Hi JNRA
I feel all the stress and worry in your message. Firstly, don’t jump to conclusions about losing your breast or your hair because not all women have the same type of treatment. It’s quite normal to feel worried about the future but for the moment, just take one little step at a time. Sit down, take a deep breath and tell yourself “I will get through this”. They will need to do a biopsy to find out the type and adapt your treatment. There are a lot of people on the forum that will help in any way they can. So sending positive vibes your way today.
2 Likes
Hi, my journey sounds similar to yours I’m 43, I told my two kids 19 and 15 as consultant advised me that honesty was best as they were at home and would know something was up. Hardest thing I’ve ever had to do but I feel like for me keeping normality enabled me to keep strong. I was at my laptop 3 days after my mastectomy (20 May) and I have to go back and have my nipple removed next week as I had a marge amount of DCIS in the removed breast. I had reconstruction at the same time so hopefully nipple is the last thing. I was ER positive too. Try to keep a focus maybe on your work as it sounds like you’re awesome at your job, well done you’re clearly a powerful lady and draw strength from that. It’s hard and I focused on work and getting fitness levels up before my op, that doesn’t mean it’s a breeze as I had bad days, but having a positive focus can shift the negativity and bring forward the positives. Going through this will undoubtedly make you stronger. I accepted the cancer in the end as a part of me, one that would be gone or managed but a part of me. It’s so hard but we are all pretty damn amazing on here and you are no exception to this. All the best and remember when you hear the word cancer think of it as “can I do this? Yes I CAN-SIR” and change your brain’s perception of what the word means. You’ve got this. X
3 Likes
Thank you and glad you’re on the mend. My mum ended up telling my daughter as I couldn’t keep it together but we spoke about it after and she just kept asking if I was going to be okay 
but was fine. It’s a relief she knows so just have to get through this now 
@jnra Hi 
totally understand it’s a shock but you will get there. I was diagnosed with DCIS which resulted in a masectomy. Having a family to rally around you is crucial
Try not to think about too many things otherwise you will wear yourself out mentally. Lots of love and hugs 
1 Like
Evening all, hope everyone is feeling okay. So I had my second ultrasound today to see if they could identify other abnormalities that came up in mri but surprise surprise he couldn’t see anything. TBH I could have told my oncologist this as they done a thorough check the first time. So now I have to wait to see him on 17th only for him to refer me for a core biopsy. So far I have had three mammograms, two ultrasounds a biopsy and a MRI. I know they’re being thorough and I appreciate it but this just seems to be taking too long and I’m worried my tumour is getting bigger. I was first told I had BC on 26 June but at this rate I probably won’t even have a proper diagnosis until mid August. Is this normal, has anyone experienced anything similar? I’m thinking of talking to PALS to see if they can help push me this through faster… so stressful!!!
From what I have heard from others this is normal and in many cases people have waited longer. I’m not saying that this is right just that I know it happens . Not everyone needs the MRI and extra scans - I did not but for those of us who do it can be a long frustrating wait . The worry about the tumour growing inside you while you are waiting is very common. I had a failed procedure that I knew had failed at the time but the wait for that to be confirmed seemed interminable and I had all sorts of twinges which I kept thinking was my tumour growing but I’m now sure was psychological . It is frustrating and it’s scary but it’s important that they get everything right so that you can get the right plan and the tumour won’t be growing significantly in the meantime . Xx
1 Like
Thanks that’s make me feel better. I’ll leave PALS for now 
but it is a great service, I managed to get my ultrasound a week earlier by speaking to them 
It’s often worth a try as they do get cancellations which have to be filled xx
Ive recently got Warrior pants put them on and am ready to fight every lump bump etc
I had great difficulty in accepting etc not now
Having accepted I am an Addict and always will be this beast is not going to beat me
Carry on as normal as you can acceptance will come after all you have got breast cancer its Not the end of the world youve got this
1 Like
Hello all, hoping everyone is as good as can be. So I’m still going through testing. It’s now been 4 weeks since I was diagnosed.
