Where did I go????

Loving the dog!!! Made me smile xxx

Had a lovely time with my “old” young friend - good coffee… lovely lunch… just sat in same place and talked for England. She told a story I thought might cause a smile or a laugh… talking with new patient, taking a medical history… Have you had any other major health issues? “No”. Nothing at all? “No. Nothing”… Only, I can’t help noticing that you seem to have lost a leg!!! Monty Python or what?? She said her great achievement was keeping a straight face, while the specialist nurse in the corner disolved. Perhaps you need a warped sense of humour, but I fell about…

Doz - how are things today?

and everyone else?

have a great weekend flutterbies - the forecast says we should be able to land outside and enjoy the warmth on our wings…

Jane xx

Jane totally wonderful!PRICELESS! Spreading said wings and so hoping it works like a solar battery and gives us some spoons!!! Glad you had a lovely day ,they are so good for you. Shame they don’t come on prescription! Spoke to an old colleague today who has had cancer of the liver he was so funny,we swapped chemo stories then he said something that really touched me about how he has dark days then he also has those days where the sun peeps through and he can see a bit of blue sky ,these he said make him carry on. This is a man who has been through the mill and you know what? it made me feel humble 'cos he has had two ops in the last year and looking like another but he said he is doing it chin forward and head up! I know I can’t predict what will happen but I will be sure to take some time to watch that blue sky! Hmm that was deep for me but it has got me thinking! I so hope the sun is out and we all get a bit of blue sky!
Em xxx

Moaning Moth here…
1.00am been up since 5 this morning… its been a pretty stressful day all round!! But girlie is tucked up in bed now and settled on her cocktail of pills patch’s and pampering…
It started with Vikki going into another spasm just before I was due to get ready for my 12 hr shift… CRAZY that she is still at home and totally wrong!! I missed getting my shower so I could sit her through it but with the patch a common side effect is clammy sweats and low BP and she got the lot… though didnt last too long this time!!
I felt dreadful leaving her but didnt really have an option and to cap it all no thanks for going in and a slight mutter of concern that had I blinked I would have missed!
She had strict instructions to call an ambulance if she had another, thankfully she didnt and the day was spent with her sleeping on and off and me fretting like a good un!!
We’ve had a peaceful evening and now its time for BED woohoo!!!
Off tomorrow… er today!!! so a lie in hopefully is my agenda and just a bit of me time is the order of the day :slight_smile: night night flutterbys and yes Girls countdown to Afghan’s return is well and truly ON!!!
Have a lovely weekend to one and all and as Em said I hope the sky stays blue :slight_smile: xxxxxxxxhugsxxxxxxx

What a lovely day its been Flutterbys :slight_smile: YES that was a smile!!

Still no progress with poor old Vikki but she has stayed in bed and is trying really hard to rest…poor lass :frowning:

Which has left me to do some spring cleaning… and the sun has shone all day so lots got done and how good that feels :slight_smile:
Went to get my car to do a bit of shopping and it had a flat tyre!!! NOT to be phased I jollied off and got it fixed!
Your blue sky wish came true Em and how much better we feel for it!
Ran out of this new found spurt about an hour ago and now chilling with an Indian curry and a good old cuppa, would have prefered a glass of something but work tomorrow so best not eh!!
Hoping your all having a lovely weekend and the sun shone for you too…
Love and hugs xxxxxxxhugxxxxxx

Hi everyone wrote a long post on Thurs night only to find it hadn’t gone stupid or what. Never mind have caught up with all your posts and did laugh about patient who hadn’t had much wrong but had lost a leg.I once was assisting a patient to move up the bed (didn’t know him) and asked him to get hold of his monkey pole and dig his heels in his reply was he didn’t have any and all of the room was laughing as it was a set up I just couldn’t stop laughing either at there sense of humour.
Doz glad you liked the card hope it cheered you a little bit. n o you are not a moaning moth you are a lovely flutterby.
Emmy looked at the lovely blue sky today and thought how lucky we are really as there are always others worse off.I found out today an old work colleague has brain mets and is fighting it well she is lucky to be treated at The Bobby Robson unit in Newcastle so thoughts are with her.
Ami Crabbit Cackles G.I.Jane and anyone else I have forgotten to mention hope you are having a nice weekend I have my daughter here with my 2 scottish grandsons who are so excited as they are off to Florida on 27th wish I was going too.Love to all you butterflies and a huge hug Janice xxxxxp.s hope this goes this time ha ha

DID IT night night everyone xxxxx

why are we so variable? I had a great day yesterday… and today feel rubbish. Been really low (which is unlike me) and just “off colour”… had 13 round for the evening (bring and share fortunately, but you have to get the house clean/tidy) Arm came up with a vengeance… and just before they arrived I got called out to Intensive Care… Actually, that got me going, so no bad thing I suppose. OH has just done ALL the washing up and clearing up, bless him…

Hope the pager doesn’t go during the night, cause I’m really tired… wings wilting…

sorry - I’ve not half the problems of some of you… should head off to the Guilty Bench, only I haven’t got the energy…

night night flutterbies… sleep well… sorry…
Jane

Jane… just had to quickly post before I wing my way to work…
Bless you its not often you have an off day and when you do your in the right place to off load!
Bring it on and let it go… and hope today you feel a bit more refreshed we all empathize and have been there xxx
Love to you all and Janice I shoul’nt have laughed… but I did :slight_smile:
xxxxxhugxxxxx Have a good day all!

