SURGERY APRIL 2018

Hi Belmont Rosie
8 rounds of chemo - we’ll done you. My 3rd is on Tuesday. I’ve found chemo tough so far- mainly due to my 3 gorgeous chn running around after them, organising, feeding, homework etc etc is normally full time but add chemo and I’m utterly exhausted. Hope you are recovering from the chemo well.
Top tops for surgery- ask question of your surgeon- Hubbie and I wrote them down before appt. are you having reconstruction at the same time- I did, Gill and Sally didn’t ( they are more amazing than me)
I needed to know what to expect - pain relief, recovery, hospital stay etc. Make a list of what to take into hospital. I bought a masectomy pillow from ‘Jen’s friends’ on Facebook - really helped me in first couple of weeks.
In my opinion surgery was hard but each day you could see yourself recovering. Compare that to chemo where by week 3 you’re feeling good but with dark cloud of next cycle looming.
Any more questions just ask us, unfortunately we have been there.
As Feenix wrote join the July thread. There’s only a few of us return to this thread but we are so supportive of each other and it has helped enormously.
Jem

Hello ladies very ladies, hope you have been enjoying this weather.
Gill -2 to go- wow you have done so amazingly well, active treatment almost done. No time to rest as everything so busy- how is hubby doing? And then planning for tea party- what a great idea. Thanks for your invite- am at Goodwood Festival of Speed with hubby and chn that weekend.
Sally- not sure if to call you amazing, awesome or just super woman ?. I hope this week has gone well and no SE. Is good t this Friday cycle 3? When do you change drug regime? Do you continue 2 weekly? So pleased cold cap doing its job. ?
Feenix - saw on May thread you’ve walked by the sea- my favourote place to be. How are you holding up? When is OH home?
Today good day?watched Hubbie and chn our kayaking on the sea, perfect day for it, really want to go out too but will have to wait I think. Audrey and I really don’t like it too hot- it’s like wearing a woolly hat In the middle of summer!! Inside the house wear a scarf thing so much cooler. Fatigue hit yesterday like running into a wall, a walk helped. Off for assessment tomorrow- why do we always get ourselves in a pickle before seeing consultant? ?
?big hugs to you all, week to celebrate with Gill ?- 1 past the finish line of active treatment, looking forward to joining you. Xx

Hi Jem,

It is number 3 this week. 2 more EC then change to Taxol on 27/7 for 12 weeks. SEs still not really arrived yet. Fingers crossed it lasts.

Hi Sally
Saw you post on May thread - sorry you had a melt down over the printer- hope you’re doing ok now. Like you rarely meltdown since diagnosis - I have a leaky eye moment when one of my friends does something lovely for me eg friend who doesn’t live close sent me some flowers - sobbed?.Think Hubbie is waiting for the meltdown at some point.
Train journeys must be hot hot hot at the mo.
You are amazing no SE- keep it up.
Feenix- you are doing so well getting your head round for he surgery - I remember how difficult it was. Just take one day at a time and you will get through it.
Gill 1 left ???
Assessment day went well - weight loss last cycle wasn’t good so eaten cakes, biscuits - oh and healthy stuff- result 1.4kg gained ?- how many times have I been happy at gaining weight??? cycle 3 tomorrow. Hoping SE will be minimal as annual garden party on Saturday for our road and really want to go, it’s always great fun. Most of our neighbours are lovely but older, after a few drinks many of them are hilarious. We hold it in neighbours garden who has swimming pool - children love it.
Middle son and I are becoming addicted to the footie- hoping tomorrow will be a great match and result- really don’t need penalties though. So will it be Belgium or Japan this evening ?
Xx

The way this World Cup is going? Japan against all odds!

To plagiarise Forrest Gump, this World Cup is like a box of chocolates, you never know what you’re going to get.

That was some second half!! The 2nd Belgian goal was amazing. Felt sorry for Japan in the final minute. Hold on for tomorrow night!!

Hi ladies. Ding dong I rang that bell and the whole clinic cheered and clapped and that was it ??? tad emotional. End of active treatment. What a journey hey. Not one we would recommend but crikey what you learn in such a short space of time. You 3 , Sally , Jem , feenix have been and still are amazing ladies and helped get through the darker times and I thank you all for that. I will still come to this thread and keep in touch with you guys and I will be here when you all ring that bell. Of out for a g&t now and bite to eat. Sod weight watchers!! For one night only it has to be chips. Speak later and enjoy the footy.

???
Well done Gill- you’ve done it?- amazing.
Enjoy g and t for me too! Be kind to yourself over the next few weeks - you’ve been on a rollercoaster for the last 100 days.
Xx

Here we go! It could be a long evening. Let’s hope it’s a good one.

Wow that was tense ! But hey we’re through ???. Must say tonight has helped forget horrid chemo. We have our roads garden party on Saturday - a new focus I think will be watching with our neighbours ?- will some of the older ladies cope with a later than scheduled BBQ?
Cycle 3 chemo was tough today- felt a little teary before but kept it together. Cold capped- team felt I had enough hair ?. The ‘e’ part of ‘fec’ is known as the ‘red devil’ understand this today. But going out for walk tomorrow to keep my head clear and keep positive. No more ‘fec’ and half way through?.
?

