This wait is killing me!

Hi everyone
I feel like i need to post as i feel like i am loosing my mind.
So from my original GP referral for a new lump in my right breast. Back on the first of august.
Going from the nurse practitioner reassuring me she felt it was a cyst then from the ultrasound them telling me they wanted me to have a mammogram and 3x core biopsies as she wasn’t sure what it was. I am now a week in waiting for my results!
I feel like i’m posting just for someone to say they felt the same. But i generally feel like my body has been in fight or flight! i’m not sleeping i feel like ive had a couple of mini panic attacks with Shortness of breath and dizziness and just a general out of body experience.
I’ve been reading through everyone’s kind comments to everyone and it just feels such a supportive group.
Sorry for the long post x

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Hi @slc1

The waiting between appointments is horrendous. My journey started on May 26th and on 11th August I had a mastectomy to my right side with implant. There was 12 weeks between both dates and I can honestly say there were some real lows but there were some really positive moments too.

I was chatting through it with my hubby earlier and we both agreed it was like life as we knew it was on hold as we waited for each appointment.

This forum has been amazing and so good to know you are not alone……

Take care xx

Hay thanks for your message!
That wait sounds horrendous so sorry you had to go through that!!
talking out loud has helped massively this week and actually giving my self more time to focus on my family has been the positive out of this!
Thankyou and take care too xxx

I have found being open with family, friends and colleagues really worked for me.

Whatever your questions and if you need to chat to people who are going through this then jump on here!!!

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Thankyou!
I am finding the same being able to talk to people is a massive help! well to the select few i have told
Take care x

Hi @slc1

Sorry you have to be here, but welcome!

You’re not losing your mind, I promise! Waiting for different things is the worst bit by miles. I had seven weeks between diagnosis and surgery while further tests and meetings and whatever else was done. Won’t lie, it was horrible and I experienced many of the things you described. Everything else, for me personally, has been a walk in the park in comparison. I agree with @h2608 about life seeming to go on hold. If I had to go back the one thing I would change would to be to continue with life as normally as possible and not have allowed all of that cancer stuff to steal that time from me.

Hold tight! Best of luck with everything. x

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I know exactly how you feel i am hopefully getting some results tomorrow after a 10 day wait and its driven me crazy. Same as you not sleep lethargic weary you name it :unamused:

Thankyou for your kind words.
seven weeks is not fair and must have been torture.
I’ve been busy with my girls back to school this week and back to work next week as had time off for the holidays but i’m looking forward to getting back to some normality and stop focusing on this and this only.
So my results are tomorrow at 11am. So tonight i feel will be another night of hell but pray that tomorrow brings good news :pray:
Thankyou again x

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I pray tomorrow you get good news too. It’s nice to talk to people in similar situations although it sucks knowing others are going through this. Honestly i wouldn’t wish this waiting on anyone it’s pure hell!
Take care and i’ll keep everything crossed for both of us tomorrow xx

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Hi, we all deal with waiting in different ways depending on our lived experience. I had knowledge that my mother had it 17 years prior at the time I had biopsies and knew that she was grade 3, stage 2 and needed a lot of treatment, but still doing well now in her 80"s with no signs of recurrance. There’s a lot that can still be done even if fairly advanced. The positive I clung to was size while I waited - a 1cm ‘something’ till I knew, so whatever it was, still early stages. As it turned out, it was grade 1, stage 1, so not too awful, and didn’t need a mastectomy (my greatest fear, though my mother seemed to take this aspect fine). Have they given you an indication of size?

We’ll all be thinking of you both today. Best of luck. x

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Hello guys
i really hope @claspe got good results.
Unfortunately i didnt.
So i have been diagnosed with a primary triple negative breast cancer.
They have reassured me that the treatment there going to chuck at me has a really good success rate and that because its small and caught it early hopefully all good signs.
I have kinda felt very numb since finding out and my face was hurting through crying yesturday.
My next step is to wait for my MRI which is just over a week’s time and then to start chemo.
Super scared not going to lie but from now on i’m gunna try and stay focused and positive for my beautiful girls and husband.
Also been told not to google so that is my mission haaaa!!!

Hiya slc1

So sorry to hear your results where very scarey i hope you can cope and that you have the support at home from your hubby :slightly_smiling_face:

My results where very frustrating they said its a "very complex case’ what that means i am not sure but they said i have to have more indepth biopsies done, what a bummer so at least another week before they let me know how we are gonna move forward!!

Stay in touch lovely and we’ll chat and commiserate together :crossed_fingers::crossed_fingers::crossed_fingers:

My word that’s not cool!!!
another wait i’m so sorry!!
i think we will defo need each other to support.
i mean my husband is amazing but he’s just feeling angry and wants to take it away obviously but i will continue being strong whilst i can.
i need to talk to work etc.
Not ideal timing as only started my new practice nurse role 5 months ago! i’m so nervous now about finances!
let’s hope this next week goes quick for you so you can get these results! I will pray for you and sending positive thoughts. xx

Hi there, it’s tough I know!!
I waited a month to be seen at breast clinic after being referred for a “2 week urgent” referral back in January. Was told in February I had Lobular Breast Cancer & would have surgery for a mastectomy in a few weeks after having several biopsies, mammograms, MRI’s & CT’s. Finally in late May I was told I needed a bone biopsy from my pelvis as “something” was showing on the MRI that the Drs didn’t like the look of. 5 weeks later, (awful waiting) I was told I had stage 4 metastatic Lobular Breast Cancer.
It’s inoperable at the moment & I take Letrozole & Ribociclib.
It’s exhausting & the anxiety of it all isn’t for the faint hearted!

I hope you’re alright :kissing_heart:

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