Jane we are all human and you have to allow yourself that down time, I know it is horrible but then I tell myself how on earth would I know I am having a good day if I don’t know what a bad day is? It’s one of life mysteries lovely IT IS ALLOWED! I think we sort of need these days to remind us to be gentle with ourselves and take some me time to flutter gently in the sun!Sending you flutterby hugs ,extra spoons along with blue skies. Big group hug and take your time you have given out lots of positive hugs so have loads back! Em xxxxx

thank you Doz and Em… means a lot…you are so right about needing bad days to appreciate good ones. As they saying goes “all sunshine makes a desert”… pager went off at 12.45am this morning… got back just over an hour later… could NOT get back to sleep again! and… when I did…about 6… DD’s dog started!!! My colleague is off this week, so it could be a tough week! However, only two days (and one more night) on call before I get a day off for my burfday… take care flutterbies… have a good week. Jane xx

Hi Flutterbys
Yes Jane it does take bad days to appreciate the good… tho as much as i’ve said that, WE really dont deserve them or need them do we :frowning:
I hope the rest of your rota is a little less stressful xx
Vikki… the saga goes on, Urgent referal came through 2 and a half weeks to wait :frowning: really not good, so I’ve decided to send her Private as much as its against my better judgement and would have hoped that the NHS would’nt let us down it has… and to make me even more cross because were paying she can be seen tomorrow!!!
AAAAAAAAAAAAAAAAAAAAAAAAAAAAAARRRRRRRRRRGGGGGGGGGHHHHHHHHHHHHHHHH!!!
Screaming wont get me anywhere will it :frowning: but at least now we might get a diagnosis… so tomorrow it is!
I had trouble at work, to make the day even more s**t I am a double shift tomorrow so asked if they could let me go at 1 to get her to app, for 2… I was told i’d have to get someone to cover me?? tried every member of Staff and no’one could do it…
SO I BURST INTO TEARS in the middle of the Ward!!! I’ve just come to the end of my tether with it all and seeing the poor girl writhing in agony for the best part of 2 weeks has been dreadful!
Finally it was suggested I go at 1 and come straight back after the app, So compassionate!
But at least there is now light at the end of the tunnel and hopefully we will get something done.
I’m so grateful to you all for listening and letting me waffle on and not ignoring me bless each and every one of you xxxxxxxxxxxxxxxxxxxxxhugsxxxxxxxxxxxxxxxxxxx
Count down well and truly on…6 DAYS to go to see Afghan Dan :slight_smile:
What a crazy mix of emotions!!!

Oh Doz what a rotten time you and yours are having just to let you know we are all here for you through the bad and the good days.Hope the bad days get less for you and Vikki I am sure you will both feel better when Dan gets home.I knew you would laugh I still do he’d been an amputee for years and loved a joke
Jane poor you I am useless if I don’t get enough sleep and do sympathise I do hope this week isn’t too bad for you
Emmy you are so right if we didn’t have bad days we wouldn’t appreciate the good ones.
Ami I have taken a leaf out of your book and been in the garden tidying up and getting stuff ready for the plants when I am sure the frosts are gone I am enjoying this weather but its still only March and chilly at nights
hope all you other flutterbys are okay hugs to all love Janice xxxxxx

Well Emmy, the skies have literally been blue the last few days and I’m sure it makes us all feel a lot brighter. By the summer you will have finished the dreaded Herceptin and then after a while you will begin to feel much, much better. I can’t function properly on a lack of sleep, Jane, so I’m hoping you will get a proper night so as not to feel so off colour. I always remind myself to just look back to how ill I was and then I realise how much better I feel. I think we soon forget how we’ve been as the process of recovery is so gradual. Are you having a ‘burfburger’ for you ‘burfday’ or will it just be ‘jelly & tustard‘? Don’t forget to save plenty of desert spoons for the exciting day!! Doz, you sound as though you’ve had all the stuffing knocked out of you and you don’t know which way to turn! As for poor Vikki, it’s just going on and on, she must think her pain is never ending. I really do feel for you both, flutterby. I’m delighted that Vikki will be seen but it’s really awful that it can be immediate if we pay. I remember many, many years ago - being advised to pay for the first consultation - but it did actually get the ball rolling, which is a pretty terrible situation. I could not get back to sleep after 5 this morning so got up at 6 to look out the window only to find the mist a pea souper. I was so early, Doz, I could have stood in for a shift for you!! On the other hand - perish the thought!! They would have thought I was a patient, that’s as much as I know! Janice, I keep doing a little bit in the garden each day, but I’m so unfit after the winter and then to top it, my fracture. I could actually use the big fork (the garden fork, not the dinner fork) for a short while today so it must be healing OK now. The weight must come off now though - I’ve lost 2lb since last Wed. Just planted 70 Freesia bulbs which we got free, hope they come up. My mum never had success with them, but they smell divine, don‘t they!
Hope everyone else is going to post soon, in the meantime, big hug to all,
Ami xx

