Yes I had awful side effects on my first 3 weekly doxataxol and was in bed for a week couldn’t eat due to sore mouth and everything tasted of cardboard. So far this is so much better. Glad you are ok today x
Hope you are doing ok Zena and SEs are still minimal x
Hi ,
That’s was me ok Fec … in bed for 5 weeks and sick and weak …
This is much better.
Night sweats a bit gross though and cold then hot !
And a bit of womb ache but not sure if that’s period related…
how are you ? X
Do you feel you are recovering somewhat Zena? I do hope so …, are you able to mobilise a bit every now and then to prevent any dvts? Hopefully they are giving you meds to prevent these?
Yes holiday talk is really invigorating… want to go back to Oz this year but that would need notice and planning…,I wouldn’t have minded another canal boat holiday, but only as part of a group and would even then find it a bit difficult clambering in and out with nakkered knees!
Very sunny today…, fingers crossed xxx
Hugs to you… and you optimissyxx and everyone else xxx
Holiday to Oz sounds very exciting Moijan and would be something lovely to plan and look for ward to. I met my husband in Oz many years ago… love holidays and can’t wait to book one once treatment is over. I am having night sweats too Zena and can’t get right temp either throwing duvet and PJs off or putting all back on again! Doesn’t make for a very restful night. I have 2nd one on Wednesday but so far it’s a million times easier than Docetaxol. Hope you have had a good day everyone x
Hi claire
How was weds chemo ?
I’m going today … I found article thats interesting il try putting a link up .
Hope you ok ?
I’ve had lots night sweats and awake a bit in night … constipation too as notvtaken enough laxs …
Apart from that I’m ok, so hoping it continues.
Xxx
Hi Zena
Great your feeling ok but sorry about constipation hope they can give you something more effective. I am just the same night sweats and restless at night up and down to the loo a lot but feel so my h better than i did on on other Chemo. Hope today goes well should be quicker as no Herceptin. You’ll be having a sneaky maccies before you know it! I am looking at hols all day i want to head off backpacking for summer but it’s prob a bit ambitious love travelling !! Thanks for article will read now xx
Hope yesterday went well Zena and you can enjoy the weekend as much as possible x
Hey claire
How are you ?
I’m ok actually- although my bum a bit sore again . It got very sore on Fec - it’s like it’s burns my bowels ? And it affects that more than anything else … very painful…I’m taking laxs but it’s hard to get the dose right if you know what I mean ?
Night sweats not as bad as mo , but waking up in night and zopiclone useless …
I’m ok apart from that and basically leading normal ish life again which is great after such a bad time …
Tummy aches a bit butvthink that the laxs and a bit of the chemo burn …
Corded vein from Fec is annoying using tiger balm …
Hope you ok - 2 down Hun … ??Xxx
Hi I was only weekly taxol for 12 weeks and was fine just towards the end my muscles were a bit sore went for plenty baths and that seemed to help , apart from that I was okay ?
Thanks lane … good to hear that , how are you now ?
Xx
Hi zena75 I’m good thanks just a bit of peripheral neuropathy in my finger tips but I take amitriptyline and that helps hope you are doing ok xx
Hi Zena and Lane
My fingers are a bit sore - i have had 2/6 weekly but so far feel ok just bit tired and emotional. Glad amitriptyline helps with neuropathy Lane I am worried about how my fingers will hold out during the next 4 sessions. How long ago did you finish a treatment? Zena sorry you have a sore bum ? sounds horrible hope it’s getting better. I agree can almost have a normal life at moment. I do get quite bloated with the steroids which i don’t like and mood is up and down but got to keep going and try and get through this. My veins are still tight from FEC I have got a Picc line now which is so much easier. Hope you all have a good weekend xx
Hi Claire , I finished mine September last year and on the whole I felt fine just sore muscles in my legs but not to bad and the neuropathy in my finger tips but the tablets have really helped , hope it goes well Claire x
Hi both ,
The neuropathy sounds very Annoying but amiliyltrip is ok stuff so I guess that’s ok as it can be ?
Yes my sensative bum is now my nemesis… taking zomorph but that makes me constipatied so now on Laxs - big circle of SEs all the time it seems …
I’m not on steroids ?? Are you on gcsf Claire ?
I am having 12 x paciltacel and number 3 on Thursday… no neuropathy yet … only my said sore bum …
I have had a pain just above my bad boob in upper chest today - quite a sharp stabbing pain … I have lymph nodes involved and worried it’s one of them flaring up . It feels like that …
might call gp tomorrow. Also need to try for ds1500 form for pip . As I’ve been so debilitated with all this.
Still waking up in the night for hour or 2 and xopiclone didn’t work ?..and hot sweats come over me a lot but just manageable .
Glad you all ok both .
Zena xxxxx
Hi zena75, yeah it’s more annoying than anything else and the tablets do help, I hope you get through yours with no other side effects as if we don’t have enough going on , I’m just so happy to have finished treatment xx
I bet you are … I can’t wait … I’m using cbd oil and just posted this on another board so il copy it to here ., it maybe why I’ve had no neuropathy at all … who knows ?? Xx
Hi ,
I’ve been using cbd oil for 4 weeks , I’m sure n paciltacel for weekly x12 and am on week 3 . I have no neuropathy at all and my SEs are almost nothing… only hot sweats ( about 6 a day ) and awake a bit a night but I always did that anyway…
il post link for taking it with paciltacel and find out where my friend gets the oil .
Zena x
puresciencelab.com/cbd-can-protect-breast-cancer-patients-from-chemotherapy-induced-side-eff…
Forgot about the bum thing but I think that is left over from what vile Fec did to me anyway and I’ve not had a chance to heal properly x
I was started on fec at beginning had 2 doses of it and ended up in hospital after each so oncologist changed me to weekly and that was better, my neuropathy started towards the end , I do hope your oil works for you zena x