Oh dear back to “snotland” grumpy, lets hope it’s over quickly this time.
Had a phonecall from doc no C problems woo hoo but a couple of other things have popped up so more blood tests and further investigation into faint so am very pleased with one part and a bit mmmmmmmmm about the other!
Hope you are ok JCJ. xx
Thanks for the support - and hugs - ladies. Hugely appreciated. It’s so good to know you’re all here rooting for us! 
OH is still very upbeat and positive (at the moment: - he does sufer with depression, so I’m bracing myself for the fall!) and so I am determined to be too. I’ve spoken to colleagues at work who were very supportive when I had a mini melt-down this morning (can’t do it at home, and the tears just came out when someone asked how OH got on yesterday!) Starting to hear of people who’s life has hardly been affected by PD diagnosis, so I’m feeling more positive. Also we’ve talked some more, and although doc says OH has to inform DVLA, she will say that his driving will be totally unaffected. Phew! I thought he was going to have to be re-tested at best, or lose his license (and independence!) We discovered yesterday that he’s in good company: Billy Connolly was dx with PD in September this year!
YD has texted to say she’s making and bringing the welsh cakes (family tradition! Excellent antidote to all that rich food!) and all the alcohol for Christmas.She’s also driving over to help me make mince pies on the 7-8th December. GF is letting her have the car on the understanding that she takes some back with her! Really love it when we make the pies together as it seems so much less of a faff, so mI’m really looking forward to it!
Just been actual shopping (as opposed to online shopping, which I have also been doing tonight!) and bought a lovely jade-colour teddy throw (not a strange toy missile, but a thick-pile fleecy blanket) It brings on the hot flushes just LOOKING at it - nearly passed out carrying it around the store! - but it will be fab for YD’s flat which is always so cold. YD was admiring them last time we were in the shop together, so I hope she’s not got herself one!
Staff and children at school dropping like flies with the stomach lurg. I’m very glad I didn’t have my immune system destroyed last year, and am hoping that my current slightly gurgly stomach will be all I get. Fingers crossed!
Hope the “snot fair” (as in it’s not fair?!) doesn’t last too long Grumpy. I hope you’ve got pet insurance - all those anti-b’s must be costing you a fortune?
Right I’m going to change into my nightie and knit a rat!! (As you do???!! :p)
JCJ - my friend with PD has continued driving since dx 5 years ago, and she’s just had her 70th!!! and she flies off to all kinds of exotic locations without any problems, on the principle that she won’t be leaving any money to her only daughter, just a house - so there!!! She hasn’t found the PD affects her temperament so hopefully your dear OH won’t get another bout of the dark clouds. I do wish you both well and I’m sending you lots of hugs - your OH can have hugs too, altho my general rule is I do only AIR kisses to husbands, so MWAH, MWAH!!!
The Snot’s Fair Fest is improving - no I don’t have pet insurance, as for two 7 yr old dogs, when I adopted them, was WAY too expensive. Instead I keep a lump sum in the building society, referred to as the Dogs Bank Account. I’m sure Millie believes she will outlive me, and be able to go to Euro Disney on the leftovers.
Got some steroid cream from the GP today, as my skin is getting a bit eczema-like. Does anyone have this s/e? It’s a bit of a bu##er as I wake myself up in the night scratting at my arms and legs - so I’ve cut my nails REALLY short!
love to all
grumpy
grumpy, poems had something itchy, mine was like heat spots so i think it was def an allergy to the new washing powder, gone back to old one and it’s stopped:smileyhappy:! it maybe something like that.
JCJ so glad you have posted, a man i knew through work also had PD, in the 10 years the only noticeable difference in him was shaky hands, saw him again after a space of around 6 years and he is also still driving and doing like grumpy’s friend all the things he’s always wanted to do (he’s now in his 70’s), so very hopefully things will not change too much for your OH, the medication does really seem to keep things under control, it’s just such a shock, big hugs to you xx
beautiful sunshine here, slept in this morning, did not hear my alarm and YD did not hear hers so she was late for work, first time ever. i feel soooooooooooo tired just now, thought that it was all the meds and obviously whats been happening over the last few months but did a bit of Dr google and symptoms are associated with blood level results so am feeling hopeful for the first time in ages…keep your fingers crossed for me girls:smileyhappy:! would be great if i felt more like myself.