Morning, quick post and run.

Last night was never in doubt and I had faith in Pickford going in to the penalties.

Gill, glad you’re done bur bell?

Jem, hope you’re feeling OK but I think the draining humidity we’re having doesn’t help.

Well done Jem. Half way yeahhhhh. Hope se,s are not to bad and you soon recover from them. Have a lovely time at your garden party and if dare I say it England get to the final my afternoon tea party will be rocking. Sally hope all good with you? And feenix same goes for you. Speak soon all. X.

Feenix sorry you had a meltdown yesterday - hope today has been better. The anxiety is awful- remember pre mx some r ally awful days. If it’s helpful 1 thing I did was plan something nice each day- it helped keep the gremlins away- some days it was treat of watching an episode of box set, meet a friend, walk- just anything to look forward to.my nurse has given me info on The Haven a breast cancer charities that have centres round the country - there is 1 near me in Titchfiekd - quite interested in the yoga classes but not sorted yet, they also do counselling sessions - don’t think I need yet but good to have in the back of my mind, or there are Maggie centres ? Not sure if they would be useful??
Cycle 3 day 2 and it’s been a good day- went for walk to sea - just perfect for me- took my book, listened to the waves and seagulls , even the swans made an appearance ?. Who knows what tomorrow may bring but need to hold on to a good day today. No sickness meds just the steroids I take for 1st 2 days.
Gill - how has today been? Day 1 post active treatment ??- looking forward to join you the other side of this rubbish ?
Sally hope cooler weather has helped with London transport. Hoping SE are non existent still
Anyone heard from fairy Dust?
Take care xx

Feenix hope you sleep well tonight and good day for us both tomorrow xx

Hi ladies. No I haven’t seen fairy dust or sunflower for a few weeks now. 1st day post treatment was good but still had the trip to the hospital to visit hubby who is having a few problems hence the reason still in. So not had much thinking time really which is probably a good thing. You guys will be there before you know it. I can’t believe how quick the time has gone really yet you look back at all those waiting times and how we all were. At the time it seems like forever. Staying working from home for at least another month if not longer as want to feel right and ready to go back and this is fine with my boss. Have also been told I can hang back with the hormone tabs for 2 weeks as didn’t want to get mixed se,s with the rads peaking and hormone tabs kicking in so treatment free for a while. I am itching like crazy in just one spot so slapping on cream to stop me scratching. Other Than that I am feeling great. Oh and happy birthday nhs. Hubbies ward have a party later and the hospital I have to say looks amazing. Anyway have a great day enjoy the weather and the sunshine. My daughter said yesterday she can’t ever remember weather like this and she is 28 lol.

Morning lovely ladies- another beautiful day :sunny:.
What a match!! Neighbour rigged large flat screen under gazebo- about 40 of us watching- great fun. Children spent nearly 4 hours on the swimming pool- exhausted them ?. Great party but completely exhausted. My muscles aches are back with vengeance today ??? but feeling positive and know it will pass. Relaxing day needed - well with 3 children not so relaxing!
Sally - hope work wasn’t too hot.
Feenix - how are you doing? Hope you’re having a good weekend.
Gill- hope recovery from rads going well, each day you will be feeling stronger?
Take care Jem xx

Hi ladies. What a scorcher. Least not having to mow our lawn with Graham being on crutches. It’s like hay!! We have a big screen on stand by for next weekend just in case and fingers crossed.
Glad you enjoyed the day Jem. Good rest day today.
Sally hope your feeling food
Feenix same for you
Enjoy the rest of the weekend all xx

Hope you’re all ready for tonight.
Sally - how’s the arm?
Gill- how’s Hubbie?
Feenix - hope you’re having a good day.
I’ve had my first leaky eye day since dx ? I’ve just cried on and off all day- I’m hoping a good result might cheer me up. Not helped by a mouthful of painful ulcers - can’t eat anything but a little pasta, hopefully this will pass on a couple of days.
Somehow I’ve got a houseful this evening for pizza and beer- I’ll sit by the patio door to ensure no one passes on any germs.
Enjoy- I’ll be listening out for your cheers too. Xx

Hi Jem,

I’m ready and fully believe. I’m so excited. Had a quiet day at home today. Arm still painful and clot still there but I suppose it’ll take a while for the clexane to do its stuff. Had diarrhoea all day, I’m guessing because I’m injecting so many different things, hopefully my body will adjust quickly. I’ve got appointment with oncologist Monday am so I’ll find out what this means for my chemo.

Are you doing the salt water gargle for ulcers? My oncologist said not to worry about avoiding people to try to avoid germs because generally if your going to get something you get it anyway and try not to let the chemo disrupt your life any more than it has to. That’s pretty much my philosophy anyway. I worked in a GP surgery for 8 years and never caught anything. I think I only had about 7 days off sick in that time. I don’t do illness well at all so having to take time off makes me twitchy.

Have a good night all and remember

IT’S COMING HOME! :slight_smile: