Thank you for all your replies I am seriously considering using the CBD oil, the way I feel is what have I got to lose and hopefully it will keep the neuropathy under control. Ann xx
I agree . Cibdol Swiss company x
Hi Zena
I too crave sugar… one thing I have read is that steviol is an acceptable alternative… there are sugar free sweets with St oil in them… beware of other sweeteners some are monos for us and can cause diarhoea which sad to say… Apple juice overdoses and chocks can also do!
Anyway… best’ check out’ new diets before plunging into a new regime… as a see several drugs react with certain foods. … see the Mayo Clinic website
Hugs
Miijanx
Should read 'several sugar free seeets with Steviol in them rather than sugar!
That’s good tip moijan . Will buy some and try . Thank you ? xx
Saved the day again x
I have ordered some CBD capsules from a UK company to give them a try, they are 10mg ones which they suggest as a starting dose twice daily. I am hoping they don’t upset my tummy to much,as I am susceptible to IBS. I did a bit of research on this company and their products,which include a Body Salve to massage into painful areas so I may get some next time. Ann xx
Go easy , I think open capsule and have half 3 times a day . 10 sounds a lot tbh … up to you but may be quite a strong dose to start …
it tastes really really bad so have squash ready xx
Just read the brothers reviews . Seems high doses are normal. So I guess 10 mg not that high a dose . Let me know how you get on and how it feels xx
Hi ladies, how are you all? Just checking in!
I had my 10th tax on Thursday (missed a couple due to low neuts) so my onc decided it would be my last one - instead of going to 12. Yay!!! So I’m officially finished chemo. I’m seeing my surgeon on Monday to work out what the surgery will be in 3-4 wks time.
How are you all doing?
Lots of love xxx
Hey .
Me too , finished last Thursday ??
Got mx on 29/6 … and lymph clearance.
Getting bit worried about op and what it will be like … but also feeling a bit of pain on boob and arm so very keen to get it gone …
Can’t wait for my hair though … fed up of wigs and hats …
Good to hear from you Hun … what drugs are you going on after ?
Xxxc
Hi Zena
try Heather’s Hair…am wearing a false fringe under a scarf and its sooo coolxx
Have pmd u agaijxx
Hey ladies
So glad you have both finished chemo! Won’t be long until you start to feel better more energy and eyebrows and eyelashes ? I finished radiotherapy 2 weeks ago. It was absolutely fine compared to chemo but I did develop a few nasty burns which are healing now. I’m still on Herceptin and tamoxifen and also zoladex monthly injections so my moods are all over the place.
Good luck with your surgery you will be fine I think the anticipation is must worse than the actual surgery
Claire xx
Hey ??
Good to hear from you Hun … brill you doing so well … go girl !
Yes totally freaking out about op as all lymphs coming out too ?.. but just talking to a lady who said she’s back to full use of arm 3 months after so that a relief.,
Yes rads sound a bit crap ., glad you healing … my st be great to be at end of all of that …
The night sweats are better now … and my eating getting slightly back to normal.
Boob and armpit hurting a bit so il be glad to get op done …
Much love ladies 
Hi ladies,
Good to hear from you all!
Claire - well done on finishing rads! How do you feel? Is it a bit strange to be out of the main treatment (despite all the ongoing drugs)?
Zena - I’ll be thinking of you on op day! Mine is booked in for 6/7 and we’re going to try a lumpectomy! I have to have another biopsy this wknd as there was an area of calcification that they want to check first but if that’s ok then lump rather than MX. I’m not going to get too excited in case we end up without clear margins but I’m obviously very pleased… they are also only taking a layer of lymph nodes rather than all of them in the hope that the cancer will be gone from there.
How are you coping with the heat? My hot flushes have calmed down too… I’m sure they will come back on tamoxifen though ??
Lots of love xxx
Hey wtp
And all
Got a pcr after MRI on Sunday ?
Feel so good … almost normal.,
Almost like I don’t need op …
I’m getting really worried about the op now … mx and node clearance. Got appt with surgeon day before so maybe as pcr things could change , although genetics haven’t come back and they could be bad .
This heat is crazy, so hope it’s not like this while I’m recovering as that would be awful ( for me)
Brill news on lumpectomy Hun , I’m tempted to push for one myself but then my history n’all think I need to think about how scared I was about Dying and how mx could save me going through this again .
Il miss my boob so much though , and how will I cope in the summer with clothes and trying to feel sexy ., oh dear what a moaner … I’m alive and have a chance , watching that terrible fire the other night as my insomnia keeps me awake I felt so grateful to just have to have a mx …
God waffle sorry .
Much love
Sorry meant to say good luck with biopsy hunny and let us know xx
And hope you feeling good claire sweetie pie xx
And big kiss M xx
Dear ms Merton
Gosh thank you for posting that to me , I’m so worried about my op and how I will look/ feel and recover…
My surgeon said diep recon will get damaged with rads ???
I don’t know what to do, thinking of refusing clearance as I had a pcr after my neo juvant chemo .
Zena xxx
Again that’s great advice. I had level 3 nodes and large tumour .
So based on what you have said I will go with anc
I’m so glad you love your foob and I’m sure it will be ok , as you sound such a positive person and in a good place now .
I can’t live without boob so il chat with my surgeon again before op and see if I can have recon or something like you said , I m 42 and still feel my boobs are important .
Much love to you and thank you so much , I hope it’s ok if I ask you questions if I get them ?
Zena xx
Hi Zena,
I had the lat dorsi flap recon, overan implant. Rads or something anyway made it go very hard. i kept having i fections and eventually had to have it removed. That was my experience…now I wished Id had the rads before the recon…but will never know xx
best wishes whatever you choose.xx love to you???
Moijanxx
Ms M
Yes it is crap, to think of what we have, are going through.
Surgery scares me I can’t believe I will wake up with parts missing . Anyway il go for diep flap after rads I think , if I can . Still waiting for genetic test to see if double mx is needed.
Any of you ladies on biophosphates for protection against bone mets ?
Xxxx