx
The registrar said to me today i may not need the cold cap with the T drug as its the E in the fec thats make the hair fall and it should start to grow soon whether hes right i will ask tomorrow. they not mentioned rads to me they tend to do it on last blood results cant wait for that and nearer the end. Speak tomorrow hopefully xxx
Good luck Peta, Zelda and nicnac for tomorrow. Hope your SEs aren’t too bad xxx
Morning all,
well ive not slept all night due to streoids im knackered and still cant get to sleep seen every hour ! Fed up is an understatement and now im on countdown for this afternoon 
Thankyou lah21 xxx
Just adding my good luck wishes to Peta, Zelda and Nicnac for today - thinking of you, one step closer xxx
Good luck today ladies thinking of you
I’m still totally in limbo as I still don’t know what is coming next. More chemo or full mastectomy. This has been the longest month of my life!!! Have oncology appt tomorrow which will give his opinion if it has shrunk but scan isn’t till next Tuesday for confirmation and decision as to what happens next. Feeling a little withdrawn today and fed up.
Thinking of all the ladies today having treatment or having side effects from the treatment and sending you all my love and support xxx