Wow Zena - pcr - how amazing!!! Makes all the cr*p of chemo worthwhile Very happy for you! Surgery this wk for you - good luck!! Sounds like you have a few decisions to make. Where are you being treated? I’m in London. Just had another cancer curveball thrown at me though - had to do a load of biopsies on sat as there is a large area of calcification… so I might also be having mx. Just when I’d got prepared for lumpectomy… always was told I’d need mx but as my tumour shrunk so much they said lump plus rads is just as effective. I hope to get my results later this week and think they are sending me for another MRI scan…
good luck with the gene test. Mine was negative - big relief! Good luck with the op - let us know how it goes xxxx
Hey ,
My thinking is mx maybe better as then no worries of cancer returning ??? Harder to deal with losing whole boob but after may feel safer - guess that’s what I’m telling myself… still traumatic Hun though I know .
What is calcification?( More stuff to worry about )
It never bloody ends !!
Hoping it’s ok for you sweetie and we both end up with good results, minimum scaring and no sodding cancer … been looking at diep pictures , some look ok so hope I have the option and strength to go for that as would be good to feel as normal as possible in the end .
Let’s keep in touch through next bit , lean on me and moan and worry if you need to , as I will
Ps sorry - absolutely fabulous about gene results , what a relief Hun . Some good news is very welcome ???
Cheltenham babes , sorry again lol xx
Good luck Zena and any other ladies going to the theatre this week.you will all feel so much happier once its overxxx
Moijan???
Good luck to you all having surgery and great news about your gene test WTP2016. Zena so happy you got PCR you had such an awful time in the first few chemos that makes it all worthwhile. I am still having Herceptin and monthly zoladex injections which are giving me awful mood swings. Once my bloods show I’m post menopausal I will have biosphate infusion you mentioned Zena. Anyway lots of love and healing xx
Hi girls
My gene test negative too !
So surprised.
Changed to wle on 13/7 as mx freaking me out .
If I get clear margins it’ll be great if not mx butvthsts ok.
Much love xx
Hi all,
Yay! Congrats on negative gene!! I was slightly and strangely disappointed as I think I wanted something to blame but obvs better to be negative!
My bad news… they biopsied two extra areas on my boob - away from the main tumour - and found LCIS, DCIS and IDC ? So I have to have mx - no discussion!! I also can’t have recon as waiting list will be too long and as my last chemo was 1/06 they want to whip it off asap as there is still active disease. Super sucks!! I had 4x EC (high dose) and 10x tax. My onc said I’d had “A LOT” of chemo and yet the b*stard is stil living - not just in the main tumour.
I really am starting to feel like I’ve met my match. That this stupid disease is going to be what kills me. Sorry - slightly tipsy and slightly depressed!
Xxxx
Blummin heck you guys … blummin cancer sucks ass big style.
I wanna punch it in the head !!!
Get it off then have a super dooper new boob hunny after rads like ms m says , rads can mess up healing process so not worth risk …
it’s not going to kill you hunny as you are getting shot of it soon , and rads will do the rest . The fact is you’ve just had the reoccurrence already, instead of down the line. This way your treatment will be all done in one fell swoop … please stay positive and I’m super loving you were tipsy , I’m getting tipsy a bit too nowadays and it’s good to be back drinking , although the hangover brings me down a bit .
I hope you feel ok this morning, you can always pm me if you wanna private chat hunny .
I’m now worried as wle not for 2 weeks and I can feel pains again in my boob and armpit. My onc also said I had a lot of chemo… 2x Fec and 12 PAC … so don’t want that to be in vain as will be 6 weeks till op from last Chemo’s
Oh the joys of this evil disease
Big love
Hi guys! How are you? Thank you for your replies ?
I’m home today after having my mx last night. They also took lymph nodes - I don’t know how many but my surgeon doesn’t believe in taking them all so it wasn’t all of them…
In the end I wasn’t even able to get an expander implant as that would mean waiting until early August… so here I am, flat on one side and E cup on the other! To be honest, the worst bit was waiting to go in for the op. The swelling and bra with softie in is tricking me into thinking my boob is still there.