Kay, are you still pottering and will your kitchen be finished soon?
Away to sing Grease songs and settle back on the “CBA” bench xx
Grumpy - I have steroid ointment for an itchy condition/rash/eczema/whatever it is that I have. It’s only on my back so I have never seen it! A contortionist has nothing on me while trying to scratch it and I find it is worse in bed when I’m warmer. The steroid ointment usually clears it up quickly but it leaves skin very dry so use plenty of moisturiser in between applications. Hope it’s better soon.
JCJ - I also know someone with PD who is living life to the full. Hugs to you and your OH
Guess what happened yesterday…I had a new gas hob fitted!! It’s only taken me nine months to get round to it. I could have had a baby in that time!! Didn’t even use it as dinner was cooked in the oven.
This morning I’ve done some internet seasonal shopping (I refuse to name it, it’s too early). Bought the grandsons DS games and some books on their favourite subjects. Bought some vests as well (I’m turning into my Mother…“have you got your vest on? Must keep your kidneys warm”. Why? What does having cold kidneys DO to me?) Sorry, I digress. I looked at an item that grandaughter wants and it’s plastic tat and will probably break as soon as it’s looked at but what do you do? I’d rather spend twice as much and get something that will last but she wants the tat. Arrrgh.
Right, I’m off…it’s lunchtime…might heat some soup on the new hob…or have a sandwich and keep it clean and shiny!
Visited the “CSL” bench this afternoon and have managed to fill a few buckets which will be emptied into the lake as soon as:smileysad:! Have had so many things going on over the last few months and have been putting a brave face on everything, today brave face has disappeared completely…so deep breaths, calm down and get on with things,will move to the “teary” bench shortly. Hate the “CSL” bench!
FF a baby and a new hob woo hoo!!!
And a start to the **** shop,woo hoo!!!
Bought for GD the slippers that do “things” all the reviews say that they stop working etc but she had her wee heart set on them so I know what you mean FF.
Bought ED’s gift, so only sweets and YD to do may just pop over to the “smug” bench instead xx
Hope you feel better for shedding those tears, Katy. Did your blood tests show low haemoglobin/iron?? I only ask because when I was anaemic I was desperately tired (and prone to tears!!) all the time. I was prescribed ferrous fumerate solution (molten chocolate mint flavoured nails!) because I didn’t want iron tablets…had to have them when pregnant and they made me sooo constipated!! (TMI??) Anyway, iron meds made me feel so much better.
FF’s got a bun in the oven tee hee hee. :-D
Right, must drag my swim-weary bones off to find my pudsey T-shirt for tomorrow. Spotty day at school for CIN, but I’ve not got anything spotty (not even a spotty face any more…thanks to Zoladex/Tapoxyfen cocktail!!)
Our village primary school is doing a Pyjama Day for Children in Need… I must walk past the school at playtime tomorrow…
Itchy skin getting less itchy so the stuff is working. Why am I making such a fuss about a minor condition??? Oh I know, cos it reminds me I’ve had BC.
And today is the 3-year anniversary of my WLEs - and I was told NED on Christmas Eve 2010. What a wonderful Christmas present that was!!! So having a celebratory noggin tonight in thankfulness for our NHS.
grumpy
3 years grumpy, celebrations indeed, don your pyjamas or bikini (lucky girl), hope your snottiness is lessening:smileyhappy:!
JCJ, vitamin B12 deficiency and low blood sugars will be retested and also tested for pernacious anaemia, still haven’t made my appointment, just felt overwhelmed this week:smileysad:!
How is your OH doing??
It’s FREEZING here and forecast is for it to get colder next week??? really??? Am back to wearing my ten layers of clothing and my big coat, can get my arm in my coat now, woo hoo so can wear my sling on the outside, that means I can zip up my coat, takes ages to get organised whew xx
Not surprised you feel overwhelmed, Katy, but the Vit B12 deficiency causes a sort of anaemia which will make you feel exhausted. It’s easy to treat. My sister has regular injections to sort her Vit B12 out and she feels sooo much better. Once you get it sorted out, you should get some of your mojo back - you just need to find enough mojo to get it sorted. Catch 22?? It’s also an explanation for your ‘black out’/fall that is MUCH less scary than other possibilities.