Oh Doz! What rubbish leadership you work under! Actually, it’s the pressure all wards are under now, with all the “cost improvement” requirements year on year… but it makes life unworkable!

I am thinking of doing a “good” “bad” analysis one-year on… things like Good: I have eyebrows Bad: I have one eyebrow shared between two eyes! Good: I have hair Bad: So do my legs… and so on…

any others? love and weary flaps…Jane

Morning Flutterbys

Jane what a brilliant idea :slight_smile: its almost like when you meet a boy in your teens and put all the good/bad points down on a list :)to see if he is the one… it reminded me of this gorgeous boy I met when I was 16 who had eyebrows that looked like caterpillars… he was dumped!!!
Yes I did that too ha ha!!
Its D Day and hopefully by tonight Vikki’s mind will be put at ease its worn her down so much and last night admitted she was having really bad thoughts about what if… and the dreaded word came out!
It really got to me as my BC experience has obviously touched her more that I ever realized :frowning:
I hope your fluttering a little higher Jane bless you its not a happy place to be when your tired and low big hugs and spoons on their way xx
Janice who’s that gorgeous colourful flutterby on your posts :frowning: so summery it makes you want to smile :frowning:
Have a good day flutterbys and Em easy going hon towards your next H xxxxxxxxxxxxxhugsxxxxxxxxxxxxxspoonsxxxxxxxxxxxxxxxx

Be thinking of you today Doz - and Vicki - countdown going too…!

I slept well, so I’ve got more spoons today, which is good cause it’s another night on call. BUT THEN I’ve got tomorrow off (and it’s my cancer birthday) so I shall have a lovely time with DD who’s got the day off too.

I have another good/bad: Good - I can taste food again. Bad - most of it sticks to my hips!

Have a good day flutterbies - let us know what doc says Doz…

flutterhugs…Jane xx

Today has been the worst of all days :frowning:
Consultant has ordered an urgent MRI scan and is sending her for Epidural injections to see her through till MRI is done and results come back…
He suspects she has ruptured the disc above the one removed 3 yrs ago and if he is right he said she has a very serious problem to deal with.I’m heartbroken for her and feel so useless she has been in agony since the drive there and can hardly stand now, There is going to be a massive question asked of A&E if she has damage to her spine through their total lack of concern and sending her home with just painkillers and a few exercises (which may have done permanent damage)
I’m so unhappy and my poor girl is inconsolable… will post soon flutterbys as so much is going on love you all big time… flutter gently and take care xxxxxxxx

Hi Doz
I feel so sorry for you both! I was hoping for some uplifting news after your appointment today. Still, they are beginning to get to the bottom of things and that is positive - you both couldn’t go on like you were. After this horrible day, tomorrow is a fresh one, I hope you can find the strength from somewhere to move forward with all this. Hope you don’t have long to wait for the results. Coddle yourselves and spoil yourselves in whatever way helps to cope. Have you anyone near to turn to? I’ll be thinking of you both. I’ve had a stressful day today but as I say tomorrow is another, hopefully better, I’ll try and sleep and so should you - if you can! Big Butterfly and Little Butterfly, night night.
Ami xx

Big big hugs Doz… Let us hope they can splint it for her. Poor girl it makes you want to scream at the poor Casualty performance. With those in its care. I had the same with my daughter and I wish I had gone to PALS.they could so easily have caused a paralysis. Like you I work in the NHS and some things are brilliant others awful. As for looking after their staff…least said.there isn’t a government target for that…just a survey which is ignored.

Jane the same odd things. Hair face …plenty -,need to shave like a man. hair legs- black and long - need lawn mower. Hair bikini line… Need trousers in swimming pool. Hair head- need more . Hair colour- white black and grey - need dye. Body fat need diet. Eyelashes short need Khol eyebrows half each side . Need painting in. Most of all need energy and sleep. How is that dog?
Ami you give me inspiration.
Emmy I needed that group hug thanks…sorry if I butted in semi stranger that I am!!!
Cackles