When to give in and stop treatment

Busy time in hospital. They drained the ascetis last Thursday but by yesterday she looked 8 months pregnant again, but this time the fluid was in a better place so her breathing was not affected.
They took seven goes at putting the needle in to drain it again
( under anestetic ) but they still could not get the fluid out. So today she had an ultrasound and they marked an X on the spot to drain it. In comes senior Onc and she could not drain it either !!

Anyway we have to go back Thursday and they say they may put a permanent drain in. Funny thing is she is eating better than for the last two months and looks really well ( other than looking 8 months pregnant ) Still very severe pain in her left leg which is stopping her walking but we are getting crutches tommorrow ( no chance of getting her in a wheelchair !! )

XX

Terry - don’t know much about permanent drains but the last time I was in the hospice, the lady next to me had one and it all seemed so simple to operate and painfree as well so it may well help with the awful situation you are in.
Glad she is eating better and hope that continues.
Thinking of you both
Katex

I just thought I would add a picture so she is a person not just a name. Taken 2 and a half years ago just before this cr—y bug got her.

XX

Lovely to meet you Mrs T. Hope you are feeling o.k. and enjoying time with your son and the rest of the family.
Love to you all.
Love Debsxxx
cancer can change our appearance on the outside but it can’t steal our soul and I believe beauty comes from within.xxx

That’s a beautiful picture of your wife Terry.

She looks so happy in the photo - she is a very attractive lady and very, very lucky to have such a supportive husband.

What a beautiful and happy picture! It’s lovely to see that picture. Please tell her that I think she is so lucky to have such a supportive and loving husband and I hope you are enjoying your time with your family.
Katexx

what a lovely photo, very very attractive lady.

Vic x

Thank you for the nice comments.

Just got back from the Onc and they have put a permanent drain in, so that should help things. ALSO they are going to try one more chemo, don´t know the name yet but I will find out tomorrow, at least that means things may not be that immement.

XX

That’s good news Terry - hope your wife is able to cope well with the chemo and that it gives her a good while longer, you must both be very pleased given how things were looking a week ago. And agree with everyone else, that’s a lovely, happy photo of her.

Lesley x

That sounds better news Terry. Best Wishes to you both. Belinda.

Great stuff you two. I’m glad about the chemo and I hope it is successful, without being too arduous. Best wishes to both of you

What a roller coaster you two are on. Just wanted to add my good wishes to you both and fingers crossed for some success and relieve on the new chemo…

Love and hugs
Heather

Dera Terry

Lovely to see a picture of your wife. I am so pleased for her that she is feeling better than she has been, and that her son was able to visit. Hope the chemotherapy has minimal side effects…and buys some extra time, but if its hard remember that you can chamge your mind about having it.

very best wishes

Jane

So glad to read your wife is more comfortable Terry, and there maybe another option. I hope that is is as gentle as can be and it gives you both more quality time together.

Thinking of you both
Nikki

Pleased she is more comfortable and hope the new chemo helps and does not have such bad side effects.
Thinking of you both
Katexx

Pleased to hear shes more comfortable and hope the chemo helps.

Vic x

Hi, Terry and Mrs Terry

Very pleased to meet you, Mrs T :-). What a lovely photo.

Also very pleased that you’ve spent more quality time with your son and wonderful husband. You make sure you hang on to him, he’s quite rare.

Best wishes.
Maureen xx

Hi Terry

Have been popping onto this thread regularly to check on how things are going for you both. You two are amazing - ye are really giving this BC a run for its money. I think its great that Mrs T is eating well and in good form as she will need to stay strong to take the chemo. You will probably still be emailing this site in 5yrs time letting us know how Mrs T is doing - and I hope to still be here reading the updates :slight_smile: Great photo too xx

Maria

Busy time at hospital.

This weekend not so bad, really tired but fairly normal.

Sunday night realy bad pains in left leg again but morphine tablets helped.

This morning due for Onc appointment. Onc said it looked like the latest Chemo was working a bit as her ascetis had not come back so bad, so she sent her off to the chemo ward to have her drain dressing changed.

She felt a little breathless and dizzy, then was sick, almot neat blood, the onc was called who looked grey with worry, she was sick six times in total, all neat blood, needless to say into emergency and they looked inside her ( cannot remember technical names ) one of the veins in her osopegus ( spelling )had broken, not sure why. They put a expanding collar in her throat and that stopped the bleeding, but now she is on no fluids or food.

Talking to her she is feeling a lot better but the Doc said she is now gravely ill and in a serious condition, but the doc on her ward said she is now stabilised, the confusion is the really hard part. It is now 0130 am and we have got most of the family over from the UK but we still do not have any answers. My only guess is that it is a side effect of the Avastin which is well publicised and is very dangerous.
Please pray for her ( Kathy )

XX