Oh well I only got given the chemo news yesteday and I have aleady had the most insenstive thing said to me by a “friend” on facebook.
She has deleted it now after a few jumped on her. But basically I was told, that all the girls would be ENVIOUS of me having lots of WIGS when my hair has gone!!!
SGL - well, they can effing BUY SOME then! What is stopping them?
Hurray for the friends who told her she was out of order SGL!
SGL, blimey what an idiot ****!
Tollie, good on you!! wish I could have seen his face!
Hi Jill
Well done you and as JulieD says -wish I could have seen his face.
You painted a vivid picture- made me laugh out loud!
Diana
Attagirl, Tollie! Definitely my style!
Someone on Facebook posted that really trite “all a person with cancer wants in life is to fight cancer” status, and I’m afraid I’ve been in a really grumpy mood all day so the poor sod got it with both barrels in response, starting with “that’s a crock of ****” and going on from there. Then another person posted the same thing, as it was extolling people to post as their status. So I reloaded and THAT person got it with both barrels as well!
I am a very naughty person, but honestly, what did they expect?!
CM-atta girl-that status annoys me too. I made my own "All this person with cancer wants is to feel normal, and be treated normally by her friends. She does not want people putting trite messages on FB! "
Harpie, I wasn’t that polite… I notice the one I really let rip at has removed that status completely - I’m expecting to be removed from his friends list too! (Not a problem, he’s a virtual friend rather than a physical one.)
My take on it is…"all a person with cancer wants in life is not to have beeping cancer "!
Oh dear what a load of f***wits that post these mad things especially if they aren’t the ones with cancer.
I love the great line that someone said on here…" if you don’t have it…you don’t get it… ".
More power to everyone for telling it how it is.
I am so pleased I found this. I thought I was being ungrateful to people who were “trying to help”. Ive just had a lumpectomey and lymph gland removed, am due to start chemo in about 3 - 4 weeks. I am going to keep a note of your responses to the “helpful” people. Ive already had the “better to be alive than have hair”. Better to have caught it now, you are so brave, how are you managing to be so brave???
Kelly - just wait till they tell you how beautifully-shaped your head is…
I am absolutely petrified at the thought of losing my hair, eyebrows etc. already heard, just think you wont need to shave your legs!! Yeah great. Ill remmeber that when I feel so ill I can barely lift a finger, who the hell cares about their legs being hairy!!! How did you cope with the thought of losing your hair. All Im getting is well at least you are alive.
I’m not sure that I have coped - I’m just tolerating it. Since we’ve got into June/July I’m going commando due to over-heating. The first time I went into Tescoids like that, it was scary but now, I don’t GaF. It will grow back - I have 0.5mm of re-growth now.
Oh, I’ve had the “it doesn’t matter if your hair falls and your nails come off if you’re alive”. Well, I replied - I’m a woman , it DOES matter to me!
Hi Kellym,
I wasn’t worried about losing my hair at first, until it actually happened. I had long hair and first had it cut to shoulder length, about a month later I had it cut short then after the first chemo I had it shaved. I would certainly recommend shaving it before it starts to fall as it kind of lessens the visual change.
One thing I wasn’t prepared for and I’d never heard of was that before my hair fell out it actually hurt, not horrifically, and so I didn’t wait for it to fall out it became very loose so I sat one night and pulled it out - it was loose - this instantly stopped the discomfort. Although I cried I soon got used to it.
People do dismiss the upset of losing your hair as being nothing but it can be very upsetting, at first I thought I looked just like Jack Nicholson in the Bucket List but you do get used to it now I actually think I look quite pretty in my headscarves and lots of make up! 
I am also showered dressed and ready to go out REALLY quick!
One thing that really annoys me is so many people ask me to take my scarf off so they can look at my bald head!! WTF!!
Hope I’ve helped and not worried you more. x
Hi Kellym and everyone - losing hair, yes it sucks! I wont lie and trust me it is worse the actual thought of it (was for me but i know everyone is different) I used to do hair modelling - redundant now of course, but my hair was long waist length and very dark brown/black and I was gutted and spent many a time crying and hating everything and esp as u say listening to people saying at least u alive, not gota shave legs etc etc!!! I too had it cut short to get used to it and tho knew of the tingling i didnt get tht,but it did start to come out aftr 2nd chemo 2 weeks after having it cut, i hated it short so bad but now my chemo is fin and i am so bored of being bald that short style would be godsend to me now tho i do have about half an inch all over.
Its true re getting ready, quick in shower, put bandana on, make up earrings etc and good to go and then get sick of hearing how “glamourous” i look, i did look bettr than i thought and got referred to Shropshires answer to sinead oconnor but i know it suck really i do but for me the sooner its gone the sooner it will grow back and it will/is. Love to u all and positive thoughts, keep posting, in this cancer cr@p its the best place to be to get that know how u feel support. Shar xxx
Kelly I didn’t even get the luxury of stopping shaving my legs… Though I was bald as a coot everywhere else… Eyebrows, nose hairs, lady garden, even my hairy big toe was bald but my legs still needed regular shaving. Talk about adding insult to injury!
A big glass of wine and somebody who is good with hair clippers helps with the hair loss. I’m now 18 months post Chemo and my hair is almost shoulder length again… It was down my back before Chemo.
Take care hunny xx
Sandra, the conversation continued on another friend’s FB wall regarding the “all a person with cancer wants” status, with a response from a teenager who’d had non-Hodgkins lymphoma saying that that WAS all he wanted. I pointed out (politely) that there is a difference between a child with cancer and an adult with cancer, as an adult’s responsibilities don’t magically disappear with the cancer diagnosis and they still have the regular worries of life. Can’t be bothered any more, I’m far too busy being inspirational! (And VERY bolshey!)
i got a text a few days ago… apparently it was " I love you sister day"… and i was meant to forward this text to all my female friends… it went on about how good friends are like bras… a good bra gives you a lift and support… blah blah blah… and that by sending this on i would have something good happen!
i didnt send on… 2 days later sender texted to appologise, not accepted yet!
I bumped into an elderly neighbour the other night who I’d not seen since diagnosis, he was asking how I was getting on and said how sorry he was for me, he then said ‘but even with cancer you’ve managed to put more weight on’!!! Good job he’s old or would have got both barrels.
oh Joannie, i nearly spat my tea across the room then. Bless ya, old people just have noooo tact whatsoever. My mum will soon tell me i look fat but u don’t expect it from anyone else. Things people say never fail to surprise do they! x