CM you poor thing no sleep again. I don’t mind it as long as I haven’t got to go amywhere. I think I will try watching a replay of tonight’s Lewis on ITV player. That might help me nod off again.
I’m in bed but not asleep. Should spare hubby my restlessness & head downstairs for a hot choc & a bed on the sofa. Not sure why I’m not sleeping. Got fresh air today & did lots compared to my recent enforced duvet days so how come the land of nod eludes me…
Twinky x
Ive been up for about an hour, have done some ironing and the hamster is running around the lounge in her ball, I would much rather she runs free but there’s too much junk around for her to disappear into!
I dont know why I cant sleep, Ive been at work both sat and sun, but have woken in the early hours with a bit of inner turmoil and anxiety about the whole cancer thing, Im sure it plays on my subconscious, and I wake in a tizz.
Today I might try to tidy our patio, theres loads of stuff needs to go to the tip, (courtesy of OH for dumping it there). I feel like I live in Steptoe and sons backyard.
8-}
Hope you ladies have managed to get some sleep Iv had 4 hours but will try and get some more. The wind has got up here and very blowy outside and OH is breathing far too fast and far too loudly which is interspersed with even louder snoring. LOL
Anyone awake, first TAX tomorrow and definitely cannot sleep with large dose of dexa, have tried a melatonin from USA and hot chocholate. Hoping to feel fresh for tomorrow, no chance!!
Fiona
Poor Fiona, there is nothing worse than the thought of an unknown chemo coming up and St. Eroid keeping you awake. Fear not. Tax doesn’t bite until day three to four. Your taste may change to cornflour but nausea is not really an issue. I have never tried melatonin does it work normally? Hot chocolate and all things sweet, salty and bland will be your favourites for the next coup,e of months. Get in the tinned rice pudding!!!
I hope you can get some kip
Cackles
Good luck for the taxing Fiona
As cackles said its about day 3 it kicks in with scabby mouth and loss of taste… The sore mouth made me feel pretty miserable for a week and I got a achy bones and felt exhausted but then I found that I got a bit better before I have the next dose.
I only had a little bitof nausea but I was getting tax and another chemo called carboplatin and it was the carbo that causes some nausea.
Take care
Lulu
Morning Lulu, we can’t keep meeting like this in the middle of the night!! How are the aches and pains coming on.? It seems so long ago that I was exhausted etc and yet every now and then the odd day finds the D… Side effects are back again. I think I will hit the pill pot as I have to take my mother shopping tomorrow. I need to be in a patience mood which tiredness doesn’t help. She is lively, but like so many elderly people deaf but won’t get her ears tested ’ because there is nothing wrong with my hearing" .
It is quiet tonight on this thread. Clare CM and Twinky must have exhausted each other. How lively.
Sleep tight
Cackles
Lol
I did think I was gonna drop off there but soon as I relaxed my head pinged awake again…
Aches are a bit better during the day but fingers aren’t good… Not too bad considering… Just knackered!
Sorry you are still having bad days… It’s all so unpredictable.
Hope you have a good day with your mum.
Gonna go and try sleep again… Nanite xxxxx
Oooh I’m first in the thread tonight!
0045 and moderating a bunch of essays that I was supposed to have done already but keep getting distracted by t’internet - it’s worse than crack (or so I’ve been told)
2 more to do then I can mosey off to bed. CT scan at the Marsden tomorrow so day out in London. Have to take back a stupid remote control flying saucer that my son bought for £30 (- yes £30!!!) in Hamleys 10 days ago that stopped working the next day. Wonder if I can get the money back or if they will just insist on giving me a replacement. I’m useless at those sort of things. Might just manage a teeny tiny bit of retail. Need to see if I can find any decent charity shops in south kensington, although I would probably baulk at the prices…
Night all
Laurie x
Nanite Laurie
Hope you got your essays marked… Good luck with your ct and enjoy the retail therapy xxxx
Lulu you are awake again!!! we must have the same attitude to sleep. It comes over me when it wants to. Let us hope that ultrasound just shows a round black hole. You are incredible …what a woman…unshakable.
Laurie London I did on Wednesday. I fell asleep on the train on the way back…my snoring is no worse than the loud girls on their I phones I hope. I hope the wig stayed straight and mouth shut. Good luck at the Marsden CT scans are ok but I can’t stand the liquid you have to drink. When do you get your results? I hope everything is well under control for you. At least you know they are really good at reading CTs for little tiny tumours there.
Do they have charity shops in Kensington that fon’t charge the earth? I haunt Windsor and Oxford area.
I will think of you when I waken up, it is all such a lot of yuck…all fingers crossed +++ You look really good in your latest picture. Very upbeat.
Biggest of Hugs for the CT
Cackles xxx
Good Morning Ladies,
Lulu and Cackles, I see your both awake, Had last Tax yesterday and steroids will not let me sleep…
OHHH… Charity Shops my’Guilty Pleasure’ I love them! but some can make you reel with the prices they charge nowadays.
Sorry to hear about your new lump Lulu, Bummmer! and you are so fantastic giving support and advice to everyone xx
Right off for Ovaltine and slice of Toast now… No wonder I couldnt get my Motorbike Trousers fastened this afternoon, Need BIGGER Expanding Waist. on pants not me!!!
Hope you Ladies manage to get some sleep.Good Luck at Hospital x
Hope the ovaltine and toast helped lull you to sleep, gooseberrygirl. The steroid effect is pants, isn’t it?
Laurie, good luck for tomorrow’s CT scan. Your right’s are to get your money back from Hamley’s, by law they cannot insist you accept a replacement for faulty goods, if they try to, tell them you understand the Sale of Goods Act, consumerrightsexpert.co.uk/faultygoods.html Enjoy your retail therapy and do let us know if you find any Charity Shop bargains. Have a good day.
Cackles and Lulu, I hope you eventually got off to sleep at a not too late time.
Libby xx
Morning all. very late to bed and now awake early. And I don’t have steroids that I can blame…
Good luck to all waiting for scans and other investigations. The Waiting Room never gets any easier however many times you end up in there. GG , I haven’t even bothered trying on my leathers because my bike’s been off the road since before I was diagnosed. MUST get round to sorting it out, would be lovely to get out on it again.
Hi Choccimuffin,
I have not ridden for years, used to have amongst others Ducati Monster, so have just bought an 06 Suzuki SV 650 unfaired, Took it out on Sunday, around grounds, very nervous,need to get Chemo weakness and ditheryness away, Just had last Tax, Think we all need things to look forward to and challenge us a bit. What Bike you ride? Yippee Spring just around the corner x Depending how Rads is thought I might try to ride to Southampton on it each day, less boring than the car LOL x
GG, get yourself booked on a BikeSafe day, which is run by your local police. Best thing ever for helping you remember all the things you’ve forgotten while going rusty. Mine’s a Virago 535 (Harley wannabe) but it needs some TLC before I get on it again. Now where did I put that toolkit…?
Wonder where this thread had gotten buried… Thought I’d unearth it again seeing as I’m doing the u all night thing.
Think I slept too much yesterday so now having an awake night to make up for it.
Hello to any other night owls out there
Lxx
Hi Lulu,
Hopefully you are back in La La land and fast asleep again…I think I may try in a while but am catching up on the postings b4 hand.
Some of the pain people are living through sounds a nightmare, I was in that place when first diagnosed but so thankful it has all but gone now after radiotherapy and massage. To have elephant legs and back pain too, not sure I would be so happy go lucky at this time, Sending hugs and luv to all who are at that place now, thinking of you x
Catch u up mayb on a few minutes :o)
Clare xxx
Morning
Woke early & after shuffling to the toilet and sorting out the various tablets that I need to take before & after breakfast though I’d just have a quick peak on here! I see you’re awake Clare. Hope you managed some zzzz during the night!
Twinky x