The waiting!

Maybe the tumours measure bigger on ultrasound! All three of my babies were much bigger on ultrasounds than they measured at birth. MRI is more accurate.

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How are you feeling now?

The waiting is awful I agree. I was diagnosed mid-Oct age 64 with grade 2 ILC and was then sent for additional MRI then another consultation, then ultrasound and further biopsies to check other areas. After a mastectomy was recommended due to size, I opted for DIEP flap reconstruction - this resulted in a further CT scan and a couple more visits to see the plastics team. I had the surgery three weeks ago on 3 Feb, 3 and a half months after diagnosis. The waiting for appointments and results felt interminable but all the way through I kept checking with my breast nurse and surgeon that this wasnā€™t going to be detrimental. If the cancer had been more aggressive I would have had it done with an implant before Christmas. Just keep asking the questions. Also each test provides better information so that when they start treatment they are really clear about what they are dealing with.
In my case, everything was removed and the margins are clear and thereā€™s no spread but Iā€™m still waiting to hear about radiotherapy or chemo.
Stay strong and positive, I wish you all the best. It must be harder going through this with young children xx

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Thank you for the advice @jaxre, glad to hear your surgery was successful, i hope you are recovering well.
I definitely think i need to have more conversations with the nurses and it might help me.
Xx

Sorry not been on here for few days I had phone call too to say I have triple negative invasive breast cancer I am still awaiting my bone scan and then had a referral to genetics team

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Hi, donā€™t apologise for that, only come on here when you need to!

I dont know much about the different types but i have been following a couple of ladies on Instagram who have triple negative, if youā€™d like me to let you know their accounts let me know. I hope youā€™re doing ok xx

Also sorry i think i flagged your post, dont know what that does but dont seem to be able to undo it.

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Yes that be good how your journey going

I am in the same position. Had mammogram 14th dec. had to go for ultrasound and biopsy on 8th jan, confirmed on the 17th jan very small cancer, hormone positive, had mri on 24th jan then had to wait 4 weeks for results, another ultra sound last week but nothing found. Now waiting for lumpectomy. The waiting is awful. Her2 came back negative which is good. Cancer very small at 6mm, no lump and no symptoms before routine mammogram

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Hi @k.m here you are, hope its ok to post these but they are public instagram pofiles so assume it is.
Ifanyonecanalicecan
Mrsnothernstyle
Rosie_fawhimi
Iā€™m still waiting on results :exploding_head:

Wow 4 weeks for results from MRI? I dont think I could wait that long, my lump already feels twice the size it was.

It does sound like youā€™ve had yours caught early though thankfully (so very few positives to take when youā€™re on this journey you have to hunt for them!)

I hope you get your lumpectomy soon xxx

Thankyou, I hope so too. Perhaps they arenā€™t hurrying because it is small, doesnā€™t help me being worried though. Hope you are sorted soon. Take care.xx

Hi all, Iā€™ve had my MRI last Thursday, the results have been received by the consultant and discussed which obviously Iā€™m pleased about but also concerned they put a rush on them. I had a phone call today from one of the nurses who said she could tell me over the phone or i could come in on Friday to talk through with the consultant. I opted for face to face as i was at work at the time and taken a little off guard by the call, and also havenā€™t seen anyone face to face since 24th January. Now Iā€™m wondering what could the results be that a nurse could tell me over the phone and not need to see me face to face afterwards? Has anyone had anything similar? Iā€™m worried it means more tests are needed :pleading_face:
Hope everyone else is doing ok x

After my mri I went back face to face to be told I needed a ct scan and a whole body bone scan

Thatā€™s what im dreading. Sounds like you and I are having similar paths. Have you got a date for your extra scans yet?

Hiya itā€™s taking forever but I finally had my body bone scan yesterday so now awaiting it to go back to mdt then hopefully get some answers next week

Fingers crossed for you. How was this scan compared to others?
When i started this thread i was sure by now Iā€™d be having treatment, if only Iā€™d known how frickinā€™ long it would be. 6 weeks today since diagnosis, 8 weeks tomorrow since first doctors appointment. I am going insane.

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Hi this scan was ok had to have injection then go back 3 hours later for the scan. Took 25 mins to do it. I canā€™t believe how long Iā€™ve waited and you itā€™s not fair

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Sorry for your news youā€™ve got this! Keep positive I am sending so much positive energy

So i had my mri results today. Not good news. My tumor they thought was 2.5cm is actually 10cm. That is terrifying. They said i need a CT scan and another ultrasound as there is sonething suspicious in my other breast. I had a complete breakdown when they told me all this. I wonā€™t lie, my first thought was Iā€™m going to die, I have calmed down a little since then but still absolutely terrified, feeling sick and have migraine.

Some good news, possibly beause of my breakdown, possibly because iā€™m falling out of their targets, my consultant went round to radiology and they got me in for the CT scan this afternoon and ultrasound next Tuesday so hopefully in 2 weeks Iā€™ll have a treatment plan albeit much more ferocious than i was hoping for.

If anyone reading this has a good news story from such a large tumor Iā€™d love to hear it x

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Sorry to hear this hope u get answers soon x