OH is still OK. He doesn’t seem to be at all put out by his dx. I wonder if he is in denial? He took one tablet, but I notice he’s not taken any more, but the specialist did say some people like to defer taking them because they have a reduced effect over time, so his shaky hand is still very much in evidence (and still annoying the hell out of me - but it’s his body/his choice)
Had to properly scrape my car windows this morning. 
Winter has arrived. I was thoroughly cheered, on the drive to work though, by the sight of the High School kids walking to school in their onesies - (including a hulking 6ft lad!). Remined me of our high jinks - although none of them were purple fleece, rhinestone be-decked, or teamed with Doc Martins and/or skates! One of the Y6 boys at my school had a bright yellow fleecy Pudsey onesie on all day too. Brave boy.
Glad it’s the weekend. I’m headed for the cream crackered bench - when I’ve just been down to the chippy to fetch my fish supper! Nom nom nom
Wow that’s amazing that your sister has B12 def, have never heard of it before! When you Dr Google symptoms don’t seem to match mine but when I put in things individually it does match!
It may even be why I have Burning Mouth Syndrome, fab to hear your sister is doing so well. I feel quite excited because if it is, a lot of the problems I’m having will disappear. If you don’t mind JCJ can you tell me what your sister’s symptoms were prior to diagnosis?
mmmmmmmmmm about OH, it’s very difficult.
Also went to chippie tonight, yummy yum xx
Thanks Ali for that information, I remember getting up, feeling normal, going to the loo, suddenly feeling really sick, then dizzy, then a whooshing noise, then wakening up on the floor! Think the B12 thing can be similar too, personally I’m just sooooooooooooo much hoping that whatever it is will be resolved soon as each day passes I just feel so tired, doesn’t matter how many hours I sleep so know it’s not normal:smileyfrustrated: !
Lovely that you will see your son, he’ll have lots of news for you, sooooooo exciting:smileyhappy:!
Went into town with GD yesterday and she came running over with a toy CAMEL, she had some pennies to spend and bought it, she was really excited, camel has 2 humps and had a bell around it’s neck, Hump and Dink watch out!!! Brought a huge smile to my face, camels are everywhere:smileylol:! xx
Ooops forgot to say some people know how to just put their big, fat foot into it and more hee hee, just think of the camels Ali and don’t care xx
Katy, I can’t remember how it was first discovered, but sister’s blood problem was initially a rare condition where she produces too many platelets (sort of the opposite of haemophilia!). They’ve spent ages balancing everything out - too many platelets = not enough of other types of blood cells. She was fine, just having regular blood tests, injections sometimes, I think, and medication. I only heard about it after she was hospitalized with, completely unrelated, gastroenteritis. Of course,with the upset stomach (to put it delicately - I’m eating breakfast!) the balance of her drugs was lost, and she was very anaemic for a while and felt completely lacking in any ‘get up’, never mind ‘go’. Symptoms much as you describe. After a course of vitamin B12 injections (not pleasant, apparently, but definitely worth it!) she was fine again. Back on regular (3 months???) blood tests to monitor her. She’s gadding off on holiday every few months and regularly travelling to babysit her grandsons in school holidays (son & d-i-l both work!)
I hope they manage to sort you out. I know how utterly demoralising it is to feel so exhausted all the time. Hugs x
PS You got up “feeling normal”, Katy? No wonder you fainted… Such a shock? :smileytongue: xx
:smileylol::smileylol:, Good job I’d finished my muggatea or there would have been splatters everywhere:smileylol:!!
Hahahahaha, will be smiling for the rest of the day, thank you xx
How lovely Kay, have you been shopping abroad before?? Always looks sooooooo good!
Good to hear you are still pottering as obviously kitchen will not be finished until that tea bag thingy is in place:smileywink:!
Brrrrrrrrrrrrr another cold day here but we have sunshine again, the “CBA” bench seems to be my favourite just now, have 3 hos appointments next week (not BC related) 2 in another city which means I will have to get up really early, oh deary me:smileysad:! Bus for one and train for the other, not filling me with joy:smileyfrustrated:! Will have to get onto the “well, will have to just get over it” bench:smileywink:!