I was referred for an MRI biopsy as some other suspicious legions (in addition to main tumour) but they have refused it so now I’m back to my hospital for some more 3d imaging. Has anyone experienced this? Not sure whether to see it as a good or bad thing… 
Hey @jnra - was looking for a reply in another thread and came across this thread. How are you getting on? Have you had surgery yet, and/ or a treatment plan? Hope you’re feeling a bit better about everything. Let us know how you are. Lots of love xx
Hi
6 weeks into testing with no end in sight, diagnosed with hr 8+ pr 7 + HER - had multiple biopsies mammograms ultrasound and MRI now back for another mammogram biopsy because area of concern could not be be detected on ultrasound
It seems like a never ending story main tumour 28mm grade 3, no end game for surgery, which is annoying, after initial shock I am relatively calm, as if I worried about getting run over or stabbed or any other thing I would never choose to leave my home you just have to carry on living.
3 Likes
Having read this although not the same as I’m triple negative it’s made me feel better.
I am 11 days post wide excision and I’ve been in some very dark places with google. Yesterday I started bleeding , had pain immediately jumped to worst case scenario but it’s looking like a uti . I’m just 53 and post menopausal. I’m terrified but I’m hoping I can muster that strength and become more positive and get back to enjoying the little things in life .
Thanks from me. Xx
3 Likes
Still waiting for me , more tests more waiting actually have a meeting with breast surgeon on Wednesday so hopefully will get some sort of answer, when they will get this shit out me. Have big holiday upcoming ,which I plan to to go on so window is closing in, I wish you all the best just remember live life no matter what make every day count
1 Like
Hello all, hope everyone is as well as can be and coping. Quick update from me. I have a double mastectomy and immediate reconstruction on 25 Oct. I have the PALB2 gene so made sense. I’m coping fine about mastectomy (I think) although worried I’ll get an expander rather than implant. Won’t know until I’m on the table.
Biggest stress is my results afterwards. If grade 2 stays and no lymph nodes, it’ll be tamoxifen and I’m on my merry way (well side effects aside).
Anyone got any experience of different pathology results post surgery or reconstruction with implants/expanders?
I’ve had to wait almost 4 months for surgery so I’m stressing but coping fairly well. I had a lovely complimentary massage at the Nightengale centre today. 
2 Likes
My first post and currently freaking out myself as only got diagnosed on Thursday of last week but one thing I was told that I hope will help you. Apparently a grade 2 tumour takes ~250 days to grow by 10% so I was reassured that despite my imagining the tumour growing massively while I waited for things to happen, it’s not growing that fast. I had managed to convince myself that by waiting for the next available regular apt with the Doc, I had doomed myself but they tell me that’s not the case. I have no tips yet for managing the anxiety or in my case floods of tears every 10 minutes but I’m here to hopefully find out! Good luck
4 Likes
Morning Josey
So sorrry to hear what you’re going through, it’s awful isn’t it. However over time you’ll start to accept it and as many people on here have told me, the only way through is through.
Thanks for the advice. I had my double mastectomy and reconstruction on Friday and surprisingly I’m feeling pretty good with minimal pain. Initial few days were hard but my implants are starting to settle and look quite natural.
I’m stressing while waiting for my results but what will be will be. How I’m looking at it is that I’m over the half way mark and by summer I’ll be living my new normal either way
Wishing you all the best, keep us updated.
Lots of love
3 Likes
I’m so glad the OP went well. Take very good care of yourself as everything heals and hopefully the results will be what you hope for. I go in next Wednesday and then have that horrid wait myself. It’s going to be a long few weeks!
2 Likes
Hi
Just wanted to share my story so far.
Diagnosed 10th September with IDC grade 2 24mm er and pr positive. I was told only to expect radiotherapy and hormone treatment.
Lumpectomy on 4th October and it was then upgraded to 37mm and grade 3 but my nodes were clear. I was then told by surgeon that the oncologist will decide if chemotherapy is needed. And thats where I am at as still waiting to see oncologist on 21st November.
3 Likes
Wishing you all the best and hopefully you don’t need chemo. One thing I’ve learnt about this horrid experience is it brings lots of twists and turns… I’m still waiting anxiously, get my results next Wednesday
3 Likes