I felt relief last night but now feel like the cancer must still be there - I’d got so used to it over the last 7 months!
I’ll get my report on the 24th so fingers crossed.
How are you all doing? Xxx
Hey ,
Who gives a **bleep** about flat Boob Hun , it’s gone !!!
Well done you xx
I’m so fearful about op it’s unreal. Il book ticket to India to get away from it .
Just realised how much I love my body , after years of cursing it !
bloody Cancer sucks - so funny the cancer still there thing , like a scab we enjoy picking.
Sends my you massive hugs W , you are super doop , and I’m proud of you xxxx❤️
Hi Zena, how did your op go? Hope you’re feeling ok!
I’m well, loads of swelling (my surgeon doesn’t like to use drains) which is a pain but bruising is going down now and movement in arm is better with the exercises.
Thinking of you! Xxx
Hey , was just gonna check in with you too , how funny .
I’m ok , sore but had WLE and 6 nodes removed in the end as onc said no sign of cancer in MRI let’s just take a few and see …
Brilliant surgeon, little line around nipple and under arm but such a neat job I’m thrilled, no drain either so I’m sloshy and uncomfortable., I’d like it drained as it’s uncomfortable but have to wait till tues for bcn s to be in.
Yea doing exercises and so hope we get back to normal asap , but hard not to clean and do stuff , want to go to Bristol too to Chinese super market as I’m craving these noodles they do there … ?
We getting there girls, big hugs to you and Claire xx and M ?
Awesome - so glad it went well for you!! Do you know when you get your histology report? I was due mine tonight but we’ve gone away for a few nights so they are going to give it to me next Monday. Keep thinking the worst I’d clinically had a great response to chemo but then we found out there was more cancer than we’d thought so now imagining them telling me the response wasn’t great, doing another CT scan, getting told I have mets etc. I think I’ll keep working myself up until next Monday evening, you know what it’s like…
Are you on the YBCN group on Facebook?
Hope everyone else is doing well!
Def get yourself some of those noodles - think you’ve earned it!! Are you in the SW? We lived in Bath until about 5 years ago
Lots of love xxx
Oh god I know - freaked out about results… and the bloody what ifs again !!
It’s good you are away so taking mind off it a bit ( if that’s ever possible)
I’m in Ross on wye… baths lovely ?
You had mx so they would have got it all out , try not to panic as not good for you . It’s good they found the other bits and got them, shame about mx I know but recons are amazing , I would def have flap recon after mx . I may still need mx so just trying to imagine the worst , like you my mind does that xx
Histology 2-3 weeks, ?
Hi Ladies
So glad your surgery is done and your both recovering well. Waiting for results is mental torture isn’t it. Have either of you had Zoladex injections? I’m on tamoxifen and monthly Zoladex but my mood was so low have stopped the zoladex for now. It seems to affect everyone differently. I had a diep flap recon if you want any info. Hope you have a nice few days away and wishing you both good news on results day ???
Hi ladies,
How are you? I’ve not been on here in ages… I’m halfway through rads now. Got delayed due to a huge seroma which wouldn’t go…
Sorry to hear you’ve been low Claire. I’ve been warned by an onc that the drugs can really affect in different ways but not to underestimate the “mood swings” as can sometimes go to the extreme of sucicidal. I’ve not started any yet - they are waiting until after rads but so far only been told tamoxifen…
How you all had a lovely summer.
Sending hugs xxx
Hi
Great to hear from you sorry to hear you had a seroma. I had a small one after my diep but it went after a few months of being drained. Hope rads are going ok it can make you feel really tired by the end but apart from that I felt ok. My moods are up and down I’m just on tamoxifen which is fine but going to give zoladex another go to see if I can tolerate it any better. Went back to work last month which is great finally a bit of normality in this strange end of cancer treatment world! How are you coping ?
Xxx
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