Can’t believe the time…where has the morning gone??? Hoover is calling from the dark, dark cupboard, should I just ignore it?? xx
Forgot to say keep bursting out laughing re:
PS You got up “feeling normal”, Katy? No wonder you fainted… Such a shock?
Just LOVE it JCJ xx
Glad it amused you, Katy. Pleased to be of service; and relieved that you were well enough to see the funny side and not take offence (not that there are any fences in Benchland, as previously explained: they are all in "Stupid things non-cancer people say"land!)
Lock the door on the dark dark place and leave the hoover to it’s own devices - it’ll get over itself and pipe down eventually! (hahaha unintentional pun there - unless you have a pipeless upright hoover? Oh shut up JCJ!)
I’ve showered, stripped the bed, sorted the drying laundry and done my ironing this am (not bad considering I was on the CBA bench until nearly 12?!). Turned on the computer to print some ‘inners’ for the December birthday cards I’ve made (12 of them!!) and spent an hour doing everything BUT that! Really behind this year. I’ve got 40+ Christmas cards to make and I’ve not made one yet! (bought some "handmade for you by JCJ" stickers, but have nothing to stick them on yet!! :p)
Talking of CBA - I saw a car parked in hte village where I work. It’s registration was: Letter, Number, CBA. Saw it and thought of you all! Perhaps that IS the CBA bench? Warm and comfy and you can get it to take you places?
OH is still fine - better mentally than he’s been for years. He said he’s not taken his PD meds this week because he read the side effects leaflet in the box (bad move! ), and depression is one of the ‘common’ SEs. (that and, among other things, obsessive, compulsive behaviour!) He just couldn’t face it: been there too often already. Can’t say as I blame him, but I did repeat what Dr said to me: “Don’t LOOK for SEs!” Maybe the Anti-D meds, he’s already on, will prevent it? We thought Tapoxyfen is bad for SEs - you should see Rasagaline - and it’s for life, not just 5 years!! Perhaps the shaky hand can be put up with if he’s feeling OK!! I just worry that if he doesn’t take the meds his condition will deteriorate faster. He says not. Says doc said some people delay treatment. OH asked what she’d recommend and she said it’s up to him, but she’s recommend taking the meds. Wish I’d been at the consultation with him, as I know from past experience, that his version of events isn’t always the same as everyone else’s!!. (But he’d get in a right ‘ar*e’ if I suggested that to him!! :p)
Well, I totally ignored said hoover, it’s NOT coming out of that dark, dark cupboard…
For being on the “CBA” bench you have managed quite a lot JCJ:smileywink:!
All the fencing talk has left me confused (unable to find my marbles) when I was a schoolgirl one of our activities was fencing so am a dab hand at feint attacks, ripostes and lunges:smileywink:!
Aaaaaaaaaah your OH, so hard when you are not aware of the whole picture, if you read side effects on any medication it’s scary stuff and like your OH find it amazing that some of the effects are ones you are taking the meds for??? Did he come with you JCJ? If so you may be able to drop huge hints about coming with him for next visit, just wishing the best for you both xx
Katy, I DID ask to go with him, even got it cleared with my HT, but he didn’t want me there. I’m not one of those bossy wives that try to take control, so I let him go by himself. There is a website, similar to this one, for PD so I may ring their helpline to get reassurance/advice. I’m just going to focus on the fact that if OH is happy, I should be. He won’t let me tell the ‘kids’ until he sees them in person. ES was here last week so we probably wont see him for a few weeks at least, and YD scheduled to visit 7th Dec (for mince pie manufacturing marathon) so I’m struggling a bit to know what to do when people ask. Hence unburdening myself on here - thanks ladies!! x
Kay, I meant to ask earlier: If you don’t mind me asking. I may even have asked you before - (I, too, am missing a marble or 6!) Is it a local firm (can’t even remember where you live :smileyindifferent: - I’m in the midlands) - or a national one that is doing your kitchen? Would you recommend them? I only ask because I’d love to have a new kitchen but don’t know where to start. They’re so expensive and I don’t want to be ripped off! Feel free to PM me if you don’t want to name names publicly! If we have any money left after cavity/loft insulation (thoroughly researched company coming to survey on Tuesday…I got my act together after b******king OH about cold callers!!), I may start pestering OH again about kitchen (what was that about not being a bossy wife?? :smileyembarrassed:)