Hi All
Good to see that we’re all receiving results and at least know what the next steps will be.
Alex, I hope the antibiotics are working and you’ll soon be home. Helenann, I hope today is a good day for you too.
I’m feeling a bit mixed up at the mo, to be honest. Although the results I have were good, smaller than expected and only traces in single node, I’m still definitely on the waiting and deciding wagon.
Oncotype DX being done to decide about chemo and, on top of that, the decision about whether or not to join the trial so won’t know where I am for a few more weeks.
My wound and armpit are stinging a lot today. Any suggestions on how to reduce this? I’m being a good girl and doing my exercises and these do help. I know it’s just nerve pain, just hoping it doesn’t continue much longer.
Anyhoo, sun shining, so I think I’ll go for a little walk - that should cheer me up ?
Catch you later x
Mine went down from 2 and a bit tumours. The bit was growing off another one . A grade 2 to grade 1, which I was quite surprised, as if anything, I thought they’d end up a grade 3. They found traces in one node but decided they were just cells and nothing to worry about.
What’s happening in my area, they’re coming to the descion that we’ve been over treating for far too long. Some could say it’s a money saving exercise. But I do believe that they’re getting results and even though there are cells the chances of you getting cancer again are the same as if they removed them and gave chemo. Or e.g you’d get 2% chance of it coming back if you have chemo and a 3% chance of it coming back if you don’t.
I’m quite happy for now trying Tamoxifen because everything that’s gone wrong with me in the past is has always been hormone related. Couldn’t take the pill, underactive thyroid - which levels all the hormones in the body and now Hormone related breast cancer. I also used to have 34 J/K breasts. I also think, but not scientific proved that I know of, was because I over produced hormones,
My breast were massive. I did have a blood test years ago and they did say my progesterone was slightly raised but nothing to worry about.
I was ready to question my consultant, If offered chemo, the % rate of survival increase, if i was to have chemo. I forgot but you’ve now reminded, to ask him about the Tamoxifen survival rate % increase. Though I think I will give it a go before I ask. If it doesn’t suite me then that’s something to look at later xxx
Hi Choxie it is an emotional rollercoaster we are on. I hope a walk has made you feel better. I had a lumpectomy and full lymph clearance in August and my movement in my arm is practically the same as it was before. I found swimming to be an amazing help. It completely released the tightness that I felt. I also did the exercises twice a day.
I hope that is of some help xx
Hi Ladies - all really good news for me. The cancer was as expected and hadn’t spread anywhere - so no chemo and as I’ve had a mastectomy no need for rads either.?
Am on Letrozole for the next 5 years and calcium tablets - as one of the SE’s of Letrozole is it messes with your bones. Having a bone scan so they keep an eye on the effect the Letrozole has on me.
Surgeon even started filling my inflator today as it was ‘nice and soft’. Weekly appointments to have it filled gradually - it’s starting to look good already - put’s my ‘good’ one to shame? - but i’ve been told they will see about balancing them at some stage in the future.
Been one hell-of-a 3 months to get to this point - but I made it - with the fantastic help and support from this forum - so a great big THANKYOU to you all.?
Oh Helenann that’s brilliant news. Such a relief for you. Sort of the same as me, the just I’m on Tamoxifen and I’m having reconstruction on the good boob because there is a difference in volume.
Feeling doubly guilty as he two ladies I met haven’t had as good results as me. The one lady I’ve been talking to constantly, said she’s devastated. I’m
Just waiting to hear exactly what’s going on but I’m so sad for her ?. But I’m going to support her.
I’m still in hospital and noticing that the new breast is getting smaller so I’m better symmetry. So the antibiotics must be working. Still a little red in areas but so far so good! Hopefully out tomorrow xx
Alex, I don’t know if this is any use, but there’s a website, www.predict.nhs.uk/predict_v2.1 where you can input your own info and get survival rare statistics for different treatments.
Came on here to check how your results went, and I’m over the moon for you…it’s great news! ?
I’m on Letrozole, have been for a few months, - and though still waiting for the bone scan results to see if I need calcium etc, I’ve been OK so far?? … hope it proves OK for you too, (I think there are more positives than negatives as I do think those people who have no problems with it, do not feel the need to post…)
You came a long way and got through it, didn’t you? Well done, and very best wishes for your continued recovery…
also had results in today - and it’s a mixed picture:
no node involvement (3 were taken)
ER + (no other receptors)
one margin wasn’t clear (2nd operation scheduled for the end of this month)
cancer got ‘upgraded’ from 2 to 3 after pathology
invasive tumour about as big as seen in ultrasound (15 mm) but also non-invasive on top of that (at least another 10mm).
This means that chemo is pretty likely now (plus hormones and radio). Got a bit of a shock to the system today, if I’m honest, because initially (after biopsy), things looked quite a bit brighter.
