Morning ladies - we have clouds today ? missing 
.
Hope you’ve recovered after Wednesday evening - so sad but they are a great team of guys.
Sally - beautiful lady?. How’s the arm? How long will you need clexane for? I’ll need daily injections until end of chemo, bruising bad this week.
Feenix- how are you doing? When is your next appt? Hubbie home soon?
My mouth ulcers aren’t great, but tricky to talk sometimes. Have a mouthwash and gel now so hoping by tomorrow will be much better. After my sobbing day on Wed woke on Thursday and was ok again. Looking forward to Goodwood Festival of Speed tomorrow- leaving at 630 to avoid queuing, eldest son is going to cook breakfast when we get there?. Chn are so excited- it will be fun but exhausting.
Off for a walk with friend along my lovely seashore- will the join us?
Have a good day xx
HI Jem,
Clexane is month initially then review by haematology but normally for 3/6 months so probably that.
I was gutter about the football but glad Trippier got his goal cos he’s been our best player.
I’d like Croatia to go on and win now because they were my tip before the tournament.
Ffs. Home from work with two letters waiting for a mammogram and scan of my left breast.
I don’t have one. Can these people get nothing right! On a week when I already have chemo and physio at the hospital on different days. I’m sick and tired of telling them that some people have committments and can’t drop everything to come. The time they have given me is mid morning which I have told them and told them u will not attend. They need to put me in first thing or late afternoon. Mid morning means I miss work completely.
I’m thee to see the oncologist Monday so I’ll nup into the department and tear them a new one.
My son says I should say nothing and attend just to see their faces when they try and do it.
Sally you made me cry with laughter ?- I agree with your son. What a stupid stupid mistake - I’m guessing you’ll add that to your complaint. Have you heard back from the hospital yet?
You’ll be racking up those hospital hours next week. How far is the hospital from you? Mine is a 10 minutes drive- but don’t want or need to go too much.
Mouth meds are great - I’ve eaten dinner ?.
Agree Tripier was great- what a goal.
Enjoy another Weekend xx
Hi,
I had an initial response which was load of meaningless platitudes. No actual answers but they did say you were still treated within acceptable timescales. I don’t know how they work that out. Mammogram 4/10, scan and biopsy 5 /1. Diagnosis 17/1, Op 28/2. So 5 months from mammogram to op. Was it already in lymph nodes in October? Would I have needed second op if they’d got their finger out? Not to mention me getting referred 18 months before because I felt changes only to be scanned and told it was scar tissue then bugger me, the cancer was exactly where I’d said! Then told at diagnosis that it’s a subtle cancer that doesn’t show on scans. So why was I only scanned?
I’ve not answered their letter yet because I think think of an answer that doesn’t contain one or two two word phrases.
This can just go in the list of stuff they’ve got wrong.
I shall be watching. I think the boys need to bow out on a win for their confidence. Fingers crossed.
I don’t even understand why they’ve sent me an appointment at all. I’m not due one. No one has said anything to me at all.
Like you I’ve not been doing any walking, bar to bus stop/station and work as I find the heat too much to cope with. There’s no air so I find I get a bit breathless which I never have before. I’m up and down the stairs at work about 15/20 times a day so that’s something I suppose.
We’ve not had rain in London since 28/5…and I wasn’t even here then, I was in Cornwall.
Hi ladies. Hope you are all doing ok and crikey time is flying by and you will all be on the final road. Well final side effects were skin breaking down slightly. Dam painful and sore but like all of it doable. Starting to heal nicely now so hopefully on the road to recover then into the flipping tablets and more side effects. Hubby had a few problems with hip but now doing ok and on the mend. Had our afternoon tea in Sunday and a grand total of 2397.00 was raised and still coming in. Was a very busy day but was great fun and the sun was shining. Football all done ladies but euros just round the corner. Jem and Sally number 4 must be soon? Bit cooler here today is it with you guys. Rain in the horizon also but boy our grass needs it as it’s very yellow. Anyway tea burning best go. Take care all and speak soon
Hi Gill
Glad you’re well. I have number 4 this Friday then change from the Red stuff that causes all the problems.
