@arty1 so pleased you have a full plan and can understand your worries re heart. I had my chemo and Phesgo downgraded due to family history of cardiomyopathy and my own tachycardia problem. I had 12 weekly Paclitaxel and Herceptin as one tumour was 2cm and the other 0.9cm, had the first tumour been bigger I would have had Carboplatin/Docetaxel and Phesgo which possibly could have caused more heart problems. I remember the oncology said it’s a balance between treating the cancer and heart toxicity.
As I’m HER2+ aswell I had 3 MUGA heart scans during my treatment and have been told don’t need the last one after my treatment finishes as my ejection fraction % were within normal limits on my last scan. You were be observed through your treatment. I also had ECHO with my cardiologist, who was kept in the picture with my treatment.
There is a group for all us HER2+ if you would like to join
You might also like to join the monthly chemo starters group when you begin your treatment. I found it invaluable support with others going through a similar treatment to you. This is the September 2024 group and you can search for the month you start nearer the time. I did join two groups because I was going to have chemo first then it was changed to surgery first. I’m still in contact with people from both groups.
It’s a very scary time and you can also speak to the BCN nurses
Helpline: 0808 800 6000 (Mon-Fri 9am-4pm; Sat 9am-1pm). Speak to our trained helpline team. No questions are too big or too small
Or maybe consider * Someone Like Me: Will match you with a trained volunteer who’s had a similar experience to you. They’ll be a phone call or email away to answer your questions, offer support, or simply listen. Call on 0800 138 6551 or contact our email volunteers