At least the nodes were clear, and a hormone receptor means I can at least try my luck keeping it at bay for a longer time (if I can stand the stuff ;-). Trying to focus on the positives. Such as (also): the weather was glorious here today.
All the best to all of you, whatever your results, BIG HUGS!
I’m still amazed how differently different areas get things done
My area seems to take ages
But as all ready mentioned our time seems like years rather than weeks since diognosis
I do hope you are allowed home today Alex
Well work have a replacement for me ? I knew this would be needed due to chemo , and I’m a nursing home manager so high infection risk there , but breaks my heart , just have to remember it’s not forever xx
Axillary clearance postponed as found suspicious stuff in other breast on MRI. Got results today. CT clear, cancer in other breast, so going for right mastectomy with SNB and lext axillary clearance on 8 Nov.
Anyone got any advice for having both sides done at the same time?
Hi
All
How is everyone today
Sorry to hear you didn’t make it home Alex
And it’s good to hear some are getting great results
Pastamissus im sorry you are going through even more
I meet oncology on Tuesday , don’t normally swear but **bleep**ting myself xx
Hi everyone
Looks like we are all being tested in one way or another.
My axilary scar is still not healing, in fact it’s getting worse every day even though I’m on antibiotics. Looks like it will delay my chemo, which is crap as the knock on effect is that I probably won’t make my holiday in March.
I hope you are home soon Xela.
Let’s hope the journey gets smoother very soon. Hugs to you all
X
Hi everyone I’m home. Was able to have a little birthday Celebration for my bestie at her gorgeous home, a glass of champers & Chinese take away! I’ve been dreaming about it the whole week. Even though it was her birthday, I was the one being spoilt rotten.
I’ve made the mistake of then today to carry on as normal and ended up in bed now. I’m still on Oral antibiotics and placed into Tamoxifen. See my consultant next week.
JacqB sorry to hear your infections not clearing up, my consultant wanted me to stay in another 48hrs. He kept changing the lengths of stay. 48 then 24 then another 48. The problem is you plan your life and as we all know, illness knocks onto other people’s plans! We would all like to put the brakes onto life so we could just get get well and healthy, then start up again.
KateDay good look on Tuesday! I’ll check in to see how it goes.
thanks everyone and the infection seems to be clearing up.
I will be keeping a watch on you all. You really got me through the toughest part of my life ever. I will continue to support all of you. I was so so lucky to catch mine so early. It depends on which way you look at it, it was devine intervention or just a fluke it was caught so early. I’d like to think it was my dad looking over me. Xxx
Glad to read your home Alex
And it’s lovely you want to keep eye on how we’re all doing
Well as hard as it is we have to take them moments to live
Had fab day yesterday being normal with my family
Safari and meal with my husband mum and foster children , couple drinks with friends and movie at night
Hope Everyone is doing as well as can do xx
Alex - glad you’re out of hospital - nothing like your own bed - hope that infection keeps clearing up. I’m in the same ‘boat’ as you - so glad I found the cancer early - mine wasn’t even a lump - it was puckering and a ‘shifting’ nipple that alerted me. I was tempted to ignore it as i’d had a mammogram 18 months ago that was clear and i’d lost some weight - so was initially putting the ‘changes’ down to this - but we ladies know when somethings not quite right and there was a niggle in the back of my mind which made me take some action - SO glad I did. ?
JacqB - fingers crossed you still make your haoliday in March - I had a hoilday booked in France for September and all my appointments/surgery etc were worked around my dates - so hopefully it will be the same for you. Nothing like getting away to the sun to lift your spirits.
Kateday - you say they have a replacement for you in work - but from what i’ve noticed on this forum you’re irreplaceable, so i’m sure once you’ve got through all this you’ll be back at the helm.?
Rapunzel - so sorry it’s looks like you’re going to need chemo - but you don’t need me to tell you that it’s for the best given your results - zap those cells and you’ll be as good as new.Then just keep taking the tablets (which is where i’m at now).?
Chocxie7 - You said on another thread how you know you’re not ready to face going back to work yet - I think we had our surgery on the same date- 24th Sept(?) - there is NO way i’m anywhere near ready to even think of going back to work. I love my job - so don’t want to prolong this - but my arm is still stiff, the area where I once had a breast is sore and tingling. I have no ‘power’ in my right arm (if I try to close the curtains I feel a real pull on the ‘area’ of the reconstruction - as though i’m going to dislodge the implant). I’m knackered - can’t get out of bed before 10.00am (not like me at all - i’d always be up by 8.00m even on the days I didn’t work).
Marla13 - I will continue to follow your ‘journey’ and hope all goes to plan - and we will meet up in the East end of London when we’ve come through all this.?
I hope everyone else in the September (and every other month) surgery is doing well - I’m following you all to check how everyone is doing.
Good luck for to all - you’re all amazing - I know I couldn’t have got this far without all your help and support.