It’s a tiny bit cooler in London but sleep is still problematic. Sunday night at 12 it was still 27c. Ridiculous.
Hi lovely ladies
Gill - what an amazing amount, incredible. Well done to you and your daughters for putting all the effort in- hope you were able to enjoy. Is it this week you start meds? Is it Tamoxifen?
Sally - hope arm is much better now. My stomach is really bruised at the mo. Do you start ‘e’ this Friday- is it every 2 or 3 weeks? It’s ok but makes my head swimmy. Saw on chemo thread possibility of picc line- I know this isn’t what you want- hope you can persuade them your preferences.
Feenix - saw Hubbie home -?. Hope you’ve had a good day.
I’m doing ok, definitely more fatigued this cycle. But did whole day at Goodwood Festival of Speed- we all had a fantastic day but very hot. Mouth sores healed up ?. Cycle 4 starts next Tuesday - had chat with nurses at picc line flush, they helped put my mind at ease. Will be harder having children at home- always love school hols and we have fab times but know this year will be good days and not great days. Hoping to get away in the caravan- enjoying planning our trips?
Xx
Hi Jem,
My last EC this week , next week I start taxol. The arm is a bit better, clots gone but I’m left with cording in the chemo arm which is fairly painful when I stretch it but I have to and massage it as well.
You did well to stay put a whole day in the heat we’ve been having. 10 minutes is enough for me.
Thanks Feenix.
I had a nice bath before I went so I could see where the decent veins were then ran my hand under the hot tap when I got there to make them pop up again so no vein problems.
Sally - hope yesterday’s taxol all went well. Is this similar drug to docetaxel? I start this on Tuesday - keep feeling terrified about it. Hope bath helped with veins.
Feenix - I’m sorry but can’t remember date for surgery? Hope having OH home has helped.
Gill- a more relaxing weekend for you I hope.
Here children finished school for the summer- love having them home but it will be different this year- friends and family are being fab next week with lots of exciting days for them. Thinking need to buy a swimming pool- weather looks set for next 6 weeks- children would love it- just need to pursuade Hubbie. Xx
Jem,
I’ve not started the taxol yet. It was my last EC yesterday, taxol in two week. The lady I see every time I go has done 8 or 9 taxol now with no sideeffects whatsover. I think it’s easier because it’s just the one thing.
And yes Jem it’s a simple drug but not the same, from the same family, so to speak.
Similar not simple - bloody phone
Sally hope SE minimal for you. Sorry I got confused and thought you’d started taxol this week- blaming chemo brain! Had a fab weekend with family, even managed gardening today- bit hot though. Assessment tomorrow and then 1st docetaxel on Tuesday - to be honest do wading it after reading peoples e owrienced- trying to remain positive that it is worth it!! Children finished for the summer hols, weather looking fab.
Gill - how are you? Where are you???
Xx
Oops- predictive text!- not ‘wading it’ but ‘dreading it’!!!
Hi ladies. I’m here ?. Glad you 2 have same problem with predictive text but does make me smile. Finally getting there. Started the tabs on Saturday so see how we go with them but sure I will be fine. It sure is strange when everything stops!! I honestly think that this is when it all hits home of what has happened what we have gone through and yes here I am but boy it’s strange. Flipping mind at times running riot. It’s like the anxiety gremlins again but in a different way. Keep telling myself it is all part of the healing process and each day will get better. Skin is all fine now and have had minimal side effects. Have onc appointment 2nd August and hoping he tells me all is good and go off and live your life. Need a kick up the ass I think but taking each day as it comes. Sally how were you when it all finished first time round? Needing our Wonder Woman to tell me to get my act together lol. Just got to accept it ain’t gonna happen overnight. Once onc app out the way I will look at going back into work for a couple of days but have to admit have got used to working from home and the scary thing is it has been 4 month. How fast the time is going is scary but we are all
Moving forward daily. Hope your treatments go ok and not to many se,s for either of you. Feenix is your surgery this week? Holiday needed once hubby is back running again. He had his first big day yesterday at silverstone watching future son in law race. All went ok so onwards and upwards for him to. Take care all and enjoy the sunshine. Xx